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Welcome ! I'm Debi in TN, I have 6yr, 4yr (almost) and 9 mo.

My 4 yr old is autistic, my other two girls are nt. Congrats on your

daughter's gains, we look forward to getting to know you!

Debi

> Hello,

>

> My name is , I'm from Pittsburgh Pa. We have a little girl

> with Autism. We found out when she was 17 months old. She just

turned

> two at the end of May. We do ABA,we have O.T. P.T. Developmental

sp.

> in our home. She went from " Non verbal " not much eye contact.

Did

> not care who was around her. Elmo was her only friend. Yes the

little

> red guy that his voice makes my skin crawl. Now, she counts,

plays,

> loves people, and can even stand her 3 year old brother, and is

not

> so nice to her baby brother . Yes, I have 3 small kids, 3-2-1

> And NO MORE. She does try to sing songs. We have had people in our

> house for the past 4 1/2 months, This is how far she has come. I

have

> yet to try the diet on her. It's something I'm looking into. I

want

> to make sure I do it the right way. It's really great to have a

group

> just for girls.

>

> , Pittsburgh Pa ( Ps) Hi Inna,

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Hi ,

You cracked me up :)

I was just reading the group thinking, hey I know her from the

pittsburgh_autism group, and you said Hi.

To add to the stories, my daughter Sara, 4 1/2, has always been pretty

verbal, but she's taken off in the last 4 months. We've been getting

services since Sept last year. In addition she went from never talking to

another child to talking a lot to other kids. We still have a ways to go --

she needs to learn to talk to the other kids appropriately, but she's really

come a long way!!

Inna.

Date: Fri, 18 Jul 2003 03:25:34 -0000

Subject: New to the group

Hello,

My name is , I'm from Pittsburgh Pa. We have a little girl

with Autism. We found out when she was 17 months old. She just turned

two at the end of May. We do ABA,we have O.T. P.T. Developmental sp.

in our home. She went from " Non verbal " not much eye contact. Did

not care who was around her. Elmo was her only friend. Yes the little

red guy that his voice makes my skin crawl. Now, she counts, plays,

loves people, and can even stand her 3 year old brother, and is not

so nice to her baby brother . Yes, I have 3 small kids, 3-2-1

And NO MORE. She does try to sing songs. We have had people in our

house for the past 4 1/2 months, This is how far she has come. I have

yet to try the diet on her. It's something I'm looking into. I want

to make sure I do it the right way. It's really great to have a group

just for girls.

, Pittsburgh Pa ( Ps) Hi Inna,

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Welcome . I am glad your daughter is progressing well.

Watch where you move if you ever move because not all areas give services

I am from Colorado and I get no services. Everything here based on

income and income alone nothing on disability. Charlene

-- New to the group

Hello,

My name is , I'm from Pittsburgh Pa. We have a little girl

with Autism. We found out when she was 17 months old. She just turned

two at the end of May. We do ABA,we have O.T. P.T. Developmental sp.

in our home. She went from " Non verbal " not much eye contact. Did

not care who was around her. Elmo was her only friend. Yes the little

red guy that his voice makes my skin crawl. Now, she counts, plays,

loves people, and can even stand her 3 year old brother, and is not

so nice to her baby brother . Yes, I have 3 small kids, 3-2-1

And NO MORE. She does try to sing songs. We have had people in our

house for the past 4 1/2 months, This is how far she has come. I have

yet to try the diet on her. It's something I'm looking into. I want

to make sure I do it the right way. It's really great to have a group

just for girls.

, Pittsburgh Pa ( Ps) Hi Inna,

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Inna,

LOL! Hey it's nice to know someone when you join a new group like this. We all

have the same thing in common. This group is a wonderful group.

, Pittsburgh Pa

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Charlene ,

Hello, and thanks for the welcome. I don't think we are going to move any time

to soon. We just bought this house. My husband is going to be in prison for a

long time to pay for this house. LOL He work in one.

I'm VERY happy with the service we get now, at first it was bad.

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Tracey,

Hmmm busy, LOL! It never stops!! With 3 in diapers, two that use bottles. Hell

I'm always broke and tired!! LOL! Thanks for the welcome, this really is a

wonderful group of people!!!!!!

, Pittsburgh Pa

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Pennie,

Hi and thanks for the welcome, she really has come far. Each day she does

something new, thanks for the welcome!!

