Guest guest Posted June 2, 2004 Report Share Posted June 2, 2004 Hi Abby, You're right it is shocking that a caregiver would not inform me of the things that Jim has been tossing out. To say the least I was very upset. Someone here brought it to my attention that the caregiver may see Jim as clear on some days and think that he knows what he is doing, but this is a person that has been with Jim for nearly 3 years and has seen him in confused states and cognitive. I have given him information on LBD and have discussed the ups and downs with him, but I actually do think that sometimes he sees hope for Jim on his more clear days despite what I tell him about this stinkin' disease. I think that he thinks I'm nuts to say that it doesn't get better when he can see that Jim is cognitive on certain days. So that was another view that I hadn't thought of. Well, I certainly hope that things will straighten out now since I called the agency and he has been warned by them also. I am going to try some of the tips I have received of using a bag for Jim to put his things in and then hopefully the caregiver will sneak it aside for me to rummage through later, instead of throwing it in the garbage. I think I read that your father's CT Scan or MRI? was clear and that there is no tumor. That is such great news, so at least you can narrow basically everything down to LBD related now, I think?!........Jan --- abbybb1 wrote: > Hi Jan: > > Well, I've calmed down a bit since reading your > first post re: this > considerably but I still don't feel that much > differently. > > I'm glad you've decided to talk to the agency. If > nothing else > they'll be able to possibly suggest alternatives for > the caregiver to > use in situations like that. I read your message to > Courage and I'm > convinced that a caregiver that allows Jim to go > into a room alone > knowing that he is unsteady on his feet and that he > cognitively is at > a disadvantage isn't doing all he can. While I > applaud his desire to > not get into a physical confrontation with Jim, I > have to think > there's something else he can be doing to more > adequately cope with > the situation at hand. I'm especially shocked that > the caregiver > doesn't even mention the issue to you at all until > it's too late. > > Best of luck Jan. Let us know how this is all > turning out. I'm > hoping it doesn't end with you having to find > another caregiver and > it may not. I'm sure the agency will take matters > into its own hands > or I hope they will anyway. > > Keep us posted. > > All good things, > > Abby > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2004 Report Share Posted June 25, 2004 Abby: No, not you. It was me. I gave the wrong address. Should have been 3505 Gaston Ave, Dallas TX. Can't imagine how that happened. Thank you for missing me. Y'all are so busy that I can't imagine having time to miss anyone. Thank you from all the Childs/Busch family for the prayers and thoughts. in Texas > : > > I'm so happy to hear from you and am pleased that Holly has made this > strides in a relatively short time. > > I have to tell you that I did send a card but it came back about 2 > weeks ago. The envelope had been marked up pretty badly (in a > variety of stamps and red marker) but I was able to ascertain that I > may have had the wrong address. Very likely given my inability to do > much with numbers. Please do tell her that I am praying and thinking > of you all. > > I have to tell you that a friend of mine has a cousin who has > benefitted greatly from the Baylor Institute in Dallas. Apparently > he was a victim of an at work accident and lost all sensation is his > left arm. Slowly, he regained the sensation but was unable to even > lift his arm. After strenuous work, and my friend Lucy tells me they > pushed him tremendously, he is slowly regaining the strength in his > arm. He is now able to lift 3 pds I think. Apparently, they do good > things there at Baylor. Holly will be another of their miracles. > > It is so nice to hear from you again. I've been a sporadic > participant lately but I have so much warmth for the people on this > site. When someone is away, I miss them so I'm glad to reconnect > even if it's only on this level. > > All good things to you, Holly and , > > Abby > > > > > Welcome to LBDcaregivers. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2004 Report Share Posted June 27, 2004 , Did my card get though? Courage Re: /Abby >Abby: >No, not you. It was me. I gave the wrong address. Should have been 3505 >Gaston Ave, Dallas TX. Can't imagine how that happened. Thank you for >missing me. Y'all are so busy that I can't imagine having time to miss >anyone. >Thank you from all the Childs/Busch family for the prayers and thoughts. > > in Texas > > > >> : >> >> I'm so happy to hear from you and am pleased that Holly has made this >> strides in a relatively short time. >> >> I have to tell you that I did send a card but it came back about 2 >> weeks ago. The envelope had been marked up pretty badly (in a >> variety of stamps and red marker) but I was able to ascertain that I >> may have had the wrong address. Very likely given my inability to do >> much with numbers. Please do tell her that I am praying and thinking >> of you all. >> >> I have to tell you that a friend of mine has a cousin who has >> benefitted greatly from the Baylor Institute in Dallas. Apparently >> he was a victim of an at work accident and lost all sensation is his >> left arm. Slowly, he regained the sensation but was unable to even >> lift his arm. After strenuous work, and my friend Lucy tells me they >> pushed him tremendously, he is slowly regaining the strength in his >> arm. He is now able to lift 3 pds I think. Apparently, they do good >> things there at Baylor. Holly will be another of their miracles. >> >> It is so nice to hear from you again. I've been a sporadic >> participant lately but I have so much warmth for the people on this >> site. When someone is away, I miss them so I'm glad to reconnect >> even if it's only on this level. >> >> All good things to you, Holly and , >> >> Abby >> >> >> >> >> Welcome to LBDcaregivers. >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2004 Report Share Posted June 28, 2004 : It would be difficult not to miss the head of our commune. I'm glad your daughter is on the road to recovery. She's still in my prayers. All good things to you all, Abby > Abby: > No, not you. It was me. I gave the wrong address. Should have been 3505 > Gaston Ave, Dallas TX. Can't imagine how that happened. Thank you for > missing me. Y'all are so busy that I can't imagine having time to miss > anyone. > Thank you from all the Childs/Busch family for the prayers and thoughts. > > in Texas > > > > > : > > > > I'm so happy to hear from you and am pleased that Holly has made this > > strides in a relatively short time. > > > > I have to tell you that I did send a card but it came back about 2 > > weeks ago. The envelope had been marked up pretty badly (in a > > variety of stamps and red marker) but I was able to ascertain that I > > may have had the wrong address. Very likely given my inability to do > > much with numbers. Please do tell her that I am praying and thinking > > of you all. > > > > I have to tell you that a friend of mine has a cousin who has > > benefitted greatly from the Baylor Institute in Dallas. Apparently > > he was a victim of an at work accident and lost all sensation is his > > left arm. Slowly, he regained the sensation but was unable to even > > lift his arm. After strenuous work, and my friend Lucy tells me they > > pushed him tremendously, he is slowly regaining the strength in his > > arm. He is now able to lift 3 pds I think. Apparently, they do good > > things there at Baylor. Holly will be another of their miracles. > > > > It is so nice to hear from you again. I've been a sporadic > > participant lately but I have so much warmth for the people on this > > site. When someone is away, I miss them so I'm glad to reconnect > > even if it's only on this level. > > > > All good things to you, Holly and , > > > > Abby > > > > > > > > > > Welcome to LBDcaregivers. > > > > > > Quote Link to comment Share on other sites More sharing options...
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