Guest guest Posted May 4, 2012 Report Share Posted May 4, 2012 Good to hear Patsy..I'm so happy for you. You and I are pretty much identical twins as far as how many treatments and our health status with anemia. I have had 2 blood transfusions and had to get another Procrit shot Wednesday because of my hemoglobin. My wbc is down to a 1 but I seem to be doing good as far as not getting infections. We did drop my ribovirin to 2 doses of 400mg each per day and because my anemia is not getting better we dropped some of the Pegasys injection. I was on 180mg once a week and they told me to drop down to 150mg but I didn't see that on the syringe so they are suppose to call me back (I made my dose between 180 & 135). If anyone has a suggestion for that please let me know but I am waiting for a call back from the doctor/nurse on what dose to take next wednesday.I agree also on the work status. I worked both my last 2 treatments (but didn't have incivek) and I could not have worked this third treatment. I will say being done with the incivek and got my 12 week results Wednesday and still coming up undetectable is the best news yet for me and I feel you Patsy will get the same good news!!! Are you located on the east coast by any chance? Love,Sheila To: "hepatitis_c_central " <hepatitis_c_central > Sent: Friday, May 4, 2012 7:56 PM Subject: 4 weeks up-date I started April 1st on the Incivek, Peg, Riba combo and my labs for 4 weeks are NEGATIVE......yahoo!!!!!! I started Procrit today since my Anemia has kicked in. On friday of last week I had to be admitted to the hospital for 3 units of blood. Got down to 7.1, platelates 99 and 2.0 between the WBC and RBC. Not good. Thats ok, as long as I know it's working I'll do whatever I have to do. Still have a long road ahead, will re-check viral load at 12 wks, then will be able to stop Incivek. The ribavirin has been up and down. Right now I'm at 600 in am no dose at night. I gave this web-site to my Doc because she said a lot of patients have been unhappy with some of the things they have been reading on other sites. She's a PA at Ochsner Medical Center in New Orleans, I live in MS. She pulled up this web-site while I was in her office and said she will give it to some of her patients who are inteested. My BP has been elevated and they keep having to change my medicine, what I was taking for years does not work with the Hep-C meds. Other than headaches, nausea and insominia it has not been that bad. I have never had hair loss, this is my 3rd go round. Keep thinking positive thoughts, pray a lot and REST. I have 3 Grandchildren living with my Hubby and I but he is wonderful and helps me a lot. Plus the fact that I'm not working, helps also. Keep the faith....God Is Great!!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2012 Report Share Posted May 4, 2012 Patsy, I am so happy for your negative status. And thanks for recommending us to your Dr. It feels great to have your doctor approve that we are doing the correct thing here at our group. One of the things that I wanted to do with this group is get the correct information out to Hep C patients. Not some gimmicky information that is not been verified. That is why we fact check everything we post as owners and moderators. Thank you for the compliment and we will try our upmost to get you and our other members the most up to date information. Love Janet "There are souls in this world that have the gift of finding joy everywhere and of leaving it behind them when they go" Frederick Faber To: "hepatitis_c_central " <hepatitis_c_central > Sent: Friday, May 4, 2012 6:56 PMSubject: 4 weeks up-date I started April 1st on the Incivek, Peg, Riba combo and my labs for 4 weeks are NEGATIVE......yahoo!!!!!! I started Procrit today since my Anemia has kicked in. On friday of last week I had to be admitted to the hospital for 3 units of blood. Got down to 7.1, platelates 99 and 2.0 between the WBC and RBC. Not good. Thats ok, as long as I know it's working I'll do whatever I have to do. Still have a long road ahead, will re-check viral load at 12 wks, then will be able to stop Incivek. The ribavirin has been up and down. Right now I'm at 600 in am no dose at night. I gave this web-site to my Doc because she said a lot of patients have been unhappy with some of the things they have been reading on other sites. She's a PA at Ochsner Medical Center in New Orleans, I live in MS. She pulled up this web-site while I was in her office and said she will give it to some of her patients who are inteested. My BP has been elevated and they keep having to change my medicine, what I was taking for years does not work with the Hep-C meds. Other than headaches, nausea and insominia it has not been that bad. I have never had hair loss, this is my 3rd go round. Keep thinking positive thoughts, pray a lot and REST. I have 3 Grandchildren living with my Hubby and I but he is wonderful and helps me a lot. Plus the fact that I'm not working, helps also. Keep the faith....God Is Great!!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2012 Report Share Posted May 5, 2012 Sheila, Iam in the good ol' South. I live in Carrriere. , Mississippi but I go to New Orleans, LA for treatment and to see the Doc. Iam 30 minutes from Slidell, LA and a hop skip and a jump from Picayune, MS. I'm pretty sure i will need future transfusions since the anemia is starting so soon in treatment. The Procrit can only do so much. The mornings are the worse for me since I have never been a morning person anyway, I get a burst of energy in late morning then late afternoon Iam wipped out. How far along are you in treatment? ... Patsy To: "Hepatitis_C_Central " <Hepatitis_C_Central > Sent: Friday, May 4, 2012 10:34 PMSubject: Re: 4 weeks up-date Good to hear Patsy..I'm so happy for you. You and I are pretty much identical twins as far as how many treatments and our health status with anemia. I have had 2 blood transfusions and had to get another Procrit shot Wednesday because of my hemoglobin. My wbc is down to a 1 but I seem to be doing good as far as not getting infections. We did drop my ribovirin to 2 doses of 400mg each per day and because my anemia is not getting better we dropped some of the Pegasys injection. I was on 180mg once a week and they told me to drop down to 150mg but I didn't see that on the syringe so they are suppose to call me back (I made my dose between 180 & 135). If anyone has a suggestion for that please let me know but I am waiting for a call back from the doctor/nurse on what dose to take next wednesday. I agree also on the work status. I worked both my last 2 treatments (but didn't have incivek) and I could not have worked this third treatment. I will say being done with the incivek and got my 12 week results Wednesday and still coming up undetectable is the best news yet for me and I feel you Patsy will get the same good news!!! Are you located on the east coast by any chance? Love, Sheila To: "hepatitis_c_central " <hepatitis_c_central > Sent: Friday, May 4, 2012 7:56 PMSubject: 4 weeks up-date I started April 1st on the Incivek, Peg, Riba combo and my labs for 4 weeks are NEGATIVE......yahoo!!!!!! I started Procrit today since my Anemia has kicked in. On friday of last week I had to be admitted to the hospital for 3 units of blood. Got down to 7.1, platelates 99 and 2.0 between the WBC and RBC. Not good. Thats ok, as long as I know it's working I'll do whatever I have to do. Still have a long road ahead, will re-check viral load at 12 wks, then will be able to stop Incivek. The ribavirin has been up and down. Right now I'm at 600 in am no dose at night. I gave this web-site to my Doc because she said a lot of patients have been unhappy with some of the things they have been reading on other sites. She's a PA at Ochsner Medical Center in New Orleans, I live in MS. She pulled up this web-site while I was in her office and said she will give it to some of her patients who are inteested. My BP has been elevated and they keep having to change my medicine, what I was taking for years does not work with the Hep-C meds. Other than headaches, nausea and insominia it has not been that bad. I have never had hair loss, this is my 3rd go round. Keep thinking positive thoughts, pray a lot and REST. I have 3 Grandchildren living with my Hubby and I but he is wonderful and helps me a lot. Plus the fact that I'm not working, helps also. Keep the faith....God Is Great!!