, Pittsburgh Pa

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hello everyone

my name is eric. better know as abbys dad. my wife pennie has been on the

group for sometime now. at the encouagement of some i joined the group .

perhaps to give a dads perspective, or to help in whatever way i can. i know we

have benifited from this group with our own daughter ( my wife asking the

questions on line) and i would like to give back to the group. it took a couple

days for me to get my info right with yahoo (i am not that great with computers

or spelling as you may see), i'm happy to be part of the group now.

recently kassiane stayed with us for the junoir olpmics. we all enjoyed the

visit. my daughter had a lot of fun. it was nice having someone over who

understood abbys needs. now abby won't let me stop helping her do her

gymnastics. (kassiane taught me a little of how to spot abby for filps and

stuff).

:) it is great to see another way for my daughter to help with her sensory

issues.

well abbys is wakeing up now and will want me to play. take care and thanks

for letting me join the group.

eric

abbys dad

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Welcome to the group Faye! Great people here, I really enjoy this group. Hope

you get the needed encouragment and information that you need.

Abby is my daughter, she is 6.

Pennie

Abby's Mom

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Welcome to the group Faye! Great people here, I really enjoy this group. Hope

you get the needed encouragment and information that you need.

Abby is my daughter, she is 6.

Pennie

Abby's Mom

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Welcome Faye and I to think . I to be Sondra, adult with HFA in Ohio . I

to parent to 4 children's 3 dx with ASD one still undx , but my dx daughter

is to be Missy age 10. My dx sons are to be Isaiah who is 14 and Mike who is

12. My oldest child is much a mild Aspergers child but is so much demand

that she to not be of any dx and so am to be of respecting that for her

right now. She is the one that in much ways gives me most of the challenge

due to her being 15 .I to have 2 dogs Sadie and Libby , and one new baby

kitten named Sassy, we also to be to have a Russian tortoise as my son Mikey

is much fixated to turtles.

Sondra

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Welcome Faye and I to think . I to be Sondra, adult with HFA in Ohio . I

to parent to 4 children's 3 dx with ASD one still undx , but my dx daughter

is to be Missy age 10. My dx sons are to be Isaiah who is 14 and Mike who is

12. My oldest child is much a mild Aspergers child but is so much demand

that she to not be of any dx and so am to be of respecting that for her

right now. She is the one that in much ways gives me most of the challenge

due to her being 15 .I to have 2 dogs Sadie and Libby , and one new baby

kitten named Sassy, we also to be to have a Russian tortoise as my son Mikey

is much fixated to turtles.

Sondra

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Hi Faye

Welcome to the list. My name is Tracey and we have two daughtes. Our oldest

is Coral age 13 (nt) and our youngest is Skylar age 10 1/2 and was diagnosed

autistic at the age of 3. We live in Ontario, Canada. This is a great group.

Its a great place to get advice, ideas, support of sometimes just vent after a

difficult day. Its good to have you with us.

Tracey

New to the group

Hello my name is Faye and I live in North East Indiana with my my

husband and two beautiful girls. Our oldest is starting 3rd grade in 2 weeks

she is a typical 8 year old girl loves to talk to her girlfriends on the

phone have slumber parties and just doing the girl stuff with her friends.

Our youngest will be starting Special Education Kindergarten in 2 weeks

she is the reason we are here. She has so many problems that overlap each

other that it has taken us almost a year to get the diagnoses of Autism

Spectrum Disorder. She has Trisomy X Syndrome, Periventricular Leukomalacia,

Autism Spectrum Disorder and Sensory Integration Disorder as well as

allergies (not sure what to) we are still working on that one. She also has

global developmental delays. She is at the level of a 2-½ year old child.

She is currently in Speech Therapy, Occupational Therapy and we are going in

for a Physical Therapy Eval in two weeks . She has problems with balance,

coordination and walking. I could go on for a long time about the problems

that we have had with insurance and getting help through the school system

but I would be here a long time and I am sure that you all know the problems

that insurance and schools can be.

Faye, 's mom

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Hi Faye

Welcome to the list. My name is Tracey and we have two daughtes. Our oldest

is Coral age 13 (nt) and our youngest is Skylar age 10 1/2 and was diagnosed

autistic at the age of 3. We live in Ontario, Canada. This is a great group.

Its a great place to get advice, ideas, support of sometimes just vent after a

difficult day. Its good to have you with us.

Tracey

New to the group

Hello my name is Faye and I live in North East Indiana with my my

husband and two beautiful girls. Our oldest is starting 3rd grade in 2 weeks

she is a typical 8 year old girl loves to talk to her girlfriends on the

phone have slumber parties and just doing the girl stuff with her friends.

