New to Group

[Guest guest]

Hi Anne,

YOu have all the same symptoms my 35 yr. old daughter has. She also has fybro.

Ther is so much medication out there to help you. You must find the right Dr.

to talk to. You probably will never be cured but you can have some good days if

you find the right man to help.

Anne1701@... wrote:

Hello,

My name is Anne, I am 41 years old and live in the suburban

Philadelphia area. Although I have suffered from considerable pain,

fatigue and various other symptoms since my teens I was not

diagnosed with Fibromyaglia until 4 years ago.

[Guest guest]

Hi Anne,

YOu have all the same symptoms my 35 yr. old daughter has. She also has fybro.

Ther is so much medication out there to help you. You must find the right Dr.

to talk to. You probably will never be cured but you can have some good days if

you find the right man to help.

Anne1701@... wrote:

Hello,

My name is Anne, I am 41 years old and live in the suburban

Philadelphia area. Although I have suffered from considerable pain,

fatigue and various other symptoms since my teens I was not

diagnosed with Fibromyaglia until 4 years ago.

[Guest guest]

Margaret wrote:>Hi, my name is margaret, I am 57 and I live

in the UK I was diagnosed with Psoriatic Arthritis(PA)m last September<

HI Margaret,

Sorry you are in pain, We all know what that is like. My wish for you is to have

a lot of pain free days.Wellcome to the group.

Later,

MT

[Guest guest]

> Hi, my name is margaret, I am 57 and I live in the UK

> I was diagnosed with Psoriatic Arthritis(PA)m last September

> I saw a rheumy in January, he wanted me to go onto MTX, as I am

> frightened of the side effects I decided against for now and went

> onto diclofenac and co-codimol. > God bless

>

> Margaret

*******************************************************************

Dear Margaret,

Hello and welcome to this group of well informed helpful people. I

knew one other person who had PA and I believe he went on the MTX and

his PA went into remission. I know it is frightening to you and I

can very much sympathise. I can not advise you one way or the other

regarding what you should do. I myself am taking a study drug to see

if it will help people with my disorder. I personally would do what

ever it takes to get my disorder into remission...I have reflex

sympathetic dystrophy and fibromyalgia. Anything to get rid of the

pain is what I strive for. So welcome Margaret, don't be afraid of

the meds, all meds have side effects, some more than others...but

sometimes, the benefits out weigh the side effects.

Good luck and God Bless,

Daphne

[Guest guest]

> Hi, my name is margaret, I am 57 and I live in the UK

> I was diagnosed with Psoriatic Arthritis(PA)m last September

> I saw a rheumy in January, he wanted me to go onto MTX, as I am

> frightened of the side effects I decided against for now and went

> onto diclofenac and co-codimol. > God bless

>

> Margaret

*******************************************************************

Dear Margaret,

Hello and welcome to this group of well informed helpful people. I

knew one other person who had PA and I believe he went on the MTX and

his PA went into remission. I know it is frightening to you and I

can very much sympathise. I can not advise you one way or the other

regarding what you should do. I myself am taking a study drug to see

if it will help people with my disorder. I personally would do what

ever it takes to get my disorder into remission...I have reflex

sympathetic dystrophy and fibromyalgia. Anything to get rid of the

pain is what I strive for. So welcome Margaret, don't be afraid of

the meds, all meds have side effects, some more than others...but

sometimes, the benefits out weigh the side effects.

Good luck and God Bless,

Daphne

[Guest guest]

> Hi, my name is margaret, I am 57 and I live in the UK

> I was diagnosed with Psoriatic Arthritis(PA)m last September

> I saw a rheumy in January, he wanted me to go onto MTX, as I am

> frightened of the side effects I decided against for now and went

> onto diclofenac and co-codimol. > God bless

>

> Margaret

*******************************************************************

Dear Margaret,

Hello and welcome to this group of well informed helpful people. I

knew one other person who had PA and I believe he went on the MTX and

his PA went into remission. I know it is frightening to you and I

can very much sympathise. I can not advise you one way or the other

regarding what you should do. I myself am taking a study drug to see

if it will help people with my disorder. I personally would do what

ever it takes to get my disorder into remission...I have reflex

sympathetic dystrophy and fibromyalgia. Anything to get rid of the

pain is what I strive for. So welcome Margaret, don't be afraid of

the meds, all meds have side effects, some more than others...but

sometimes, the benefits out weigh the side effects.

