Guest guest Posted September 11, 2004 Report Share Posted September 11, 2004 hi, i forgot to put my say in on this, i printed everything out about lbd BUT i did edit it first, my dad is in depression the last thing i wanted him so see is up to 10 years before fatality. fatal reactions to drugs. i know some may think it is wrong to edit, but just like talking sex to a child, speak only as long as they are interested and asking questions let them take it at theri own pace. dad knows there is a little man in his brain, and he does get very frustrated. dad senses his time is shorter than it should be (longevity runs on both sides of his family maternal age span late 90' to mid 100's) paternal family side early 90's to early 100's so at 70 dad is doing rough. i keep these printed pages on dads dreser so he can study it when he wantw, not that he is understading it, but makes him feel improtatn. so i leave it there. and everone in the family knows that dad doesnt know the time frame, niether does my 98 year old grandmother. no parent wants their chilld to go before them, so we shelter her from teh time frame as well, after all we never erally know do we? i have explained repeatedly to dad, you have a disease called lewy's body disease. that mkes you say and do things that you cannot help. he makes you fall, he makes you angry, it is him that is ugly not you, and for the most part that seems to ease his mind. bu tno always, good luck sharon m a smile a day keeps the meanies away!!! laughter is a breath of fresh air! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 11, 2004 Report Share Posted September 11, 2004 i felt the need to edit the time frame according to my calculations dad has had this about 7-8 years now, if he read that 5-7 years is normal time span sometimes 10 he would give upp so that is why we chose not to tell him, and he really hates to take his medicine so reading that some may cause fatal reactions would keep him from taking beneficial meds. other than that he knows all bout lbd and the little man in his head. you do how you see it best i try to keep things light and positive and even humorous i thelps us all, and worse come worse sign about it, we made up one the other day, sung to rain rain go away. little man little man in dads head, go bug teh devil and never come back. dad lvoed it and sometimes sings it when he feels lbd spells coming in. mind over matter, may not work but itcertaininly doesn't hurt either. and he laughs as i sing it to him so that is worth it in itself. sharon m a smile a day keeps the meanies away!!! laughter is a breath of fresh air! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 11, 2004 Report Share Posted September 11, 2004 I like this idea. Telling them, but editing the info as needed. I don't think my dad knows what he has. I think that *I* would want to know, so that I didn't feel like it was always a mystery. Telling him that the drs know what is wrong, and that they know some meds that might help his walking would be a relief to him, I *think*. The not walking right really bothers him. LadySmilingAtU@... wrote: > hi, i forgot to put my say in on this, > i printed everything out about lbd BUT i did edit it first, my dad is in > depression the last thing i wanted him so see is up to 10 years before fatality. > fatal reactions to drugs. > i know some may think it is wrong to edit, but just like talking sex to a > child, speak only as long as they are interested and asking questions let them > take it at theri own pace. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 11, 2004 Report Share Posted September 11, 2004 Group- I was always open and honest with my dad regarding his LBD. He and I would go into his doctors together and discuss everything openly. Also, in the midst of his fear when he would ask... " Why me, why me? " ...I would answer with " I don't know why you dad, and I don't know why me either...but we are in this 'together' 'til the end!! " Missing my dad tonight - and keeping the group in my prayers for some peace in this midst of your journeys- Sandie -- Re: telling our love ones I like this idea. Telling them, but editing the info as needed. I don't think my dad knows what he has. I think that *I* would want to know, so that I didn't feel like it was always a mystery. Telling him that the drs know what is wrong, and that they know some meds that might help his walking would be a relief to him, I *think*. The not walking right really bothers him. LadySmilingAtU@... wrote: > hi, i forgot to put my say in on this, > i printed everything out about lbd BUT i did edit it first, my dad is in > depression the last thing i wanted him so see is up to 10 years before fatality. > fatal reactions to drugs. > i know some may think it is wrong to edit, but just like talking sex to a > child, speak only as long as they are interested and asking questions let them > take it at theri own pace. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.