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2012 Report Share Posted May 5, 2012 I thought maybe we were close enough to meet but I think Mississippi is pretty far from the coast of North Carolina. My hemoglobin went down after week 1 but I didn't drop low enough until week 9 to get a transfusion and have had 2 transfusions since starting. Now I feel better in the morning (medicine wise) because I'm laying down all night and not using the little bit of oxygen my blood has (that's my thoughts). I am in week 15 and do have to do 48 weeks since this is my third treatment. My last day for the Pegasys and Ribovirin will be December 24th.........MERRY CHRISTMAS I do say if it wasn't for God in my life It would have and will be more harder then it has to for this is my first treatment that I God is my life (I was called in 2009). Love,Sheila To: "Hepatitis_C_Central " <Hepatitis_C_Central > Sent: Saturday, May 5, 2012 4:25 PM Subject: Re: 4 weeks up-date Sheila, Iam in the good ol' South. I live in Carrriere. , Mississippi but I go to New Orleans, LA for treatment and to see the Doc. Iam 30 minutes from Slidell, LA and a hop skip and a jump from Picayune, MS. I'm pretty sure i will need future transfusions since the anemia is starting so soon in treatment. The Procrit can only do so much. The mornings are the worse for me since I have never been a morning person anyway, I get a burst of energy in late morning then late afternoon Iam wipped out. How far along are you in treatment? ... Patsy To: "Hepatitis_C_Central " <Hepatitis_C_Central > Sent: Friday, May 4, 2012 10:34 PMSubject: Re: 4 weeks up-date Good to hear Patsy..I'm so happy for you. You and I are pretty much identical twins as far as how many treatments and our health status with anemia. I have had 2 blood transfusions and had to get another Procrit shot Wednesday because of my hemoglobin. My wbc is down to a 1 but I seem to be doing good as far as not getting infections. We did drop my ribovirin to 2 doses of 400mg each per day and because my anemia is not getting better we dropped some of the Pegasys injection. I was on 180mg once a week and they told me to drop down to 150mg but I didn't see that on the syringe so they are suppose to call me back (I made my dose between 180 & 135). If anyone has a suggestion for that please let me know but I am waiting for a call back from the doctor/nurse on what dose to take next wednesday. I agree also on the work status. I worked both my last 2 treatments (but didn't have incivek) and I could not have worked this third treatment. I will say being done with the incivek and got my 12 week results Wednesday and still coming up undetectable is the best news yet for me and I feel you Patsy will get the same good news!!! Are you located on the east coast by any chance? Love, Sheila To: "hepatitis_c_central " <hepatitis_c_central > Sent: Friday, May 4, 2012 7:56 PMSubject: 4 weeks up-date I started April 1st on the Incivek, Peg, Riba combo and my labs for 4 weeks are NEGATIVE......yahoo!!!!!! I started Procrit today since my Anemia has kicked in. On friday of last week I had to be admitted to the hospital for 3 units of blood. Got down to 7.1, platelates 99 and 2.0 between the WBC and RBC. Not good. Thats ok, as long as I know it's working I'll do whatever I have to do. Still have a long road ahead, will re-check viral load at 12 wks, then will be able to stop Incivek. The ribavirin has been up and down. Right now I'm at 600 in am no dose at night. I gave this web-site to my Doc because she said a lot of patients have been unhappy with some of the things they have been reading on other sites. She's a PA at Ochsner Medical Center in New Orleans, I live in MS. She pulled up this web-site while I was in her office and said she will give it to some of her patients who are inteested. My BP has been elevated and they keep having to change my medicine, what I was taking for years does not work with the Hep-C meds. Other than headaches, nausea and insominia it has not been that bad. I have never had hair loss, this is my 3rd go round. Keep thinking positive thoughts, pray a lot and REST. I have 3 Grandchildren living with my Hubby and I but he is wonderful and helps me a lot. Plus the fact that I'm not working, helps also. Keep the faith....God Is Great!!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2012 Report Share Posted May 5, 2012 I have friends that live in the area that Patsy does. Maybe one day we can all meet in New Orleans and have a great time celebrate the fact that we are all SVR. *Smiles* Good luck Ladies, I am cheering for you. Love Janet "There are souls in this world that have the gift of finding joy everywhere and of leaving it behind them when they go" Frederick Faber To: "Hepatitis_C_Central " <Hepatitis_C_Central > Sent: Saturday, May 5, 2012 4:28 PMSubject: Re: 4 weeks up-date I thought maybe we were close enough to meet but I think Mississippi is pretty far from the coast of North Carolina. My hemoglobin went down after week 1 but I didn't drop low enough until week 9 to get a transfusion and have had 2 transfusions since starting. Now I feel better in the morning (medicine wise) because I'm laying down all night and not using the little bit of oxygen my blood has (that's my thoughts). I am in week 15 and do have to do 48 weeks since this is my third treatment. My last day for the Pegasys and Ribovirin will be December 24th.........MERRY CHRISTMAS I do say if it wasn't for God in my life It would have and will be more harder then it has to for this is my first treatment that I God is my life (I was called in 2009). Love, Sheila To: "Hepatitis_C_Central " <Hepatitis_C_Central > Sent: Saturday, May 5, 2012 4:25 PMSubject: Re: 4 weeks up-date Sheila, Iam in the good ol' South. I live in Carrriere. , Mississippi but I go to New Orleans, LA for treatment and to see the Doc. Iam 30 minutes from Slidell, LA and a hop skip and a jump from Picayune, MS. I'm pretty sure i will need future transfusions since the anemia is starting so soon in treatment. The Procrit can only do so much. The mornings are the worse for me since I have never been a morning person anyway, I get a burst of energy in late morning then late afternoon Iam wipped out. How far along are you in treatment? ... Patsy To: "Hepatitis_C_Central " <Hepatitis_C_Central > Sent: Friday, May 4, 2012 10:34 PMSubject: Re: 4 weeks up-date Good to hear Patsy..I'm so happy for you. You and I are pretty much identical twins as far as how many treatments and our health status with anemia. I have had 2 blood transfusions and had to get another Procrit shot Wednesday because of my hemoglobin. My wbc is down to a 1 but I seem to be doing good as far as not getting infections. We did drop my ribovirin to 2 doses of 400mg each per day and because my anemia is not getting better we dropped some of the Pegasys injection. I was on 180mg once a week and they told me to drop down to 150mg but I didn't see that on the syringe so they are suppose to call me back (I made my dose between 180 & 135). If anyone has a suggestion for that please let me know but I am waiting for a call back from the doctor/nurse on what dose to take next wednesday. I agree also on the work status. I worked both my last 2 treatments (but didn't have incivek) and I could not have worked this third treatment. I will say being done with the incivek and got my 12 week results Wednesday and still coming up undetectable is the best news yet for me and I feel you Patsy will get the same good news!!! Are you located on the east coast by any chance? Love, Sheila To: "hepatitis_c_central " <hepatitis_c_central > Sent: Friday, May 4, 2012 7:56 PMSubject: 4 weeks up-date I started April 1st on the Incivek, Peg, Riba combo and my labs for 4 weeks are NEGATIVE......yahoo!!!!!! I started Procrit today since my Anemia has kicked in. On friday of last week I had to be admitted to the hospital for 3 units of blood. Got down to 7.1, platelates 99 and 2.0 between the WBC and RBC. Not good. Thats ok, as long as I know it's working I'll do whatever I have to do. Still have a long road ahead, will re-check viral load at 12 wks, then will be able to stop Incivek. The ribavirin has been up and down. Right now I'm at 600 in am no dose at night. I gave this web-site to my Doc because she said a lot of patients have been unhappy with some of the things they have been reading on other sites. She's a PA at Ochsner Medical Center in New Orleans, I live in MS. She pulled up this web-site while I was in her office and said she will give it to some of her patients who are inteested. My BP has been elevated and they keep having to change my medicine, what I was taking for years does not work with the Hep-C meds. Other than headaches, nausea and insominia it has not been that bad. I have never had hair loss, this is my 3rd go round. Keep thinking positive thoughts, pray a lot and REST. I have 3 Grandchildren living with my Hubby and I but he is wonderful and helps me a lot. Plus the fact that I'm not working, helps also. Keep the faith....God Is Great!!