Our youngest will be starting Special Education Kindergarten in 2 weeks

she is the reason we are here. She has so many problems that overlap each

other that it has taken us almost a year to get the diagnoses of Autism

Spectrum Disorder. She has Trisomy X Syndrome, Periventricular Leukomalacia,

Autism Spectrum Disorder and Sensory Integration Disorder as well as

allergies (not sure what to) we are still working on that one. She also has

global developmental delays. She is at the level of a 2-½ year old child.

She is currently in Speech Therapy, Occupational Therapy and we are going in

for a Physical Therapy Eval in two weeks . She has problems with balance,

coordination and walking. I could go on for a long time about the problems

that we have had with insurance and getting help through the school system

but I would be here a long time and I am sure that you all know the problems

that insurance and schools can be.

Faye, 's mom

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Hi

Welcome to the list. Its good to have you with us. Wish I could get my hubby

to join!!! He too is not big on computers.

Tracey

Re: New to the group

hello everyone

my name is eric. better know as abbys dad. my wife pennie has been on the

group for sometime now. at the encouagement of some i joined the group .

perhaps to give a dads perspective, or to help in whatever way i can. i know

we

have benifited from this group with our own daughter ( my wife asking the

questions on line) and i would like to give back to the group. it took a

couple

days for me to get my info right with yahoo (i am not that great with

computers

or spelling as you may see), i'm happy to be part of the group now.

recently kassiane stayed with us for the junoir olpmics. we all enjoyed the

visit. my daughter had a lot of fun. it was nice having someone over who

understood abbys needs. now abby won't let me stop helping her do her

gymnastics. (kassiane taught me a little of how to spot abby for filps and

stuff).

:) it is great to see another way for my daughter to help with her sensory

issues.

well abbys is wakeing up now and will want me to play. take care and thanks

for letting me join the group.

eric

abbys dad

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Hi

Welcome to the list. Its good to have you with us. Wish I could get my hubby

to join!!! He too is not big on computers.

Tracey

Re: New to the group

hello everyone

my name is eric. better know as abbys dad. my wife pennie has been on the

group for sometime now. at the encouagement of some i joined the group .

perhaps to give a dads perspective, or to help in whatever way i can. i know

we

have benifited from this group with our own daughter ( my wife asking the

questions on line) and i would like to give back to the group. it took a

couple

days for me to get my info right with yahoo (i am not that great with

computers

or spelling as you may see), i'm happy to be part of the group now.

recently kassiane stayed with us for the junoir olpmics. we all enjoyed the

visit. my daughter had a lot of fun. it was nice having someone over who

understood abbys needs. now abby won't let me stop helping her do her

gymnastics. (kassiane taught me a little of how to spot abby for filps and

stuff).

:) it is great to see another way for my daughter to help with her sensory

issues.

well abbys is wakeing up now and will want me to play. take care and thanks

for letting me join the group.

eric

abbys dad

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Welcome aboard FAye. I have a friend in INdiana who is

homeschooling her typical children because the schools were bad. She

didnt like the way they yelled at the children, talked down to them and

there wasnt much learning going on. One time she said the boys had to use

the girls bathroom and some boy urinated on the toilet seat her son got the

blame the school made him clean it up and embarrassed him in front of the

class and so forth. So she took him out and homeschooled.

I too have fought with private insurance and finially getting on SSI

and such. My name is Charlene and I have 3 children two with autism.

Charlene

- New to the group

Hello my name is Faye and I live in North East Indiana with my my

husband and two beautiful girls. Our oldest is starting 3rd grade in 2 weeks

she is a typical 8 year old girl loves to talk to her girlfriends on the

phone have slumber parties and just doing the girl stuff with her friends.

Our youngest will be starting Special Education Kindergarten in 2 weeks

she is the reason we are here. She has so many problems that overlap each

other that it has taken us almost a year to get the diagnoses of Autism

Spectrum Disorder. She has Trisomy X Syndrome, Periventricular Leukomalacia,

Autism Spectrum Disorder and Sensory Integration Disorder as well as

allergies (not sure what to) we are still working on that one. She also has

global developmental delays. She is at the level of a 2-½ year old child.

She is currently in Speech Therapy, Occupational Therapy and we are going in

for a Physical Therapy Eval in two weeks . She has problems with balance,

coordination and walking. I could go on for a long time about the problems

that we have had with insurance and getting help through the school system

but I would be here a long time and I am sure that you all know the problems

that insurance and schools can be.

