Re: Please allow me to beam a little

[Guest guest]

That is great news!!!

Being the mom of a severely hearing impaired daughter I enjoyed sharing your

news!!

My daughter is now seven, and wears hearing aides, she has very good speech

today, going from mute to " Please Kaitee give your voice a rest " lol.... it was

one step at a time, sometimes slow dragging steps other times a marathon

step!!

Debbi

MOM to Matt 19, USN : e 10 (has been chosen to go to Scotland next year

under a exchange student program) and Kaitee 7, MDS , hearing impaired ,

blabber mouth

[Guest guest]

,

That is fantastic! You know, I felt like it took forever for to

start communicating verbally and now that he has it is so nice to have

conversations with him. I treasure every one and you will, too!

Maureen, mother to Tyler, 11 and , 7 (MDS)

Please allow me to beam a little

As you know, I do not have a child with MDS. I joined this group b/c I

have a student with MDS. However, my almost-three-year-old daughter Molly

is Deaf, which has its own set of issues. Molly was diagnosed at birth as

having severe to profound deafness in both ears. As a result, she was

fitted with hearing aids when she was a couple of months old, and this past

March she received a cochlear implant. She has received speech

therapy/aural rehabilitation almost from day one. She has produced a few

words here and there, but is nowhere NEAR talking like a typical

three-year-old. We've been learning sign language and teaching it to her,

but that's moving at it's own pace, as well. The past few days, though,

Molly has started to say, " eat, eat " when she is hungry! At first, I

thought she was just making noises (she's nowhere near being mute; she just

does not have a lot of WORDS in her repertoire of sounds). BUT, I began to

notice that as she was saying, " eat, eat, " she was pushing me to get out of

my chair. When I would get up, she would follow me to the kitchen and to

her high chair! It's SO EXCITING to know that she is communicating WHAT she

wants/needs rather than just crying or fussing to let me know she

wants/needs SOMETHING!

Thank you for letting me share my joy at this accomplishment.

Become a member of IMDSA today at http://www.imdsa.com

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Learn more about MDS http://www.mosaicdownsyndrome.com

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Contact IMDSA Today at:

IMDSA~PO Box 1052~lin,TX~77856~USA~1-

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[Guest guest]

Great job Molly keep up the good work.