Guest guest Posted July 3, 2000 Report Share Posted July 3, 2000 .. Hope all is > well, how is everyone celebrating the 4th? I have earplugs for Delia( 5 > yr old w/ Asperger`s) since she is sound sensitive but wants to watch > the fireworks, Ear plugs for the 4th is a good idea. I wish that I had those for the past couple of years for our sound sensitive son. We will be at a friends house for a barbecue and then fireworks afterward, I think. Barbara Mom to (Aspie's) , and Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2000 Report Share Posted August 26, 2000 Hi Bird, I was wondering if you are sending Dara to a developmental preschool. My son went to one through early intervention and it was fantastic. They taught him to speak and so many other things that he just didn't pick up on his own. More importantly they were trained to help with and accept all kinds of behaviors, including the removal of clothing. It might be worth checking into. What state do you live in? I'm in NY. Hope all goes well on Mon. Myra - mom to Adam, 7, ADHD, Aspergers, speech language impaired; and , 9 , ADD and mood disorder Message ----- From: beard101@... To: autism-aspergersegroups Sent: Friday, August 25, 2000 9:57 PM Subject: Hi Hi, how are things with everyone? Things are quiet as the girls are w/their father which is very stressful for them as he won`t keep to thesame schedule as the one they are used to. For the newbies, I am Bird,sah of 4 children, 3 of them who have/had autistic related problems,Dani is 16 yrs old, Delia is 5.6 yrs and has Asperger`s, Dara is 3,5 yrsand is PDD, my son Ben had PDD when he drowned at age 3.6 yrs old onAug11,1997. I am in the process of a divorce, mainly because he can`tadmit to anyone that his children have problems, he actually told hisparents that they were only "spoiled" by meGetting ready for kindergarten, plus gymnastics and creative movementclasses for Delia, she is also getting behavior therapy as well, she isgoing into a "normal" classroom w/ seating near the teacher, and OT, andspeech as she is only speaking on a 3.25 yr level but comprehending at a8 yr old level. She is also O/C with her clothes, she never played as ababy, she would spend hours trying on clothes, they must match exactly,and food- she always must know what the next meal, snack is and when,luckily she doesn`t like most snack foods, taste is too intensive forherDara likes to spin when upset, if that doesn`t work we bundle in herblankie till better, we also have to swing her upside down, if you don`tswing her fast enough, she twists to get going. She is slowing down onthe hand flapping but is now taking to chanting mantra, usually, no likedaddy as she steps on and off a step that we use for her low muscletone. She is also very tactile sensitive, we brush at least 5x/day justto try and keep clothes on her, she will wear them when going out or ifteacher is coming but otherwise it is nude. I may have a problem w/preschool as if she starts to strip there she will not be allow to gothere, I figure about Oct for that to start, she gets OT, PT SPEECH, ANDINTENARY TEACHER`S AIDE, she will also be getting tumbling lessons as itgood for her Wish me luck on mon, when she gets on the bus for the 1st time, hope thekids aren`t mean to her, she doesn`t know what they act the way they do,take care, Bird who misses her 3 babies Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2000 Report Share Posted August 27, 2000 -> Received: from hp. (hp. [208.50.99.201]) -> by weber.otherbbs.com (8.9.3/8.9.3) with SMTP id NAA26534 -> for ; Sat, 26 Aug 2000 13:14:52 -0500 -> X-eGroups-Return: sentto-180013653-karen.talbert=otherbbs.com@re -> Received: from [10.1.10.37] by hp. with NNFMP; 26 Aug 2000 18:14: -> Received: (qmail 12989 invoked from network); 26 Aug 2000 18:14:12 -0000 -> Received: from unknown (10.1.10.142) by m3.onelist.org with QMQP; 26 Aug 200 -> Received: from unknown (HELO hotmail.com) (64.4.8.93) by mta3 with SMTP; 26 -> Received: from mail pickup service by hotmail.com with Microsoft SMTPSVC; Sa -> X-Originating-IP: [24.188.38.161] -> To: <autism-aspergersegroups> -> References: -> X-Priority: 3 -> X-MSMail-Priority: Normal -> X-Mailer: Microsoft Outlook Express 5.00.2919.6600 -> X-MimeOLE: Produced By Microsoft MimeOLE V5.00.2919.6600 -> Message-ID: -> X-OriginalArrivalTime: 26 Aug 2000 16:03:21.0117 (UTC) FILETIME=[27E444D0:01 -> -> MIME-Version: 1.0 -> Mailing-List: list autism-aspergersegroups; contact autism-aspergers-ow -> Delivered-To: mailing list autism-aspergersegroups -> Precedence: bulk -> List-Unsubscribe: <mailto:autism-aspergers-unsubscribeegroups> -> Date: Sat, 26 Aug 2000 12:01:03 -0400 -> Reply-To: autism-aspergersegroups -> Subject: Re: Hi -> Content-Type: multipart/alternative; -> boundary= " ----=_NextPart_000_002C_01C00F55.4EE2D820 " -> ------=_NextPart_000_002C_01C00F55.4EE2D820 -> Content-Type: text/plain; -> charset= " iso-8859-1 " -> Content-Transfer-Encoding: quoted-printable -> Hi Bird, -> I was wondering if you are sending Dara to a developmental preschool. My s= -> on went to one through early intervention and it was fantastic. They taugh= -> t him to speak and so many other things that he just didn't pick up on his = -> own. More importantly they were trained to help with and accept all kinds = -> of behaviors, including the removal of clothing. It might be worth checkin= -> g into. What state do you live in? I'm in NY. -> Hope all goes well on Mon. -> Myra - mom to Adam, 7, ADHD, Aspergers, speech language impaired; and Kimbe= -> rly, 9 , ADD and mood disorder -> Message -----=20 -> From: beard101@...