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2012 Report Share Posted May 5, 2012 Congrats Sheila,, I love it that God called you,, He called me too!!! Treatment is difficult but you can do it and we will be here with you all the way!hugsjax To: "Hepatitis_C_Central " <Hepatitis_C_Central > Sent: Saturday, May 5, 2012 2:28 PM Subject: Re: 4 weeks up-date I thought maybe we were close enough to meet but I think Mississippi is pretty far from the coast of North Carolina. My hemoglobin went down after week 1 but I didn't drop low enough until week 9 to get a transfusion and have had 2 transfusions since starting. Now I feel better in the morning (medicine wise) because I'm laying down all night and not using the little bit of oxygen my blood has (that's my thoughts). I am in week 15 and do have to do 48 weeks since this is my third treatment. My last day for the Pegasys and Ribovirin will be December 24th.........MERRY CHRISTMAS I do say if it wasn't for God in my life It would have and will be more harder then it has to for this is my first treatment that I God is my life (I was called in 2009). Love,Sheila To: "Hepatitis_C_Central " <Hepatitis_C_Central > Sent: Saturday, May 5, 2012 4:25 PM Subject: Re: 4 weeks up-date Sheila, Iam in the good ol' South. I live in Carrriere. , Mississippi but I go to New Orleans, LA for treatment and to see the Doc. Iam 30 minutes from Slidell, LA and a hop skip and a jump from Picayune, MS. I'm pretty sure i will need future transfusions since the anemia is starting so soon in treatment. The Procrit can only do so much. The mornings are the worse for me since I have never been a morning person anyway, I get a burst of energy in late morning then late afternoon Iam wipped out. How far along are you in treatment? ... Patsy To: "Hepatitis_C_Central " <Hepatitis_C_Central > Sent: Friday, May 4, 2012 10:34 PMSubject: Re: 4 weeks up-date Good to hear Patsy..I'm so happy for you. You and I are pretty much identical twins as far as how many treatments and our health status with anemia. I have had 2 blood transfusions and had to get another Procrit shot Wednesday because of my hemoglobin. My wbc is down to a 1 but I seem to be doing good as far as not getting infections. We did drop my ribovirin to 2 doses of 400mg each per day and because my anemia is not getting better we dropped some of the Pegasys injection. I was on 180mg once a week and they told me to drop down to 150mg but I didn't see that on the syringe so they are suppose to call me back (I made my dose between 180 & 135). If anyone has a suggestion for that please let me know but I am waiting for a call back from the doctor/nurse on what dose to take next wednesday. I agree also on the work status. I worked both my last 2 treatments (but didn't have incivek) and I could not have worked this third treatment. I will say being done with the incivek and got my 12 week results Wednesday and still coming up undetectable is the best news yet for me and I feel you Patsy will get the same good news!!! Are you located on the east coast by any chance? Love, Sheila To: "hepatitis_c_central " <hepatitis_c_central > Sent: Friday, May 4, 2012 7:56 PMSubject: 4 weeks up-date I started April 1st on the Incivek, Peg, Riba combo and my labs for 4 weeks are NEGATIVE......yahoo!!!!!! I started Procrit today since my Anemia has kicked in. On friday of last week I had to be admitted to the hospital for 3 units of blood. Got down to 7.1, platelates 99 and 2.0 between the WBC and RBC. Not good. Thats ok, as long as I know it's working I'll do whatever I have to do. Still have a long road ahead, will re-check viral load at 12 wks, then will be able to stop Incivek. The ribavirin has been up and down. Right now I'm at 600 in am no dose at night. I gave this web-site to my Doc because she said a lot of patients have been unhappy with some of the things they have been reading on other sites. She's a PA at Ochsner Medical Center in New Orleans, I live in MS. She pulled up this web-site while I was in her office and said she will give it to some of her patients who are inteested. My BP has been elevated and they keep having to change my medicine, what I was taking for years does not work with the Hep-C meds. Other than headaches, nausea and insominia it has not been that bad. I have never had hair loss, this is my 3rd go round. Keep thinking positive thoughts, pray a lot and REST. I have 3 Grandchildren living with my Hubby and I but he is wonderful and helps me a lot. Plus the fact that I'm not working, helps also. Keep the faith....God Is Great!!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2012 Report Share Posted May 6, 2012 I think I could make plans to come to come to New Orleans to meet everyone. That would be very cool! To: "Hepatitis_C_Central " <Hepatitis_C_Central > Sent: Saturday, May 5, 2012 5:52 PM Subject: Re: 4 weeks up-date I have friends that live in the area that Patsy does. Maybe one day we can all meet in New Orleans and have a great time celebrate the fact that we are all SVR. *Smiles* Good luck Ladies, I am cheering for you. Love Janet "There are souls in this world that have the gift of finding joy everywhere and of leaving it behind them when they go" Frederick Faber To: "Hepatitis_C_Central " <Hepatitis_C_Central > Sent: Saturday, May 5, 2012 4:28 PMSubject: Re: 4 weeks up-date I thought maybe we were close enough to meet but I think Mississippi is pretty far from the coast of North Carolina. My hemoglobin went down after week 1 but I didn't drop low enough until week 9 to get a transfusion and have had 2 transfusions since starting. Now I feel better in the morning (medicine wise) because I'm laying down all night and not using the little bit of oxygen my blood has (that's my thoughts). I am in week 15 and do have to do 48 weeks since this is my third treatment. My last day for the Pegasys and Ribovirin will be December 24th.........MERRY CHRISTMAS I do say if it wasn't for God in my life It would have and will be more harder then it has to for this is my first treatment that I God is my life (I was called in 2009). Love, Sheila To: "Hepatitis_C_Central " <Hepatitis_C_Central > Sent: Saturday, May 5, 2012 4:25 PMSubject: Re: 4 weeks up-date Sheila, Iam in the good ol' South. I live in Carrriere. , Mississippi but I go to New Orleans, LA for treatment and to see the Doc. Iam 30 minutes from Slidell, LA and a hop skip and a jump from Picayune, MS. I'm pretty sure i will need future transfusions since the anemia is starting so soon in treatment. The Procrit can only do so much. The mornings are the worse for me since I have never been a morning person anyway, I get a burst of energy in late morning then late afternoon Iam wipped out. How far along are you in treatment? ... Patsy To: "Hepatitis_C_Central " <Hepatitis_C_Central > Sent: Friday, May 4, 2012 10:34 PMSubject: Re: 4 weeks up-date Good to hear Patsy..I'm so happy for you. You and I are pretty much identical twins as far as how many treatments and our health status with anemia. I have had 2 blood transfusions and had to get another Procrit shot Wednesday because of my hemoglobin. My wbc is down to a 1 but I seem to be doing good as far as not getting infections. We did drop my ribovirin to 2 doses of 400mg each per day and because my anemia is not getting better we dropped some of the Pegasys injection. I was on 180mg once a week and they told me to drop down to 150mg but I didn't see that on the syringe so they are suppose to call me back (I made my dose between 180 & 135). If anyone has a suggestion for that please let me know but I