Re: list of caregivers locations updated November 19th

November 20, 2004

Hi Kathy:

Just to clarify, I am not exactly the caregiver for my dad. He lives

nearby, with his wife as his primary caregiver. I'm there when they

need me. Dad (Tom) turned 66 in June.

KD

>

> AUSTRALIA

>

> Emma Francis

>

> CANADA

>

> BRITISH COLUMBIA

>

> WHITE ROCK

>

> Hubbard (jennylhubbard@h...) I'm 30 years old and live in

White Rock, BC, Canada. My dad just turned 62 and he has Parkinson's

disease, LBD and has recently been diagnosed with Alzheimer's. LBD

is definitely what he suffers mostly from.

>

> NOVA SCOTIA

>

> HALIFAX

>

> KD (kdorsey@n...)-caring for father, age 65.

>

> ONTARIO

>

> AJAX

> Annette McColl (annette_mccoll@y...) --My LO is my mother - Her

name is Ann. She is only 63 years old and was diagnosed

October '02. I would say she is in stage 4 and she just moved to a

NH in Scarborough Ontario on Friday - March 5th/04.

>

> BALMERTOWN

> Carol (cannsmith@h...) --I am in Balmertown, Ontario.

Which is north of Dryden (Northwestern ON). My sister in law is

caring for my mother in-law in Winnipeg, Manitoba.

>

> HAGERSVILLE

>

> Coyote (coyote81067@h...) --I am in Hagersville, Ontario, Canada.

My Dad, Jim White, was originally dx w/Alzheimer's a few years ago

then more accurately dx w/LBD last August and has progressed

extremely rapidly through all the stages since. He turns 73 in April.

>

> KLEINBURG

> Abby (BBagam@r...)-LO is her dad

>

> MISSISSAUGA

>

> Geri Gibbons (platita@h...) --My husband's name is Jack Gibbons

from Mississauga. He just turned 62 last Friday (March 19). He was

diagnosed 2002 with LBD but the illness started in 1998. He was sent

to the Toronto Rehabilitation Institute last year for 8 weeks to

adjust his meds and check his agitation. That sure was the end for

him with the poor care and unforgivable treatment. He was in such

bad shape when he arrived back to hospital here in Mississauga, the

geriatrician immediately ordered another CT scan. He is waiting for

a NH and has been in hospital since August 2003.

>

> OSHAWA

>

> Walt (retlawv@y...)

>

> NEWMARKET

>

> (cyberart@r...)

>

> STONEY CREEK

> P (ayla21818@y...) -- My mother has passed from LBD but I

still read every day. I live in Ontario, Canada, in the city of

Hamilton (actually Stoney Creek) I have an uncle living in

Winnipeg, Manitoba who also has LBD. His story is like a replay.

>

> TORONTO

> Kath (skward2@r...)--East End, near Woodbine Subway Stn.--LO is

mother Marg Grant age 80 dx'd LBD in Oct '02 at age 78, mid stage. I

live next door to mom and have for 22 years. My sister and brother

live out of town and so I am her main caregiver. She has 2 live in

caregivers, one Monday to Friday and the other on the weekend.

>

> Courage (gaat@v... )--I live in Downtown Toronto. I'm closer to

the financial/theatre district. LO is Olivia. Olivia is now in an

assisted living facility.

>

> Mark (mmcelwain@a...)--I live in Toronto (Leaside) and my LO is my

Dad, McElwain, who is nearby in St Catharines.

>

> Barbara Zumer—caring for mother

>

> ENGLAND

>

> BUCKINGHAMSHIRE

>

> Jon Critoph—caring for my mother recently diagnosed with LBD

>

> IPSWICH

>

> Janet Noble (janet.noble1@n...) —I live in Ipswitch England with

husband who was born here but I come from Leicester in the Midlands

England

>

> KENT

> Hodgson (james@v...)--caring for mom with MS and dad with

LBD. My parents are both in North Yorkshire. They are both from

villages near York and now live 40 miles north of there. I was

actually born in Glasgow 'cos they worked in a children's home there

at the time. We've also lived in Derbyshire and I now live in Kent

near Sally.

