Re: * Getting services cut

[Guest guest]

We have not receive OT since was 3. And PT has only been to sporadically to evaluate him. At 4 he was removed from PT saying it was not necessary anymore. Since then I have had him evaluated yearly, and then gotten services for about 3 months out of the year after that. Then they decide he is doing great, they cant do more than we do at home, and send us on our way. He didn't walk till he was 4.5, now you tell me he has a normal 9 year olds gait? NO.

And my son still is totally g-tube dependant. He eats some by mouth but not enough to sustain himself. So he definitely could use OT and ST. But either you get the gung ho ones who think that you just stuff it in and they will be forced to eat it (we wont even go there) or the newbies who have zero clue but lots of willingness to learn. Like I need someone else to homeschool!

ly I think its a fix it or forget it type mentality for most therapy places. You can get therapists who are awesome, but it comes back to the fact that if you are lucky to find one, they are usually in high demand, and the therapy company they work for would like to see them used on cases that you can see fast recovery and move that patient out and get great word of mouth. There are very few places around here that even do long term therapy, or have a clue what to do with a child who will need more therapy than that required by a child who just came out of a cast or something like that. It is very frustrating.

 "Jules"

Romero

-- *[DownSyndromeInfoExchange] Getting services cut

Hi everyone,

Has anyone ever had services cut some because he/she is doing great and don't need much anymore? That was brought to my attention by our PT. She told me if my daughter didn't slow down, the school district would cut some services to her. Ones that she didn't need much such as OT and PT. The therapist also said it's not very common to have services cut for a child with DS.

Mom to Jezeca, 6 yrs., Trisomy 10q/5p-

and to Zephany, 2 yrs., Trisomy 21

[Guest guest]

We have not receive OT since was 3. And PT has only been to sporadically to evaluate him. At 4 he was removed from PT saying it was not necessary anymore. Since then I have had him evaluated yearly, and then gotten services for about 3 months out of the year after that. Then they decide he is doing great, they cant do more than we do at home, and send us on our way. He didn't walk till he was 4.5, now you tell me he has a normal 9 year olds gait? NO.

And my son still is totally g-tube dependant. He eats some by mouth but not enough to sustain himself. So he definitely could use OT and ST. But either you get the gung ho ones who think that you just stuff it in and they will be forced to eat it (we wont even go there) or the newbies who have zero clue but lots of willingness to learn. Like I need someone else to homeschool!

ly I think its a fix it or forget it type mentality for most therapy places. You can get therapists who are awesome, but it comes back to the fact that if you are lucky to find one, they are usually in high demand, and the therapy company they work for would like to see them used on cases that you can see fast recovery and move that patient out and get great word of mouth. There are very few places around here that even do long term therapy, or have a clue what to do with a child who will need more therapy than that required by a child who just came out of a cast or something like that. It is very frustrating.

 "Jules"

Romero

-- *[DownSyndromeInfoExchange] Getting services cut

Hi everyone,

Has anyone ever had services cut some because he/she is doing great and don't need much anymore? That was brought to my attention by our PT. She told me if my daughter didn't slow down, the school district would cut some services to her. Ones that she didn't need much such as OT and PT. The therapist also said it's not very common to have services cut for a child with DS.

Mom to Jezeca, 6 yrs., Trisomy 10q/5p-

and to Zephany, 2 yrs., Trisomy 21