Good luck and God Bless,

Daphne

[Guest guest]

Hi Donna,

My 16 year old daughter is also starting to show symptoms of

fibromyalgia. I have noticed she is complaining lately of

headaches, aching all over, she's always fatigued. I will

of course have the doctor check for anything else that might

be wrong. I pray that it isn't fibro and something else that

can be actually be cured and taken away.

I wish pain free days for your daughter, and she is lucky to

have such a caring mom.

(((hugs)))

Anne

[Guest guest]

How awful, I feel so sorry for her and hope to God it isn't fybro. I wish I

lived near my daughter and could help her daily. I love her so much and all she

has is her husband...who is a great guy and her 13 yr. old son who has a

learning disability. I always feel guilty cause I can't be with her.

Anne1701@... wrote:Hi Donna,

My 16 year old daughter is also starting to show symptoms of

fibromyalgia. I have noticed she is complaining lately of

headaches, aching all over, she's always fatigued. I will

of course have the doctor check for anything else that might

be wrong. I pray that it isn't fibro and something else that

can be actually be cured and taken away.

[Guest guest]

How awful, I feel so sorry for her and hope to God it isn't fybro. I wish I

lived near my daughter and could help her daily. I love her so much and all she

has is her husband...who is a great guy and her 13 yr. old son who has a

learning disability. I always feel guilty cause I can't be with her.

Anne1701@... wrote:Hi Donna,

My 16 year old daughter is also starting to show symptoms of

fibromyalgia. I have noticed she is complaining lately of

headaches, aching all over, she's always fatigued. I will

of course have the doctor check for anything else that might

be wrong. I pray that it isn't fibro and something else that

can be actually be cured and taken away.

[Guest guest]

How awful, I feel so sorry for her and hope to God it isn't fybro. I wish I

lived near my daughter and could help her daily. I love her so much and all she

has is her husband...who is a great guy and her 13 yr. old son who has a

learning disability. I always feel guilty cause I can't be with her.

Anne1701@... wrote:Hi Donna,

My 16 year old daughter is also starting to show symptoms of

fibromyalgia. I have noticed she is complaining lately of

headaches, aching all over, she's always fatigued. I will

of course have the doctor check for anything else that might

be wrong. I pray that it isn't fibro and something else that

can be actually be cured and taken away.

[Guest guest]

Anne wrote:

> My 16 year old daughter is also starting to show symptoms of

> fibromyalgia.

***************************************************************

Anne,

if you haven't done it already (and I bet you have..) Have your

daughter's thyroid checked...

It has to be the TSH checked..if the tsh is high and the t3 is normal

or low normal or low, she is hypothyroid and that can cause a lot of

body aches and pains....just like fibro....

God Bless,

Daphne

[Guest guest]

Anne wrote:

> My 16 year old daughter is also starting to show symptoms of

> fibromyalgia.

***************************************************************

Anne,

if you haven't done it already (and I bet you have..) Have your

daughter's thyroid checked...

It has to be the TSH checked..if the tsh is high and the t3 is normal

or low normal or low, she is hypothyroid and that can cause a lot of

body aches and pains....just like fibro....

God Bless,

Daphne

[Guest guest]

Hi Margaret,

Welcome. Although it's sad to meet someone else with chronic pain.

Have you thought about asking your rheumy to refer you to a pain management

unit? There you'd meet with pain specialists who could work with you to

find a way for you to learn to live with the pain as well as reviewing

medication. Some people involved in pain management programmes find they

can reduce their medication, others (me included :~) find they can't!

Siel

[Guest guest]

Hi Margaret,

Welcome. Although it's sad to meet someone else with chronic pain.

