Guest guest Posted April 8, 2004 Report Share Posted April 8, 2004 Hi Everyone, I've missed all of you so much! As usual, things haven't been going too well. I've even been to depressed to post to the list. I'm " trying " to work, only b/c I must. I've never heard a thing from the SS office regarding my disability claim, and the guy that took my app. told me that I'm making too much money to get benefits. He looked at my 2003 W2's! I'm working now, although sparingly, and as little as I can, to get by. The pain is excruciating and my depression level is at an all time high. I feel trapped and I feel like my family and friends are tired of hearing about my whoa's! So, for the most part, I've kind of isolated myself. I must try and work b/c I have NO other source of income and I don't want to end up on the streets. Yet each day I work, I cry on the way to work, on the way home and at each break. I can't get the pain to go away and I get so depressed and feel hopeless. It seems as though the people I'm around personally have forgotten, or chose to forget, that I'm in severe pain all of the time. They push me, sometimes way over my limits. Even my own mother, who has witness me falling asleep while in the middle of a conversation with her, pushes me to drive to far away places and at night, knowing that I could fall asleep at the wheel anytime. Then she has the nerve to tell me that she worries about me. It's always been an " I love you - go away " relationship with her. It hurts that she's totally willing to risk my life. Then if something would happen to me, she'd pull the " poor me " act. The fatigue problem is much worse also. I've actually been passing out! I fall asleep standing up anymore. When I work, I need to pull over to sleep on my way home. I'd gotten a good case of bronchitis from sleeping in my car and getting so cold. My doctor refuses to address this problem and won't fight the insurance co. for me to get the Provigil, which would help me to stay alert and awake. Last week I passed out while sitting on my couch and slammed my face and head down on the coffee table. Luckily, my shoulder took most of the impact. It could have been much worse. I'm just so depressed about all of this and for the way my life has turned out. I don't know where to go with this depression. Before I could at least read a book or do my art work, but lately I feel like a ton of bricks are holding me down, preventing me from doing anything. I must work this Friday, Saturday and Sunday, and I'm already getting panicky thinking of how I'm going to get through these three days b/c of the pain and the severe fatigue. Sorry to have rambled. I just don't know where to turn. I cry a lot and keep praying that I'll get better, but then I start thinking that even God has forgotten about me. Thanks for listening and for being here :-) Always, Kathy K. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2004 Report Share Posted April 9, 2004 Kathy K wrote: <snipped> > Sorry to have rambled. I just don't know where to turn. I cry a lot > and keep praying that I'll get better, but then I start thinking that > even God has forgotten about me. Kathy, I wish I had some useful answers for you, but at the moment I can't think of a darned thing that hasn't been mentioned before. So, I'm sending you cyberhugs in hopes that it conveys my feelings. (((((((((((((((Kathy))))))))))))))) -- Lyndi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2004 Report Share Posted April 9, 2004 Kathy K wrote: <snipped> > Sorry to have rambled. I just don't know where to turn. I cry a lot > and keep praying that I'll get better, but then I start thinking that > even God has forgotten about me. Kathy, I wish I had some useful answers for you, but at the moment I can't think of a darned thing that hasn't been mentioned before. So, I'm sending you cyberhugs in hopes that it conveys my feelings. (((((((((((((((Kathy))))))))))))))) -- Lyndi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2004 Report Share Posted April 9, 2004 Kathy K wrote: <snipped> > Sorry to have rambled. I just don't know where to turn. I cry a lot > and keep praying that I'll get better, but then I start thinking that > even God has forgotten about me. Kathy, I wish I had some useful answers for you, but at the moment I can't think of a darned thing that hasn't been mentioned before. So, I'm sending you cyberhugs in hopes that it conveys my feelings. (((((((((((((((Kathy))))))))))))))) -- Lyndi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2004 Report Share Posted April 9, 2004 Thanks Lyndi, Thank you for your response :-) I know there's not going to be a cure all here. Wouldn't it be neat if there was? :-D I'm just so glad for all of the support and it really helps me to read other's posts. I know I'm not alone, and that means more than any pain medication! I'm just so glad to have all of you :-) I had to stop and by some Vivarin today on my way to work. I wasn't even 1/3 of the way there and my eyes were closing. The last thing my father took before he got sick, and then died two days later was " No Doze " . I don't like to mess with this stuff, but I'm desperate. My doctor refuses to fight for me with the insurance company so I can get on the prescription drug Provigil, for the narcolepsy. Does he think I'm kidding with him when I tell him that I'm basically passing out anymore! I really don't know if it's fatigue and I'm just falling asleep suddenly without warning, or if I'm passing out and it's some other problem. I did make it through 8 hours of work tonight, but I had to take an early break and go to my car b/c I was starting to cry inside the facility where I was working, b/c of the pain. I can't imagine living the rest of my life like this. I'm so worn down and exhausted from it all already. Thanks to everyone for being here! Kathy K. Quote Link to comment Share on other sites More sharing options...
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