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tawnya

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To Tawnya, just wanted to let you know I have been feeling run down,

sore eyes, and I have random fevers too, though not 104. Is there a

relationship to EN? Are there others on this site that have other

symptoms as well as the Erythema? It never occured to me that I could

be feeling this way due to EN. I didn't even know, until joining this

group, that EN was a diagnoses. I thougth it was just a symptom.

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Louise,

I was a normal 18 year old girl until I contracted this disease. I started feeling lethargic. The fevers came later with more fatigue. Now, when I have a flare-up, which is pretty often, I'm exhausted, its hard to get up in the mornings and I can only do it because the Good Lord gives me the strength. Everything changed when I got this disease and yet no doctors can help me with it. It's gets really frustrating cuz everyone thinks you're healthy cuz you look healthy, yet they don't see the pain I'm in or how tired I am. Sometimes my eyes burn because I'm so tired (like today). I don't even remember what feeling good/normal feels like.

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