am waiting for a call back from the doctor/nurse on what dose to take next wednesday. I agree also on the work status. I worked both my last 2 treatments (but didn't have incivek) and I could not have worked this third treatment. I will say being done with the incivek and got my 12 week results Wednesday and still coming up undetectable is the best news yet for me and I feel you Patsy will get the same good news!!! Are you located on the east coast by any chance? Love, Sheila To: "hepatitis_c_central " <hepatitis_c_central > Sent: Friday, May 4, 2012 7:56 PMSubject: 4 weeks up-date I started April 1st on the Incivek, Peg, Riba combo and my labs for 4 weeks are NEGATIVE......yahoo!!!!!! I started Procrit today since my Anemia has kicked in. On friday of last week I had to be admitted to the hospital for 3 units of blood. Got down to 7.1, platelates 99 and 2.0 between the WBC and RBC. Not good. Thats ok, as long as I know it's working I'll do whatever I have to do. Still have a long road ahead, will re-check viral load at 12 wks, then will be able to stop Incivek. The ribavirin has been up and down. Right now I'm at 600 in am no dose at night. I gave this web-site to my Doc because she said a lot of patients have been unhappy with some of the things they have been reading on other sites. She's a PA at Ochsner Medical Center in New Orleans, I live in MS. She pulled up this web-site while I was in her office and said she will give it to some of her patients who are inteested. My BP has been elevated and they keep having to change my medicine, what I was taking for years does not work with the Hep-C meds. Other than headaches, nausea and insominia it has not been that bad. I have never had hair loss, this is my 3rd go round. Keep thinking positive thoughts, pray a lot and REST. I have 3 Grandchildren living with my Hubby and I but he is wonderful and helps me a lot. Plus the fact that I'm not working, helps also. Keep the faith....God Is Great!!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2012 Report Share Posted May 6, 2012 Thank you to Jax, Janet, Rick, , Patsy, etc, etc, etc., This is the best website and one of the best families I belong to. Love,Sheila To: "Hepatitis_C_Central " <Hepatitis_C_Central > Sent: Saturday, May 5, 2012 11:12 PM Subject: Re: 4 weeks up-date Congrats Sheila,, I love it that God called you,, He called me too!!! Treatment is difficult but you can do it and we will be here with you all the way!hugsjax To: "Hepatitis_C_Central " <Hepatitis_C_Central > Sent: Saturday, May 5, 2012 2:28 PM Subject: Re: 4 weeks up-date I thought maybe we were close enough to meet but I think Mississippi is pretty far from the coast of North Carolina. My hemoglobin went down after week 1 but I didn't drop low enough until week 9 to get a transfusion and have had 2 transfusions since starting. Now I feel better in the morning (medicine wise) because I'm laying down all night and not using the little bit of oxygen my blood has (that's my thoughts). I am in week 15 and do have to do 48 weeks since this is my third treatment. My last day for the Pegasys and Ribovirin will be December 24th.........MERRY CHRISTMAS I do say if it wasn't for God in my life It would have and will be more harder then it has to for this is my first treatment that I God is my life (I was called in 2009). Love,Sheila To: "Hepatitis_C_Central " <Hepatitis_C_Central > Sent: Saturday, May 5, 2012 4:25 PM Subject: Re: 4 weeks up-date Sheila, Iam in the good ol' South. I live in Carrriere. , Mississippi but I go to New Orleans, LA for treatment and to see the Doc. Iam 30 minutes from Slidell, LA and a hop skip and a jump from Picayune, MS. I'm pretty sure i will need future transfusions since the anemia is starting so soon in treatment. The Procrit can only do so much. The mornings are the worse for me since I have never been a morning person anyway, I get a burst of energy in late morning then late afternoon Iam wipped out. How far along are you in treatment? ... Patsy To: "Hepatitis_C_Central " <Hepatitis_C_Central > Sent: Friday, May 4, 2012 10:34 PMSubject: Re: 4 weeks up-date Good to hear Patsy..I'm so happy for you. You and I are pretty much identical twins as far as how many treatments and our health status with anemia. I have had 2 blood transfusions and had to get another Procrit shot Wednesday because of my hemoglobin. My wbc is down to a 1 but I seem to be doing good as far as not getting infections. We did drop my ribovirin to 2 doses of 400mg each per day and because my anemia is not getting better we dropped some of the Pegasys injection. I was on 180mg once a week and they told me to drop down to 150mg but I didn't see that on the syringe so they are suppose to call me back (I made my dose between 180 & 135). If anyone has a suggestion for that please let me know but I am waiting for a call back from the doctor/nurse on what dose to take next wednesday. I agree also on the work status. I worked both my last 2 treatments (but didn't have incivek) and I could not have worked this third treatment. I will say being done with the incivek and got my 12 week results Wednesday and still coming up undetectable is the best news yet for me and I feel you Patsy will get the same good news!!! Are you located on the east coast by any chance? Love, Sheila To: "hepatitis_c_central " <hepatitis_c_central > Sent: Friday, May 4, 2012 7:56 PMSubject: 4 weeks up-date I started April 1st on the Incivek, Peg, Riba combo and my labs for 4 weeks are NEGATIVE......yahoo!!!!!! I started Procrit today since my Anemia has kicked in. On friday of last week I had to be admitted to the hospital for 3 units of blood. Got down to 7.1, platelates 99 and 2.0 between the WBC and RBC. Not good. Thats ok, as long as I know it's working I'll do whatever I have to do. Still have a long road ahead, will re-check viral load at 12 wks, then will be able to stop Incivek. The ribavirin has been up and down. Right now I'm at 600 in am no dose at night. I gave this web-site to my Doc because she said a lot of patients have been unhappy with some of the things they have been reading on other sites. She's a PA at Ochsner Medical Center in New Orleans, I live in MS. She pulled up this web-site while I was in her office and said she will give it to some of her patients who are inteested. My BP has been elevated and they keep having to change my medicine, what I was taking for years does not work with the Hep-C meds. Other than headaches, nausea and insominia it has not been that bad. I have never had hair loss, this is my 3rd go round. Keep thinking positive thoughts, pray a lot and REST. I have 3 Grandchildren living with my Hubby and I but he is wonderful and helps me a lot. Plus the fact that I'm not working, helps also. Keep the faith....God Is Great!!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2012 Report Share Posted May 7, 2012 Sheila, that would be great...I would love meeting you all......we just gotta hang in for each other.....hugs Patsy To: "Hepatitis_C_Central " <Hepatitis_C_Central > Sent: Sunday, May 6, 2012 4:22 PMSubject: Re: 4 weeks up-date I think I could make plans to come to come to New Orleans to meet everyone. That would be very cool! To: "Hepatitis_C_Central " <Hepatitis_C_Central > Sent: Saturday, May 5, 2012 5:52 PMSubject: Re: 4 weeks up-date I have friends that live in the area that Patsy does. Maybe one day we can all meet in New Orleans and have a great time celebrate the fact that we are all SVR. *Smiles* Good luck Ladies, I am cheering for you. Love Janet "There are souls in this world that have the gift of finding joy everywhere and of leaving it behind them when they go" Frederick Faber To: "Hepatitis_C_Central " <Hepatitis_C_Central > Sent: Saturday, May 5, 2012 4:28 PMSubject: Re: 4 weeks up-date I thought maybe we were close enough to meet but I think Mississippi is pretty far from the coast of North Carolina. My hemoglobin went down after week 1 but I didn't drop low enough until week 9 to get a transfusion and have had 2 transfusions since starting. Now I feel better in the morning (medicine wise) because I'm laying down all night and not using the little bit of oxygen my blood has (that's my thoughts). I am in week 15 and do have to do 48 weeks since this is my third treatment. My last day for the Pegasys and Ribovirin will be December 24th.........MERRY CHRISTMAS