Re: RLS Questionaire/ Patti

[Guest guest]

This is for Jim Colello answered by wife, Jan Colello.

Before the diagnosis of Parkinsons 11 years ago and

before the dementia set in 4 years ago Jim's first

symptoms were Restless Legs Syndrom diagnosed about 12

years ago. He went to several doctors and some told

him it was in his head and finally one gave him a name

for it and we attended a support group. He was sleep

deprived and so was I, because of his anguish with

this and no relief. He could not get any comfort when

he sat down or layed down and would slap at his legs

and now his arms too. It would go on all day, until he

was put on Vicodin and that was a life saver for both

of us to get sleep. Sleeping pills did not work for

him and he was given several to try, they would still

have an effect on him in the morning and he would be

too groggy to function, but Vicodin does not make him

groggy and deadens the movement in his legs. It is

addicting, but of the two evils, it's the best

solution that we have found for him yet and for sleep

so far.

--- Patti wrote:

> Restless Legs Syndrome (RLS) Questionnaire

> The following seeks to find-out if you have the

> disorder called

> Restless Legs Syndrome (RLS). RLS may occur separate

> from PD,

> precede PD, be a part of PD

> 0: No symptoms.

> 1: Mild symptoms: usually do not mention them to

> doctor

> 2: Moderate symptoms: usually mention them to doctor

> 3: Severe symptoms: always mention them to doctor

> 4: Very Severe symptoms: main reason for visiting

the doctor (4)

>

>

> 1= 0 1 2 3 4 Rate the discomfort or restlessness in

> your legs

> or arms

> 2= 0 1 2 3 4 Rate the need to move because of the

discomfort or restlesness (4)

> 3= 0 1 2 3 4 How much do your symptoms interfere

with your sleep? (4)

4= 0 1 2 3 4 How tired are you the next day from not

sleeping? (4)

> 5= 0 1 2 3 4 How much do your symptoms interfere

with your daily affairs? (3) Only interfere while

resting or laying down, not while in walking movement.

> 6= 0 1 2 3 4 Overall, how severe are your symptoms?

(4)

> 7= 0 1 2 3 4 Are you ANXIOUS or DEPRESSED because of

RLS? Was until started taking Vicodin to deaden the

movement in his legs while sleeping. Now would be a

(2) before Vicodin (4)

> 8= 0 1 2 3 4 How often do you get RLS symptoms? (4)

It's alway there!

> 0= Never, 1= One day/week, 2= 2-3

> days /week, 3= 4-5 days/week , 4= 6-7 days/week

> 9= 0 1 2 3 4 How long do your RLS symptoms last? (4)

As long as sitting or sleeping, unless Vicodin and

then the movements calm down.

> 0= None, 1= Less than 1 hour/day, 2= 1-3 hrs/day,

> 3= 3-8 hrs/day, 4= 8-24 hrs/day

> 10= 0 1 2 3 4 How much does moving or walking

> relieve your RLS symptoms? (4)

> 0= None, 1= Minimal relief, 2= Moderate relief, 3=

> Marked relief, 4= Complete relief

>

>

> Severity of RLS

> 1 - 10= Mild RLS

> 11- 20= Moderate RLS

> 21- 30= Severe RLS

> 31- 40= Very Severe RLS (40)

>

>

>

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To: LBDcaregivers

Date: Fri, 20 Aug 2004 22:07:27 -0000

Subject: RLS Questionaire

Restless Legs Syndrome (RLS) Questionnaire

The following seeks to find-out if you have the

disorder called

Restless Legs Syndrome (RLS). RLS may occur separate

from PD,

precede PD, be a part of PD

0: No symptoms.

1: Mild symptoms: usually do not mention them to

doctor

2: Moderate symptoms: usually mention them to doctor

3: Severe symptoms: always mention them to doctor

4: Very Severe symptoms: main reason for visiting the

doctor

1= 0 1 2 3 4 Rate the discomfort or restlessness in

your legs

or arms

2= 0 1 2 3 4 Rate the need to move because of the

discomfort

or restlessness

3= 0 1 2 3 4 How much do your symptoms interfere with

your

sleep?

