Introduction

[Guest guest]

Hello!

I am a 24 year old woman diagnosed with CMT type 2 about one year ago, although

I had been suspecting the problem for many years prior to diagnosis. I have two

uncles with CMT as well, each with very different presentations and severity. I

have a loss of vocal cord function and weakened diaphragm, both of which affect

my daily life more severely than my weak feet and hands.

I do all that I can to stay informed and to be proactive about this disease. I

also have fantastic medical insurance, which allows me to pursue care without

too much concern for cost. Right now I visit a physical therapist every two

weeks and perform strengthening exercises at home every day to protect my feet

and ankles. I wear orthotics to help reduce some of the foot pain, but no AFOs

or ankle supports yet. I also work with a massage therapist once a month, which

has GREATLY reduced the pain in my feet and hips, not to mention the stress

relief. I also try to maintain my general health and take a multivitamin daily.

My personal feelings fluctuate daily from acceptance to fear to anger to

frustration. I am looking forward to gathering information on personal and

medical strategies from you folks and for sharing anything that I can.

Becky

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