Guest guest Posted December 2, 2006 Report Posted December 2, 2006 Hi Matt, I am aware of this, however I have been unable to check out Shapiro's credentials with U of P and I am also suspicious of his claim. Think about it. Why would a biochemist with CMT completely arrest his CMT and then sell the rights and patent to a biotech? Driven by $ instead of helping people, perhaps? And on that newswire, it said CMT is " similiar " to ALS. No it's not. CMT is an inherited(genetic) peripheral nerve disorder, ALS is an aquired (for now anyway) motor neuron disease. Two completely different animals. That statement alone just made me highly suspicious. Selling his " Patent arrestment " to a Biotech like Theragenex in North Carolina, whose website says nothing about CMT, and is all over with so many other diseases, justs put CMT on the back burner. I found no research written by Shapiro regarding anything about CMT. I also found a Shapiro at the Genenome in Walnut Creek, California, and quite a few attorneys with the same name, lol Let's work on this. , come and tell us your story. We are your people. 90,000 of us in the USA now with CMT need your help. If you have truly found arrestment for CMT, tell us, write a paper, contact organizations, let it be known and out in the light you wish to help people that suffer as you once claim you did. Has your arrestment strategy been proven? Has it gone through the assortment of medical trials? FDA approval? What were the results? Do you really want to help others with CMT or do you want to just make zillions of dollars? ~ Gretchen Quote
Guest guest Posted December 2, 2006 Report Posted December 2, 2006 I agree with Gretchen's assessment of this " claim " . We need facts, and help. P. Quote
Guest guest Posted December 2, 2006 Report Posted December 2, 2006 Hi Gretchen, Yeah, I don't have any idea about the credibility of this news release and I don't know anything about Theragenex. I'm pretty sure that Shapiro started the CMTA. I sent an e-mail to Preston, Director of Corporate Communications of Theragenex asking for additional information on the news release. If I hear anything I will pass it along. Matt Quote
Guest guest Posted December 3, 2006 Report Posted December 3, 2006 Hi Matt, I also wrote to at Theragenex, let's see what happens next. ~ Gretchen Quote
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