Re: Stevie

[Guest guest]

Hello Piper,

Thank you for your email. I am sure now, with this wonderful group's help,

that yesterday was a " symptom " of LBD. I am confident now that the next time

this happens I will not panic and know how to handle it.

Thank you again and I will see you online....Stevie

[Guest guest]

Hello Sharon,

Thank you so much for that information. It has been so " touch and go " with

this household since my Uncle has been declining because his doctors really

don't know what to do. I am so grateful that I found this website and " first

hand " information to get us through this very frustrating disease. Just when I

think he is at " the end " he does a turn around and that is very confusing. I

found out that those moments were TIA's or TUU's and now I will be able to

handle them.

I thank you again and hope to share some knowledge I have with you and others.

Thanks for the hug, I needed that,

Stevie

p.s...pushed " reply " to send you this message and it came back " mailer

demon " . ?

* * * * * * * * *

stevie,

with water pills, your lo should also take potassium chloride to

keep the potassium level up. dad had fluctuating bp and was on

fludrocort to help maintain it. it helped very much, but at the end

dads bp dropped and kept on dropping. keep on eye on it, hugs

sharon m

[Guest guest]

Hi Jan....We will try that! Stevie

Hi Stevie,

One of the things that my husband's doctor recommended

for Jim to take is 81 mg. aspirin a day to help

prevent a stroke or heartattack. Since I thought he

might be having TIAs.......Jan

[Guest guest]

Hi Stevie,

One of the things that my husband's doctor recommended

for Jim to take is 81 mg. aspirin a day to help

prevent a stroke or heartattack. Since I thought he

might be having TIAs.......Jan

--- juperant@... wrote:

> Hello Sharon,

>

> Thank you so much for that information. It has been

> so " touch and go " with

> this household since my Uncle has been declining

> because his doctors really

> don't know what to do. I am so grateful that I

> found this website and " first

> hand " information to get us through this very

> frustrating disease. Just when I

> think he is at " the end " he does a turn around and

> that is very confusing. I

> found out that those moments were TIA's or TUU's and

> now I will be able to

> handle them.

>

> I thank you again and hope to share some knowledge I

> have with you and others.

>

> Thanks for the hug, I needed that,

>

> Stevie

>

> p.s...pushed " reply " to send you this message and it

> came back " mailer

> demon " . ?

>

> * * * * * * * * *

>

>

> stevie,

> with water pills, your lo should also take potassium

> chloride to

> keep the potassium level up. dad had fluctuating

> bp and was on

> fludrocort to help maintain it. it helped very

> much, but at the end

> dads bp dropped and kept on dropping. keep on eye on

> it, hugs

> sharon m

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________

Yahoo! Mail - PC Magazine Editors' Choice 2005

http://mail.yahoo.com

[Guest guest]

stevie, what a beautiful story of true love, tears streaming down my cheek, hugs

sharon m

From: juperant@...

Date: 2005/10/22 Sat PM 01:50:19 EDT

To: LBDcaregivers

Subject: Re: Time

God Bless you Courage for your hearfelt email! I want to share a story with

you and hopefully it will make you know that you are not alone with your very

sacred feelings.

My Stepfather had been sick for several years with a diagnosis of Renal

kidney failure. The last year was a fright and huge hardship for both him and

my

Mother. He wasn't even on dialyses but had to have monthly blood transfusions

because the hospital " accidentally " gave him Chemo for something they thought

he had and that is something that you don't do for a kidney patient. (...and I

might add...a whole new message board)!

My Mother was 78 and he was a young 72. Because she felt " cheated " from this

unfortunate disease and the hospital's unfortunate mistake, she kept on

telling him that he would be fine and they would " fight this thing together. "

He started needing weekly blood transfusions and it began taking a big toll

on his energy. My Mother continued to tell him that he would be all right even

though he was obviously declining in health and getting weaker. I think she

was having a time with it because his mental health was " perfect. "

Each night when I talked to her she would tell me how hard she would pray

that he would get better and she was certain that her prayers would be answered.

She didn't want to even talk about " the other thing that could happen "

because she was not ready for it.

I went down to San Diego to visit them on a Sunday and my Stepfather looked

good....he didn't even look " sick " but he was pretty weak. I went to the store

to buy all his favourite foods to boost his energy. My Mom was so positive

that the doctors were reading all the wrong signs and she was sure a miracle

would happen.

On Tuesday's nightly call to Mom, she started to cry and talked about how

much he suffered, yet kept it to himself (believe me he was a Hero with this

disease he had!) and how she felt he was " staying around " for her because she

was

disabled (She can barely walk because of ruptured discs, is going blind from

Macular degeneration, and can't hear without her hearing aides). She kept on

saying, " I'm not ready for this, " and " He's too young, etc.... " I gently told

her, " Mom, no one is ever ready, even when they are terminal, but we will all

go through this process in time and we will all deal with it as it is given. "

That night she went into his bedroom and told him that it was okay to " go "

and that she would be all right. She told him that he has suffered long enough

and she thanked him for holding on so long. He told her that he was worried

about how she was going to manage when he was gone. She simply said, " I will

be fine. "

He passed away in her arms two days later. That was February 3rd of this

year. She misses him terribly but is so glad that she, as she says, " Released

him from this world. "

As impossible as it seemed for her to manage, she has found other " strengths "

that she didn't even know she possessed, in which to survive.

I hope this helps.

I send you comfort and Peace.......Stevie

* * * * * * * * *

Hi All,

It is nearly 2:00 in the morning here in Toronto and instead of getting

some much wanted sleep I am wide awake and feeling weepy.

There is no more denying that my mom is in the last stage of this

disease and that she is going down hill fast. I knew that LBD was going

to kill her but I just thought we would have more time. Mom declined so

quickly within a period of 8 months and then she held steady in her

present state where she can no longer walk, feed herself or do anything

to sustain her own life.

Isn't it time to be asking God to please remember my mother and take her

to him? Wouldn't that be the kindest thing to do? Intellectually I

know that I should be praying for her release yet my heart is not ready

to let her go.

I watched mom suffering in pain this evening because the day nurse did

not get the doctor to order a med for a possible UTI. I was so angry

because this nurse did not do her job and its the weekend which makes

it harder still to get meds. I wouldn't take no for an answer and

worked with/on the evening nurse to get mom a med. The nurse - God bless

her - did get a script for my mom and we both walked over to the

pharmacy across the street to get the med.

Once mom was given the pill and resting in bed I had a thought that

perhaps I should whisper in her ear that we would be OK if she decided

to let go. That we would miss her so very much but that she shouldn't

worry about us. In the end, I just couldn't do it. I was filled with

sadness and fear and instead cried my eyes out.

I know it's time but I want more time. God give me the strength to face

up to this reality and to have courage so that I can help my mother

leave this world as peacefully as possible.

I am so thankful for this group, this space where I can come to discuss

my fears.

Courage