Guest guest Posted July 3, 2004 Report Share Posted July 3, 2004 dont worry about them, just worry about you and jim, the uninivited intrusion expecting miracles can go on thier own merry way!!!! you two are number 1 !!! sharon m Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2004 Report Share Posted July 10, 2004 Jan- Even though I read you 'have to work on patience' your post made me smile as others are noticing your calmness in dealing with LBD...you are so right...there is power in prayer. So glad you have felt His work in your days. Hugs to you Jan- Sandie -- Janet Colello wrote: Amen, to there is a reason we were put in this situation. I truly believe as you two do and have thought so all along. I do know I have to work on my patience, sometimes it wears so thin and I get so frustrated, but even the lady from my 's Ministry that I meet with once a week to help me through my frustrations has noticed more of a calmness in me in dealing with this disease. Prayers really do help!......Jan --- Sandie wrote: > > > Ahhh - > > Thank you for reading what I wrote. I am pleased > that you could > relate. I do believe this to be true. Every > circumstance, every > experience is for a reason...God gives us these > situations for a reason, beyond anything we know > here, all for a bigger picture > than we can see. > > In response to things your mom has said lately...I > remember a > specific situation with my dad. He was in the > nursing home he > had lived at for 2 1/2 yrs and before we had the > mirror in his room > taken down he stood at the mirror, held onto the > vanity with both > hands...as if to pull the vanity off the wall. > Veins were protruding > from his temples, as he yelled.. " why me, why me? " I > thought my heart > had been ripped from my body and thrown down to be > stomped on. I > quickly replied to my dad saying, " I don't know why > you dad, and I > don't know why me either - but I do know we are in > this 'til the > end' " which is a phrase I coined for the caregiving > I had for my > dad...'til the end.' I wouldn't, couldn't, and > never did leave > his side or give his decisions a second thought. > > With this said, when my dad passed away, even though > it was one > of the toughest times in my life, I knew I had done > my best with > the knowledge I had, I loved him 'til the end' and > that I had no > guilt with his passing. > > May everyone here find peace in their caregiving, > and feel blessed > as I had been with being selected as the one person > in the family > trusted with this type of journey. > > Thinking of you tonight - saying extra prayers > for you as well- > > Sandie > -- " janeymar54 " wrote: > As always, you always find the right words. In your > response to Ed, > you said " God has given you this time for a reason " . > This really hit > home to me. I believe that He has given us this > time to teach us > strength, patience and compassion, more than any of > us ever believed > we would have. And also I believe that He has given > us this time to > strengthen our relationship with Him. For those > words from your > heart I thank you. > > Since Mom's geriatric psychiatrist visit two weeks > ago, when she > changed her meds, Mom is much calmer and sleeping a > lot more. The Dr. > increased her Seroquel and Depakote, and is slowly > discontinuing one > of the antidepressants. The past few days she has > had a fever and is > not going to the bathroom much,when she does she > usually doesn't make > it in time. I suspect a UTI. She has an appt with > her family Dr. > Monday so I called and had a urinalysis ordered. I > will take her to > get that done Saturday along with a blood test for > Depakote levels. > So another thing to deal with, although she has not > had a fever today > and has been able to stay out of bed a lot longer > today. Hre > appetite is also worse...not wanting to eat much. I > don't know if it > is from the meds or if she is just getting worse. > My niece who is a > nurse said a lot of the psychotic meds have > short-term side effects > until they get leveled out in your system, so I > should wait a couple > of weeks and see if anything changes. > > I have been feeling so overwhelmed, and so sorry for > her. It just > breaks my heart. She said yesterday that I am the > only one who will > let her kiss me and the only one who will hug her. > She said this > morning " I am so mixed up, I don't know where I am > or what I am > doing. " I can't imagine what is going on in her > mind. She told the > geriatric psychiatrist that she feels tortured > because she doesn't > know what she is doing. It's so sad and I still > have the feeling > that I could do more to help her. > > I haven't been posting much lately but have been > reading posts every > day...you all feel like a lifeline and I know I > couldn't get through > many days without your advice, stories, etc. > > Again, thank you all for always being there....and > welcome to the new > members, you will find much comfort here. > > Blessings, > M > > > > > Welcome to LBDcaregivers. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2004 Report Share Posted July 16, 2004 Hello: It is so good to hear from you. My course has been from hell and the newly developed situation with my husband hasn't helped this be a relaxing summer but, recently, there's been a elimination of some of the assignments in the course (after some students who were more vocal than me raged at the professor and at Queen's University) and I am encouraged by the fact that they haven't found any reason as to why my husband's heart pounds irregularly sometimes. He hasn't had a reoccurence since Tuesday and we have modified his diet. He is officially back at work on Monday but today he felt compelled to visit a few of the sites he's responsible for and " do a quick check " . I expect him back soon and then we're planning for a nice dinner with some of his friends which I hope will contribute to a good weekend for him. I recall only too well the hell you went through with Jim and how you had to pull him out of the hospital even though the " professionals " there thought you were out of your mind to do so. I also remember the angst you felt after Jim had been given Haldol and his seizure. I think at that time I was still very much active on the board because I remember being so very worried about you and about Jim. I also recall how life " stabilized " a bit after you got him home (after the seizure that is). I still can't get over how doctors disregard important pieces of information insofar as this illness is concerned. It gets me every time! I wish some of the doctors could visit this board and see how hard we have to work to educate people about this disorder and how hard it is for us to have to live with residual effects of medications like Haldol. My kids loved Quebec. We loved Quebec too. It was so romantic to walk along the boardwalk alongside Chateau Frontenac on Saturday night. The presence of another couple who traveled with us and our kids did nothing to take away the beauty of the evening or of the whole weekend. We did little more than sightsee and eat our way through our three days there but it was so nice to be away from here. My dad continues in much the same way with confusion striking him sporadically. His confusion centers mainly on him not being aware of where he is or not recognizing his room. As I told Sandie, no matter how long I live with it, the terror I see them always leaves me so saddened and blindsided. There is no easy way to cope with this is there? Anyhow, I really should get to work so I don't have to do so this weekend. Hope you're having a lovely Friday. Mine just got better because the sun is shining into my bedroom. Abby Quote Link to comment Share on other sites More sharing options...
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