Guest guest Report post Posted August 15, 1999 - can you share with us the new post-infusion regime that worked so well? Glad to hear that you came through the accident so well and I hope the sore muscles resolve soon. Sue G - Sorry to hear 's feeling poorly. Hope the antibiotics kick in and he can enjoy the rest of his trip. This week sounds like a great bonding experience for you and Mackenzie. - good luck with the wish interview. Helen - good luck with getting the blood and I hope the levels are up or at least holding. Will you have to wait for the appointment to find out anything or will they go ahead and call you with the results? - I hate to hear that is sick again. How did the doctor appointment go? What did they say? I agree that the IDF Consulting program is probably the first place I would call. http://www.netpage.org/PedPID/consult.htm Does anyone have a child who goes to sleep with a pillow over their head? http://www.netpage.org/macey/bed.jpg I think it's sensory in nature but I'm also truly glad her asthma medicines work so well. She does this at night and at naptime. Just curious of any other peculiar sleep habits out there. Ursula - & Macey (CVID) mom Quote Share this post Link to post Share on other sites
