End Stages of FMS & Tolerence.

[Guest guest]

Faye, Kathy,

Let me jump in while enduring one of my worst days ever. I am on

oxycontin40x3 and patches are available to me, today after my 2nd

percocet 10 in 3hrs used a 25microgram patch and another percocet. I

have RSD and discovered I had it all my life but it took a car

accident to discover what I had always lived with were symptoms of an

untreatable illness.

When I think of the end stage that is the point where if it is not

death than it is a life which serves no purpose among the living which

was very much how I thought I felt in the last few days but felt it

today without doubt. At least last night I was able to get out of bed

with pain. As normal I took my oxy at 4:30 and checked if my oldest

son was taking his shower but then an hour later I took a percocet in

order to get out of bed and get my younger kids ready for school. I

have a strategy for that. My youngest I need to dress, he is disabled.

Then the next older I get his clothes ready and verbally coax him to

wake up but today was atypical today is his 10th birthday and he

decided to be a birthday crab. I could have used a crutch or a walking

stick today but I am to weak to lift it.

The weather has been damp to downpours over the last 2 weeks and

that may account for mor misery than mine alone. Do you know one of

the Prophets had RSD? They said his hands were on fire. AL

[Guest guest]

Faye, Kathy,

Let me jump in while enduring one of my worst days ever. I am on

oxycontin40x3 and patches are available to me, today after my 2nd

percocet 10 in 3hrs used a 25microgram patch and another percocet. I

have RSD and discovered I had it all my life but it took a car

accident to discover what I had always lived with were symptoms of an

untreatable illness.

When I think of the end stage that is the point where if it is not

death than it is a life which serves no purpose among the living which

was very much how I thought I felt in the last few days but felt it

today without doubt. At least last night I was able to get out of bed

with pain. As normal I took my oxy at 4:30 and checked if my oldest

son was taking his shower but then an hour later I took a percocet in

order to get out of bed and get my younger kids ready for school. I

have a strategy for that. My youngest I need to dress, he is disabled.

Then the next older I get his clothes ready and verbally coax him to

wake up but today was atypical today is his 10th birthday and he

decided to be a birthday crab. I could have used a crutch or a walking

stick today but I am to weak to lift it.

The weather has been damp to downpours over the last 2 weeks and

that may account for mor misery than mine alone. Do you know one of

the Prophets had RSD? They said his hands were on fire. AL

[Guest guest]

I was just kidding about the " end stages of the Fibro or something. "

Some cases are just worse than others. All are painful.

Kathy K.

[Guest guest]

>

> The weather has been damp to downpours over the last 2 weeks and

> that may account for mor misery than mine alone. Do you know one of

> the Prophets had RSD? They said his hands were on fire. AL

*********************************************************************

Hi Al,

I have RSd too, I didn't know about the prophet thing...do you recall

which one? I'm not too religious but It would be interesting to read

about it.

I have also had RSD all my life and was always told that the pain was

all in my head...my family always accused me of faking it to get out

of chores...I have ten siblings so a lot of chores growing up...

I was in the army and actually basically lost the use of my right

hand and arm for about a year..after I got out, I had surgery for it,

the Doctor used a Bier's block and I think that is what put it into

remission...A bier block is where they put a tourniquet on your

extremity and them pump lidocaine into the extremity...the lidocaine

stays in the extremity for long enough to treat all the nerves...I

honestly think that is what put me in remission that time...

Wierd thing is that i metabolize lidocaine type drugs really fast so

he must have used a whole lot of it..he removed a ganglion cyst from

my right wrist...within two weeks I was able to use my wrist no

problem...I haven't had any problems with it since...

Then years later I dislocated my right knee....I was in excruciating

pain for about six years and had numerous surgeries....long story,

finally got that one under control too, then in 01 I sprained my left

ankle tore the ligaments badly and have had RSD again ever

since...when I was diagnosed, I had gone to my doctor and told him of

my past experiences with injuries...I was crying and I told him I

couldn't go through that kind of experience again without some kind

of help and some kind of diagnisis...this doctor actually listened

and after I had to write up a pain diary for about a week, describing

my pains...I was tentatively diagnosed with the RSD and started

getting help and the medical community listened to me...it is so

wonderful to have my doctor not looking at me like I was some kind of

drug seeking addict...He, they believe and understand me...thank

God..Some days the pain like yours is horrible and my siblings still

don't understand and think I should be able to just get over it...but

Those that need to understand and believe do and I am happy with

that. I am so sorry that you don't seem to have the personal help you

need in the mornings...I know you don't want your children to have to

carry the burden with you, perhaps, with your disability you could

qualify for some kind of in home assistance in the mornings? Just a

thought.

God Bless,

Daphne

[Guest guest]

>

> The weather has been damp to downpours over the last 2 weeks and

> that may account for mor misery than mine alone. Do you know one of

> the Prophets had RSD? They said his hands were on fire. AL

*********************************************************************

Hi Al,

I have RSd too, I didn't know about the prophet thing...do you recall

which one? I'm not too religious but It would be interesting to read

about it.

I have also had RSD all my life and was always told that the pain was

all in my head...my family always accused me of faking it to get out

of chores...I have ten siblings so a lot of chores growing up...

I was in the army and actually basically lost the use of my right

hand and arm for about a year..after I got out, I had surgery for it,

the Doctor used a Bier's block and I think that is what put it into

remission...A bier block is where they put a tourniquet on your

extremity and them pump lidocaine into the extremity...the lidocaine

stays in the extremity for long enough to treat all the nerves...I

honestly think that is what put me in remission that time...

Wierd thing is that i metabolize lidocaine type drugs really fast so

he must have used a whole lot of it..he removed a ganglion cyst from

my right wrist...within two weeks I was able to use my wrist no

problem...I haven't had any problems with it since...

Then years later I dislocated my right knee....I was in excruciating

pain for about six years and had numerous surgeries....long story,

finally got that one under control too, then in 01 I sprained my left

ankle tore the ligaments badly and have had RSD again ever

since...when I was diagnosed, I had gone to my doctor and told him of

my past experiences with injuries...I was crying and I told him I

couldn't go through that kind of experience again without some kind

of help and some kind of diagnisis...this doctor actually listened

and after I had to write up a pain diary for about a week, describing

my pains...I was tentatively diagnosed with the RSD and started

getting help and the medical community listened to me...it is so

wonderful to have my doctor not looking at me like I was some kind of

drug seeking addict...He, they believe and understand me...thank

God..Some days the pain like yours is horrible and my siblings still

don't understand and think I should be able to just get over it...but

Those that need to understand and believe do and I am happy with

that. I am so sorry that you don't seem to have the personal help you

need in the mornings...I know you don't want your children to have to

carry the burden with you, perhaps, with your disability you could

qualify for some kind of in home assistance in the mornings? Just a

thought.

God Bless,

Daphne