Re: alpha1antitrypsin ulcerating panniculitis

[Guest guest]

Hi Lesley,

Good for you! I'm glad you learned what could be causing your EN and

got the tests. Now you will start to take the meds for Alpha-1 AT

Deficiency right? And from what I read, that will be enough to keep

you well.

Looks like we have another " cured member " ! Two in one Day! and Both

from Australia! Let me know how you are doing with the treatment and

how long it takes for the pann.to clear up.

As far as ulcerations are concerned, take a look at our Ulcers and

Wound Care Links and the File called Pyoderma Gangrenosum Forum. PG

ulcerates, and wound care is a big topic in those files.

I would like to put you on our " Resources Members " list for A1AT

Deficiency. We rarely mention it, and while it is a " long shot " it CAN

be the key to recovery :-)

Best of luck for a Full Recovery!!!

Love,

[Guest guest]

Hi Lesley,

Good for you! I'm glad you learned what could be causing your EN and

got the tests. Now you will start to take the meds for Alpha-1 AT

Deficiency right? And from what I read, that will be enough to keep

you well.

Looks like we have another " cured member " ! Two in one Day! and Both

from Australia! Let me know how you are doing with the treatment and

how long it takes for the pann.to clear up.

As far as ulcerations are concerned, take a look at our Ulcers and

Wound Care Links and the File called Pyoderma Gangrenosum Forum. PG

ulcerates, and wound care is a big topic in those files.

I would like to put you on our " Resources Members " list for A1AT

Deficiency. We rarely mention it, and while it is a " long shot " it CAN

be the key to recovery :-)

Best of luck for a Full Recovery!!!

Love,

[Guest guest]

Hi Lesley,

Good for you! I'm glad you learned what could be causing your EN and

got the tests. Now you will start to take the meds for Alpha-1 AT

Deficiency right? And from what I read, that will be enough to keep

you well.

Looks like we have another " cured member " ! Two in one Day! and Both

from Australia! Let me know how you are doing with the treatment and

how long it takes for the pann.to clear up.

As far as ulcerations are concerned, take a look at our Ulcers and

Wound Care Links and the File called Pyoderma Gangrenosum Forum. PG

ulcerates, and wound care is a big topic in those files.

I would like to put you on our " Resources Members " list for A1AT

Deficiency. We rarely mention it, and while it is a " long shot " it CAN

be the key to recovery :-)

Best of luck for a Full Recovery!!!

Love,

[Guest guest]

Hi

At the moment I wouldn't say I was cured - I've had the worst

outbreak ever over christmas, but at least I know now where to start.

Cheers

Lesley

>

> Hi Lesley,

> Good for you! I'm glad you learned what could be causing your EN

and

> got the tests. Now you will start to take the meds for Alpha-1 AT

> Deficiency right? And from what I read, that will be enough to keep

> you well.

>

> Looks like we have another " cured member " ! Two in one Day! and Both

> from Australia! Let me know how you are doing with the treatment

and

> how long it takes for the pann.to clear up.

>

> As far as ulcerations are concerned, take a look at our Ulcers and

> Wound Care Links and the File called Pyoderma Gangrenosum Forum. PG

> ulcerates, and wound care is a big topic in those files.

>

> I would like to put you on our " Resources Members " list for A1AT

> Deficiency. We rarely mention it, and while it is a " long shot " it

CAN

> be the key to recovery :-)

>

> Best of luck for a Full Recovery!!!

>

> Love,

>

>

[Guest guest]

Hi

At the moment I wouldn't say I was cured - I've had the worst

outbreak ever over christmas, but at least I know now where to start.

Cheers

Lesley

>

> Hi Lesley,

> Good for you! I'm glad you learned what could be causing your EN

and

> got the tests. Now you will start to take the meds for Alpha-1 AT

> Deficiency right? And from what I read, that will be enough to keep

> you well.

>

> Looks like we have another " cured member " ! Two in one Day! and Both

> from Australia! Let me know how you are doing with the treatment

and

> how long it takes for the pann.to clear up.

>

> As far as ulcerations are concerned, take a look at our Ulcers and

> Wound Care Links and the File called Pyoderma Gangrenosum Forum. PG

> ulcerates, and wound care is a big topic in those files.