>

> Sally Rodgers (northfrith@f... )--North Frith Farm

>

Ashes Lane

>

Hadlow

>

Tonbridge

>

Kent TN11 9QU

>

> That's in the south east corner –about 35-4 miles south east of

London. Near Tunbridge Wells, Sevenoaks and not too far from Dover.

LO--Father Colin Clive Cashmore, diagnosed? LBD August 2001. Died

October 21st 2002 at age 67 yrs. - brain autopsy confirmed Diffuse

LBD.

>

> LONDON

>

> la (pgabriella@b... )--My dad (69) has been dx with LBD. He

lives in Milan with my mum,

> while I'm in London. He got worse suddenly, he had very bad

months, a wrong surgery, he became unable to stay upright. He stayed

in a rehabilitation house for 3 months and it was awful. They had no

hope for him. We then brought him back home, found a new neurologist

and got a physiotherapist at home three times a week. My dad is now

doing much better. He's awake most of the time, plays cards, talks,

understands, and he's starting walking again.

>

> Marilyn (MARILYNSTUART@a...) My name is Marilyn, caring for

husband Stuart, age 60, who was diagnosed with Parkinson's in 1992,

and who showed cognitive decline about four years later, but we

weren't told it was LBD until about 18 months ago when I asked the

neuro directly. He is probably in stage 5 of the dementia scale and

still attends art classes twice weekly, which gives me a break. We

are in London, England.

>

> IRELAND

>

> Siobhan—Dad, Joe McCaughey (RIP) died on 13 November 03

>

> ITALY

>

> Luciana Mirenghi (luciana.mirenghi@b...)--My Mom (77 in May) has

LBD, very hardly diagnosed late last year. At the moment she cannot

speak, not walk, not eat alone and sleeps almost all the time. I am

really really sad, as you can imagine as I live far from her and I

miss a lot her voice by phone. In the past decade there were only

some ciao and simplest sentence but now she has fallen in silence

that probably is out of code in this illness. Mother is now

deceased. (July 04)

>

> NEW ZEALAND

>

> TE RANGIITA

>

> Stella Gordon (pete & stella@t...)--I live in Te Rangiita which is

on the shores of Lake Taupo, in the North Is of NZ, about 2 1/2

hours north of Wanganui. My mother Daphne Rubery was diagnosed with

LBD in August 2003, she is living in a home called Ashton, 24 hours

assisted Nursing Home. Mother was born in India of Anglo Indian

parents; she was repatriated during the war back to England as a 5

year old where she attended Maulvon (spelling?) Girls school as a

boarder. Her family live still in Farnham in Surrey.

>

> WANGANUI

> Pearce (ahuone@i...)--I am a caregiver for my mother Jo,

who is 75 years old. She was Dx late in 2002, 9 months after her

husband (Dad) died of diabetes related illnesses. They were married

for 45 years. We live in Wanganui, New Zealand.

>

> SCOTLAND

>

> GLASGOW

>

> (daniel.campbell1@n...)—lost LO Granda Bert to LBD

>

> UNITED STATES OF AMERICA

>

> ARIZONA

> Candy seanmhairx2@a...

>

> CHANDLER

> Lynn Whitman (lwhitman@a...) --I am in Chandler,

Arizona...a suburb of Phoenix. I

plan on staying in touch with

the group...to help when I can. (Lynn's dad is now deceased)

>

> CALIFORNIA

> CATALINA ISLAND

> Edie (travel@c...) -- (LA area) LO Husband

at home with myself and

>

> part time hired caregiver

>

> LAFAYETTE

> Jan Colello (janetcolello@y...) suburb of San Francisco, LO is

husband Jim, dx w/LBD 10/03 San Francisco Bay area.

>

> SAN DIEGO

>

> Tori Hawk (torihawk2004@y... )--I am caring for my 84 year old

father with LBD.