=20 -> To: autism-aspergersegroups=20 -> Sent: Friday, August 25, 2000 9:57 PM -> Subject: Hi -> Hi, how are things with everyone? Things are quiet as the girls are w/ -> their father which is very stressful for them as he won`t keep to the -> same schedule as the one they are used to. For the newbies, I am Bird, -> sah of 4 children, 3 of them who have/had autistic related problems, -> Dani is 16 yrs old, Delia is 5.6 yrs and has Asperger`s, Dara is 3,5 yrs -> and is PDD, my son Ben had PDD when he drowned at age 3.6 yrs old on -> Aug11,1997. I am in the process of a divorce, mainly because he can`t -> admit to anyone that his children have problems, he actually told his -> parents that they were only " spoiled " by me -> Getting ready for kindergarten, plus gymnastics and creative movement -> classes for Delia, she is also getting behavior therapy as well, she is -> going into a " normal " classroom w/ seating near the teacher, and OT, and -> speech as she is only speaking on a 3.25 yr level but comprehending at a -> 8 yr old level. She is also O/C with her clothes, she never played as a -> baby, she would spend hours trying on clothes, they must match exactly, -> and food- she always must know what the next meal, snack is and when, -> luckily she doesn`t like most snack foods, taste is too intensive for -> her -> Dara likes to spin when upset, if that doesn`t work we bundle in her -> blankie till better, we also have to swing her upside down, if you don`t -> swing her fast enough, she twists to get going. She is slowing down on -> the hand flapping but is now taking to chanting mantra, usually, no like -> daddy as she steps on and off a step that we use for her low muscle -> tone. She is also very tactile sensitive, we brush at least 5x/day just -> to try and keep clothes on her, she will wear them when going out or if -> teacher is coming but otherwise it is nude. I may have a problem w/ -> preschool as if she starts to strip there she will not be allow to go -> there, I figure about Oct for that to start, she gets OT, PT SPEECH, AND -> INTENARY TEACHER`S AIDE, she will also be getting tumbling lessons as it -> good for her=20 -> Wish me luck on mon, when she gets on the bus for the 1st time, hope the -> kids aren`t mean to her, she doesn`t know what they act the way they do, -> take care, Bird who misses her 3 babies -> ---------------------------------------------------------------------------= -> --- -> ---------------------------------------------------------------------------= -> --- -> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2000 Report Share Posted August 27, 2000 -> Received: from hp. (hp. [208.50.99.201]) -> by weber.otherbbs.com (8.9.3/8.9.3) with SMTP id NAA26534 -> for ; Sat, 26 Aug 2000 13:14:52 -0500 -> X-eGroups-Return: sentto-180013653-karen.talbert=otherbbs.com@re -> Received: from [10.1.10.37] by hp. with NNFMP; 26 Aug 2000 18:14: -> Received: (qmail 12989 invoked from network); 26 Aug 2000 18:14:12 -0000 -> Received: from unknown (10.1.10.142) by m3.onelist.org with QMQP; 26 Aug 200 -> Received: from unknown (HELO hotmail.com) (64.4.8.93) by mta3 with SMTP; 26 -> Received: from mail pickup service by hotmail.com with Microsoft SMTPSVC; Sa -> X-Originating-IP: [24.188.38.161] -> To: <autism-aspergersegroups> -> References: -> X-Priority: 3 -> X-MSMail-Priority: Normal -> X-Mailer: Microsoft Outlook Express 5.00.2919.6600 -> X-MimeOLE: Produced By Microsoft MimeOLE V5.00.2919.6600 -> Message-ID: -> X-OriginalArrivalTime: 26 Aug 2000 16:03:21.0117 (UTC) FILETIME=[27E444D0:01 -> -> MIME-Version: 1.0 -> Mailing-List: list autism-aspergersegroups; contact autism-aspergers-ow -> Delivered-To: mailing list autism-aspergersegroups -> Precedence: bulk -> List-Unsubscribe: <mailto:autism-aspergers-unsubscribeegroups> -> Date: Sat, 26 Aug 2000 12:01:03 -0400 -> Reply-To: autism-aspergersegroups -> Subject: Re: Hi -> Content-Type: multipart/alternative; -> boundary= " ----=_NextPart_000_002C_01C00F55.4EE2D820 " -> ------=_NextPart_000_002C_01C00F55.4EE2D820 -> Content-Type: text/plain; -> charset= " iso-8859-1 " -> Content-Transfer-Encoding: quoted-printable -> Hi Bird, -> I was wondering if you are sending Dara to a developmental preschool. My s= -> on went to one through early intervention and it was fantastic. They taugh= -> t him to speak and so many other things that he just didn't pick up on his = -> own. More importantly they were trained to help with and accept all kinds = -> of behaviors, including the removal of clothing. It might be worth checkin= -> g into. What state do you live in? I'm in NY. -> Hope all goes well on Mon. -> Myra - mom to Adam, 7, ADHD, Aspergers, speech language impaired; and Kimbe= -> rly, 9 , ADD and mood disorder -> Message -----=20 -> From: beard101@...