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Re: Carol

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Glad to hear the good feedback as I'm definitely gonna buy it

now.thanks

K

> >

> > > Have you happened to read the new one that came out this

> > > year " Surviving a Borderline Parent " ? Just curious and if

you've

> > > gotten as much out of it as the other books. I'm thinking of

> buying

> > > it soon.

> >

> > Hi Kerrie,

> >

> > I haven't spent as much time with that one as I'd hoped to. On

> > cursory examination it looked like something that might better

> > be worked through with a therapist. Hopefully, others here on

> > this list who've spent the time with it can respond better about

> > it than I.

> >

> > > I've always believed age was a state of mind, and you're

pretty

> > > young if you ask me!

> >

> > Ahhh, actually, I'm now into enjoying my 2nd childhood. I never

> > had a first one and now I'm old enough to really appreciate this

> > one. *wink*

> >

> > - Edith

>

>

>

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  • 3 months later...
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Courage wrote:

.. . .many people who were dx with AD or PD can go on to have LBD. You

can also have AD and LBD.

**************************

Interesting! I will try and look for info about this on the internet. Thanks!

carol

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  • 4 weeks later...

Yes, I have gleaned from some peoples messages that university related hospitals

may be better. USC is in San Diego, so I will look that up. Also, UCSD has

large medical research areas so I was thinking that may be a good place too. I

think that Sharp has good research groups around the La Jolla area. I am

starting to look into those as well. So, yes Gitch's response was helpful by

just mentioning wehre they were able to get help. I'll also gladly check out

the alzheimer website. Thank you carol.

Re:

Gitch told :

Sorry I can't help with MD suggestions I'm in Northern New Jersey and was

fortunate to find a good neurologist at Columbia-Presbyterian Neurological

Center right away.

**********************

Well - that actually is helpful. I think that University-related medical

centers - especially those that have research centers that specialize in

dementia (although it is usually prirmarily Alzheimer-related) are a

wonderful source of expert medical personnel. I would think that USC (it IS

USC that is in San Diego is it not?) might have an ADRC (Alz. Disease

Research Center) - but you could check online. If I am not mistaken, ADEAR

(http://www.alzheimers.org), has a listing of all ADRCs around the country.

Yes, these are Alz-related but I would think that they might have more

knowledge about other dementias than your average doctor or even

neurologist.

Just a thought. . .

carol

Welcome to LBDcaregivers.

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Oh, mine act very similar to yours. I've been told how they can't possibly

help, they have children, jobs and lives....

They have the typical opinion that since I stay home to take care of my kids,

that I can take care of everything else (including their kids when they need it)

and let my kids go, since that's what they do.

I'm sorry you have such a tough time. Rant to me anytime, I totally understand

and sympathize.

Re: looking for a doctor

Jim told :

Make copies of the info for your sisters. Get them involved!

********************

And I earnestly hope your sisters are better about getting involved than my

two sisters are. Oh wait - they DO get involved when it comes to making

decisions - even when they make the wrong decisions but will not change

those decisions since they are the ones with POA - although I am the one

with the knowledge and the one who does all the work.

Just a quick rant. . . <g>

carol

Welcome to LBDcaregivers.

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noted:

Oh, mine act very similar to yours. I've been told how they can't possibly

help, they have children, jobs and lives....

**********************

I could ALMOST live with the fact that my sisters spend so little time with

my mom. Well, one of them does call nearly every day except when she and

BIL are galavanting off on a trip somewhere. What is hardest for me is that

my sisters are the ones on the POA documents - have both healthcare and

financial POA - know very little about dementia but think they know

everything - and therefore make a lot of wrong decisions!!!

Oh well. . .

carol

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