Re: Growing Number of non typical EN cases joining our Group

[Guest guest]

100% agreement here, . That same with WG. The sad thing is that doctors

believe the data they learned in med school is dogma and that what we tell them

is the exception that proves the rule.

Love, Joan

---- Strecker wrote:

> Dear Group,

> In the last few days we have had several new members join who did not

> fit the typical EN patient profile: young female adults aged 18-34

> years, experiencing only one episode of EN.

>

> Reference Link <http://www.emedicine.com/derm/topic138.htm>

>

> We have had several new members who were either children, older adults

> or who have had recurrent EN.

> What does this mean?

> How many of us really " fit the mold " ?

> Since EN [which is not associated with other illness] often doesn't

> require a doctor's care, how many of us are not even on the

> Doctor's Radar Screen?

> Do dr's know we exist if we don't go for treatment?

> I have failed to mention EN when filling out a " History " for a new

> doctor, as I knew how to treat my EN from having had it for decades. In

> all likelyhood the new dr. would not even know what I was talking about,

> or just see EN as an interesting curiosity.

>

> I think the statistics on EN that we read in the literature is both

> outdated and flawed.

> As the Group continues to grow, thanks to the internet, we are learning

> more about EN from each other than we ever learned from doctors.

> One thing we are learning is that the non typical EN patient is not that

> rare at all.

> Wishing Everyone a Happy Weekend!

> Shins Up!

> Love,

>

>

>