=20 -> To: autism-aspergersegroups=20 -> Sent: Friday, August 25, 2000 9:57 PM -> Subject: Hi -> Hi, how are things with everyone? Things are quiet as the girls are w/ -> their father which is very stressful for them as he won`t keep to the -> same schedule as the one they are used to. For the newbies, I am Bird, -> sah of 4 children, 3 of them who have/had autistic related problems, -> Dani is 16 yrs old, Delia is 5.6 yrs and has Asperger`s, Dara is 3,5 yrs -> and is PDD, my son Ben had PDD when he drowned at age 3.6 yrs old on -> Aug11,1997. I am in the process of a divorce, mainly because he can`t -> admit to anyone that his children have problems, he actually told his -> parents that they were only " spoiled " by me -> Getting ready for kindergarten, plus gymnastics and creative movement -> classes for Delia, she is also getting behavior therapy as well, she is -> going into a " normal " classroom w/ seating near the teacher, and OT, and -> speech as she is only speaking on a 3.25 yr level but comprehending at a -> 8 yr old level. She is also O/C with her clothes, she never played as a -> baby, she would spend hours trying on clothes, they must match exactly, -> and food- she always must know what the next meal, snack is and when, -> luckily she doesn`t like most snack foods, taste is too intensive for -> her -> Dara likes to spin when upset, if that doesn`t work we bundle in her -> blankie till better, we also have to swing her upside down, if you don`t -> swing her fast enough, she twists to get going. She is slowing down on -> the hand flapping but is now taking to chanting mantra, usually, no like -> daddy as she steps on and off a step that we use for her low muscle -> tone. She is also very tactile sensitive, we brush at least 5x/day just -> to try and keep clothes on her, she will wear them when going out or if -> teacher is coming but otherwise it is nude. I may have a problem w/ -> preschool as if she starts to strip there she will not be allow to go -> there, I figure about Oct for that to start, she gets OT, PT SPEECH, AND -> INTENARY TEACHER`S AIDE, she will also be getting tumbling lessons as it -> good for her=20 -> Wish me luck on mon, when she gets on the bus for the 1st time, hope the -> kids aren`t mean to her, she doesn`t know what they act the way they do, -> take care, Bird who misses her 3 babies -> ---------------------------------------------------------------------------= -> --- -> ---------------------------------------------------------------------------= -> --- -> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2000 Report Share Posted October 30, 2000 They will try to call it anything else so they aren't responsible for providing services. Hi Hi, I aready to bang my head on the wall, as the school district isdriving me nuts, At the last IEP/ISP meeting we had last week, they toldme that all Delia`s problems stem from her brother drowning, and myseperation from her father, which is BS as her problems started waybefore any of that, only by working w/ her daily were we able to get herto make an attempt at eye contact w/ adults. I knew something was wrongaround 15 months as she wouldn`t cuddle and didn`t like hugs even fromme, and would look at you, at 18 months her 1st OC came out when shelearned how to change clothes and get the drawers open, she didn`t playw/ toys, she dressed up instead, up to 26 changes a day. We have her ina few after school activies for both social and OT reasons, gymnastics,baton and GS, realy has nothing to do w/ the other children but it is astartI am interested in reading about girls w/ AS as it seems mainly boyshave it, the things she obsesses over are "girly" in nature, clothes andfood, she must know when and what is going to eat at all times, and eatsalot, luckily she hates junk food as she would weight too much the wayshe eats. She also will only watch cartoons, if it is real people in itit must come off the tv. She does have a speech delay but they think itis because she is also LD, with NO short term memory recall, so shecan`t remember how things sound like till it becomes long term memory,BTW Delia is 5.6 yrs oldDara is 3.6 yrs old and is PDD, we are getting a neuro eval ASAP as theythink there a possible prenatal stroke as she has low muscle tone butthere is left side weakness, but she is my sweetheart, must go as OTwill be here soon, Bird Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2000 Report Share Posted October 30, 2000 They will try to call it anything else so they aren't responsible for providing services. Hi Hi, I aready