Have you thought about asking your rheumy to refer you to a pain management

unit? There you'd meet with pain specialists who could work with you to

find a way for you to learn to live with the pain as well as reviewing

medication. Some people involved in pain management programmes find they

can reduce their medication, others (me included :~) find they can't!

Siel

[Guest guest]

Hi Margret

Ouch! It's bad enough that you have to live with Psoriasis and now it has

developed into PA.

It is wise to consider all of your options. Perhaps you can talk to your

doctor in more detail about MTX. I have seen commercials for other drugs to

treat PA but I can't remember their names. You can find them on the good old

Internet.

We all have times of self pity,depression and anger. We just have to find a

way to cope. Don't hesitate to see a counselor and or take medication. We

have to use everything in the arsenal available to us to fight the war of

life with chronic pain.

Welcome to the group. You are not alone in your suffering any longer.

Kaylene

>Hi, my name is margaret, I am 57 and I live in the UK

>I was diagnosed with Psoriatic Arthritis(PA)

>I cope most days with the pain, but sometimes get quite depressed and

>cry about it all, feeling sorry for myself - I know this does not

>help but I don't think that I have fully accepted get that I have a

>chronic illness - hope I do soon as I don't like feeling like this.

_________________________________________________________________

MSN Toolbar provides one-click access to Hotmail from any Web page – FREE

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[Guest guest]

Hi Margret

Ouch! It's bad enough that you have to live with Psoriasis and now it has

developed into PA.

It is wise to consider all of your options. Perhaps you can talk to your

doctor in more detail about MTX. I have seen commercials for other drugs to

treat PA but I can't remember their names. You can find them on the good old

Internet.

We all have times of self pity,depression and anger. We just have to find a

way to cope. Don't hesitate to see a counselor and or take medication. We

have to use everything in the arsenal available to us to fight the war of

life with chronic pain.

Welcome to the group. You are not alone in your suffering any longer.

Kaylene

>Hi, my name is margaret, I am 57 and I live in the UK

>I was diagnosed with Psoriatic Arthritis(PA)

>I cope most days with the pain, but sometimes get quite depressed and

>cry about it all, feeling sorry for myself - I know this does not

>help but I don't think that I have fully accepted get that I have a

>chronic illness - hope I do soon as I don't like feeling like this.

_________________________________________________________________

MSN Toolbar provides one-click access to Hotmail from any Web page – FREE

download! http://toolbar.msn.com/go/onm00200413ave/direct/01/

[Guest guest]

Hi Margret

Ouch! It's bad enough that you have to live with Psoriasis and now it has

developed into PA.

It is wise to consider all of your options. Perhaps you can talk to your

doctor in more detail about MTX. I have seen commercials for other drugs to

treat PA but I can't remember their names. You can find them on the good old

Internet.

We all have times of self pity,depression and anger. We just have to find a

way to cope. Don't hesitate to see a counselor and or take medication. We

have to use everything in the arsenal available to us to fight the war of

life with chronic pain.

Welcome to the group. You are not alone in your suffering any longer.

Kaylene

>Hi, my name is margaret, I am 57 and I live in the UK

>I was diagnosed with Psoriatic Arthritis(PA)

>I cope most days with the pain, but sometimes get quite depressed and

>cry about it all, feeling sorry for myself - I know this does not

>help but I don't think that I have fully accepted get that I have a

>chronic illness - hope I do soon as I don't like feeling like this.

_________________________________________________________________

MSN Toolbar provides one-click access to Hotmail from any Web page – FREE

download! http://toolbar.msn.com/go/onm00200413ave/direct/01/

[Guest guest]

Margaret wrote:

> Hi, my name is margaret, I am 57 and I live in the UK

Hi Margaret. Welcome to the Chronic Pain group.

> I was diagnosed with Psoriatic Arthritis(PA)m last September

> I saw a rheumy in January, he wanted me to go onto MTX, as I am

> frightened of the side effects I decided against for now and went

> onto diclofenac and co-codimol. I go back to see him next week and I

> know that he will once again suggest MTX - I don't know what to do,

> the more I read up on it the less I want to take it.

