Chronic Pain & Blind...

[Guest guest]

I explained my short biography yesterday. I am now into my ninth year of

fighting the horror battle of RSD. Physically separate from the RSD, I have

been blind since 1992 from an congenital heredity disease handed to me from my

maternal grandmother, where the Rod Cone RPE X Recessive Dystrophy skips a

generation and then hits 25% of males. There are various forms of the disease.

So many eye diseases that cause blindness are hereditary. I would be interested

in hearing from others that fight a similar battle, one of chronic pain and two

of congenital blindness. Please, if you would like to chat a bit about this

unique situation, please contact me either on or off list. Wishing a better day

for all! Ken - Colorado Springs

[Guest guest]

Ken:

You are not alone in your situation either. I have retinitis pigmentosa

which is a hereditary/genetic eye disease that causes blindness that was

diagnosed about 10 years ago. About 3 to 4 years ago, I was also diagnosed

with systemic lupus which was in the moderate to severe stages, degenerative

joint disease, and neuropathy not to mention I have ulnar neuropathy in my

right arm.

It is hard being blind and having a chronic illness too. It is even worse

when you find out that your chronic illness can cause blindness and the

medication that helps slow down the chronic illness (ie lupus - Plaquenil)

actually causes blindness. I am sitting here in God's little acre. East of

the Rock and West of the Hard Place.

Sam

The trouble with making plans for the future, even when you can see the

future, is that fate has a way of intervening and upsetting the best laid

plans of mice and men.

- Burns 1785

Ken: Blindness and chronic pain.

[Guest guest]

Ken:

You are not alone in your situation either. I have retinitis pigmentosa

which is a hereditary/genetic eye disease that causes blindness that was

diagnosed about 10 years ago. About 3 to 4 years ago, I was also diagnosed

with systemic lupus which was in the moderate to severe stages, degenerative

joint disease, and neuropathy not to mention I have ulnar neuropathy in my

right arm.

It is hard being blind and having a chronic illness too. It is even worse

when you find out that your chronic illness can cause blindness and the

medication that helps slow down the chronic illness (ie lupus - Plaquenil)

actually causes blindness. I am sitting here in God's little acre. East of

the Rock and West of the Hard Place.

Sam

The trouble with making plans for the future, even when you can see the

future, is that fate has a way of intervening and upsetting the best laid

plans of mice and men.

- Burns 1785

Ken: Blindness and chronic pain.

[Guest guest]

Ken:

You are not alone in your situation either. I have retinitis pigmentosa

which is a hereditary/genetic eye disease that causes blindness that was

diagnosed about 10 years ago. About 3 to 4 years ago, I was also diagnosed

with systemic lupus which was in the moderate to severe stages, degenerative

joint disease, and neuropathy not to mention I have ulnar neuropathy in my

right arm.

It is hard being blind and having a chronic illness too. It is even worse

when you find out that your chronic illness can cause blindness and the

medication that helps slow down the chronic illness (ie lupus - Plaquenil)

actually causes blindness. I am sitting here in God's little acre. East of

the Rock and West of the Hard Place.

Sam

The trouble with making plans for the future, even when you can see the

future, is that fate has a way of intervening and upsetting the best laid

plans of mice and men.

- Burns 1785

Ken: Blindness and chronic pain.