Re: Kara, you rock, girl....

[Guest guest]

Kara,

Welcome to our group! You will get so many answers here! Everyone has

such great stories and advice, especially for those times that we get

overwhelmed! :-)

Lynnelle (Mom to Emma 4 1/2 months)

>

> Please welcome Kara and her family. This woman and her husband are

> amazing. Here, read their story....

>

> " My name is Kara. In February I adopted three beautiful identical

> triplet baby boys. They were 8 months old when they came to our

> home. From day one we had questions as to whether they had Down

> Syndrom due to some physical features. But, many doctors and

> pediatricians told us that they saw nothing to be concerned about.

> We stopped worrying. Then, a hospital staff nurse asked us if one of

> the boys had Down Syndrome. Then a neighbor asked. We started to

> wonder again. They were developmentally behind due to a premature

> birth (born at 29 1/2 weeks) and they were drug addicted. It was

> obvious that these were the two reasons why they were 11 months old

> and not sitting or crawling. But now, many parents of babies who

> adopted drug addicted or premature babies are chasing their little

> toddlers around and our boys at 16 months are only standing and

> cruising furniture. They are also very delayed in their speech but

> cognitively they seem only slightly delayed. We finally saw a

> geneticist and wanted to rule out Down Syndrome for good. She told

> us that they only had slight features (flat face, low ears, and asian

> looking eyes-they are 1/2 hispanic) Only one of the boys had a

> square shapped palm with the crease that runs together. Two of the

> boys had a crease on their feet below the big toe. The doctor told

> us that these were not enough signs to completely diagnose DS so we

> did the blood test. Sure enough, it came back MDS. HUH? Well, we

> have done some reading now and we are coming to an understanding of

> what it is. This explains why they vary in their physical features

> and developement and why so many doctors disagreed. We found out

> only 4 days ago and we hope to find a place for support and answers.

> Raising three infant boys is hard enough. Adding Down Syndrome seems

> overwhelming. "

>

>

>

>

>

> Become a member of IMDSA today at http://www.imdsa.com

> *************************************************

> Learn more about MDS http://www.mosaicdownsyndrome.com

> *************************************************

> Contact IMDSA Today at:

> IMDSA~PO Box 1052~lin,TX~77856~USA~1-

> *************************************************

>

[Guest guest]

Welcome!!! Wow, 3 at a time is hard, but keeps you on your toes!! The great

thing about MDS is that the potential for your little ones is greater. We will

be praying for you with your group of guys. Can't wait to hear more of thier

escapades, and if you are able to live through it all with all of your hair

intact!!

Irene mom to Nat 10 MDS, Luke 8, Emila 5, Lillian 3, and Isaac 9mo

wrote:

Please welcome Kara and her family. This woman and her husband are

amazing. Here, read their story....

" My name is Kara. In February I adopted three beautiful identical

triplet baby boys. They were 8 months old when they came to our

home. From day one we had questions as to whether they had Down

Syndrom due to some physical features. But, many doctors and

pediatricians told us that they saw nothing to be concerned about.

We stopped worrying. Then, a hospital staff nurse asked us if one of

the boys had Down Syndrome. Then a neighbor asked. We started to

wonder again. They were developmentally behind due to a premature

birth (born at 29 1/2 weeks) and they were drug addicted. It was

obvious that these were the two reasons why they were 11 months old

and not sitting or crawling. But now, many parents of babies who

adopted drug addicted or premature babies are chasing their little

toddlers around and our boys at 16 months are only standing and

cruising furniture. They are also very delayed in their speech but

cognitively they seem only slightly delayed. We finally saw a

geneticist and wanted to rule out Down Syndrome for good. She told

us that they only had slight features (flat face, low ears, and asian

looking eyes-they are 1/2 hispanic) Only one of the boys had a

square shapped palm with the crease that runs together. Two of the

boys had a crease on their feet below the big toe. The doctor told

us that these were not enough signs to completely diagnose DS so we

did the blood test. Sure enough, it came back MDS. HUH? Well, we

have done some reading now and we are coming to an understanding of

what it is. This explains why they vary in their physical features

and developement and why so many doctors disagreed. We found out

only 4 days ago and we hope to find a place for support and answers.

Raising three infant boys is hard enough. Adding Down Syndrome seems

overwhelming. "

Become a member of IMDSA today at http://www.imdsa.com

*************************************************

Learn more about MDS http://www.mosaicdownsyndrome.com

*************************************************

Contact IMDSA Today at:

IMDSA~PO Box 1052~lin,TX~77856~USA~1-

*************************************************

[Guest guest]

Kara and Family!!

Welcome Welcome!! so glad you found us... I'm always so in awe of people

who adopt children, especially high risk children...and now you have a new

diagnosis, I can understand it must be overwhelming...times THREE!!!

This is a great group... we have lots of experience and opinions and

knowledge between us all, so hope you're able to find the support, and answers

you're

looking for!!

Angel

mom to , 11 MDS/Hirschsprung's Disease

and his 5 sibs

[Guest guest]

Kara - You are amazing. We have two, 2 year olds here and I can't even

imagine what it would be like to add one more. Glad you could join us. I

hope we will be an inspiration to you and a big shoulder to lean on when you

need to. This is a wonderful group and they have helped us a lot.

Donna - Gram to Adam 2 mds and Skylar 2

-- Kara, you rock, girl....

Please welcome Kara and her family. This woman and her husband are

amazing. Here, read their story....

" My name is Kara. In February I adopted three beautiful identical

triplet baby boys. They were 8 months old when they came to our

home. From day one we had questions as to whether they had Down

Syndrom due to some physical features. But, many doctors and

pediatricians told us that they saw nothing to be concerned about.

We stopped worrying. Then, a hospital staff nurse asked us if one of

the boys had Down Syndrome. Then a neighbor asked. We started to

wonder again. They were developmentally behind due to a premature

birth (born at 29 1/2 weeks) and they were drug addicted. It was

obvious that these were the two reasons why they were 11 months old

and not sitting or crawling. But now, many parents of babies who

adopted drug addicted or premature babies are chasing their little

toddlers around and our boys at 16 months are only standing and

cruising furniture. They are also very delayed in their speech but

cognitively they seem only slightly delayed. We finally saw a

geneticist and wanted to rule out Down Syndrome for good. She told

us that they only had slight features (flat face, low ears, and asian

looking eyes-they are 1/2 hispanic) Only one of the boys had a

square shapped palm with the crease that runs together. Two of the

boys had a crease on their feet below the big toe. The doctor told

us that these were not enough signs to completely diagnose DS so we

did the blood test. Sure enough, it came back MDS. HUH? Well, we

have done some reading now and we are coming to an understanding of

what it is. This explains why they vary in their physical features

and developement and why so many doctors disagreed. We found out

only 4 days ago and we hope to find a place for support and answers.

Raising three infant boys is hard enough. Adding Down Syndrome seems

overwhelming. "