Hello Rebekka and Group

[Guest guest]

Hello Group,

Just really letting you know I am still here and reading with

interest the groups digest emails, I was interested the other day

with link as Elaine was first diagnosed by her GP as having

Fibromyalgia, this was way back in 1995. This was really the start

of her illnesses and it took doctors and consultants years to even

recognise this as an illness, was called yuppy flu at the time as so

many people in high flying jobs seemed to be diagnosed with this.

Elaine was diagnosed with EN last year and touch wood no more flare

ups for a couple of months.

I am relaying what information that is being posted on group to

Elaine and it is nice to have somewhere to go and gain some

knowledge.

just thought I would write and let you all know your postings are

appreciated and read, I think it important to give a little feedback.

hope you all take care and look forward to next digests,

kind regards

Colin

Llwynmawr

Wales (uk)

[Guest guest]

Hi Colin,

Great to hear from you and to know that Elaine is in remission.

I do appreciate

feedback, as I like to know what info. the Group finds helpful. I'm

always on the lookout for interesting articles to help our members with

both EN and other conditions they are dealing with.

I have a first

cousin with fibro, and I wonder if there is a genetic predispostion to

fibro, EN and sarcoidosis in my own family. My guess is that a few

vulnerable genes may get damaged and express themselves as several of

the related disorders depending on the severity and triggers they

encounter. All forms of autoimmuntiy seems to have commonalities and I

hope that when one is finally figured out, the rest will fall into

place with similar treatments and cures.

My best to Elaine.

Love,

[Guest guest]

Hi Colin,

Great to hear from you and to know that Elaine is in remission.

I do appreciate

feedback, as I like to know what info. the Group finds helpful. I'm

always on the lookout for interesting articles to help our members with

both EN and other conditions they are dealing with.

I have a first

cousin with fibro, and I wonder if there is a genetic predispostion to

fibro, EN and sarcoidosis in my own family. My guess is that a few

vulnerable genes may get damaged and express themselves as several of

the related disorders depending on the severity and triggers they

encounter. All forms of autoimmuntiy seems to have commonalities and I

hope that when one is finally figured out, the rest will fall into

place with similar treatments and cures.

My best to Elaine.

Love,