>

> Warren (catznbolts@a...)-My dad was diagnosed in March of

2003. My two sisters and I have shared in his care for a year now

keeping him at home.

>

> SANTA ROSA

>

> Jim Whitworth (jim_whitworth@y...) in Santa ,

California

>

> SACREMENTO

>

> Jan Childress

>

> COLORADO

>

> DENVER

> Gail Jessup (littlebutterfly@i...) Denver, Colorado, Father, Joe

Lee, in Florida, diagnosed in September, 2003

>

> CONNECTICUT

>

> Donna Springer (dspringer56@a...) My name is Donna. My sister and

I are the main caregivers for my dad with LBD in CT. Currently he

resides in the ALZHEIMERS RESOURCE CENTER in Southington which

should be the role model for all dementia homes. He will be 80 yrs

old on Nov 21st and is in physically excellent health.

>

> FLORIDA

>

> BOCA RATON

>

> (old_student_me@y...) --My name is and my father

has been diagnosed with LBD. He lives in California with his wife.

I live in Florida with my wife and two kids. I'm in Boca Raton which

is between West Palm Beach and Ft. Lauderdale.

>

> FT. LAUDERDALE

>

> Carol Caugran (ccaughran@Y...) -my 89 y/o father has LBD. He is

still living with mom (87) right across the street from me in their

own home. He is exhibiting PD symptoms (tremors, mask, falling,

unsteady on his feet) along with difficulty in getting out of

chairs, fixed delusions, forgetfulness, irritability, bouts of anger

(mostly with mom and the first time they've started yelling in 64

years of marriage!)-

>

> MARGATE

>

> Jacqui Eddinger (mamajacqui@a... )

>

> MIAMI

>

> Josie (regattabh@a...)-- I am in the area of Baptist Hospital and

South Miami Hospital, in case there are any other LBD families in

the area. You can also add my dad, who passed on August 18, 2003.

>

> PENSACOLA

>

> Sharon M. (LadySmilingAtU@a...) Caring for her dad.

>

> PORT ST. LUCIE

>

> Elaine--my beautiful mom lives in Hanover Twp., PA, and is cared

dearly by my wonderful sisters, Sharon and .

>

> WEST PALM BEACH

>

> Peggy (uspms@y...) -- relocating to West Palm Beach, Florida.

Cared for her mother who died of LBD.

>

> Kathleen (blakka12000@y...) -full-time caregiver for my Dad in

West Palm Beach, Florida

>

> GEORGIA

>

> Jayn Almand (jja52538@a...) from S Georgia

> l sister with LBD for sure, l sister with maybe a combination of

LBD and Alz

> I live in South Ga about 15 miles west of I-75

>

> ATLANTA

>

> Dawn—(newnanshopper@n...) I live in Georgia about 35 miles south

of Atlanta. My Father Dave lived with me before being diagnosed with

LB September 03. He is now in a NH. He is 74 years old. He was a

Chiropractor for almost 50 years and lived a life of health until

this awful disease took hold. Although I haven't posted yet, I have

gotten so much helpful info from all the wonderful people that do.

Dawn

>

> .

>

> CONYERS

>

> (kbonar@a...) in Conyers, GA (Atlanta area)

>

> ROSWELL

>

> Sharon Schactman (sschactman@y...) –I live in Roswell, GA, just

north of Atlanta, cg for husband, Steve, dx PD 5/2000; LBD 1/2003

>

> TIFTON

>

> Jackie Gibbs (jgibbs@f...)

>

> ILLINOIS

>

> CHICAGO

> Carol (cbhillman@s...) I am the full time caregiver for my mom,

Anita Hillman, who is 85 and was diagnosed with Alzheimer's in

April, 2000. This last summer the doctor opined that my mom might

not have Alzheimer's after all and that's when the possibility of

LBD came up thanks to another list (Alzheimer's List) to which I

belong.

>

> Dargie dargielists@s...

>

> Robin (haleybale)(r_aoki@m...) --I live in a northern suburb of

Chicago and my Dad with LBD lives in central Illinois

(Decatur).