I didn't know anything about Psoriatic Arthritis, so I did a web search and read

up about it. It sounds very uncomfortable.

I didn't know what MTX was either. When I typed it into the search engine I got

all sorts of hits for music, cars and goodness knows what all else. Then I

found a link and learned that it is Methotrexate. I looked up the things that

can go wrong when a person uses it. It was a long list. I suppose, like every

other drug treatment, one person's cure is another person's poison.

I also read about MTX and Remicade combination therapies. I know one of our

members had tried Remicade and had been happy with the results. That was last

year. I don't know if she still reads the list. Another had a friend that it

worked well for with none of the nasty side effects listed.

> I cope most days with the pain, but sometimes get quite depressed and

> cry about it all, feeling sorry for myself - I know this does not

> help but I don't think that I have fully accepted get that I have a

> chronic illness - hope I do soon as I don't like feeling like this.

It's not easy getting used to being 'different' than we used to be. I don't cry

very often, but when I do, I find it releases a lot of stress. We were given

tears for a reason. I figure that sometimes it's a good idea to use them.

Crying excessively or being depressed for a long time isn't healthy though. If

you keep feeling really down, it would likely be a good idea to discuss it with

your doctor.

I hope the diclofenac and co-codimol combo is giving you some relief.

--

Lyndi

[Guest guest]

Margaret wrote:

> Hi, my name is margaret, I am 57 and I live in the UK

Hi Margaret. Welcome to the Chronic Pain group.

> I was diagnosed with Psoriatic Arthritis(PA)m last September

> I saw a rheumy in January, he wanted me to go onto MTX, as I am

> frightened of the side effects I decided against for now and went

> onto diclofenac and co-codimol. I go back to see him next week and I

> know that he will once again suggest MTX - I don't know what to do,

> the more I read up on it the less I want to take it.

I didn't know anything about Psoriatic Arthritis, so I did a web search and read

up about it. It sounds very uncomfortable.

I didn't know what MTX was either. When I typed it into the search engine I got

all sorts of hits for music, cars and goodness knows what all else. Then I

found a link and learned that it is Methotrexate. I looked up the things that

can go wrong when a person uses it. It was a long list. I suppose, like every

other drug treatment, one person's cure is another person's poison.

I also read about MTX and Remicade combination therapies. I know one of our

members had tried Remicade and had been happy with the results. That was last

year. I don't know if she still reads the list. Another had a friend that it

worked well for with none of the nasty side effects listed.

> I cope most days with the pain, but sometimes get quite depressed and

> cry about it all, feeling sorry for myself - I know this does not

> help but I don't think that I have fully accepted get that I have a

> chronic illness - hope I do soon as I don't like feeling like this.

It's not easy getting used to being 'different' than we used to be. I don't cry

very often, but when I do, I find it releases a lot of stress. We were given

tears for a reason. I figure that sometimes it's a good idea to use them.

Crying excessively or being depressed for a long time isn't healthy though. If

you keep feeling really down, it would likely be a good idea to discuss it with

your doctor.

I hope the diclofenac and co-codimol combo is giving you some relief.

--

Lyndi

[Guest guest]

Margaret wrote:

> Hi, my name is margaret, I am 57 and I live in the UK

Hi Margaret. Welcome to the Chronic Pain group.

> I was diagnosed with Psoriatic Arthritis(PA)m last September

> I saw a rheumy in January, he wanted me to go onto MTX, as I am

> frightened of the side effects I decided against for now and went

> onto diclofenac and co-codimol. I go back to see him next week and I

> know that he will once again suggest MTX - I don't know what to do,

> the more I read up on it the less I want to take it.

I didn't know anything about Psoriatic Arthritis, so I did a web search and read

up about it. It sounds very uncomfortable.

