Re: Re: postings from Medical News Today

[Guest guest]

I think it is good that Medical news today lets websites get updates

without having to do anything. It provides new content when there

is something new, without me having to do anything.

I just check my website a few times a week and post anything new.

Bill, I personally prefer your individual postings by far. Some are of far more interest than others, and each one of us will likely have similar thoughts. As a transplant patient and a non responder to tx, some posts concerning tx itself are not relevant to me, but should be relevant to most others. Thanks for helping increase all of our knowledge basis's. Ignorance USED to be bliss, and now, it's "just the facts, sir!" I hope you keep up your work and all of us should have your site bookmarked under our "Health" favorites.

If people prefer that I don't post the articles, let me know, and I will stop. If you want to see them yourself, you could either go to my website, or to www.medicalnewstoday.com and search.

On my website I have the link directly to the Hep C news.

-- Bill Eastman

www.ke5asu.com/links.html <http://www.ke5asu.com/links.html>

--

Bill Eastman

www.ke5asu.com/links.html

[Guest guest]

I agree totally with Rick, you go Bill. Never fear about boring us. You are a big help to Liz, who can't at this time post research. Thank you for stepping up and doing this for us. You are a big help to all of us.

Love

Janet

"There are souls in this world that have the gift of finding joy everywhere and of leaving it behind them when they go"

Frederick Faber

Subject: Re: postings from Medical News TodayTo: Hepatitis_C_Central Date: Monday, January 10, 2011, 8:35 PM

Bill, I personally prefer your individual postings by far. Some are of far more interest than others, and each one of us will likely have similar thoughts. As a transplant patient and a non responder to tx, some posts concerning tx itself are not relevant to me, but should be relevant to most others. Thanks for helping increase all of our knowledge basis's. Ignorance USED to be bliss, and now, it's "just the facts, sir!" I hope you keep up your work and all of us should have your site bookmarked under our "Health" favorites.>> If people prefer that I don't post the articles, let me know, and I will > stop. If you want to see them yourself, you could either go to

my > website, or to www.medicalnewstoday.com and search.> On my website I have the link directly to the Hep C news.> -- > Bill Eastman> www.ke5asu.com/links.html <http://www.ke5asu.com/links.html>>

[Guest guest]

Hi Mike and welcome

I also did not respond to treatment. I didn't know they had a grading for cirrhosis. I was just told my liver had between 20-25%functionalityty. I was also told if I got cancer of the liver they would transplanimmediatelyly (and of course found a match). I am not sure how the bi pass plays in. Stay as positive as you can. How do you feel?

in California

Subject: Re: postings from Medical News TodayTo: Hepatitis_C_Central Date: Tuesday, January 11, 2011, 5:10 AM

Good morning gentlemenI am a new member of this group. I look forward to your wisdom and experience. I am a non responder of Interferon ribovarin et al.I now have stage four scirosis and a 1.7 cm hepatocellular carcinoma. I will begin a three week series of tests and evaluations at Mayo in ville FloridaI am concerned that I wil not be put on the liver transplant listThey say the Carcemoma must be 2.0 cm.I also had by pass surgery 7 years ago.Thanks> >> > If people prefer that I don't post the articles, let me know, and I will > > stop. If you want to see them yourself, you could either go to my > > website, or to www.medicalnewstoday.com and search.> > On my website I have the link directly to the Hep C news.> > -- > >

Bill Eastman> > www.ke5asu.com/links.html <http://www.ke5asu.com/links.html>> >>

[Guest guest]

Mike, I don't know if you've read the past messages, so just wanted

you to know that I don't have Hep C. My brother did, but he

passed away Dec 11, 2009. I've stuck around and post what I find.

I've tried to get a public service announcement about getting

scanned for Hep C if you received blood transfusion or blood

products prior to 1992, tatoos, etc. but haven't had any luck. At

long last during Christmas this year I found www.healthmonitor.com

basically says the same thing as I said. I only wish that I had

looked at Hepatitis C on Healthmonitor when I first found the site

(more than 5 years prior to getting diagnosed). I looked at

the Diabetes information. If I had looked at Hepatitis C, I would

have made sure got checked for Hepatitis C. I can't change

what has been done, but could warn others so they can begin

treatment if they have it.

