**PMGA has our FIRST geneticist and we need our families' input!

[Guest guest]

**I have some VERY IMPORTANT news from the PMGawareness.org world! We have our

first GENETICST on our Advisory Board, Dr. Perszyk, who has worked with

Dr. Dobyns in Chicago in the past! We need YOUR help! Dr. P would like to get a

list of questions to pose via survey for OUR families about PMG experiences;

when they were diagnosed, how, what problems and challenges they face, meds,

other diagnoses, etc. The point is to TAILOR A TARGETED research and advocacy

program that is based on OUR family's needs and issues! If you are willing to

participate, please email me at catrina@... ASAP! We are meeting

next Monday and I need to bring survey questions in hand!

Thanks to all for your support as we " Work Together to Unlock the Mysteries of

PMG " !

Catrina Byrge, R.N.

C.E.O.

PMG Awareness Organization, Inc.

www.pmgawareness.org

catrina@...