CALLING ALL PMG FAMILIES!!!

[Guest guest]

The PMG Awareness Organization is very excited to be conducting a survey that

will be used to collect information about your experiences with getting a

diagnosis and other health care related issues. This information will be used to

gather data to determine the REAL needs of our PMG families. It will show the

key issues of our PMG families.

PLEASE NOTE: It is CRITICAL that only ONE survey is submitted regarding the

person who is diagnosed with PMG.

With your help, Dr. Perszyk, our Medical Advisor and geneticist from the

University of Florida, will be compiling the data to present at the world

genetics conference in November. This is a HUGE opportunity for us! This is the

world's largest genetics conference and will be attended by all the major

geneticists, researchers, neurologists, radiologists, etc. Basically, if you

could think about who you would want to know about what our experiences are and

what we need, this would be the place!

For more information and to participate, please click on this link:

http://blog.pmgawareness.org/

Together we can ALL make a difference! Thank you for your support.

Catrina Byrge, R.N.

CEO

PMG Awareness Organization, Inc.

www.pmgawareness.org

Email: catrina@...