Re: Hello my friends.....I'm back

[Guest guest]

Sharon,

When you wrote that your mother died in your arms I could barely stand to

read on. It so hit it all home for me and my mom.

Like you and your sister, me and my sister have had to take on the lion

share of caregiving and I am with my mom nearly everynight to feed her

dinner, make sure she is given her meds on time, entertained, bathed at

night and then tucked in for the night with her baby dolls all near here in

a particular comforting pattern.

I'm sending you strength and I want to thank you for being there for your

mom. It a marvelous thing that you and your sister did and you should both

be proud of yourselves.

Courage

Hello my friends.....I'm back

>

>

>I'm sorry it's been so long and i had said i would be back to offer

>support and answer questions but i never realized how hard this would

>be for me losing mom. It's 3 months tonight that she won her battle

>and passed away. Some days are easier than others but i would give

>anything to see her and hug her again.

>I needed to be away from LB for awhile but never meant to be away so

>long. Once it's part of your life it's always a part of your life.

>I've brought tons of info to my doctor and Parkinson's group here in

>Hudson.

>Anyways, i have not and i don't know if i will catch up on all the

>posts i've missed but i'm here to offer support and try to help

>others here.

>To new members....welcome to a group that has so many caring and

>understanding people. This group helped answer my questions and gave

>me support 24/7.

>My mom passed away July 13th 2004. She was diagnosed with Parkinson's

>7 years ago.

>She started having some problems with anxiety in Feb. 2003 and we

>started noticing a real change in her Aug.2003. Not being able to

>balance her check book, forgetting things, having trouble taking her

>meds and the hallucinating started.

>She ended up falling and breaking her hip and never was able to walk

>by herself again.

>She was in a NH and my sister or i were there every night till she

>went to bed.

>She didn't want to get out of bed July 3rd and wasn't opening her

>eyes much at all. By July 8th she refused to eat and wasn't talking

>anymore.

>She died in my arms on July 13th peacefully.

>It is so hard not having her here anymore but i am thankful she

>didn't suffer with LB too long. Or at least when it got worse.

>If you have any questions please feel free to ask. i will try to

>answer the best i can. I know everyone is different but i alway liked

>to compare.

>I am not on every day but will try to be here as much as i can.

>My prayers are still with you all.

>

>

>

>

>

>

>Welcome to LBDcaregivers.

>

>

>

[Guest guest]

Hello Sharon, I lost my mom in May. I know how you feel I just want

to hold her again and I need her to tell me that it is ok and that I

did do what was best for her and I need to know that she is not mad

at me for anything I did or didn't do. I'm glad it is over but I

want my " mommy " back.

Would you mind explaining how her last days were? I feel sick

thinking that my mom starved to death but she wouldn't eat and wanted

only to sleep and I was advised not to go with a feeding tube.

I send big long hugs to you. God bless you

-- In LBDcaregivers , " Sharon G " <sboumees@p...> wrote:

>

> I'm sorry it's been so long and i had said i would be back to offer

> support and answer questions but i never realized how hard this

would

> be for me losing mom. It's 3 months tonight that she won her battle

> and passed away. Some days are easier than others but i would give

> anything to see her and hug her again.

> I needed to be away from LB for awhile but never meant to be away

so

> long. Once it's part of your life it's always a part of your life.

> I've brought tons of info to my doctor and Parkinson's group here

in

> Hudson.

> Anyways, i have not and i don't know if i will catch up on all the

> posts i've missed but i'm here to offer support and try to help

> others here.

> To new members....welcome to a group that has so many caring and

> understanding people. This group helped answer my questions and

gave

> me support 24/7.

> My mom passed away July 13th 2004. She was diagnosed with

Parkinson's

> 7 years ago.

> She started having some problems with anxiety in Feb. 2003 and we

> started noticing a real change in her Aug.2003. Not being able to

> balance her check book, forgetting things, having trouble taking

her

> meds and the hallucinating started.

> She ended up falling and breaking her hip and never was able to

walk

> by herself again.

> She was in a NH and my sister or i were there every night till she

> went to bed.

> She didn't want to get out of bed July 3rd and wasn't opening her

> eyes much at all. By July 8th she refused to eat and wasn't talking

> anymore.

> She died in my arms on July 13th peacefully.

> It is so hard not having her here anymore but i am thankful she

> didn't suffer with LB too long. Or at least when it got worse.

