Re: Lewy Body Dementia Association - 1st year Anniversary

[Guest guest]

peggy,

i read taht we have a logo, i dont recall seeing it, but i was wondering,

breast cancer has a pink ribbon, i miss you to service personnel are yellow

bows, etc, does lbda have something special like that yet??

sharon m

a smile a day keeps the meanies away!!!

[Guest guest]

donna r,

found it, very pretty dark purplish lettering, adn the white part of the

flowers and stem stands out so white polka dots would be gorgeous.

or better yet, how about purple ribbon with white hearts on it!!!!! well

maybe we better stick with polka dots, the menfolk may not like to wear a ribbon

iwth white heart on it i was just wondering because i was gonna make up a

bow/pin to wear and didnt know what to do . i would be willing to mass produce

to sell for lbda when it is up and running here in florida!!!

sharon m

a smile a day keeps the meanies away!!!

[Guest guest]

Sharon,

Wish I could remember the LBD email addie. Use the search engine and

use LBD and you shoud find the web site with the logo. Some people have

the address on the bottom of their email. There is a whole other site

you are missing.

At one time we were talking about a similiar ribbon with polka dots!!!!!

Donna R

[Guest guest]

Thanks to everyone involved. As the song goes on Sesame street

" Co-operation makes it happen " .

Courage

Lewy Body Dementia Association - 1st year

Anniversary

>Thank you for the personal kudos this week on the LBDA's progress, but

>a great deal of the credit goes to:

>- The other incorporators (Jim, Jan, Betty, Imelda), and board

>directors (previous list, plus Donna, , and Lynn).

>- To Ann, who created and still maintains this yahoo caregiver group,

>and to others involved with operating the caregivers & caringspouse

>groups.

>- To the caregivers that created the concept of the LBDA a few years

>ago, including creation of the mission statement and logo. Many

>thanks to Imelda, who was a member of the original concept group,

>created the LBDA website, and is currently the Association VP, all

>while providing LBD home care for her husband (and worked an outside

>job until very recently).

>- To all LBD caregivers here that share their strenght and courage.

>

>Special events of the past year:

>- Courage, your e-mail campaign last spring was extraordinary!

>- Sandie, thank you for arranging the caregivers' gathering last

>summer! Meeting and sharing in person was such a wonderful

>experience.

>

>The first I heard of LBD was when my family received mom's autopsy

>results. I searched the web for answers, and found this group in the

>fall of 2002. Sandie, correct me if I am wrong, but I think back then

>there were around 200 caregivers and 40 caringspouses, and we now have

>close to 600 caregivers and 100 caringspouses. During the early

>months of 2003, many people on the LBDcaregivers site expressed a

>strong need for a nonprofit association to help raise awareness,

>including Sandie, Donna, Sally, Courage, Shirley, Sandy, Betty, Joni,

>Deborah, Joanne, Mark, , , Russ, Jim, Kath, Jayn, Imelda,

>, Dennis, Jan, and sorry for others I cannot recall at the

>moment. All of you greatly contributed to the motivation it took to

>start the association, and on a daily basis, everyone here provides an

>overwhelming incentive to make the LBDA a successful and productive

>organization.

>

>Sally, thank you for passing along Ian's note last week. We look

>forward to meeting him, too. In addition to 's staging project

>meeting in Philadelphia on July 19th, we will be meeting with

>researchers to form an International Scientific Advisory Board for

>LBD. On a very encouraging note, Ian said there are quite a number of

>interested and enthusiastic LBD researchers worldwide.

>

>Best regards to all,

>Peggy

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>Welcome to LBDcaregivers.

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