Re: - New poll for EN Group

[Guest guest]

Hi, --

Guess I'm lucky, too, as I just happened to show my orthopedic surgeon

my legs to see if he had an idea what the red lumps were. (I was

there for a carpal tunnel followup.)

He asked if I was diabetic and after ruling that out, he immediately

said it was Erythema Nodosum. He said the usual suspect where I live

is Valley Fever and he sent me posthaste to my primary care physician.

In fact, he even called her to discuss it with her!

Not sure if cocci is really what the problem is as I have chronic Lyme

disease, chronic Epstein Barr virus and have been a high doses of

antibiotics for several months. Could be any of those things from

what I've read.

At least my doctor is treating what she thinks is the underlying cause

so she is taking it seriously.

Take care,

Betty B

>

> Hi Sharon,

>

> You must be one lucky lady to have a doctor that a) knows what EN is,

> but if they also, realises that in 45% of cases its an indicator

> of an underlying disease and c) does something about it; I might

> faint from shock!

>

> From what I know this is very unusual and it just isn't taken

> seriously enough, for example I got EN (along with loads of other

> symptoms), was taken to ER and after 4 days in hospital, and seeing

> 14 doctors, they've brushed me off because they didn't know what it

> was and it wasn't getting worse.

>

> Meanwhile I'm 99% sure I have Behcets Disease, which is a chronic

> illness and requires treatment. However, I've got to convince my Dr

> that EN + Other sypmtoms is serious.... Geesh!

>

> Anyway, i'm glad you've had a positive experience, and hope that more

> Doctors are learning about this.

>

> Hope you are doing good today,

>

> x