Guest guest Posted July 25, 2004 Report Share Posted July 25, 2004 Fred wrote: > i was reading in a pancreas site that most people who have this kind > of pain go on a pump. > please help me if you have any info on how to minimize the pain or > where i can go to be treated with opiods. Hi Fred and welcome to the group. I'm sorry your pain is so bad that it brought you to us. I am unfamiliar with the Philadelphia area so can't be of any help with a specific doctor or clinic. I do know that chronic pancreatitis can be excruciatingly painful and that the pain, coupled with the nausea, can be almost more than a body and mind can bear. Are you following the doctors orders to the T, when it comes to what foods and drinks to avoid? Have you reached the point yet where you are being hospitalized occasionally? Have you discussed the pump with your " best " doctor? I know many of them are quite unfamiliar with the pump and aren't much help with it. The doc should, at the very least, refer you to a chronic pain doc or surgeon who has a good track record with installing and maintaining the pumps. Some chronic pain physicians as well as cancer care physicians, are very knowledgeable about these things. My friend had pancreatitis and a morphine pump, but he did not follow the doctors orders. He ate things he shouldn't and occasionally consumed alcohol. Basically he kept thwarting the good the pump was doing, by not following the doctor's good orderly direction. He was his own worst enemy when it came to his health care. My best friend had pancreatic cancer and was in such bad pain that she was incoherent. I dragged her to the Royal University Hospital back home. They admitted her immediately. A week later she was released from the hospital. She had some colour in her cheeks, could walk short distances again, and had an appetite for the first time in months. She was also sporting a brand new morphine pump. Of course, the cancer spread and eventually killed her, but right up until she died, her quality of life was incredibly improved by that little morphine distribution device. If the pump could help you even half as much as it helped her, it would be worth finding a competent physician who could work with you to get optimal benefits from one. Some days I just wish I had a magic wand.......... -- Lyndi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2004 Report Share Posted July 25, 2004 Moderator's note: Please delete unnecessary previous post material from your replies or your posts will be rejected. If you don't understand this request, please see edited bit at the bottom of this post. If you need further assistance, please contact the moderators. It isn't fair to expect our 400+ Digest readers to have to wade through repeated replies and doubled up Yahoo junk. Thanks. ********** I am not knowledgeable on the subject you need help on Fred, but just wanted to welcome you to the group. Glad to have you with us. I am sure someone here will be able to steer you in the right direction. Hugs, Fred (bts72000) wrote: im new to the site and live in the subburbs of philadelphia. i cant seem to find a compasionate dr. my pancreas and neuropothies have gotten unbearable. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2004 Report Share Posted July 26, 2004 fred >>> i was reading in a pancreas site that most people who have this kind > of pain go on a pump. please help me if you have any info on how to minimize the pain or where i can go to be treated with opiods. Hi Fred, Welcome to the group...sorry for your pain...it sound horrible! I live about a hour west of Philadelphia and go to a great pain clinic in Philly. I also know of a pain Dr. in Lancaster. If you tell me which direction you are from Philly I would be glad to give you the name of the correct Dr.s. We are not supposed to give out the name of Dr.s on the list so you can email me at melback@... and I will be glad to email you back with the info. The pain clinic I go to in Philly does believe in narcotic therapy if your condition warrants it and they also have lots of experience with the pump....I am having them implant one for me in Oct... They are great but you will probably need a referral from your primary or another Dr. you have seen and it might take a while to get an appt. as they are busy. I hope I can help and I hope things get better for you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2004 Report Share Posted July 26, 2004 <<please help me if you have any info on how to minimize the pain or where i can go to be treated with opiods.>> Fred, sorry....I'm the one who just sent the message about Dr.s in Philly and I forgot to sign my post.... I'm Ann in Pa.. Quote Link to comment Share on other sites More sharing options...
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