Re: New Here!!/Welcome, Stacey

[Guest guest]

Hi Stacey,Welcome to the Group! I've had EN since I was 21. Now I'm 58 (hard for me to believe too!)Do you think your EN is due to hormones? If so, you might have fewer outbreaks if you switch to a non-hormonal birth control.Lots of us here have a problem with strep. infection. Then there are those like me who are "idiopathic" and don't know why we get EN. There are about 100 known causes of EN [and probably plenty more that aren't yet documented].My best suggestion is to get as much [bed]rest as you can and maybe try using a compression stocking like a TEDS or elastic bandages. But don't wrap them too snugly, and maybe wait 'till you are back in remission before putting on the stockings, [if you can stand it that is].I use one on my EN leg [i only get lumps on the left leg], and have found it to be helpful.I have never taken meds, but others have, and I'm sure they can give you advice there as well as with alternative and natural treatments. We are all different and use different treatments with varying success.Be sure and check out the Group Site . It's where all our goodies are.Love,PS: let me know if you want the emails to stop. You can go to the Group Site to read or post instead of getting all our mail.

[Guest guest]

Hey .. Thanks for the info...I have stopped taking the "pill" and hopefully that will help, I'd be happy to just be able to walk right now. It's crazy, but I'm really seeing what an advantage is was to have two operable legs. But for now...I'll continue to drag around this one useless leg..Thanks again for the info ...Stacey Strecker wrote: Hi Stacey,Welcome to the Group! I've had EN since I was 21. Now I'm 58 (hard for me to believe too!)Do you think your EN is due to hormones? If so, you might have fewer outbreaks if you switch to a non-hormonal birth control.Lots of us here have a problem with strep. infection. Then there are those like me who are "idiopathic" and don't know why we get EN. There are about 100 known causes of EN [and probably plenty more that aren't yet documented].My best suggestion is to get as much [bed]rest as you can and maybe try using a compression stocking like a TEDS or elastic bandages. But don't wrap them too snugly, and maybe wait 'till you are back in remission before putting on the stockings, [if you can stand it that is].I use one on my EN leg [i only get lumps on the left leg], and have found it to be helpful.I have never taken meds, but others have, and I'm sure they can give you advice there as well as with alternative and natural treatments. We are all different and use different treatments with varying success.Be sure and check out the Group

Site . It's where all our goodies are.Love,PS: let me know if you want the emails to stop. You can go to the Group Site to read or post instead of getting all our mail.

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[Guest guest]

Hi Stacey,Do you only get EN in one leg like me? If so, maybe you have EN Migrans as I do. It's more rare than the usual form of EN and while mostly it is idiopathic, it can be caused by strep infection.I'm no expert, just have been studying EN since the group was formed nearly 3 yrs. ago.Try and rest. That is the bast way I've found to get back into remisison. I know the feeling of dragging the leg--the big, red swollen leg. Feels waterlogged, right? That's edema, and compression and elevation can help there.I'm in CA., and gonna hit the hay soon.Yeah, EN teaches you to appreciate the little things like painfree walking. Shins Up!Nightie Night!Love,