Guest guest Posted June 24, 2004 Report Share Posted June 24, 2004 HI Kirk, I sure hope you get to go to your fishing tournament. If you haven't heard back about your kidney test, I sure wouldn't worry much about it. "No new is good news" is what we say, right? I know that when I had a mammogram one year, there was a spot and they would not let me leave without another x-ray and then an ultra sound. Both turned out negative...whew....but I think if they were truly concerned about your spot, you would have heard back right away. I know it's hard for you not to think of it constantly. Is there any way you can call and get the results? I hope you win first prize ! Mi. Carmen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2004 Report Share Posted June 24, 2004 Kirk, I forgot to ask you about Neurotin. You are taking it now? For some reason that rings a bell as to it being an anti-seizure medication. Am I wrong? I'm glad you came away from the pain center with such high hope. That's probably half of your getting better !! Carmen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2004 Report Share Posted June 24, 2004 Kirk; I've had great results with the neurontin for about five years now. Sometimes it does take a higher dose as I had to up mine to at least 900 mg for it to kick in but when it did I no longer have daily headaches and only a very rare migraine under stressful conditions like surgery or something. My best wishes for this outcome for you also. So glad you took things into your own hands. Melt news I went to the pain center today, and walked out impressed. I don't know if what this Dr. is trying will work or not, but he is familiar with Stills, and has treated numerous children with this. It felt good to know I am not in an unmapped land like I have been. I am thinking of getting all of my lab work together to give to him, if he'll take it. He now has me on Neurotin, on an increasing dosage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2004 Report Share Posted June 24, 2004 Kirk, Glad to hear you are on your way to some great pain relief and found someone who is knowledgable about the stills and the headaches. Good luck and let's hope you get to go fishing this weekend. Hugs, Tracilyn -Brown Southern land Nanabugg inching my way through Family History Always searching for the missing link in my family -----Original Message-----From: mellymelt Sent: Thursday, June 24, 2004 11:10 PMTo: Stillsdisease Subject: Re: news Kirk; I've had great results with the neurontin for about five years now. Sometimes it does take a higher dose as I had to up mine to at least 900 mg for it to kick in but when it did I no longer have daily headaches and only a very rare migraine under stressful conditions like surgery or something. My best wishes for this outcome for you also. So glad you took things into your own hands. Melt news I went to the pain center today, and walked out impressed. I don't know if what this Dr. is trying will work or not, but he is familiar with Stills, and has treated numerous children with this. It felt good to know I am not in an unmapped land like I have been. I am thinking of getting all of my lab work together to give to him, if he'll take it. He now has me on Neurotin, on an increasing dosage. Visit the Still's Disease Message Boardhttp://disc.server.com/Indices/148599.htmlThe materials and information contained in this message are not intended to replace the services of a trained health professional or to be a substitute for medical advice of physicians and/or other health care professionals. The International Still's Disease Foundation is not engaged in rendering medical or professional medical services. You should consult your physician on specific medical questions, particularly in matters requiring diagnosis or medical attention. The International Still's Disease Foundation makes no representations or warranties with respect to any treatment, action, application, medication or preparation by any person following the information offered or provided within this support form. ion by any person following the information offered or provided within this support form. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2004 Report Share Posted June 24, 2004 Thats great news Kirk,glad you found someone willing to help and i sure hope the neurotin works for ya.I used to be a fishing nutt too,so i hope you can go. d.Canada news I went to the pain center today, and walked out impressed. I don't know if what this Dr. is trying will work or not, but he is familiar with Stills, and has treated numerous children with this. It felt good to know I am not in an unmapped land like I have been. I am thinking of getting all of my lab work together to give to him, if he'll take it. He now has me on Neurotin, on an increasing dosage. He says it should stop the headaches in time. He also is trying to get insurance approval for Botox injections, as he says these may very well negate my headaches. There are no guarantees, but just the way this guy presented himself and spoke gave me some hope. Now I just have to hope and pray that it works. I also am praying that when I go to my PCP tomorrow that I will be able to go on my club's bass fishing weekend!! If you see an email from me before Sunday night, I didn't get to go. I don't even want to think of that, as I know what kind of a miserable SOB I will be should that happen. I am almost hoping that there is no news on my kidney, as I can not believe it would be good if there were. Now if I could only stop thinking about it....... Kirk.Visit the Still's Disease Message Boardhttp://disc.server.com/Indices/148599.htmlThe materials and information contained in this message are not intended to replace the services of a trained health professional or to be a substitute for medical advice of physicians and/or other health care professionals. The International Still's Disease Foundation is not engaged in rendering medical or professional medical services. You should consult your physician on specific medical questions, particularly in matters requiring diagnosis or medical attention. The International Still's Disease Foundation makes no representations or warranties with respect to any treatment, action, application, medication or preparation by any person following the information offered or provided within this support form. ion by any person following the information offered or provided within this support form. Quote Link to comment Share on other sites More sharing options...
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