to bang my head on the wall, as the school district isdriving me nuts, At the last IEP/ISP meeting we had last week, they toldme that all Delia`s problems stem from her brother drowning, and myseperation from her father, which is BS as her problems started waybefore any of that, only by working w/ her daily were we able to get herto make an attempt at eye contact w/ adults. I knew something was wrongaround 15 months as she wouldn`t cuddle and didn`t like hugs even fromme, and would look at you, at 18 months her 1st OC came out when shelearned how to change clothes and get the drawers open, she didn`t playw/ toys, she dressed up instead, up to 26 changes a day. We have her ina few after school activies for both social and OT reasons, gymnastics,baton and GS, realy has nothing to do w/ the other children but it is astartI am interested in reading about girls w/ AS as it seems mainly boyshave it, the things she obsesses over are "girly" in nature, clothes andfood, she must know when and what is going to eat at all times, and eatsalot, luckily she hates junk food as she would weight too much the wayshe eats. She also will only watch cartoons, if it is real people in itit must come off the tv. She does have a speech delay but they think itis because she is also LD, with NO short term memory recall, so shecan`t remember how things sound like till it becomes long term memory,BTW Delia is 5.6 yrs oldDara is 3.6 yrs old and is PDD, we are getting a neuro eval ASAP as theythink there a possible prenatal stroke as she has low muscle tone butthere is left side weakness, but she is my sweetheart, must go as OTwill be here soon, Bird Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2000 Report Share Posted October 30, 2000 They will try to call it anything else so they aren't responsible for providing services. Hi Hi, I aready to bang my head on the wall, as the school district isdriving me nuts, At the last IEP/ISP meeting we had last week, they toldme that all Delia`s problems stem from her brother drowning, and myseperation from her father, which is BS as her problems started waybefore any of that, only by working w/ her daily were we able to get herto make an attempt at eye contact w/ adults. I knew something was wrongaround 15 months as she wouldn`t cuddle and didn`t like hugs even fromme, and would look at you, at 18 months her 1st OC came out when shelearned how to change clothes and get the drawers open, she didn`t playw/ toys, she dressed up instead, up to 26 changes a day. We have her ina few after school activies for both social and OT reasons, gymnastics,baton and GS, realy has nothing to do w/ the other children but it is astartI am interested in reading about girls w/ AS as it seems mainly boyshave it, the things she obsesses over are "girly" in nature, clothes andfood, she must know when and what is going to eat at all times, and eatsalot, luckily she hates junk food as she would weight too much the wayshe eats. She also will only watch cartoons, if it is real people in itit must come off the tv. She does have a speech delay but they think itis because she is also LD, with NO short term memory recall, so shecan`t remember how things sound like till it becomes long term memory,BTW Delia is 5.6 yrs oldDara is 3.6 yrs old and is PDD, we are getting a neuro eval ASAP as theythink there a possible prenatal stroke as she has low muscle tone butthere is left side weakness, but she is my sweetheart, must go as OTwill be here soon, Bird Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2000 Report Share Posted October 31, 2000 I would not worry about what the school says, and would not depend on them. You know your child best. When my son who is 10, was in public school, he had alot of problems. This is a child i knew was very smart, and he was making d's and f's. He would get so frustrated that he would physically get sick. He got so sick, he missed 20 or 30 days of school. We had him to the hospitol, the drs and specialists. I thought something was very wrong. I found out, he was stressed out so much about school, he was making himself sick. At the IEP, the school tried to say his problem was he missed alot of school and got behind. I got mad, and I asked the psychologist why is it always the parents fault when the child has problems. Did it ever occur to you that You people could just stink at teaching. I also let him know Chris has had problems every year, and far before he missed school. They were not going to do anything, so I went out on my own and had him evaluated. They did put him on an IEP, but they just could not meet his needs. That is one of the reasons we homeschool. There were to many headaches. For the person who wanted to know about the time limits for the school to respond. I remember reading somewhere that when you make a request for an evaluation or IEP meeting, the school must respond in a timely manner. Something tells me 2 and 1/2 months is not a timely manner. Hello to all new members of