I do say if it wasn't for God in my life It would have and will be more harder then it has to for this is my first treatment that I God is my life (I was called in 2009). Love, Sheila To: "Hepatitis_C_Central " <Hepatitis_C_Central > Sent: Saturday, May 5, 2012 4:25 PMSubject: Re: 4 weeks up-date Sheila, Iam in the good ol' South. I live in Carrriere. , Mississippi but I go to New Orleans, LA for treatment and to see the Doc. Iam 30 minutes from Slidell, LA and a hop skip and a jump from Picayune, MS. I'm pretty sure i will need future transfusions since the anemia is starting so soon in treatment. The Procrit can only do so much. The mornings are the worse for me since I have never been a morning person anyway, I get a burst of energy in late morning then late afternoon Iam wipped out. How far along are you in treatment? ... Patsy To: "Hepatitis_C_Central " <Hepatitis_C_Central > Sent: Friday, May 4, 2012 10:34 PMSubject: Re: 4 weeks up-date Good to hear Patsy..I'm so happy for you. You and I are pretty much identical twins as far as how many treatments and our health status with anemia. I have had 2 blood transfusions and had to get another Procrit shot Wednesday because of my hemoglobin. My wbc is down to a 1 but I seem to be doing good as far as not getting infections. We did drop my ribovirin to 2 doses of 400mg each per day and because my anemia is not getting better we dropped some of the Pegasys injection. I was on 180mg once a week and they told me to drop down to 150mg but I didn't see that on the syringe so they are suppose to call me back (I made my dose between 180 & 135). If anyone has a suggestion for that please let me know but I am waiting for a call back from the doctor/nurse on what dose to take next wednesday. I agree also on the work status. I worked both my last 2 treatments (but didn't have incivek) and I could not have worked this third treatment. I will say being done with the incivek and got my 12 week results Wednesday and still coming up undetectable is the best news yet for me and I feel you Patsy will get the same good news!!! Are you located on the east coast by any chance? Love, Sheila To: "hepatitis_c_central " <hepatitis_c_central > Sent: Friday, May 4, 2012 7:56 PMSubject: 4 weeks up-date I started April 1st on the Incivek, Peg, Riba combo and my labs for 4 weeks are NEGATIVE......yahoo!!!!!! I started Procrit today since my Anemia has kicked in. On friday of last week I had to be admitted to the hospital for 3 units of blood. Got down to 7.1, platelates 99 and 2.0 between the WBC and RBC. Not good. Thats ok, as long as I know it's working I'll do whatever I have to do. Still have a long road ahead, will re-check viral load at 12 wks, then will be able to stop Incivek. The ribavirin has been up and down. Right now I'm at 600 in am no dose at night. I gave this web-site to my Doc because she said a lot of patients have been unhappy with some of the things they have been reading on other sites. She's a PA at Ochsner Medical Center in New Orleans, I live in MS. She pulled up this web-site while I was in her office and said she will give it to some of her patients who are inteested. My BP has been elevated and they keep having to change my medicine, what I was taking for years does not work with the Hep-C meds. Other than headaches, nausea and insominia it has not been that bad. I have never had hair loss, this is my 3rd go round. Keep thinking positive thoughts, pray a lot and REST. I have 3 Grandchildren living with my Hubby and I but he is wonderful and helps me a lot. Plus the fact that I'm not working, helps also. Keep the faith....God Is Great!!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2012 Report Share Posted May 7, 2012 i still have a long way to go but this being my 3rd try, I gotta do what I gotta do.....prayers are with you girlfriend Patsy To: "Hepatitis_C_Central " <Hepatitis_C_Central > Sent: Sunday, May 6, 2012 4:24 PMSubject: Re: 4 weeks up-date Thank you to Jax, Janet, Rick, , Patsy, etc, etc, etc., This is the best website and one of the best families I belong to. Love, Sheila To: "Hepatitis_C_Central " <Hepatitis_C_Central > Sent: Saturday, May 5, 2012 11:12 PMSubject: Re: 4 weeks up-date Congrats Sheila,, I love it that God called you,, He called me too!!! Treatment is difficult but you can do it and we will be here with you all the way! hugs jax To: "Hepatitis_C_Central " <Hepatitis_C_Central > Sent: Saturday, May 5, 2012 2:28 PMSubject: Re: 4 weeks up-date I thought maybe we were close enough to meet but I think Mississippi is pretty far from the coast of North Carolina. My hemoglobin went down after week 1 but I didn't drop low enough until week 9 to get a transfusion and have had 2 transfusions since starting. Now I feel better in the morning (medicine wise) because I'm laying down all night and not using the little bit of oxygen my blood has (that's my thoughts). I am in week 15 and do have to do 48 weeks since this is my third treatment. My last day for the Pegasys and Ribovirin will be December 24th.........MERRY CHRISTMAS I do say if it wasn't for God in my life It would have and will be more harder then it has to for this is my first treatment that I God is my life (I was called in 2009). Love, Sheila To: "Hepatitis_C_Central " <Hepatitis_C_Central > Sent: Saturday, May 5, 2012 4:25 PMSubject: Re: 4 weeks up-date Sheila, Iam in the good ol' South. I live in Carrriere. , Mississippi but I go to New Orleans, LA for treatment and to see the Doc. Iam 30 minutes from Slidell, LA and a hop skip and a jump from Picayune, MS. I'm pretty sure i will need future transfusions since the anemia is starting so soon in treatment. The Procrit can only do so much. The mornings are the worse for me since I have never been a morning person anyway, I get a burst of energy in late morning then late afternoon Iam wipped out. How far along are you in treatment? ... Patsy To: "Hepatitis_C_Central " <Hepatitis_C_Central > Sent: Friday, May 4, 2012 10:34 PMSubject: Re: 4 weeks up-date Good to hear Patsy..I'm so happy for you. You and I are pretty much identical twins as far as how many treatments and our health status with anemia. I have had 2 blood transfusions and had to get another Procrit shot Wednesday because of my hemoglobin. My wbc is down to a 1 but I seem to be doing good as far as not getting infections. We did drop my ribovirin to 2 doses of 400mg each per day and because my anemia is not getting better we dropped some of the Pegasys injection. I was on 180mg once a week and they told me to drop down to 150mg but I didn't see that on the syringe so they are suppose to call me back (I made my dose between 180 & 135). If anyone has a suggestion for that please let me know but I am waiting for a call back from the doctor/nurse on what dose to take next wednesday. I agree also on the work status. I worked both my last 2 treatments (but didn't have incivek) and I could not have worked this third treatment. I will say being done with the incivek and got my 12 week results Wednesday and still coming up undetectable is the best news yet for me and I feel you Patsy will get the same good news!!! Are you located on the east coast by any chance? Love, Sheila To: "hepatitis_c_central " <hepatitis_c_central > Sent: Friday, May 4, 2012 7:56 PMSubject: 4 weeks up-date I started April 1st on the Incivek, Peg, Riba combo and my labs for 4 weeks are NEGATIVE......yahoo!!!!!! I started Procrit today since my Anemia has kicked in. On friday of last week I had to be admitted to the hospital for 3 units of blood. Got down to 7.1, platelates 99 and 2.0 between the WBC and RBC. Not good. Thats ok, as long as I know it's working I'll do whatever I have to do. Still have a long road ahead, will re-check viral load at 12 wks, then will be able to stop Incivek. The ribavirin has been up and down. Right now I'm at 600 in am no dose at night. I gave this web-site to my Doc because she said a lot of patients have been unhappy with some of the things they have been reading on other sites. She's a PA at Ochsner Medical Center in New Orleans, I live in MS. She pulled up this web-site while I was in her office and said she will give it to some of her patients who are inteested. My BP has been elevated and they keep having to change my medicine, what I was taking for years does not work with the Hep-C meds. Other than headaches, nausea and insominia it has not been that bad. I have never had hair loss, this is my 3rd go round. Keep thinking positive thoughts, pray a lot and REST. I have 3 Grandchildren living with my Hubby and I but he is wonderful and helps me a lot. Plus the fact that I'm not working, helps also. Keep the faith....God Is Great!!