Re: more tests/msg for Beth

[Guest guest]

Hi Beth,

I'm sorry you are dealing with this, but you aren't alone. We have

over 1100 EN Group Members who have firsthand experience of the pain

and frustration of having EN, even if we all have somewhat different

symptoms.

I don't remember if I mentioned " alpha-1-antitrypsin (AAT) deficiency "

http://lungdiseases.about.com/od/antitrypsindeficiency/a/alpha1antitryp.htm

as a possible lung condition that goes along with EN. It is not

sarcoidosis, but is genetic. Easily diagnosed through a simple blood

test and easily treated with a daily pill.

You might ask your Dr. about it if he hasn't checked you for it.

Do you have any gastro-intestional symptoms associated with your

weight loss? If so, that may provide several other things to explore

to find the cause of your EN.

I hope you feel better very soon!

Love,