the list and welcome. If you have not introduced yourselves, please do so. As for everyone else, updates. Hope all is going well with everyone, and HAPPY HALLOWEEN, remember to practice safety and watch out for all the little goblins running around. God bless all, Sharon( moderator) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2000 Report Share Posted October 31, 2000 I would not worry about what the school says, and would not depend on them. You know your child best. When my son who is 10, was in public school, he had alot of problems. This is a child i knew was very smart, and he was making d's and f's. He would get so frustrated that he would physically get sick. He got so sick, he missed 20 or 30 days of school. We had him to the hospitol, the drs and specialists. I thought something was very wrong. I found out, he was stressed out so much about school, he was making himself sick. At the IEP, the school tried to say his problem was he missed alot of school and got behind. I got mad, and I asked the psychologist why is it always the parents fault when the child has problems. Did it ever occur to you that You people could just stink at teaching. I also let him know Chris has had problems every year, and far before he missed school. They were not going to do anything, so I went out on my own and had him evaluated. They did put him on an IEP, but they just could not meet his needs. That is one of the reasons we homeschool. There were to many headaches. For the person who wanted to know about the time limits for the school to respond. I remember reading somewhere that when you make a request for an evaluation or IEP meeting, the school must respond in a timely manner. Something tells me 2 and 1/2 months is not a timely manner. Hello to all new members of the list and welcome. If you have not introduced yourselves, please do so. As for everyone else, updates. Hope all is going well with everyone, and HAPPY HALLOWEEN, remember to practice safety and watch out for all the little goblins running around. God bless all, Sharon( moderator) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2000 Report Share Posted October 31, 2000 I would not worry about what the school says, and would not depend on them. You know your child best. When my son who is 10, was in public school, he had alot of problems. This is a child i knew was very smart, and he was making d's and f's. He would get so frustrated that he would physically get sick. He got so sick, he missed 20 or 30 days of school. We had him to the hospitol, the drs and specialists. I thought something was very wrong. I found out, he was stressed out so much about school, he was making himself sick. At the IEP, the school tried to say his problem was he missed alot of school and got behind. I got mad, and I asked the psychologist why is it always the parents fault when the child has problems. Did it ever occur to you that You people could just stink at teaching. I also let him know Chris has had problems every year, and far before he missed school. They were not going to do anything, so I went out on my own and had him evaluated. They did put him on an IEP, but they just could not meet his needs. That is one of the reasons we homeschool. There were to many headaches. For the person who wanted to know about the time limits for the school to respond. I remember reading somewhere that when you make a request for an evaluation or IEP meeting, the school must respond in a timely manner. Something tells me 2 and 1/2 months is not a timely manner. Hello to all new members of the list and welcome. If you have not introduced yourselves, please do so. As for everyone else, updates. Hope all is going well with everyone, and HAPPY HALLOWEEN, remember to practice safety and watch out for all the little goblins running around. God bless all, Sharon( moderator) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2003 Report Share Posted August 29, 2003 Hi I am pretty new to this list. You are definetly not alone with this. I felt like my child was the ONLY one that had to have things said the " right " way. It is so sad! we are always walking on egg shells too. If she says someting more then once DH and I panics, you never know whats coming next. Lindsey is 7 hugs Jennie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2003 Report Share Posted August 29, 2003 Hi Ellie and welcome back! No you certainly are not alone with this OCD--and though my child isn't there yet and so haven't experienced it personally, I've read repeatedly from those on the list that puberty is a very common time for symptoms to explode in intensity. So unfortunately you have a lot of company on that too. I sympathize with the med trials, they can be so agonizingly slow when everyone is desperate for relief from the OCD. It took us four trials and over a year to finally find Zoloft which has worked well since for my daughter. It lowered her symptoms to the degree that she was able to be comfortable and