The year passed by fast.

Good morning gentlemen

I am a new member of this group. I look forward to your wisdom and experience. I am a non responder of Interferon ribovarin et al.

I now have stage four scirosis and a 1.7 cm hepatocellular carcinoma. I will begin a three week series of tests and evaluations at Mayo in ville Florida

I am concerned that I wil not be put on the liver transplant list

They say the Carcemoma must be 2.0 cm.

I also had by pass surgery 7 years ago.

Thanks

If people prefer that I don't post the articles, let me know, and I will stop. If you want to see them yourself, you could either go to my website, or to www.medicalnewstoday.com and search.

On my website I have the link directly to the Hep C news.

-- Bill Eastman

www.ke5asu.com/links.html <http://www.ke5asu.com/links.html>

--

Bill Eastman

www.ke5asu.com/links.html

[Guest guest]

Thank you for the info and heads up Dr. Galer

Mike, I don't know if you've read the past messages, so just wanted

you to know that I don't have Hep C. My brother did, but he

passed away Dec 11, 2009. I've stuck around and post what I find.

I've tried to get a public service announcement about getting

scanned for Hep C if you received blood transfusion or blood

products prior to 1992, tatoos, etc. but haven't had any luck. At

long last during Christmas this year I found www.healthmonitor.com

basically says the same thing as I said. I only wish that I had

looked at Hepatitis C on Healthmonitor when I first found the site

(more than 5 years prior to getting diagnosed). I looked at

the Diabetes information. If I had looked at Hepatitis C, I would

have made sure got checked for Hepatitis C. I can't change

what has been done, but could warn others so they can begin

treatment if they have it.

The year passed by fast.

Good morning gentlemen

I am a new member of this group. I look forward to your wisdom and experience. I am a non responder of Interferon ribovarin et al.

I now have stage four scirosis and a 1.7 cm hepatocellular carcinoma. I will begin a three week series of tests and evaluations at Mayo in ville Florida

I am concerned that I wil not be put on the liver transplant list

They say the Carcemoma must be 2.0 cm.

I also had by pass surgery 7 years ago.

Thanks

If people prefer that I don't post the articles, let me know, and I will stop. If you want to see them yourself, you could either go to my website, or to www.medicalnewstoday.com and search.

On my website I have the link directly to the Hep C news.

-- Bill Eastman

www.ke5asu.com/links.html <http://www.ke5asu.com/links.html>

--

Bill Eastman

www.ke5asu.com/links.html

[Guest guest]

My brother had stage 4 cirrhosis and was going to a transplant

hospital. Perhaps it was because of the double induction of chemo

back in 1977 that a transplant was never mentioned. His MELD scores

were not high enough to get to the top of the transplant list.

Hi Mike,

I am Penny. I had a liver transplant on January 6, 2008. I don't know anything about the cancer in the liver since I didn't have that. If you have stage 4 cirrhosis now, you should get to a transplant hospital and have an evaluation for a transplant. What kind of doctor do you go to? You need to see a hepatologist at a transplant hospital. If you are seeing a gastroenterologist, he should refer you to a transplant hospital for an evaluation to get a transplant. If you have any questions I can answer, feel free to email me at preciouspenny3@...

Take care,

Penny

If people prefer that I don't post the articles, let me know, and I will stop. If you want to see them yourself, you could either go to my website, or to www.medicalnewstoday.com and search.

On my website I have the link directly to the Hep C news.

-- Bill Eastman

www.ke5asu.com/links.html <http://www.ke5asu.com/links.html>

--

Bill Eastman

www.ke5asu.com/links.html

[Guest guest]

Thank you so much for your suggestions PennyI am going to the Mayo Clinic Transplant Center in FloridaI'm am hoping they will accept me and put me the list Dr. Galer

Hi Mike,

I am Penny. I had a liver transplant on January 6, 2008. I don't know anything about the cancer in the liver since I didn't have that. If you have stage 4 cirrhosis now, you should get to a transplant hospital and have an evaluation for a transplant. What kind of doctor do you go to? You need to see a hepatologist at a transplant hospital. If you are seeing a gastroenterologist, he should refer you to a transplant hospital for an evaluation to get a transplant. If you have any questions I can answer, feel free to email me at preciouspenny3@...