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2012 Report Share Posted May 7, 2012 I WOULD LOVE THAT....LETS ALL KEEP UP THE GOOD WORK Patsy To: "Hepatitis_C_Central " <Hepatitis_C_Central > Sent: Saturday, May 5, 2012 4:52 PMSubject: Re: 4 weeks up-date I have friends that live in the area that Patsy does. Maybe one day we can all meet in New Orleans and have a great time celebrate the fact that we are all SVR. *Smiles* Good luck Ladies, I am cheering for you. Love Janet "There are souls in this world that have the gift of finding joy everywhere and of leaving it behind them when they go" Frederick Faber To: "Hepatitis_C_Central " <Hepatitis_C_Central > Sent: Saturday, May 5, 2012 4:28 PMSubject: Re: 4 weeks up-date I thought maybe we were close enough to meet but I think Mississippi is pretty far from the coast of North Carolina. My hemoglobin went down after week 1 but I didn't drop low enough until week 9 to get a transfusion and have had 2 transfusions since starting. Now I feel better in the morning (medicine wise) because I'm laying down all night and not using the little bit of oxygen my blood has (that's my thoughts). I am in week 15 and do have to do 48 weeks since this is my third treatment. My last day for the Pegasys and Ribovirin will be December 24th.........MERRY CHRISTMAS I do say if it wasn't for God in my life It would have and will be more harder then it has to for this is my first treatment that I God is my life (I was called in 2009). Love, Sheila To: "Hepatitis_C_Central " <Hepatitis_C_Central > Sent: Saturday, May 5, 2012 4:25 PMSubject: Re: 4 weeks up-date Sheila, Iam in the good ol' South. I live in Carrriere. , Mississippi but I go to New Orleans, LA for treatment and to see the Doc. Iam 30 minutes from Slidell, LA and a hop skip and a jump from Picayune, MS. I'm pretty sure i will need future transfusions since the anemia is starting so soon in treatment. The Procrit can only do so much. The mornings are the worse for me since I have never been a morning person anyway, I get a burst of energy in late morning then late afternoon Iam wipped out. How far along are you in treatment? ... Patsy To: "Hepatitis_C_Central " <Hepatitis_C_Central > Sent: Friday, May 4, 2012 10:34 PMSubject: Re: 4 weeks up-date Good to hear Patsy..I'm so happy for you. You and I are pretty much identical twins as far as how many treatments and our health status with anemia. I have had 2 blood transfusions and had to get another Procrit shot Wednesday because of my hemoglobin. My wbc is down to a 1 but I seem to be doing good as far as not getting infections. We did drop my ribovirin to 2 doses of 400mg each per day and because my anemia is not getting better we dropped some of the Pegasys injection. I was on 180mg once a week and they told me to drop down to 150mg but I didn't see that on the syringe so they are suppose to call me back (I made my dose between 180 & 135). If anyone has a suggestion for that please let me know but I am waiting for a call back from the doctor/nurse on what dose to take next wednesday. I agree also on the work status. I worked both my last 2 treatments (but didn't have incivek) and I could not have worked this third treatment. I will say being done with the incivek and got my 12 week results Wednesday and still coming up undetectable is the best news yet for me and I feel you Patsy will get the same good news!!! Are you located on the east coast by any chance? Love, Sheila To: "hepatitis_c_central " <hepatitis_c_central > Sent: Friday, May 4, 2012 7:56 PMSubject: 4 weeks up-date I started April 1st on the Incivek, Peg, Riba combo and my labs for 4 weeks are NEGATIVE......yahoo!!!!!! I started Procrit today since my Anemia has kicked in. On friday of last week I had to be admitted to the hospital for 3 units of blood. Got down to 7.1, platelates 99 and 2.0 between the WBC and RBC. Not good. Thats ok, as long as I know it's working I'll do whatever I have to do. Still have a long road ahead, will re-check viral load at 12 wks, then will be able to stop Incivek. The ribavirin has been up and down. Right now I'm at 600 in am no dose at night. I gave this web-site to my Doc because she said a lot of patients have been unhappy with some of the things they have been reading on other sites. She's a PA at Ochsner Medical Center in New Orleans, I live in MS. She pulled up this web-site while I was in her office and said she will give it to some of her patients who are inteested. My BP has been elevated and they keep having to change my medicine, what I was taking for years does not work with the Hep-C meds. Other than headaches, nausea and insominia it has not been that bad. I have never had hair loss, this is my 3rd go round. Keep thinking positive thoughts, pray a lot and REST. I have 3 Grandchildren living with my Hubby and I but he is wonderful and helps me a lot. Plus the fact that I'm not working, helps also. Keep the faith....God Is Great!!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2012 Report Share Posted May 7, 2012 YAHOO! How ia your tush? Mine is on fire! Docs said part of the side affects To: "hepatitis_c_central " <hepatitis_c_central > Sent: Friday, May 4, 2012 4:56 PM Subject: 4 weeks up-date I started April 1st on the Incivek, Peg, Riba combo and my labs for 4 weeks are NEGATIVE......yahoo!!!!!! I started Procrit today since my Anemia has kicked in. On friday of last week I had to be admitted to the hospital for 3 units of blood. Got down to 7.1, platelates 99 and 2.0 between the WBC and RBC. Not good. Thats ok, as long as I know it's working I'll do whatever I have to do. Still have a long road ahead, will re-check viral load at 12 wks, then will be able to stop Incivek. The ribavirin has been up and down. Right now I'm at 600 in am no dose at night. I gave this web-site to my Doc because she said a lot of patients have been unhappy with some of the things they have been reading on other sites. She's a PA at Ochsner Medical Center in New Orleans, I live in MS. She pulled up this web-site while I was in her office and said she will give it to some of her patients who are inteested. My BP has been elevated and they keep having to change my medicine, what I was taking for years does not work with the Hep-C meds. Other than headaches, nausea and insominia it has not been that bad. I have never had hair loss, this is my 3rd go round. Keep thinking positive thoughts, pray a lot and REST. I have 3 Grandchildren living with my Hubby and I but he is wonderful and helps me a lot. Plus the fact that I'm not working, helps also. Keep the faith....God Is Great!!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2012 Report Share Posted May 22, 2012 Hang in there Steph that will come to an end at 12 weeks. I took a quick shower after each bm and cleaned the area really really well. ask your dr for some medicine for the burn, it will go away after 12 weeks trust me. Just a little update about myself. I am 1 month post tx and I am feeling great. I think that the time I spent on tx was worth it. I hope that you continue to negitive I know you will do well. Rick > > YAHOO! How ia your tush? Mine is on fire! Docs said part of the side affects > > > > >________________________________ > > > >To: " hepatitis_c_central " <hepatitis_c_central > > >Sent: Friday, May 4, 2012 4:56 PM > >Subject: 4 weeks up-date > > > > > > > > > > > > > > I started April 1st on the Incivek, Peg, Riba combo and my labs for 4 weeks are NEGATIVE......yahoo!!!!!! I started Procrit today since my Anemia has kicked in. On friday of last week I had to be admitted to the hospital for 3 units of blood. Got down to 7.1, platelates 99 and 2.0 between the WBC and RBC. Not good. Thats ok, as long as I know it's working I'll do whatever I have to do. Still have a long road ahead, will re-check viral load at 12 wks, then will be able to stop Incivek. The ribavirin has been up and down. Right now I'm at 600 in am no dose at night. I gave this web-site to my Doc because she said a lot of patients have been unhappy with some