functional, and benefit from therapy. I'll keep my fingers crossed for the Luvox to be " the one " for . It sounds like the therapist switch was a good thing, now it's time for the new one to do some no kidding CBT/ERP without giving you the job of responding " correctly " to 's confessions. You really know what you are doing to be able to discern good therapy from poor, even from an expert. is lucky to have you in her corner. may be feeling a bit better from the Luvox, in that tantrums have stopped which in my experience with my child were always sparked by anxiety. I'm hoping more encouraging good things come your and 's way soon. You have my unending respect for dealing with rather severe OCD so well in such a large family. Dealing with just my one child when her symptoms were high wore me out completely. But you are on the right track with meds and better therapy so things are looking up :-) Perhaps some of 's increased anxiety is due to school being about to start, my daughter's worse symptoms are always in anticipation the week or so before, and once she's back a day or two she's much better. In any case the structure of school may help better control or ignore her symptoms until the luvox and therapy can begin working fully. But when she gets home, hand her a snack and the TV remote and clear out! LOL I've learned to let my child transition for a half-hour or so before I start in with " how was your day " and " what did you do " which is a big boss back for me :-) But I found doing this eliminated those " just home from school and ready to explode " meltdowns in my child. Take care, Kathy R. in Indiana p.s. Yahoo from time to time has unsubbed me from this group for no reason I could ever figure out. ----- Original Message ----- From: edougherty5@... we have been in this group for about a year, but for some reason stopped receiving posts several months ago and i just got around to getting it fixed, because, we really need the support! my daughter is 12.5, she'll be 13 in nov. and has probably had ocd for her whole life, although she was actually diagnosed two years ago. things were going okay for about 1 year with therapy, but as she really began puberty, everything became a nightmare. she stopped trying to do the " bossing back " techniques, because they were just " too hard " and we began on medication in jan. 03. we are still fooling around with trying to find one that will help, at least a little and it has been a long road, especially since they take long to reach a full effect, etc.. so right now she is on luvox and just moving up to the full dosage. hopefully this will work. we have 7 children and katie is my second oldest, therefore, her little sisters and baby brother have seen and heard a lot that really is sad. katie had gotten into a behavior pattern of having outrageous " tantrums " when i was not able to say the " right " thing to make her worries better. well, as you all know, it has nothing to do with me saying anything, yet we got so wrapped up in this that it got out of control and i got to the point that i really didn't want to talk to her for fear of setting her off and all that comes with that. most people would never ever believe what i am saying about her behavior, because she is your typical straight a, polite, quiet,sweet girl around almost everyone but her family! anyway, we had to switch therapists in march and i think it was a good thing, although katie does not like the new women as much. her last therapist, who was an " expert " in this field did a lot of things to almost contribute to katie's " confesssing " to me rather than stop it and it put a big burden on me as to say or respond the " right " way!!!! it was awful. lately, the tantrums have stopped, but not without a lot of awful nights when we had to ignore them, etc... which really is impossible to do in a house of 9 people. even still, i still feel like i am walking on eggshells, waiting for the next meltdown. school starts here next week and i am more than anxious about that. i guess i am just looking for some assurance that i am not totally alone with this! ellie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2003 Report Share Posted August 29, 2003 You are not alone. My daughter is 11, almost 12, and was also diagnosed 2 years ago, although I believe she had OCD as even a toddler. My daughter would also throw tantrums, where she would kick holes in the walls, scream for hours on end, and strike out at anyone who was within striking distance. She even had the police called on her during one incident, but left after saying there was nothing they could do. But, yet at school and around friends, I would hear what a complete angel she was. She started taking risperdal about 6 months ago, along with prozac which she has been on for about a year. There has been a drastic change since being on those meds. The tantrums are virtually non-existent. She does still have a few issues, mainly with clothing(refusing to wear