Faye, 's mom

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Welcome . A fathers perspective is nice. My husband has

issues too but he does not always address them. His way of dealing with

things is ignoring and being quiet LOL

Charlene

-- Re: New to the group

hello everyone

my name is eric. better know as abbys dad. my wife pennie has been on the

group for sometime now. at the encouagement of some i joined the group .

perhaps to give a dads perspective, or to help in whatever way i can. i know

we

have benifited from this group with our own daughter ( my wife asking the

questions on line) and i would like to give back to the group. it took a

couple

days for me to get my info right with yahoo (i am not that great with

computers

or spelling as you may see), i'm happy to be part of the group now.

recently kassiane stayed with us for the junoir olpmics. we all enjoyed the

visit. my daughter had a lot of fun. it was nice having someone over who

understood abbys needs. now abby won't let me stop helping her do her

gymnastics. (kassiane taught me a little of how to spot abby for filps and

stuff).

:) it is great to see another way for my daughter to help with her sensory

issues.

well abbys is wakeing up now and will want me to play. take care and thanks

for letting me join the group.

eric

abbys dad

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glad to be here. sometimes it the issues of autisim are a little different

for a dad. i know i often felt powerless to help, and for a 'protector/

provider' that is very frustrating. many men like to be able to fix things fast

and

completely and the issues of autisic children takes a lot of time and

sometimes has set backs, especialy if they are young. and the sensory issues

and

such cant just be fixed but have to be delt with constantly. sometime its

better, sometimes not. the teacher and o.t. and others in the ferndale ppi

really helped with information as to how to get though to our daughter and help

her. and i am proud to say our daughter has made so much progress. take care

eric

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Hi and welcome to the group! Im sorry that you needed to find a support group but glad you found us.. I believe we are the best support group out there!I know its a shock when you first get diagnosed.. but just remember that this disease moves in decades so there is plenty of time to gather all the info you need BEFORE you start any treatment. First off,, have you had a biopsy? You MUST have a biopsy to see IF and how much damage you have to your liver. There is no reliable blood test to see if you have cirrhosis or heavy fibrosis with this disease except a biopsy. It is the gold standard. If you were to find out that you have no damage and that your virus is not moving along at all, you may want to delay treatment until they find something easier and more assurred and not do the peg and riba.. Do you know what genotype you are? You really DO need to gather all the info before deciding whether or not to do treatment.

Treatment is doable for most but it is not easy. I could NOT work past week 12 of treatment because I became so anemic which is quite common on treatment. Plus you need to make sure that your doc will treat your side effects and not just lower your med doses.. Many docs just lower your meds thereby allowing the virus to mutate and then you never get rid of it.. The decision to treat should not be an easy one because there are NO guarantee's with it.. Some reach a sustained viral response or SVR, some go undetectible for virus while on tx and immediately relapse after they stop treatment, for some the meds cause the virus to go into overdrive and they get worse from the treatment, I've even known at least two people who have died from the treatment.. I myself cleared the virus, remain virus free but am very very damaged from the treatment and am totally disabled from the treatment. I was at a stage 3-4 and grade 3 when I was diagnosed so I had to do treatment to keep

my stage from becoming fully a stage 4 which is cirrhosis.. When you reach stage 4, your chances of successfully treating are reduced. There are many pieces of the puzzle you need to gather before you go on treatment.I have known ONE person who was able to work all the way through treatment because she had a desk job and her boss would allow her to take time off of work as she needed it. I was a 911 paramedic and while most of the time was a lot of sit and wait time,, but when it was busy, I couldnt just jump up and run to the ambulance and I had a very hard time making life and death decisions.. so of course I had to stop working and I was never able to return.. The treatment causes lots of autoimmune problems that are now permanent side effects that I will have to deal with for the rest of my life. So as I said, you really do need to have that biopsy to see how much damage you have.There are some things you can do to lessen the side effects while on

treatment,, such as making sure you get enough protein and eating some fat ( peanut butter or cream cheese etc) when you take your Riba pills and drinking nearly a gallon of filtered water EVERY day.. and making sure your doc will give you procrit and neupogen for anemia should you need it... Giving yourself this shot is easy honey,, NO insurance company will pay for an office call every week so you can go in and have the doc give you the shot.. its really a piece of cake. The first one is the hardest but after you do that, its easy.. and you dont want others giving you the shots because it puts THEM at risk of infecting themselves if they should accidently prick themselves with your needle after giving you the shot. Most of us give our shots in our belly or thigh's and when you pinch the skin up, the needle does not hurt, you dont feel it as its very very short and tiny,, like a diabetic's needle.. and if you push the medication in slowly, it doesnt even