Take care,

Penny

> > >

> > > If people prefer that I don't post the articles, let me know, and I will

> > > stop. If you want to see them yourself, you could either go to my

> > > website, or to www.medicalnewstoday.com and search.

> > > On my website I have the link directly to the Hep C news.

> > > --

> > > Bill Eastman

> > > www.ke5asu.com/links.html <http://www.ke5asu.com/links.html>

> > >

> >

>

[Guest guest]

How do you get a high score?Dr. Galer

My brother had stage 4 cirrhosis and was going to a transplant

hospital. Perhaps it was because of the double induction of chemo

back in 1977 that a transplant was never mentioned. His MELD scores

were not high enough to get to the top of the transplant list.

Hi Mike,

I am Penny. I had a liver transplant on January 6, 2008. I don't know anything about the cancer in the liver since I didn't have that. If you have stage 4 cirrhosis now, you should get to a transplant hospital and have an evaluation for a transplant. What kind of doctor do you go to? You need to see a hepatologist at a transplant hospital. If you are seeing a gastroenterologist, he should refer you to a transplant hospital for an evaluation to get a transplant. If you have any questions I can answer, feel free to email me at preciouspenny3@...

Take care,

Penny

If people prefer that I don't post the articles, let me know, and I will stop. If you want to see them yourself, you could either go to my website, or to www.medicalnewstoday.com and search.

On my website I have the link directly to the Hep C news.

-- Bill Eastman

www.ke5asu.com/links.html <http://www.ke5asu.com/links.html>

--

Bill Eastman

www.ke5asu.com/links.html

[Guest guest]

You really don't want a high MELEE score because it means you are really sick.

Google MELD and find it or wait and i'll post it tonight.

---- " Dr. Galer " wrote:

> How do you get a high score?

>

> Dr. Galer

>

>

>

>

> > My brother had stage 4 cirrhosis and was going to a transplant hospital.

Perhaps it was because of the double induction of chemo back in 1977 that a

transplant was never mentioned. His MELD scores were not high enough to get to

the top of the transplant list.

> >

> >

> >

> >> Hi Mike,

> >>

> >> I am Penny. I had a liver transplant on January 6, 2008. I don't know

anything about the cancer in the liver since I didn't have that. If you have

stage 4 cirrhosis now, you should get to a transplant hospital and have an

evaluation for a transplant. What kind of doctor do you go to? You need to see

a hepatologist at a transplant hospital. If you are seeing a

gastroenterologist, he should refer you to a transplant hospital for an

evaluation to get a transplant. If you have any questions I can answer, feel

free to email me at preciouspenny3@...

> >>

> >> Take care,

> >> Penny

> >>

> >>

> >>

> >>>>> If people prefer that I don't post the articles, let me know, and I will

> >>>>> stop. If you want to see them yourself, you could either go to my

> >>>>> website, or to www.medicalnewstoday.com and search.

> >>>>> On my website I have the link directly to the Hep C news.

> >>>>> --

> >>>>> Bill Eastman

> >>>>> www.ke5asu.com/links.html <http://www.ke5asu.com/links.html>

> >>>>>

> >>>>

> >>>

> >>

> >

> > --

> > Bill Eastman

> > www.ke5asu.com/links.html

> >

[Guest guest]

Thank you very much. I do not have my blood test results at my office so I will check ASAP. Is there a number which is considered high enough to qualify. I do understand that there may be additional criteria.

 

Hi, . You can compute your MELD score from the following web site. You do need your blood test results, and shoud save them each time they are done. I always write the new MELD score at the top of the blood test results in red ink, so I can track the progression. Go here, and just transfer the 3 required numbers from your blood test. If your blood test is missing any of the three, contact your Doc asap, as you are not having the correct blood test done.

http://www.mayoclinic.org/meld/mayomodel6.html

>

> How do you get a high score?