>

> NAPERVILLE

>

> Gwen Ross gwen_ross@m...(30 Miles west of Chicago)

>

> PEORIA

> (janeymar54@y... )

>

> INDIANA

>

> BLOOMINGTON

>

> Deb Curtis (dcurtis@b...) --My LO is my 87-year-old mother,

Virginia Barden, who lives on a special care dementia unit of a

nursing home within 10 minutes of me here in Bloomington, so I get

to visit her daily. My 4 siblings and I moved her here from her

assisted living apartment where she lived with our dad in North

East, PA, until his death in June 2002. Her memories are of NY

State, though - Ripley, in Chautauqua County where she and Dad

raised all of us and Gansevoort, NY, where she was born and raised

and where her sister and my oldest brother live. Her mind takes her

to all of these places during the day so I have to figure out where

she' " been " so I can respond appropriately. I'm sure I exasperate

her at times for not " keeping up " !

>

> EDINBURGH

>

> Arletha Wooten (kilmer32000@y...) -- my husband Ronnie has DLBD

since 1999. We live in Edinburgh, In-about 30 miles south of

Indianapolis, Indiana. Ronnie is 55 years old; He was only 50 when

first started feeling something was wrong. He has five daughters and

13 grandchildren. He likes fishing, and working in his yard, even

now when he can only make himself go. He likes Nascar racing. He

worked in construction for 36 years, mostly water and sewer, then

driving heavy equipment on low boyes.

>

> INDIANAPOLIS

> field (cat86443@h... )--mother had LBD, diagnosed at

83, passed away at age 85 in Jan 2004.

>

> Mariena Gott mgott@v... My name is Mariena I live in Indianapolis,

Indiana. My mother has LBD. She lives in sville, Indiana. I

share the responsibilities for care with my Dad and Brother and

Sister

>

> SOUTH BEND

>

> Judy msjaet@y...

>

> WABASH

>

> G. (seasoned_rn2000@y...) --caring for mother age 81,

diagnosed April 2004. I am an RN on a surgical floor. I never heard

of LBD until my mother was diagnosed. My mother was dx with LBD

in March, 2004. She had memory problems off and on for over 6

years. After my Dad died in 2002, the memory became worse. I

thought she was having vivid dreams and confusion that developed

right away. Now I know it was hallucinations. She often says she

saw an event occur in the past that had just happened for the first

time [deja vu] The neurologist says that is also a

hallucination. My mother has gradually developed balance problems

over the past year and a tremor in December, 2003. The neurologist

says she has a lot of stiffness typical of PD and LBD. I am

married, empty nester. I baby-sit for my infant granddaughter 2-3

days per week. I have 2 daughters, 2 stepdaughters, and 1

stepson. All totaled there are 6 grandchildren.

>

> IOWA

> Debbie Curtis (Craftygma1@a...) --caring for dad. He is now 72

and has been in a nursing home 4 years this July. He has been wheel

chair bound for those 4 years unable to feed himself and still has

all the

> symptoms as folks who are just now being diagnosed with LBD

>

> Wolfie (luvmypugprincess@y...) in Iowa, LO Gram age 83 my Grandma

(Gram) has been in the nursing home for 7 1/2 months (As of Nov 3/04)

>

> DAVENPORT

>

> R. I am caring for my 82-year-old father. He was diagnosed

October 2002. He showed signs prior to that, but we thought it was

just an aging thing. My dad does not seem to hallucinate like the

others unless he is ill. His memory is a pick and choose memory.

Very strange. And of course we have our ups and downs like everyone

else. He does have a stooped gait and has had many many spills, but

refuses to use a cane. After several moves, (siblings were in

disagreement on where he should be living), we finally have him

settled in an AL after he fell on a busy street and broke his

wrist. He still fights us to get him out of there and back into his

own home. I am the sole caregiver as my sister lives 3 hours away

and my brother is unavailable.

