Re: Huge 'THANK YOU' to group

[Guest guest]

Sally, I'm glad your Aunt is feeling our support (hope he gets my card soon,

sent it last Wednesday).

You bring up some good points about what your mother may have been going

through and my heart hurts for you to because you are left to try to figure

out why. I couldn't help but think that even without any sexual content

that LBD is the kind of disease that could lead someone to the deep end of

stress and suicide.

Was your mother seeing a doctor at the time that she took her own life? If

so, is there any way that you could speak to him/her to give you some peace

of mind. I don't know if you would even want to open that can of worms but

this may be a place to start.

Sending you a hug and strength.

Courage

[Guest guest]

, I've got me fingers and toes crossed for you and Danny.

Courage

[Guest guest]

Sally, just wanted to respond to part of your e-mail about LBD being picked on a

scan, i don't know if you remember, i posted when granda went into the final

stage of his illness and spoke about a scan that he'd just had.The doctor told

us that the LBD was worsening rapidly and that Dementia could be seen creeping

over the brain in the scan and that the EEG he'd had showed evidence of a small

stroke, don't know if this helps Betty any to know that someone else has been

told this.

I want to apologise too, i have a card for Betty and had intended to send it

after granda's anniversary on Monday but midway through the day Danny came home

from a routine dental appointment to tell me that a growth had been found in his

mouth, he was refered as an emergency to the hospital and we go tomorrow for his

biopsy, so fingers crossed that the results are good and when we've gotten

through this latest crisis i promise to send Betty her card and an address if

she wants to keep in touch.

.xx

Huge 'THANK YOU' to group

My dearest friends

My Auntie Betty called last night to say that she was absolutely delighted by

some 'surprise' letters through the post from some total strangers in America

who wrote so lovingly and with such encouragement about LBD! It made her day!

She asks me to say a huge 'thank you' to Sandie, Jan and others who have been

so kind as to drop her a line. It has been a massive boost for her ...

especially as Uncle Barry has been getting much worse recently. She is staggered

that you understand so well. It has been a fantastic tonic for her.

When she saw the doctor about Barry's latest scan he told her that he saw

evidence of a small stroke and he said he could see the LBD was worsening! Well,

I told Betty that's news to us ....I was always told that Lewy's are

undetectable on any scan!

What really hurts Betty is the constant sexual fantasy hallucinations which

are graphic(!) and distressing. It is so humiliating and upsetting for her ...

it's very distressing. And is kind of sets me thinking too .... about my mum and

dad. I was aware of some unspoken but profoundly painful 'difficulty' in my

parents relationship in the 2 years or so before my mum's suicide. My dad did

have what I would describe as a 'fixation' with a couple of women; one who

worked in the flower nursery alongside him and one a neighbour who lived a few

doors up the road. My mum was very hurt by my dad's 'interest' in them. He would

say he was just being 'friendly' BUT it was odd and way out of character. About

a year before my mum died there was an 'incident' with the neighbour woman - I

never got to the bottom of what exactly happened, it was always hush-hush. BUT

they never spoke again and my mum was very cagey about my dad's role in it all.

Listening to my Auntie Betty describing some of the bizarre and crude things

Barry does and says AND reading of similar behaviours here makes me wonder just

what was happening with my mum and dad!!!

What's worse is that I know for certain my mum was VERY private and candid.

She hated crudity and would have been grossly offended by any overt sexual

'mischief' ....SO I now find myself wondering if part of what drove my mum to

suicide was reaction to any of this kind of behavioural problem? It would help

explain a lot of the 'unfathomable' difficulties they had - my mum would have

been distraught by this kind of thing. It would have been far too painful for

her to bear. IF my dad was saying and doing things like Uncle Barry she would

not have coped .. and she would not have been able to ask for help.

Now I am left feeling heart broken about this possibility - if this happened

then I can truly understand how profoundly my mum would have suffered. I guess

I'll never know.

Sorry to be so glum!

Hugs to all

Sally xx

[Guest guest]

Courage, thankyou so much. He's had the biopsy and we're just waiting for the

results and in the meantime my fingers are crossed even tighter for .

Love to all of you.

.xx

Re: Huge 'THANK YOU' to group

, I've got me fingers and toes crossed for you and Danny.

Courage

Welcome to LBDcaregivers.