4= 0 1 2 3 4 How tired are you the next day from not

sleeping?

5= 0 1 2 3 4 How much do your symptoms interfere with

your

daily affairs?

6= 0 1 2 3 4 Overall, how severe are your symptoms?

7= 0 1 2 3 4 Are you ANXIOUS or DEPRESSED because of

RLS?

8= 0 1 2 3 4 How often do you get RLS symptoms?

0= Never, 1= One day/week, 2= 2-3

days /week, 3= 4-5 days/week , 4= 6-7 days/week

9= 0 1 2 3 4 How long do your RLS symptoms last?

0= None, 1= Less than 1 hour/day, 2= 1-3 hrs/day,

3= 3-8 hrs/day, 4= 8-24 hrs/day

10= 0 1 2 3 4 How much does moving or walking relieve

your RLS symptoms?

0= None, 1= Minimal relief, 2= Moderate relief, 3=

Marked relief, 4= Complete relief

Severity of RLS

1 - 10= Mild RLS

11- 20= Moderate RLS

21- 30= Severe RLS

31- 40= Very Severe RLS

Welcome to LBDcaregivers.  

[Guest guest]

I was wondering if anyone had the burning that comes along with rls? My

aunt has a sever case of it, and nothing helps it, the doctors have

prescribed everything. She has had it since her early 30's, but got

worse after developing Parkinsons a few years ago, and some one dr. said

it was Lewy body.....but no doctor will agree 100% I just know she

suffers daily because she can't take medication because she is so

sensitive to it. As I write this she is in tears with her legs burning

with restlessness to them. Any help would be appreciated.

Beth

On Sat, 21 Aug 2004 10:44:10 -0700 (PDT) Janet Colello

writes:

>

> This is for Jim Colello answered by wife, Jan Colello.

> Before the diagnosis of Parkinsons 11 years ago and

> before the dementia set in 4 years ago Jim's first

> symptoms were Restless Legs Syndrom diagnosed about 12

> years ago. He went to several doctors and some told

> him it was in his head and finally one gave him a name

> for it and we attended a support group. He was sleep

> deprived and so was I, because of his anguish with

> this and no relief. He could not get any comfort when

> he sat down or layed down and would slap at his legs

> and now his arms too. It would go on all day, until he

> was put on Vicodin and that was a life saver for both

> of us to get sleep. Sleeping pills did not work for

> him and he was given several to try, they would still

> have an effect on him in the morning and he would be

> too groggy to function, but Vicodin does not make him

> groggy and deadens the movement in his legs. It is

> addicting, but of the two evils, it's the best

> solution that we have found for him yet and for sleep

> so far.

>

> --- Patti wrote:

>

> > Restless Legs Syndrome (RLS) Questionnaire

> > The following seeks to find-out if you have the

> > disorder called

> > Restless Legs Syndrome (RLS). RLS may occur separate

> > from PD,

> > precede PD, be a part of PD

> > 0: No symptoms.

> > 1: Mild symptoms: usually do not mention them to

> > doctor

> > 2: Moderate symptoms: usually mention them to doctor

> > 3: Severe symptoms: always mention them to doctor

> > 4: Very Severe symptoms: main reason for visiting

> the doctor (4)

> >

> >

> > 1= 0 1 2 3 4 Rate the discomfort or restlessness in

> > your legs

> > or arms

> > 2= 0 1 2 3 4 Rate the need to move because of the

> discomfort or restlesness (4)

> > 3= 0 1 2 3 4 How much do your symptoms interfere

> with your sleep? (4)

> 4= 0 1 2 3 4 How tired are you the next day from not

> sleeping? (4)

> > 5= 0 1 2 3 4 How much do your symptoms interfere

> with your daily affairs? (3) Only interfere while

> resting or laying down, not while in walking movement.

> > 6= 0 1 2 3 4 Overall, how severe are your symptoms?