of the things they have been reading on other sites. She's a PA at Ochsner Medical Center in New Orleans, I live in MS. She pulled up this web-site while I was in her office and said she will give it to some of her patients who are inteested. My BP has been elevated and they keep having to change > my medicine, what I was taking for years does not work with the Hep-C meds. Other than headaches, nausea and insominia it has not been that bad. I have never had hair loss, this is my 3rd go round. Keep thinking positive thoughts, pray a lot and REST. I have 3 Grandchildren living with my Hubby and I but he is wonderful and helps me a lot. Plus the fact that I'm not working, helps also. Keep the faith....God Is Great!!!!! > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2012 Report Share Posted May 22, 2012 Thanks Rick for your support, but my doctors took me off treatment over a week ago. I could not keep the pills down for more that 10 minutes. I am so happy that you were able to get through treatment and now are feeling good. Finally there is an end of this for you!! Steph To: Hepatitis_C_Central Sent: Tuesday, May 22, 2012 12:09 PMSubject: Re: 4 weeks up-date Hang in there Steph that will come to an end at 12 weeks. I took a quick shower after each bm and cleaned the area really really well. ask your dr for some medicine for the burn, it will go away after 12 weeks trust me.Just a little update about myself. I am 1 month post tx and I am feeling great. I think that the time I spent on tx was worth it. I hope that you continue to negitive I know you will do well.Rick>> YAHOO! How ia your tush? Mine is on fire! Docs said part of the side affects> > > > >________________________________> > > >To: "hepatitis_c_central " <hepatitis_c_central > > >Sent: Friday, May 4, 2012 4:56 PM> >Subject: 4 weeks up-date> > > >> > > > > > > > > > I started April 1st on the Incivek, Peg, Riba combo and my labs for 4 weeks are NEGATIVE......yahoo!!!!!! I started Procrit today since my Anemia has kicked in. On friday of last week I had to be admitted to the hospital for 3 units of blood. Got down to 7.1, platelates 99 and 2.0 between the WBC and RBC. Not good. Thats ok, as long as I know it's working I'll do whatever I have to do. Still have a long road ahead, will re-check viral load at 12 wks, then will be able to stop Incivek. The ribavirin has been up and down. Right now I'm at 600 in am no dose at night. I gave this web-site to my Doc because she said a lot of patients have been unhappy with some of the things they have been reading on other sites. She's a PA at Ochsner Medical Center in New Orleans, I live in MS. She pulled up this web-site while I was in her office and said she will give it to some of her patients who are inteested. My BP has been elevated and they keep having to change> my medicine, what I was taking for years does not work with the Hep-C meds. Other than headaches, nausea and insominia it has not been that bad. I have never had hair loss, this is my 3rd go round. Keep thinking positive thoughts, pray a lot and REST. I have 3 Grandchildren living with my Hubby and I but he is wonderful and helps me a lot. Plus the fact that I'm not working, helps also. Keep the faith....God Is Great!!!!! > > > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2012 Report Share Posted May 23, 2012 Steph.....I was also taken off of treatment. Monday my labs showed that my HGB kept dropping even after stopping the Ribavirin for a few days. They kept decreasing my doseage to no avail. I had labs done today and it will tell if Iam still negative. These a chance the virus will return but there have been cases where miracles happen and the virus never returns. I hope Iam one of the few thet happens to. I was in stage 3 fibrosis so any improvement is better than what it was before I started. It's just very dissapointing cause I just started treatment April 2nd and have to stop already. Iam still very tired and the rash was beginning to show it's ugly face. Hopefully that will clear up soon along with my sore butt. I know there are new drugs coming available so I will not give up hope. I'm so happy for you Rick, needless to say, you are one of the lucky ones who managed the side effects better than we did. Continued good luck to you. I will continue to post and wish everyone fighting this viscious disease all the best. Patsy To: "Hepatitis_C_Central " <Hepatitis_C_Central > Sent: Tuesday, May 22, 2012 3:34 PMSubject: Re: Re: 4 weeks up-date Thanks Rick for your support, but my doctors took me off treatment over a week ago. I could not keep the pills down for more that 10 minutes. I am so happy that you were able to get through treatment and now are feeling good. Finally there is an end of this for you!! Steph To: Hepatitis_C_Central Sent: Tuesday, May 22, 2012 12:09 PMSubject: Re: 4 weeks up-date Hang in there Steph that will come to an end at 12 weeks. I took a quick shower after each bm and cleaned the area really really well. ask your dr for some medicine for the burn, it will go away after 12 weeks trust me.Just a little update about myself. I am 1 month post tx and I am feeling great. I think that the time I spent on tx was worth it. I hope that you continue to negitive I know you will do well.Rick>> YAHOO! How ia your tush? Mine is on fire! Docs said part of the side affects> > > > >________________________________> > > >To: "hepatitis_c_central " <hepatitis_c_central > > >Sent: Friday, May 4, 2012 4:56 PM> >Subject: 4 weeks up-date> > > >> > > > > > > > > > I started April 1st on the Incivek, Peg, Riba combo and my labs for 4 weeks are NEGATIVE......yahoo!!!!!! I started Procrit today since my Anemia has kicked in. On friday of last week I had to be admitted to the hospital for 3 units of blood. Got down to 7.1, platelates 99 and 2.0 between the WBC and RBC. Not good. Thats ok, as long as I know it's working I'll do whatever I have to do. Still have a long road ahead, will re-check viral load at 12 wks, then will be able to stop Incivek. The ribavirin has been up and down. Right now I'm at 600 in am no dose at night. I gave this web-site to my Doc because she said a lot of patients have been unhappy with some of the things they have been reading on other sites. She's a PA at Ochsner Medical Center in New Orleans, I live in MS. She pulled up this web-site while I was in her office and said she will give it to some of her patients who are inteested. My BP has been elevated and they keep having to change> my medicine, what I was taking for years does not work with the Hep-C meds. Other than headaches, nausea and insominia it has not been that bad. I have never had hair loss, this is my 3rd go round. Keep thinking positive thoughts, pray a lot and REST. I have 3 Grandchildren living with my Hubby and I but he is wonderful and helps me a lot. Plus the fact that I'm not working, helps also. Keep the faith....God Is Great!!!!! > > > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2012 Report Share Posted May 24, 2012 Just an FYI to those with a low HGB, My count went from 7.6-7.9 in a week. I have gotten a shot of Procrit each week for the last 3 months and 2 blood transfusions and I thank Steph for mentioning it in a recent message about her nose bleeding for if she didn't, I never would have known it was a side affect of the treatment (I believe it is the incivek that causes this).My nose is no longer bleeding (i did finish my 12 week treatment about 3 weeks ago) and my HGB is going up, now it is all making sense. If blood was coming out of my nose (like onto my face or shirt) I would have known it was a problem but I thought my nose was dehydrated and started cracking and that is where the bleeding came from. And, the only time I noticed blood is using a tissue and cleaning the dry blood from the previous day which also caused fresh blood.Thanks again Steph for being open in your messages you posted...you have helped a family member and I thank you very much. Love,Sheila To: "Hepatitis_C_Central " <Hepatitis_C_Central > Sent: Wednesday, May 23, 2012 3:49 PM Subject: Re: Re: 4 weeks up-date Steph.....I was also taken off of treatment. Monday my labs showed that my HGB kept dropping even after stopping the Ribavirin for a few days. They kept decreasing my doseage to no avail. I had labs done today and it will tell if Iam still negative. These a chance the