I didn't know what MTX was either. When I typed it into the search engine I got

all sorts of hits for music, cars and goodness knows what all else. Then I

found a link and learned that it is Methotrexate. I looked up the things that

can go wrong when a person uses it. It was a long list. I suppose, like every

other drug treatment, one person's cure is another person's poison.

I also read about MTX and Remicade combination therapies. I know one of our

members had tried Remicade and had been happy with the results. That was last

year. I don't know if she still reads the list. Another had a friend that it

worked well for with none of the nasty side effects listed.

> I cope most days with the pain, but sometimes get quite depressed and

> cry about it all, feeling sorry for myself - I know this does not

> help but I don't think that I have fully accepted get that I have a

> chronic illness - hope I do soon as I don't like feeling like this.

It's not easy getting used to being 'different' than we used to be. I don't cry

very often, but when I do, I find it releases a lot of stress. We were given

tears for a reason. I figure that sometimes it's a good idea to use them.

Crying excessively or being depressed for a long time isn't healthy though. If

you keep feeling really down, it would likely be a good idea to discuss it with

your doctor.

I hope the diclofenac and co-codimol combo is giving you some relief.

--

Lyndi

[Guest guest]

Hi Wanda, and welcome.

I don't have FMS but have a fractured back that healed wrong and bad hips and

arthritis in my hands and assorted other locations in my body. I do understand

pain on a daily basis and it is no fun. My 35 yr. old daughter in Calif. has

fybro. and the poor kid suffers daily. Of course I am not much help. She in

Calif and me in CT. Well honey, welcome and talk to us anytime. Donna

wanderingflower42 wrote: <snipped>

Hello Everyone, My name is Wanda, I'm 44, and from NY. I have had

Fibromyalgia for almost 2 years now.

[Guest guest]

Hi Wanda, and welcome.

I don't have FMS but have a fractured back that healed wrong and bad hips and

arthritis in my hands and assorted other locations in my body. I do understand

pain on a daily basis and it is no fun. My 35 yr. old daughter in Calif. has

fybro. and the poor kid suffers daily. Of course I am not much help. She in

Calif and me in CT. Well honey, welcome and talk to us anytime. Donna

wanderingflower42 wrote: <snipped>

Hello Everyone, My name is Wanda, I'm 44, and from NY. I have had

Fibromyalgia for almost 2 years now.

[Guest guest]

Hi Wanda, and welcome.

I don't have FMS but have a fractured back that healed wrong and bad hips and

arthritis in my hands and assorted other locations in my body. I do understand

pain on a daily basis and it is no fun. My 35 yr. old daughter in Calif. has

fybro. and the poor kid suffers daily. Of course I am not much help. She in

Calif and me in CT. Well honey, welcome and talk to us anytime. Donna

wanderingflower42 wrote: <snipped>

Hello Everyone, My name is Wanda, I'm 44, and from NY. I have had

Fibromyalgia for almost 2 years now.

[Guest guest]

Hi Vienna, welcome to the group I am new to the group also. I am a single mother

also, and I was a year away from my ADN when I got injured while working in the

ER. A drug overdose that awoke unhappy about his high being ruined. I got thrown

over a stretcher and hit the wall. Since then 9 back surgeries, fusions, dorsal

column stimulator, morphine pump and lots of narcotic meds. And I also have ran

into the same things you did working for the spinal doctor. It is really sad. I

have a super pain management doctor so I am very lucky. I wish and hope everyone

out there finds a good doctor and gets some pain relief. Thinking of you all and

you are in my prayers. Hugs

[Guest guest]

Hi Vienna, welcome to the group I am new to the group also. I am a single mother

also, and I was a year away from my ADN when I got injured while working in the

ER. A drug overdose that awoke unhappy about his high being ruined. I got thrown

over a stretcher and hit the wall. Since then 9 back surgeries, fusions, dorsal

column stimulator, morphine pump and lots of narcotic meds. And I also have ran

into the same things you did working for the spinal doctor. It is really sad. I

have a super pain management doctor so I am very lucky. I wish and hope everyone

out there finds a good doctor and gets some pain relief. Thinking of you all and

you are in my prayers. Hugs