>

> DES MOINES

> Sandie Vander Zyl (sanclown@j...)--dad - Merle Lambert - passed

away from LBD September 20, 2002 after at least 7 yrs of struggling,

he was 65 yrs. old. I just recently rejoined this group as I felt

the need to be in the know...helps with prayers. I initially

joined, I believe, in January 2001 and exited August 2003. He

started showing signs of LBD, presenting with all symptoms right

from the git go, and was diagnosed when he was 58 yrs old. It was a

long and tough road but I made it through. I know the many

fluctuations and changes.

>

> TIFTON

> Jackie Gibbs

>

> TIPTON

>

> sen denjenkurt@a... (East central

Iowa) actually am in Tipton, IA. This is a

>

> small town along the interstate 80 about 40 miles

from the IL border. We are centrally

>

> located to Iowa City, Davenport and Cedar Rapids.

>

> KANSAS

>

> Kareysue (kareysue65@y...) —I'm , I live in Kansas, in a

small town right in the middle of the state. Mom was dx with LBD in

the summer of 2003 and is in nh since January of 2003.

>

> LOUISIANA

> SHREVEPORT

> Piper (ppark4915@a...) --It is in the northwest

part of the state, near Texas and Arkansas.

>

> MASSACHUSETTS

>

> METHUEN

>

> Annie P. (apangel31@y...) – I'm North from Boston, about 30

miles North, actually I'm on the New Hampshire/Mass.

Line.

>

> SUTTON

>

> Debbie (dega.greene@v...)-- I live in Sutton, MA, which is about

50 miles west of Boston...I'm actually closer to Providence, RI then

I am to Boston. My Mom has LBD. She's in the final stages, in a NH,

bedridden, completely dependent for all care, on a FT, sleeps

almost constantly it seems, can occasionally say a few simple words

to us ( " Yes " , " hi " , " no " ) ...she's 80 and was diagnosed 1 1/2

yrs ago but we can look back to about 5 yrs ago now that she was

really presenting with those early symptoms that were such a

mystery to the Drs. My Mom, Dottie Greene, found peace 3 months ago

on August 8, 2004. At this point we're not even entirely sure that

my Mom had LBD as the autopsy pointed to something else...MID (multi

infarct dementia)...we still need to followup with the pathologist

and my Mom's Dr that had ordered the tests leading to her LBD

diagnosis....not sure if possibly the pathologist didn't fully

understand what LBD was, or what to look for etc... I don't know

> if anyone is adding links to tribute pages, but here's the one we

set up for her: www.dottiegreene.com

>

> KENTUCKY

>

> LOUISVILLE

>

> Bill Phelps (billp@s...)

>

> MAINE

>

> PORTLAND

>

> Sherry (mymother1933@y...) My Mom is in Mesa AZ.

>

> MICHIGAN

> Elaine (el62671@y...)

>

> DETROIT

> Donna R. (mido101@w...) -(Royal Oak) Sub of Detroit MI. My Mom

Lorraine died at 88 and a half in Oct of 02. I had her with me for

3 years and she was in a nh the last year of her

>

> GRAND RAPIDS

>

> Deb Korcal (munch49504@y...)

>

> MINNESOTA

>

> Ann K (jlkoch@t) --caring for her mother.

>

> MISSOURI

>

> Patti (pattijsp@y...

>

> SAGINAW

>

> Nadine (professornadine@y...)

>

> NEW ENGLAND

>

> LINCOLN

>

> Dena Zimmer (dmzimmer@a...) --I don't get to review thoroughly all

the time and only have written once, but do appreciate the

development of this forum. My Mom (83) in Minnesota has PD/LBD and

it is 24/7 and my Dad is maintaining her at home still, with help

from my brother/sister-in-law that live there, and I go home for 7-

10 days every 2 months to help also. I live in Lincoln, NE.Bottom of

Form

>

> NEW JERSEY

> (ACBeachbum@h...)--lives at the shore in New Jersey. My

80 yr. old mom with LBD lives in land, but stays with me for

weeks on end.

>

> Aida—currently lives in South Jersey and most recently from

California.