>

> Dr. Galer

-- Dr. Galer, Director of Academic AffairsUniversity of Phoenix  |  North Florida Campus  4500 Salisbury Rd.  | ville, FL. 32216(904)631-7500mikegaler@...

ï Please consider the environment before printing this email.

[Guest guest]

I have found the numbers from my blood test in an e-mail. I am not certain how to translate them. for example. the Creatinine is .71, does that go into the meld as a whole number (71) or with a decimal. There differences of the scores are huge.

Thank you very much. I do not have my blood test results at my office so I will check ASAP. Is there a number which is considered high enough to qualify. I do understand that there may be additional criteria.

 

Hi, . You can compute your MELD score from the following web site. You do need your blood test results, and shoud save them each time they are done. I always write the new MELD score at the top of the blood test results in red ink, so I can track the progression. Go here, and just transfer the 3 required numbers from your blood test. If your blood test is missing any of the three, contact your Doc asap, as you are not having the correct blood test done.

http://www.mayoclinic.org/meld/mayomodel6.html

>

> How do you get a high score?

>

> Dr. Galer

-- Dr. Galer, Director of Academic AffairsUniversity of Phoenix  |  North Florida Campus  4500 Salisbury Rd.  | ville, FL. 32216

(904)631-7500mikegaler@...

ï Please consider the environment before printing this email.

-- Dr. Galer, Director of Academic AffairsUniversity of Phoenix  |  North Florida Campus  4500 Salisbury Rd.  | ville, FL. 32216(904)631-7500

mikegaler@...ï Please consider the environment before printing this email.

[Guest guest]

ThanksSo with a 1.1 INR, a .71 creatine and a .9 I have a very low MELD? So the HEP-C and the stage four cirrosis help the score?

Creatinine, serum (not BUN/Creatinine Ratio) goes in as the decimal dictates, in your case put in ".71, which is a hair low, but not much. A creatinine level over 1.2 typically indicated a problem with the kidney, which may be caused by meds for the liver in my case. Bilirubin, Total goes in the same way, say .7 or 1.1 (and NOT Bilirugin, Direct, which is a different measurement usually much lower. INR is INR. The normal minimal number for UNOS to accept for transplant is 20, although I've heard (perhaps only rumor) that in NY, the hospitals may insist that the MELD be 30, due to their particular supply and demand. That's why FL is a great place to be!

> >> >

> >> > How do you get a high score?

> >> >

> >> > Dr. Galer

> >>

> >>

> >>

> >>

> >

> >

> >

> > --

> > Dr. Galer, Director of Academic Affairs

> > University of Phoenix | North Florida Campus

> > 4500 Salisbury Rd. | ville, FL. 32216

> > (904)631-7500

> > mikegaler@...

> >

> > ï Please consider the environment before printing this email.

> >

> >

> >

>

>

> --

> Dr. Galer, Director of Academic Affairs

> University of Phoenix | North Florida Campus

> 4500 Salisbury Rd. | ville, FL. 32216

> (904)631-7500

> mikegaler@...

>

> ï Please consider the environment before printing this email.

>

[Guest guest]

I am not sure when they will transplant but I know some hospitals vary greatly on the meld score for getting on their list. They want us for the revenue. At least that is what I was told by my local liver doctor. University of Iowa is a 13 while Ceder Sini out here is a 20. Go figure. I am checking all the hospitals out that carry my insurance.