virus will return but there have been cases where miracles happen and the virus never returns. I hope Iam one of the few thet happens to. I was in stage 3 fibrosis so any improvement is better than what it was before I started. It's just very dissapointing cause I just started treatment April 2nd and have to stop already. Iam still very tired and the rash was beginning to show it's ugly face. Hopefully that will clear up soon along with my sore butt. I know there are new drugs coming available so I will not give up hope. I'm so happy for you Rick, needless to say, you are one of the lucky ones who managed the side effects better than we did. Continued good luck to you. I will continue to post and wish everyone fighting this viscious disease all the best. Patsy To: "Hepatitis_C_Central " <Hepatitis_C_Central > Sent: Tuesday, May 22, 2012 3:34 PMSubject: Re: Re: 4 weeks up-date Thanks Rick for your support, but my doctors took me off treatment over a week ago. I could not keep the pills down for more that 10 minutes. I am so happy that you were able to get through treatment and now are feeling good. Finally there is an end of this for you!! Steph To: Hepatitis_C_Central Sent: Tuesday, May 22, 2012 12:09 PMSubject: Re: 4 weeks up-date Hang in there Steph that will come to an end at 12 weeks. I took a quick shower after each bm and cleaned the area really really well. ask your dr for some medicine for the burn, it will go away after 12 weeks trust me.Just a little update about myself. I am 1 month post tx and I am feeling great. I think that the time I spent on tx was worth it. I hope that you continue to negitive I know you will do well.Rick>> YAHOO! How ia your tush? Mine is on fire! Docs said part of the side affects> > > > >________________________________> > > >To: "hepatitis_c_central " <hepatitis_c_central > > >Sent: Friday, May 4, 2012 4:56 PM> >Subject: 4 weeks up-date> > > >> > > > > > > > > > I started April 1st on the Incivek, Peg, Riba combo and my labs for 4 weeks are NEGATIVE......yahoo!!!!!! I started Procrit today since my Anemia has kicked in. On friday of last week I had to be admitted to the hospital for 3 units of blood. Got down to 7.1, platelates 99 and 2.0 between the WBC and RBC. Not good. Thats ok, as long as I know it's working I'll do whatever I have to do. Still have a long road ahead, will re-check viral load at 12 wks, then will be able to stop Incivek. The ribavirin has been up and down. Right now I'm at 600 in am no dose at night. I gave this web-site to my Doc because she said a lot of patients have been unhappy with some of the things they have been reading on other sites. She's a PA at Ochsner Medical Center in New Orleans, I live in MS. She pulled up this web-site while I was in her office and said she will give it to some of her patients who are inteested. My BP has been elevated and they keep having to change> my medicine, what I was taking for years does not work with the Hep-C meds. Other than headaches, nausea and insominia it has not been that bad. I have never had hair loss, this is my 3rd go round. Keep thinking positive thoughts, pray a lot and REST. I have 3 Grandchildren living with my Hubby and I but he is wonderful and helps me a lot. Plus the fact that I'm not working, helps also. Keep the faith....God Is Great!!!!! > > > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2012 Report Share Posted May 25, 2012 Good luck on the rest of your treatment! Steph To: "Hepatitis_C_Central " <Hepatitis_C_Central > Sent: Thursday, May 24, 2012 5:46 PMSubject: Re: Re: 4 weeks up-date Just an FYI to those with a low HGB, My count went from 7.6-7.9 in a week. I have gotten a shot of Procrit each week for the last 3 months and 2 blood transfusions and I thank Steph for mentioning it in a recent message about her nose bleeding for if she didn't, I never would have known it was a side affect of the treatment (I believe it is the incivek that causes this). My nose is no longer bleeding (i did finish my 12 week treatment about 3 weeks ago) and my HGB is going up, now it is all making sense. If blood was coming out of my nose (like onto my face or shirt) I would have known it was a problem but I thought my nose was dehydrated and started cracking and that is where the bleeding came from. And, the only time I noticed blood is using a tissue and cleaning the dry blood from the previous day which also caused fresh blood. Thanks again Steph for being open in your messages you posted...you have helped a family member and I thank you very much. Love, Sheila To: "Hepatitis_C_Central " <Hepatitis_C_Central > Sent: Wednesday, May 23, 2012 3:49 PMSubject: Re: Re: 4 weeks up-date Steph.....I was also taken off of treatment. Monday my labs showed that my HGB kept dropping even after stopping the Ribavirin for a few days. They kept decreasing my doseage to no avail. I had labs done today and it will tell if Iam still negative. These a chance the virus will return but there have been cases where miracles happen and the virus never returns. I hope Iam one of the few thet happens to. I was in stage 3 fibrosis so any improvement is better than what it was before I started. It's just very dissapointing cause I just started treatment April 2nd and have to stop already. Iam still very tired and the rash was beginning to show it's ugly face. Hopefully that will clear up soon along with my sore butt. I know there are new drugs coming available so I will not give up hope. I'm so happy for you Rick, needless to say, you are one of the lucky ones who managed the side effects better than we did. Continued good luck to you. I will continue to post and wish everyone fighting this viscious disease all the best. Patsy To: "Hepatitis_C_Central " <Hepatitis_C_Central > Sent: Tuesday, May 22, 2012 3:34 PMSubject: Re: Re: 4 weeks up-date Thanks Rick for your support, but my doctors took me off treatment over a week ago. I could not keep the pills down for more that 10 minutes. I am so happy that you were able to get through treatment and now are feeling good. Finally there is an end of this for you!! Steph To: Hepatitis_C_Central Sent: Tuesday, May 22, 2012 12:09 PMSubject: Re: 4 weeks up-date Hang in there Steph that will come to an end at 12 weeks. I took a quick shower after each bm and cleaned the area really really well. ask your dr for some medicine for the burn, it will go away after 12 weeks trust me.Just a little update about myself. I am 1 month post tx and I am feeling great. I think that the time I spent on tx was worth it. I hope that you continue to negitive I know you will do well.Rick>> YAHOO! How ia your tush? Mine is on fire! Docs said part of the side affects> > > > >________________________________> > > >To: "hepatitis_c_central " <hepatitis_c_central > > >Sent: Friday, May 4, 2012 4:56 PM> >Subject: 4 weeks up-date> > > >> > > > > > > > > > I started April 1st on the Incivek, Peg, Riba combo and my labs for 4 weeks are NEGATIVE......yahoo!!!!!! I started Procrit today since my Anemia has kicked in. On friday of last week I had to be admitted to the hospital for 3 units of blood. Got down to 7.1, platelates 99 and 2.0 between the WBC and RBC. Not good. Thats ok, as long as I know it's working I'll do whatever I have to do. Still have a long road ahead, will re-check viral load at 12 wks, then will be able to stop Incivek. The ribavirin has been up and down. Right now I'm at 600 in am no dose at night. I gave this web-site to my Doc because she said a lot of patients have been unhappy with some of the things they have been reading on other sites. She's a PA at Ochsner Medical Center in New Orleans, I live in MS. She pulled up this web-site while I was in her office and said she will give it to some of her patients who are inteested. My BP has been elevated and they keep having to change> my medicine, what I was taking for years does not work with the Hep-C meds. Other than headaches, nausea and insominia it has not been that bad. I have never had hair loss, this is my 3rd go round. Keep thinking positive thoughts, pray a lot and REST. I have 3 Grandchildren living with my Hubby and I but he is wonderful and helps me a lot. Plus the fact that I'm not working, helps also. Keep the faith....God Is Great!!!!! > > > >> >> Quote Link to comment Share on other sites More sharing options...
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