>

> Donna (donna@d...)-- in New Jersey (Princeton/Trenton area)--

caregiver for DAD originally dx with Parkinson's but seems more like

LBD (no tremor but fluctuating cognition). He was home - in hospital

for pneumonia ... In hospital/rehab for over a month. Was given

Haldol, which sent him for a loop!

>

> TEANECK

>

> Gitch (gm712@a...) --from Teaneck, New Jersey.....10 minutes from

the New York City border. My Dad and I will be relocating to

Jerusalem, Israel. I plan on staying in touch.

>

> NEW YORK

>

> BROOKLYN

>

> Imelda Fagin, caring spouse to Wil

>

> LONG ISLAND

>

> (poc_ny@y...) - my 87 year old Mom has recently

diagnosed LBD, along with end-stage COPD. Mom lives with me on the

South Shore of Long Island. We now have Hospice care for my Mom, as

we feel the end is near. My employer has generously allowed me to

work from home while caring for Mom. I have part time help during

the week. She sleeps much of the time - except when she's

hallucinating. I've gained much insight into this awful disease

through this group, but am very disappointed at the lack of

knowledge within the medical community. I carry LBD description

printouts with me all the time and take every opportunity to try to

increase awareness.

>

> Top of Form

>

> [input] [input] [input] [input] [input] [input] [input]

[input]

>

> Bottom of Form

>

> QUEENS

>

> Larena

>

> OHIO

> Sandy--LO is (mother-in-law)

>

> Kathy (kbellomyrees@y...) Rose, my mother-in-law has LBD and lives

with us. My MIL was actually diagnosed in Jan. 2004, had been sick

not much longer and sadly today is bedridden already. I have always

been totally honest with her about this disease and have had to

repeat things many times know what each day is.

>

> CINCINNATI

> Phyllis (majorebony3000@y...) age 68

Husband Jim age 76 dx LBD 2003

>

> GEORGETOWN

>

> Hannah (hannahjowatson@y... )

>

> OREGON

> VALE

> Joanne Recla (jjrecla@h...)--cared for Mother

(deceased 12-22-2003)

>

> PENNSYLVANIA

>

> PHILADELPHIA

>

> Joan (jmk348@c...) --I live in a small town about 30 miles

northeast of Philadelphia. I am caring for my husband, Bill, age 61.

>

> PITSBURGH

> Debbie Cole-Weber (debkurt@v...)

>

> GROVE CITY

> Donna Pearce (rt173nurse@y...) --On here I am Donna Lee. I am a

caregiver for my father , soon to be 77. Dx: LBD 8/03

>

> STATE COLLEGE

>

> (jaektaylor@y...) —My LO is my Dad, Bruce, diagnosed

March 2004.

>

> SOUTH CAROLINA

>

> CHESNEE

> Pat Caldwell (patstan@e...) caregiver for husband, Stan Caldwell,

Dx'd Oct. 2002.

> We live in Chesnee, SC, we lived in Spartanburg, SC before

building a house up here. We are near Greenville, SC also. Our

daughter works in Greenville, but lives in Spartanburg. We are about

15 miles from Spartanburg. Greenville is about 25 miles from

Spartanburg.

>

> MURRELL'S INLET

>

> Deborah (celiej@y...)--I'm Deborah. I've been here, off and on,

for well over two years, if not longer. My mother hasn't been

definitively diagnosed with any specific condition, as yet. We have

fluctuations of cognition -- she, presumably from a disease process,

(which remains unnamed, so far,) and I, from attempting to deal with

my mother's mysterious un-named disease

> process, as well as the several other vital functions I'm expected

to fulfill at this time of my life.

>

> TENNESEE

>

> Annie (shyann13@e...)--My 56 yr. old. husband has probable LBD.

>

> NASHVILLE

> Betterton (shawn.betterton@c...)

>

> FRANKLIN

>

> Bob Winstead (jrhunter@a...) Wife has LBD since 1/2001

>

> TEXAS

> Young

>

> AUSTIN

>

> Clayton (cclayton54@a...) My father has PD and in my opinion

may have LBD, my mother has dementia. We recently got daddy into a

nh near their home in NC. Mother is angling to have him back home,

but can no longer handle him physically. She refuses to admit this.