Subject: Re: postings from Medical News TodayTo: Hepatitis_C_Central Date: Friday, January 14, 2011, 11:17 AM

, From those numbers, I calculate a MELD score of 7. There's no way UNOS will put you on the list, unless the tumor gets to 2.0cm. I had "End stage liver disease" (ESLD), Stage 4 and an 18 MELD and was not eligible. What are your "ALT" and "AST" numbers? These 2 are quite indicative of liver disease. If these, too, are in the normal range, you have a difficult decision to make: Whether to go ahead with the chemoembolization for the 1.7cm tumor, or wait for the tumor to grow large enough for UNOS to accept you as a tp candidate. As I said before, I would be very concerned about waiting, as the risk of the cancer spreading may be much greater than the risk of further damage to the liver itself. Have you ever had a liver biopsy, and if so, what were the results? You need to know exactly what condition your liver is in now to make an informed decision. Liver damage is typically a slow progressive disease, however, once the disease gets moving, it

can progress much more quickly. You've got to get both your Doctor and the Hospital involved in helping you figure this mess out. Your numbers seem to indicate that the liver is not in dire condition, although sometimes the numbers are deceiving, as they were in my case, when my MELD score went from 18 to 8 and I then had the transplant. Rick> > > Creatinine, serum (not BUN/Creatinine Ratio) goes in as the decimal dictates, in your

case put in ".71, which is a hair low, but not much. A creatinine level over 1.2 typically indicated a problem with the kidney, which may be caused by meds for the liver in my case. Bilirubin, Total goes in the same way, say .7 or 1.1 (and NOT Bilirugin, Direct, which is a different measurement usually much lower. INR is INR. The normal minimal number for UNOS to accept for transplant is 20, although I've heard (perhaps only rumor) that in NY, the hospitals may insist that the MELD be 30, due to their particular supply and demand. That's why FL is a great place to be!b

[Guest guest]

I hear you Rik I got the MELD number 7 and I guess the question is how fast does the hepatocellular carcinoma grow? How long, if at all do I wait etc.

 

'What are high   " ALT and AST " numbers? I think I can find mine?

 

I am beginning a two week process at Mayo to get all the facts about my physical condition with many, many, tests. This should give me a perspective and decision base.

 

Thank you for all the help

 

 

 

 

, From those numbers, I calculate a MELD score of 7. There's no way UNOS will put you on the list, unless the tumor gets to 2.0cm. I had " End stage liver disease " (ESLD), Stage 4 and an 18 MELD and was not eligible. What are your " ALT " and " AST " numbers? These 2 are quite indicative of liver disease. If these, too, are in the normal range, you have a difficult decision to make: Whether to go ahead with the chemoembolization for the 1.7cm tumor, or wait for the tumor to grow large enough for UNOS to accept you as a tp candidate. As I said before, I would be very concerned about waiting, as the risk of the cancer spreading may be much greater than the risk of further damage to the liver itself. Have you ever had a liver biopsy, and if so, what were the results? You need to know exactly what condition your liver is in now to make an informed decision. Liver damage is typically a slow progressive disease, however, once the disease gets moving, it can progress much more quickly. You've got to get both your Doctor and the Hospital involved in helping you figure this mess out. Your numbers seem to indicate that the liver is not in dire condition, although sometimes the numbers are deceiving, as they were in my case, when my MELD score went from 18 to 8 and I then had the transplant. Rick >

> > Creatinine, serum (not BUN/Creatinine Ratio) goes in as the decimal dictates, in your case put in " .71, which is a hair low, but not much. A creatinine level over 1.2 typically indicated a problem with the kidney, which may be caused by meds for the liver in my case. Bilirubin, Total goes in the same way, say .7 or 1.1 (and NOT Bilirugin, Direct, which is a different measurement usually much lower. INR is INR. The normal minimal number for UNOS to accept for transplant is 20, although I've heard (perhaps only rumor) that in NY, the hospitals may insist that the MELD be 30, due to their particular supply and demand. That's why FL is a great place to be!

b

-- Dr. Galer, Director of Academic AffairsUniversity of Phoenix  |  North Florida Campus  4500 Salisbury Rd.  | ville, FL. 32216

(904)631-7500mikegaler@...ï Please consider the environment before printing this email.

