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[Guest guest]

Hello,

I am Pamela, I am 35, and have recently been diagnosed with advanced

neuropathy in both feet, due to CMT that I inherited from my Mom. I

also have had horrible stomach issues and am being tested for IBS,

now. I am so very overwhelmed by the medical bills, medicine costs,

and over all depression as I have 2 beautiful girls, 4 and 2yrs old.

I just read a quick post about someone else mentioning the IBS and was surprised

to hear the relation, as my gastroentestonal doc, said he didn't believe there

were any correlation.

I just phoned SSA for advice due to the pain and cost issues and was told that I

make too much money to qualify for help or disability, unless I care to more

than half my work load and wait 5 months to start a review to see if I qualify

and IF I do, the Medicare won't set in for 25 months later.

I am just wanting to stuff my head under a pillow and stay there. Can

anyone help me out or give some suggestions?

I've also been advised to have reconstructive foot surgery on both feet, which

includes 2-4 months of healing in a wheel chair and 2-4 months of rehab. I don't

have that kind of sick or vacation time and my house payment depends on my

working salary.

I find myself holding my breath with what I can't figure out to do. Also, I

feel as though I am borderline depressed as it doesn't take much to send me over

the edge.

I understand the as a CMT patient I should avoid alcohol, but a glass of wine or

two really helps surpass the pain... ??

Pamela ~all tied up in knots in Puyallup~