> If you have any questions please feel free to ask. i will try to

> answer the best i can. I know everyone is different but i alway

liked

> to compare.

> I am not on every day but will try to be here as much as i can.

> My prayers are still with you all.

[Guest guest]

Hi

Im so sorry that you have lost your mom, but im sure that she is now finally

happy as it is a horrible disease.

My mum has been dia with LBD over 16 mnths ago, she has deterioated so

quickly, unable to walk shuffles, unable to talk or articulate, doesnt have

any idea who I am (daughter) and has to eat supervised so that she does

actually eat. She sleeps soundly for hours, some times she will have a

thread of words that make kind of sense but not often, this has happened

quite quickly over 10 days.

It seems as if time is near that she is preparing herself, sleeping means

that the body doesnt have to confront itself. She has no idea who I or my

dad is, he has been her carer though, she is in a rest home, having come

home most days and going back in the late afternoon. She says to the nurses

when she wakes in the morning is HE alright meaning dad but has no idea who

I am anymore. She does talk at times but in codes that the nurses

understand.

I wonder how long, she is frail and a lost soul in a shell of a body that I

know as my mum. Its so sad, if only, its hard waiting because thats all we

are doing now. Wish I could change the world,but if you can touch some one

somewhere everyday its enough, as so many of you on this site do everyday.

Thank you..

Cheers stella in New Zealand

Re: Hello my friends.....I'm back

>

>

> Hello Sharon, I lost my mom in May. I know how you feel I just want

> to hold her again and I need her to tell me that it is ok and that I

> did do what was best for her and I need to know that she is not mad

> at me for anything I did or didn't do. I'm glad it is over but I

> want my " mommy " back.

> Would you mind explaining how her last days were? I feel sick

> thinking that my mom starved to death but she wouldn't eat and wanted

> only to sleep and I was advised not to go with a feeding tube.

>

> I send big long hugs to you. God bless you

>

>

>

>

> -- In LBDcaregivers , " Sharon G " <sboumees@p...> wrote:

> >

> > I'm sorry it's been so long and i had said i would be back to offer

> > support and answer questions but i never realized how hard this

> would

> > be for me losing mom. It's 3 months tonight that she won her battle

> > and passed away. Some days are easier than others but i would give

> > anything to see her and hug her again.

> > I needed to be away from LB for awhile but never meant to be away

> so

> > long. Once it's part of your life it's always a part of your life.

> > I've brought tons of info to my doctor and Parkinson's group here

> in

> > Hudson.

> > Anyways, i have not and i don't know if i will catch up on all the

> > posts i've missed but i'm here to offer support and try to help

> > others here.

> > To new members....welcome to a group that has so many caring and

> > understanding people. This group helped answer my questions and

> gave

> > me support 24/7.

> > My mom passed away July 13th 2004. She was diagnosed with

> Parkinson's

> > 7 years ago.

> > She started having some problems with anxiety in Feb. 2003 and we

> > started noticing a real change in her Aug.2003. Not being able to

> > balance her check book, forgetting things, having trouble taking

> her

> > meds and the hallucinating started.

> > She ended up falling and breaking her hip and never was able to

> walk

> > by herself again.

> > She was in a NH and my sister or i were there every night till she

> > went to bed.

> > She didn't want to get out of bed July 3rd and wasn't opening her

> > eyes much at all. By July 8th she refused to eat and wasn't talking

> > anymore.

> > She died in my arms on July 13th peacefully.

> > It is so hard not having her here anymore but i am thankful she

> > didn't suffer with LB too long. Or at least when it got worse.

> > If you have any questions please feel free to ask. i will try to

> > answer the best i can. I know everyone is different but i alway

> liked

> > to compare.

> > I am not on every day but will try to be here as much as i can.

> > My prayers are still with you all.

>

>

>

>

>

>

> Welcome to LBDcaregivers.

>

>

>

[Guest guest]

hello,

donnie's and mine heartfelthugs coming out to you at this time, wishing you

peace and comfort in knwoing that she isnt suffering anymor,e it is hard

for those of us left on this earth to wonder why our loved ones had to suffer

so, but when they leave us, we know that ther are no longer hurting adn

struggling like they were at the end. take care and let me kow if we can do

anything for you, hugs, sharon and donnie m

a smile a day keeps the meanies away!!!

laughter is a breath of fresh air!