[Guest guest]

, the ast and alt are the chief measurements of liver function, though they by no means are the complete indicators of liver problems. Since you are already associated with the Mayo Clinic, I would use their site, of just google, for more info on ast and alt. Go here first: http://www.mayoclinic.com/health/search/searchThen go to Bill Eastman's site, (http://www.ke5asu.com/links.html), where the entire bottom section is devoted to liver sites. You have a lot of studying to do before you see your Docs. The more you know, the better equipped you will be to ask the proper questions. Start your question list now and also complete that doc I recommended that would include all your Doctors, your meds, your emergency contacts, your primary caregivers and a personal health history. Take these papers plus your recent blood tests from the past few months, and don't let them keep anything - they have copy machines, too! Keep researching and reading. You'll have to learn the vernacular and shortcut symbols that are commonly used in the field. Re: Re: postings from Medical News Today

I hear you Rik I got the MELD number 7 and I guess the question is how fast does the hepatocellular carcinoma grow? How long, if at all do I wait etc.

'What are high "ALT and AST" numbers? I think I can find mine?

I am beginning a two week process at Mayo to get all the facts about my physical condition with many, many, tests. This should give me a perspective and decision base.

Thank you for all the help

, From those numbers, I calculate a MELD score of 7. There's no way UNOS will put you on the list, unless the tumor gets to 2.0cm. I had "End stage liver disease" (ESLD), Stage 4 and an 18 MELD and was not eligible. What are your "ALT" and "AST" numbers? These 2 are quite indicative of liver disease. If these, too, are in the normal range, you have a difficult decision to make: Whether to go ahead with the chemoembolization for the 1.7cm tumor, or wait for the tumor to grow large enough for UNOS to accept you as a tp candidate. As I said before, I would be very concerned about waiting, as the risk of the cancer spreading may be much greater than the risk of further damage to the liver itself. Have you ever had a liver biopsy, and if so, what were the results? You need to know exactly what condition your liver is in now to make an informed decision. Liver damage is typically a slow progressive disease, however, once the disease gets moving, it can progress much more quickly. You've got to get both your Doctor and the Hospital involved in helping you figure this mess out. Your numbers seem to indicate that the liver is not in dire condition, although sometimes the numbers are deceiving, as they were in my case, when my MELD score went from 18 to 8 and I then had the transplant. Rick >

> > Creatinine, serum (not BUN/Creatinine Ratio) goes in as the decimal dictates, in your case put in ".71, which is a hair low, but not much. A creatinine level over 1.2 typically indicated a problem with the kidney, which may be caused by meds for the liver in my case. Bilirubin, Total goes in the same way, say .7 or 1.1 (and NOT Bilirugin, Direct, which is a different measurement usually much lower. INR is INR. The normal minimal number for UNOS to accept for transplant is 20, although I've heard (perhaps only rumor) that in NY, the hospitals may insist that the MELD be 30, due to their particular supply and demand. That's why FL is a great place to be!

b

-- Dr. Galer, Director of Academic AffairsUniversity of Phoenix | North Florida Campus 4500 Salisbury Rd. | ville, FL. 32216

(904)631-7500mikegaler@...ï Please consider the environment before printing this email.

[Guest guest]

Sorry but I disagree. All of medicine is a business. They are in in for that reason. While I feel I get the best care there is it takes a lot of beds filled to equate to any sort of transplant. If a particular hospital can offer the treatment they do want the business.

Just difference of opinion (and communication from doctors I trust)With all that said its a scary proposition for me and anyone else who needs a transplantand I wish us all the hope we get them and timely.

2

Subject: Re: postings from Medical News TodayTo: Hepatitis_C_Central Date: Friday, January 14, 2011, 5:07 PM

A liver transplant is very expensive and I do not believe they want us for the revenue. It takes many doctors and teams to perform the transplant and I bet the hospitals do not make much money if any. > > > > > Creatinine, serum (not BUN/Creatinine Ratio) goes in as the decimal dictates, in your case put in ".71, which is a hair low, but not much. A creatinine level over 1.2 typically indicated a problem with the kidney, which may be caused by meds for the liver in my case. Bilirubin, Total goes in the same way, say .7 or 1.1 (and NOT Bilirugin, Direct, which is a different measurement usually much lower. INR is INR. The normal minimal number for UNOS to accept for transplant is 20, although I've

heard (perhaps only rumor) that in NY, the hospitals may insist that the MELD be 30, due to their particular supply and demand. That's why FL is a great place to be!> b>