burn.. we'll help you honey.. Please feel free to ask any questions and we'll help you.. One thing we always suggest is to get copies OF EVERYTHING from your doc,, all your labs, your biopsy, everything and keep it in a file folder at home so when you come up with a question, you will have access to the info you will need to help us help you. Are you taking any Milk Thistle? It is a supplement you can buy from any health food store and its a good anti-inflammatory for the liver. As always, since we're not doctors, you should run it by your doc and make sure there is no reason for you not to take it, but most docs say ok,, unless they are ignorant about milk thistle.. I will be glad to send you some info on milk thistle if you wish that you can download and print to take to your doc. It wont do anything for your virus, but it will help your liver to be as healthy as possible so it can deal with the virus and treatment. Whatever you do, do not

consume ANY alcohol, as that is like pouring lighter fluid on a fire in the way it causes your virus to replicate twice as fast.. Its not the virus that causes the damage, its the inflammation that the virus causes that causes the damage. Well, that is just a few things for you to think about but please feel free to ask any more questions and we will help you as much as we can.. one other thing,, are you on an antidepressant? If you do treatment , the Interferon depletes your brain of its Interferon and causes serious depression and insomnia... BUT.. one antidepressant,, called CYMBALTA is NOT<,, repeat NOT for us heppers,, its VERY damaging to the liver.. but another ssri would be good,, so celexa, lexapro, paxil, prozac etc are ssri's and they dont have the same damage or black box warning that cymbalta has.. some docs are still RX'ing it because many of us have body aches but its not for us,, so you might want to remember that when talking with

your doc about it.. anyway, once again, welcome to the group! jaxmassgal08 wrote: Hello everyone, My mother told me to join a support group since I will not go to a public one so here I am. I am 27 and was diagnosed with Hep C last May. It has been a rocky trip since then and I have been though a lot of shock from it. I am going to start combination therapy this June. I am most concerned about the side effects of the ribavrin (sp?)and the pegaysys (sp?) and my ability to do my

job. Can you give me some information about this. I am a teacher and am afraid that I will be too tired to do my job. My dr said that this next year of treatment is mostly going to make me tired and I will be able to go to work and that is it. He said that I should do my shots on Friday's after work. How am I going to feel? How do you all feel on the medicine? Can you work out at the gym or go to the mall and lead a normal life or are you very sick and tired for a year straight? I am also afraid to give myself the shots. When I see my GI doctor next month I am going to see if I can have a nurse give me the shots. One more thing. About how much does the treatment cost a month with insurance. My dr said that he would call and let me know but didn't. I am too nervous to call myself. I have a fear of my insurance knowing. But they already know because I was tested for Hep C. The whole diagnosis has

just been stressful. Thank you in advance for your help. Jackie

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First of all welcome to the group. Thank your mother for referring you here. It is a safe harbor and we do our best to protect you. Now on to some of your questions. The treatment for Hepatitis C is very expensive. On the average, the shots will cost you about anywhere between 1500 to 2000 dollars a month, and the anti viral drugs about the same. I had to pay cash the last two months of my treatment as my insurance ran out. It was a blow to my savings. Now on the giving yourself shots. I know that fear and others here have went through it. Ask the doctors nurse to be patient with you and lead you through giving yourself a shot. Hate to say this, but it really is quite easy. And we will be here to help you through it. We really are a great group. If we can be of any help let us know. Love Janet massgal08 wrote: Hello everyone,My mother told me to join a support group since I will not go to apublic one so here I am. I am 27 and was diagnosed with Hep C last May. It has been a rockytrip

since then and I have been though a lot of shock from it. I amgoing to start combination therapy this June.I am most concerned about the side effects of the ribavrin (sp?)andthe pegaysys (sp?) and my ability to do my job. Can you give me someinformation about this. I am a teacher and am afraid that I will betoo tired to do my job.My dr said that this next year of treatment is mostly going to make metired and I will be able to go to work and that is it. He said that Ishould do my shots on Friday's after work. How am I going to feel? How do you all feel on the medicine? Can you work out at the gym or goto the mall and lead a normal life or are you very sick and tired fora year straight?I am also afraid to give myself the shots. When I see my GI doctornext month I am going to see if I can have a nurse give me the shots.One more thing. About how much does the treatment cost a month withinsurance. My dr

said that he would call and let me know but didn't. Iam too nervous to call myself. I have a fear of my insurance knowing.But they already know because I was tested for Hep C. The wholediagnosis has just been stressful.Thank you in advance for your help."There are souls in this world that have the gift of finding joy everywhere and of leaving it behind them when they go" Frederick Faber

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