I have durable POA and Health POA, but live 950 miles away. I love

this group because of the support and strength that is shared. Their

doctor isn't interested in pursuing a diagnosis for daddy and mother

keeps " skipping " his neuro appts because she gets lost. *sigh*

>

> Top of Form

>

> [input] [input] [input] [input] [input] [input] [input]

[input] Bottom of Form

>

> DALLAS

>

> Fowler (lauraf13@y...) - LO Billie (Mother age 76)

>

> FORT WORTH

> Childs (vett66@s...) formerly from Auburn,

Indiana --LO

> We are in North Richland Hills a berb of Fort Worth.

>

> HOUSTON

>

> Virgie Buschmann grannybee@h... I am caregiver for my husband

who is 74. He was dx with AD in 1999 and LBD in 2002. I am also 74

and we have been married for 52 years and live in Houston,TX.

>

> LUBBOCK

>

> Penny--mother in Austin TX.

>

> POSSUM KINGDOM LAKE

>

> - Our Mom has LBD and is probably in the early late stage.

She was dx in 2001, but we know she must have had early stages as

early as 1996. is in Tyler, TX and Janet is in Sweetwater.

Mom is in a private nursing home in Sweetwater and thankfully gets

excellent care. The three of us are all very involved with Mom's

care and any decisions that need to be made.

>

> SWEETWATER

>

> Janet (janetlaverl@y...)--- Our Mom has LBD and is probably in the

early late stage. She was dx in 2001, but we know she must have had

early stages as early as 1996. is in Tyler, TX and is

at Possum Kingdom Lake, TX. Mom is in a private nursing home in

Sweetwater and thankfully gets excellent care. The three of us are

all very involved with Mom's care and any decisions that need to be

made.

>

> TYLER

>

> (susu@g...)--Our Mom has LBD and is probably in the early

late stage. She was dx in 2001, but we know she must have had early

stages as early as 1996. I am in Tyler, TX, Janet and Mom are in

Sweetwater, TX., is at Possum Kingdom Lake, TX. Mom is in a

private nursing home and thankfully gets excellent care. I try to

go to Sweetwater about every other month just to give Janet a break

and see for myself how Mom is doing. The three of us are all very

involved with Mom's care and any decisions that need to be made.

>

> WASHINGTON D.C.

> Theresa (theresa.held@g...) --I live in the land suburbs of

DC and my Mom with LBD lives in Manitowoc, WI.

>

> WASHINGTON STATE

> Kathy Larsen

>

> Rathbone (crathbone@n... )

>

> SHELTON

> () Betty Wittenberg (Sprtfdloon@a...)--Caring for Mom

(Marjory) age 80--Lived at home until Aug '03 when placed in NH

> Pacific Northwest ,

>

> Southwest Puget Sound

> Foothills of the Olympic Peninsula

> (25 miles NW of Olympia, state Capital)

>

> SEATTLE

>

> Arthur Herin

>

> VANCOUVER

>

> lee

>

> WISCONSIN

>

> E.

>

> HUDSON

>

> Sharon Gilbertson (sboumees@p...)- I am from Hudson Wisconsin and

my wonderful mother Arlean who has LBD is from South St. ,

Minnesota. Mom was diagnosed Aug. 2003. (Sharon's mom passed away

July 13th, 2004 at 73 years)

>

November 21, 2004

Kathy,

Sometimes when you are in the list, maybe you want to change my email

from mido101@..., to twomido@.... I had to change it and

the other account will not work.

Thanks, and no hurry.

Donna R

November 22, 2004

Hi Donna

Consider it done.

Kath

twomido@... wrote:

Kathy,

Sometimes when you are in the list, maybe you want to change my email

from mido101@..., to twomido@.... I had to change it and

the other account will not work.

Thanks, and no hurry.

Donna R

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Re: list of caregivers locations updated November 19th

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