>

> I would like to put you on our " Resources Members " list for A1AT

> Deficiency. We rarely mention it, and while it is a " long shot " it

CAN

> be the key to recovery :-)

>

> Best of luck for a Full Recovery!!!

>

> Love,

>

>

[Guest guest]

Hi

At the moment I wouldn't say I was cured - I've had the worst

outbreak ever over christmas, but at least I know now where to start.

Cheers

Lesley

>

> Hi Lesley,

> Good for you! I'm glad you learned what could be causing your EN

and

> got the tests. Now you will start to take the meds for Alpha-1 AT

> Deficiency right? And from what I read, that will be enough to keep

> you well.

>

> Looks like we have another " cured member " ! Two in one Day! and Both

> from Australia! Let me know how you are doing with the treatment

and

> how long it takes for the pann.to clear up.

>

> As far as ulcerations are concerned, take a look at our Ulcers and

> Wound Care Links and the File called Pyoderma Gangrenosum Forum. PG

> ulcerates, and wound care is a big topic in those files.

>

> I would like to put you on our " Resources Members " list for A1AT

> Deficiency. We rarely mention it, and while it is a " long shot " it

CAN

> be the key to recovery :-)

>

> Best of luck for a Full Recovery!!!

>

> Love,

>

>

[Guest guest]

Dear ,

I think it is only a matter of time before you get the meds to address

the Alpha-1 AT Deficiency and go into permanent remission. Then you

will be a Cured Member!

I'll be looking forward to it!

Love,

[Guest guest]

Dear ,

I think it is only a matter of time before you get the meds to address

the Alpha-1 AT Deficiency and go into permanent remission. Then you

will be a Cured Member!

I'll be looking forward to it!

Love,

[Guest guest]

hi everyone,i am so confused,i dont know what kind of pann i have,all i know is i have the ulcer looking things on my legs and thet hurt so bad,i have had a biopsy done from one og the ulcers,they said it showed i had pann,and that it was an inf. in the fatty tissue,the ulcers wont heal no matter what i do,they bleed really easy and they are like roind lesions,and they leave a sunk in looking scar,does this sound right?none of the drs.'s i have seen tell me very much about it,i dont think they really know,also mine starterd out as a really bad itching on my legs then a blister like thing,from there it was weeping all the time,and now it takes like forever to heal.HELPPPPPPP Strecker wrote: Hi Lesley,Good for you! I'm glad you learned what could be causing your EN andgot the tests. Now you will start to take

the meds for Alpha-1 ATDeficiency right? And from what I read, that will be enough to keepyou well. Looks like we have another "cured member"! Two in one Day! and Bothfrom Australia! Let me know how you are doing with the treatment andhow long it takes for the pann.to clear up. As far as ulcerations are concerned, take a look at our Ulcers andWound Care Links and the File called Pyoderma Gangrenosum Forum. PGulcerates, and wound care is a big topic in those files.I would like to put you on our "Resources Members" list for A1ATDeficiency. We rarely mention it, and while it is a "long shot" it CANbe the key to recovery :-)Best of luck for a Full Recovery!!!Love,

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[Guest guest]

where do i find the link to the wound care?Lesley Graham wrote: Hi At the moment I wouldn't say I was cured - I've had the worst outbreak ever over christmas, but at least I know now where to start.CheersLesley>> Hi Lesley,> Good for you! I'm glad you learned what could be causing your EN and> got the tests. Now you will start to take the meds for Alpha-1 AT> Deficiency right? And from what I read, that will be enough to keep> you well. > > Looks like we have another "cured member"! Two in one Day! and Both> from Australia! Let me know how you are doing with the treatment and> how long it takes for the pann.to clear up.

> > As far as ulcerations are concerned, take a look at our Ulcers and> Wound Care Links and the File called Pyoderma Gangrenosum Forum. PG> ulcerates, and wound care is a big topic in those files.> > I would like to put you on our "Resources Members" list for A1AT> Deficiency. We rarely mention it, and while it is a "long shot" it CAN> be the key to recovery :-)> > Best of luck for a Full Recovery!!!> > Love,> >

Yahoo! Photos Ring in the New Year with Photo Calendars. Add photos, events, holidays, whatever.

