Guest guest Posted June 4, 2004 Report Share Posted June 4, 2004 Kudos to you for being a supportive spouse! Fibro is REAL. Even the Mayo clinic believes it exists so tell her detractors that. I have severe degenerative spinal arthritis and I know people with fibro are in far more pain than I am. I just spent time with a friend who has fibro and she can only take baby steps and can't go up and down steps at all. I'm far better off. Maxine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2004 Report Share Posted June 4, 2004 Dear Sandman, Welcome to the group. I'm a fellow fibro sufferer and know what you mean when people don't understand about the disorder. It's a lot better than it used to be though - when I was diagnosed about 12 years ago very few people had even heard of it. You hear more about it all the time. I just saw the PA at the pain clinic last week and he tells me there is a new medication about to be released specificaly for fibromyalgia. I can hardly wait and will be sure to tell everyone about it when I find out more. In the meantime keep researching and find a good rheumatologist if she doesn't already have one. Make sure it is one who understands fibromyalgia because not all of them do! Georgia the Sandman wrote: > I just wanted to say hello to the group. My wife has been > suffering from fibromyalgia for several years now and > hasn't gotten very much help or understanding from the > medical community. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2004 Report Share Posted June 5, 2004 Hello Sandman, Welcome to our group. It's a wonderful group of people here. There are quite a few of us that struggle with FM. While Fibromyalgia is slowly being recognized as a true medical disease there are still some doctors who believe that it's a psycological problem, which it is NOT. There are also those who do not believe in giving medications for the pain of FM. I'm very lucky to have found a pain management doctor who does give me the medications I need to put one foot in front of the other on a daily basis. While I do have other medical issues the Fibro is one of the hardest to deal with. Do you have any books on FM? There are quite a few and they really are a help, if for nothing else to validate what we are feeling. Our list does have a list of doctors who treat chroic pain and that might be a good place to start. It would be great if you or your wife could participate in one of the chat nights too. Welcome again and I hope your wife finds help soon. BTW, kudo's to you for being supportive to your wife! Chronic pain is difficult to deal with for the person who has the pain but also for the family too. Kathleen in Santa , Calif. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2004 Report Share Posted June 7, 2004 It's not so much that they come out and say it's not real... it's the way they act as though it's not significant, not debilitating... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2004 Report Share Posted June 7, 2004 Thanks for the welcome! I think I do need to get a couple of books on the subject. What's " Chat Night " ? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2004 Report Share Posted June 8, 2004 Hi Sandman I have had fibromyalgia for more years than I can remember. The things that help me most including the having an understanding spouse are sleep and light exercise. If she hasn't had sleep studies done then check into those. Light light exercise in a warm pool. Fibromyalgia for Dummies is a book I would like to read. The For Dummies books are excellent resources. Use every resource you can find for help. A Rheumatologist made my diagnosis in just a few minutes after he touched to the tender spots. There is no cure for fibromyalgia but having a kind and loving partner certainly helps. Kaylene .. Anyhow, >I'm here to try and get more insight into dealing with fibromyalgia. > >the Sandman > _________________________________________________________________ FREE pop-up blocking with the new MSN Toolbar – get it now! http://toolbar.msn.click-url.com/go/onm00200415ave/direct/01/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2004 Report Share Posted July 20, 2004 Judy, It has been such a long time since I have seen you here. I wondered many times where you went and how you were making out with your husband. I think that was about the last time you wrote was when he took sick. You were devestated. Do you remember me. I am Donna from Conn. I remember you. You are from Falmouth, right? I was so happy to find someone from the east coast to talk to with similiar problems to mine. I didn't answer quickly because I had to go to the Vinyard and help my brother and his wife. Bill shot himself in his leg. Cleaning his gun after target practice. Then Stan and I went on vacation for 2 wks. and it has taken me almost 4 days to get this far in the emails. Please keep in touch. Try and be peaceful. donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2006 Report Share Posted July 1, 2006 Hi all- Just checking in to see how everyone is. I'm having off and on flare ups, though they aren't in locations that are painful. My husband said to me last night, "you've got an erthema on the back of your arm." But I hadn't known of that one. They last about a week, disolve, bruise and while they are fading away, new ones come out in different locations (but usually always the arms and legs). I was thinking it was the tanning lotion so I stopped using it (nop), I was taking glucosamine for my stiff joints and stopped taking that (not the trigger), mouthwash (nop).....So, just stuck in a little flare up at the moment. Louise EN - Sarc. 1976Wayne Hunter wrote: Hi,If Crohn's is actually a body response to an under-active immune system, then there will be different triggers for the disease. If the vaccine causes the immune system to kick in and recover, then, it doesn't matter what the trigger is for the disease. However, if the vaccine just works for the single trigger, there are going to get some surprises when they go to full trial.Would be very interesting for the study to also measure the immunoglobulins and immune system response, not just the effect. We're on the edge. If we can just figure out where we are headed without driving off the cliff.Wayne Want to be your own boss? Learn how on Yahoo! Small Business. Quote Link to comment Share on other sites More sharing options...
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