Legs hurt

[Guest guest]

I have only known that I have had CMT for about a year and a half now.

I just started takin Neurontin again because my feet are killing me. I

hate this drug because it affects my mental acuity.

I work with toddlers as a Montessori teacher. I love it so much but it is

getting increasingly hard to do. I lost my balance and knocked a child to the

ground yesterday. I think that I will not give up the job, though, until they

drag me out kicking and screaming.

I am also a musician and had three gigs in another city this past

weekend. It was very painful but extremely rewarding.

Does anybody know why my thighs suddenly hurt so bad? I thought this

was only supposed to affect my calves and feet?

By the way, I have really bad ringing in the ears too, which seemed to

start around the same time as my CMT symptoms and it seems to get

worse as my other symptoms get worse.

It is my birthday today. 38 years old and I feel like I am 70.

[Guest guest]

Your thighs may be hurting from 'overwork weakness'. CMT can also

affect thighs, arms, hands, etc., it is not limited to feet and hands.

~ Gretchen

[Guest guest]

Happy Birthday to you!!!!!!! 38 is just a spring chicken.

Hope you have a wonderful day.

CMT can affect any part of the body it likes. LOL

I have weakness in my hand and wrist as well as my legs.

Take care

Sherry

[Guest guest]

I don't have an answer for you but I can relate to your pain. I also get a

burning pain in my upper thighs and I haven't found any causative factor for it

except maybe a general fatigue. IOW, I

seem to have more pain there when my whole body gets overly fatigued --NOT as a

result of overworking the thigh muscles.

I've asked my doctor about it but he doesn't seem to think it's a big deal --

" Well, it's not a blood clot. " -- and doesn't help me find an answer to why it

happens and what to do about it.

Maybe that's just it -- there's no real answer so we just have to live with it

like all our other CMT symptoms.

[Guest guest]

Happy B'day. I cut my dosage of Neurontin in half and it still

controls my pain; why take more than I need when half the dosage

works well.

My hips hurt at night when trying to sleep; I have to lie on my side

because I cannot breathe while lying on my back. I constantly have

to turn from side to side when my hips hurt, causing me not to be

able to sleep well at all. I do have to use a C-PAP machine at

night, by the way, and twisting and turning while wearing a mask

with a hose attached to it isn't much fun either. I never

considered the aching hips as being related to CMT.

You are the first person with CMT that I have heard mention the

ringing in the ears. Mine has gotten much worst within the last

year, sounding like the constant buzzing of a bee. I'll have to

talk to family members and relatives with CMT about that, xince they

haven't mentioned it.

My best wishes for you,

Joe