[Guest guest]

where do i find the link to the wound care?Lesley Graham wrote: Hi At the moment I wouldn't say I was cured - I've had the worst outbreak ever over christmas, but at least I know now where to start.CheersLesley>> Hi Lesley,> Good for you! I'm glad you learned what could be causing your EN and> got the tests. Now you will start to take the meds for Alpha-1 AT> Deficiency right? And from what I read, that will be enough to keep> you well. > > Looks like we have another "cured member"! Two in one Day! and Both> from Australia! Let me know how you are doing with the treatment and> how long it takes for the pann.to clear up.

> > As far as ulcerations are concerned, take a look at our Ulcers and> Wound Care Links and the File called Pyoderma Gangrenosum Forum. PG> ulcerates, and wound care is a big topic in those files.> > I would like to put you on our "Resources Members" list for A1AT> Deficiency. We rarely mention it, and while it is a "long shot" it CAN> be the key to recovery :-)> > Best of luck for a Full Recovery!!!> > Love,> >

Yahoo! Photos Ring in the New Year with Photo Calendars. Add photos, events, holidays, whatever.

[Guest guest]

Hi Dot!

Here on this group site, we have a section " Links " . . . the info

about wounds is under " Ulcers and Wounds. " You could do your own

google (or what have you) search for wound care. Hope this helps!

M

> >

> > Hi Lesley,

> > Good for you! I'm glad you learned what could be causing your EN

> and

> > got the tests. Now you will start to take the meds for Alpha-1 AT

> > Deficiency right? And from what I read, that will be enough to

keep

> > you well.

> >

> > Looks like we have another " cured member " ! Two in one Day! and

Both

> > from Australia! Let me know how you are doing with the treatment

> and

> > how long it takes for the pann.to clear up.

> >

> > As far as ulcerations are concerned, take a look at our Ulcers

and

> > Wound Care Links and the File called Pyoderma Gangrenosum Forum.

PG

> > ulcerates, and wound care is a big topic in those files.

> >

> > I would like to put you on our " Resources Members " list for A1AT

> > Deficiency. We rarely mention it, and while it is a " long shot "

it

> CAN

> > be the key to recovery :-)

> >

> > Best of luck for a Full Recovery!!!

> >

> > Love,

> >

> >

>

>

>

>

>

>

>

>

[Guest guest]

Hi Dot!

Here on this group site, we have a section " Links " . . . the info

about wounds is under " Ulcers and Wounds. " You could do your own

google (or what have you) search for wound care. Hope this helps!

M

> >

> > Hi Lesley,

> > Good for you! I'm glad you learned what could be causing your EN

> and

> > got the tests. Now you will start to take the meds for Alpha-1 AT

> > Deficiency right? And from what I read, that will be enough to

keep

> > you well.

> >

> > Looks like we have another " cured member " ! Two in one Day! and

Both

> > from Australia! Let me know how you are doing with the treatment

> and

> > how long it takes for the pann.to clear up.

> >

> > As far as ulcerations are concerned, take a look at our Ulcers

and

> > Wound Care Links and the File called Pyoderma Gangrenosum Forum.

PG

> > ulcerates, and wound care is a big topic in those files.

> >

> > I would like to put you on our " Resources Members " list for A1AT

> > Deficiency. We rarely mention it, and while it is a " long shot "

it

> CAN

> > be the key to recovery :-)

> >

> > Best of luck for a Full Recovery!!!

> >

> > Love,

> >

> >

>

>

>

>

>

>

>

>

[Guest guest]

hi,

it sure sounds like pg to me. my healed scars are also " sunk in " . pg

is extremely painful ulcers. does it have a smell when it ulcerates

that is nasty and there is no other smell like that you can say it

smells like? not familar with " pann " . did you do some searches to see

pics of each, pann and pg and compare? that is what i would do next.

do you have a pic of the ulcer you can send me? really curious to see

this. i might be able to offer some help if we think it is pg.

jeff

>

> hi everyone,i am so confused,i dont know what kind of pann i have,all

i know is i have the ulcer looking things on my legs and thet hurt so

bad,i have had a biopsy done from one og the ulcers,they said it showed

i had pann,and that it was an inf. in the fatty tissue,the ulcers wont

heal no matter what i do,they bleed really easy and they are like roind

lesions,and they leave a sunk in looking scar,does this sound right?

none of the drs.'s i have seen tell me very much about it,i dont think

they really know,also mine starterd out as a really bad itching on my

legs then a blister like thing,from there it was weeping all the

time,and now it takes like forever to heal.HELPPPPPPP