> (4)

> > 7= 0 1 2 3 4 Are you ANXIOUS or DEPRESSED because of

> RLS? Was until started taking Vicodin to deaden the

> movement in his legs while sleeping. Now would be a

> (2) before Vicodin (4)

> > 8= 0 1 2 3 4 How often do you get RLS symptoms? (4)

> It's alway there!

> > 0= Never, 1= One day/week, 2= 2-3

> > days /week, 3= 4-5 days/week , 4= 6-7 days/week

> > 9= 0 1 2 3 4 How long do your RLS symptoms last? (4)

> As long as sitting or sleeping, unless Vicodin and

> then the movements calm down.

> > 0= None, 1= Less than 1 hour/day, 2= 1-3 hrs/day,

> > 3= 3-8 hrs/day, 4= 8-24 hrs/day

> > 10= 0 1 2 3 4 How much does moving or walking

> > relieve your RLS symptoms? (4)

>

> > 0= None, 1= Minimal relief, 2= Moderate relief, 3=

> > Marked relief, 4= Complete relief

> >

> >

> > Severity of RLS

> > 1 - 10= Mild RLS

> > 11- 20= Moderate RLS

> > 21- 30= Severe RLS

> > 31- 40= Very Severe RLS (40)

> >

> >

> >

> Yahoo! My Yahoo! Mail SearchWelcome,

> janetcolello

> [sign Out, My Account]

> Mail Home - Help

>

> I'm a:

> Seeking a:

> Age:

> to City or ZIP:

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> janetcolello@... [sign Out]

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> Free Cell Phones

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>

>

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> Inbox (27)

> Draft

> Sent

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>

>

>

>

>

>

>

> Check your Credit!

> It's Free.

>

> $200K loan for

> only $690/month!

>

> Join AARP

> Save on travel

>

> Re-establish

> Credit Now!

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>

>

>

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>

> To: LBDcaregivers

>

> Date: Fri, 20 Aug 2004 22:07:27 -0000

> Subject: RLS Questionaire

>

>

> Restless Legs Syndrome (RLS) Questionnaire

> The following seeks to find-out if you have the

> disorder called

> Restless Legs Syndrome (RLS). RLS may occur separate

> from PD,

> precede PD, be a part of PD

> 0: No symptoms.

> 1: Mild symptoms: usually do not mention them to

> doctor

> 2: Moderate symptoms: usually mention them to doctor

> 3: Severe symptoms: always mention them to doctor

> 4: Very Severe symptoms: main reason for visiting the

> doctor

>

> 1= 0 1 2 3 4 Rate the discomfort or restlessness in

> your legs

> or arms

> 2= 0 1 2 3 4 Rate the need to move because of the

> discomfort

> or restlessness

> 3= 0 1 2 3 4 How much do your symptoms interfere with

> your

> sleep?

> 4= 0 1 2 3 4 How tired are you the next day from not

> sleeping?

> 5= 0 1 2 3 4 How much do your symptoms interfere with

> your

> daily affairs?

> 6= 0 1 2 3 4 Overall, how severe are your symptoms?

> 7= 0 1 2 3 4 Are you ANXIOUS or DEPRESSED because of

> RLS?

> 8= 0 1 2 3 4 How often do you get RLS symptoms?

> 0= Never, 1= One day/week, 2= 2-3

> days /week, 3= 4-5 days/week , 4= 6-7 days/week

> 9= 0 1 2 3 4 How long do your RLS symptoms last?

> 0= None, 1= Less than 1 hour/day, 2= 1-3 hrs/day,

> 3= 3-8 hrs/day, 4= 8-24 hrs/day

> 10= 0 1 2 3 4 How much does moving or walking relieve

> your RLS symptoms?

> 0= None, 1= Minimal relief, 2= Moderate relief, 3=

> Marked relief, 4= Complete relief

>

>

> Severity of RLS

> 1 - 10= Mild RLS

> 11- 20= Moderate RLS

> 21- 30= Severe RLS

> 31- 40= Very Severe RLS

>

>

>

> Welcome to LBDcaregivers.

>

>

>

>

[Guest guest]

SNAP!

Just like Jan described - my dad had dreadful RLS at start of disease.

Sally x