socks ,bras, and such). I also hold my breath, knowing that things could get bad again at any time. But please remember, you are not alone, and don't forget to give yourself a big hug. Donna mother of Kristyn(11 1/2) OCD,ODD >From: edougherty5@... >Reply-To: >To: >Subject: hi >Date: Fri, 29 Aug 2003 09:49:53 EDT > >we have been in this group for about a year, but for some reason stopped >receiving posts several months ago and i just got around to getting it >fixed, >because, we really need the support! my daughter is 12.5, she'll be 13 in >nov. and >has probably had ocd for her whole life, although she was actually >diagnosed >two years ago. things were going okay for about 1 year with therapy, but as >she really began puberty, everything became a nightmare. she stopped trying >to >do the " bossing back " techniques, because they were just " too hard " and we >began on medication in jan. 03. we are still fooling around with trying to >find >one that will help, at least a little and it has been a long road, >especially >since they take long to reach a full effect, etc.. so right now she is on >luvox >and just moving up to the full dosage. hopefully this will work. >we have 7 children and katie is my second oldest, therefore, her little >sisters and baby brother have seen and heard a lot that really is sad. >katie had >gotten into a behavior pattern of having outrageous " tantrums " when i was >not >able to say the " right " thing to make her worries better. well, as you all >know, >it has nothing to do with me saying anything, yet we got so wrapped up in >this that it got out of control and i got to the point that i really didn't >want >to talk to her for fear of setting her off and all that comes with that. >most people would never ever believe what i am saying about her behavior, >because she is your typical straight a, polite, quiet,sweet girl around >almost >everyone but her family! >anyway, we had to switch therapists in march and i think it was a good >thing, >although katie does not like the new women as much. her last therapist, who >was an " expert " in this field did a lot of things to almost contribute to >katie's " confesssing " to me rather than stop it and it put a big burden on >me as >to say or respond the " right " way!!!! it was awful. lately, the tantrums >have >stopped, but not without a lot of awful nights when we had to ignore them, >etc... which really is impossible to do in a house of 9 people. even still, >i >still feel like i am walking on eggshells, waiting for the next meltdown. >school >starts here next week and i am more than anxious about that. >i guess i am just looking for some assurance that i am not totally alone >with >this! >ellie > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2003 Report Share Posted August 29, 2003 Hi Ellie, My son , 14.5, has just begun medication for his OCD (Celexa) and we're crossing fingers that our first try will the " the one.! " He's on his 4th week now. No big improvement (not even sure of little improvements yet) but at least no side effects! He's only on 40 mg so we'll see how that kicks in a little later and maybe raise it some more. I can identify with the " say/do the right thing " bit about OCD. Not , but his twin, , went thru that phase way back in preschool years (luckily it didn't last). I still remember how crazy he drove me! 's OCD behaviors have varied (OCD hit him hard back in 6th grade, he just began 9th grade). A lot of " touching, " some repetitive compulsions, I'm pretty sure some " mental " things I can't see are going on too. He won't talk about his OCD at all, I pretty much have to nag info out of him. But he has said it is all done to " keep something bad from happening to him " and that he has to get a " just right " feeling too. I know that back when was pretty bad due to his OCD (we go thru bad, mild, bad, OK....just make the rounds some years), my other 2 sons (, 14.5-twin, and Randall, now 18), pretty much had to be on their own regarding some things, especially schoolwork. No time to help THEM and I heard it from them at times. Also after a long day at work (me!), at night I didn't want to do anything that I knew would set off on an hour(s) long OCD behavior/meltdown and so would stay on his brothers to NOT do anything to set off 's OCD. 's meltdowns aren't outbursts or violent, more of a getting " stuck " in OCD-land forever, crying because he can't finish/get thru it, yelling (at us if we bother him or interfere and shouldn't, etc.)....really sad to watch. Although, sad as it is, I have my fed-up moments and am not always the " understanding " mom! I hope the medication kicks in and works soon and is " the one " for . Please keep us updated on how things go and VENT here on any bad days! - single mom, 3 sons: , 14.5, with OCD, dysgraphia and HFA/Aspergers; , 14.5-nonidentical twin; Randall 18 - Quote Link to comment Share on other sites More sharing options...
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