Guest guest Posted November 16, 2004 Report Share Posted November 16, 2004 hello and welcome to our family !!!! i am sorry to hear that you had to search us out as we all know the lbd is not an easy disease to deal with from either the loved one's aspect or the caregivers aspect. you did not say in your letter if you or someone has power of atty and medicial directive orders over your mom, granted noone wants to have these things bt with lbd and its time frame you hae to think ahead and have all the legaliteis done now dont want. my name is sharon m , my husband donnie and i moved in jan 2003 to pensacola florida at my dads request. at that time he was having unexplained falls and hallucinations that teh cia was after him and tryig to abduct me to get to him. dad was in the navy but never did any thing top secret ect so we [a smile a day keeps the meanies away!!! dad is on exelon which is helping with his cognition, he doesnt seem to be as fast on his chnages. take care of yourself and feel free to write, vent, ask share whatever you need to go thru this hard time, beuse that sre enough to us take care and good luck ;;;;;;;;; take care ad good luck sharon m Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2004 Report Share Posted November 16, 2004 Hi Walt. Welcome. Sorry you have had to find us. Most of what you write about is very familiar to me. My Mom died at 88 and a half in Oct of 02. I had her with me for 3 years and she was in a nh the last year of her life. You seem to have a good handle on what is happening. And you are right, the more they move the more confused they seem. Familiar seems so much more comfortable. And you are dealing with what most who have siblings are struggling with in terms of denial. Some can cope and some can not. It makes taking care of them harder. Where are you located? Sometimes we have people who live in the same area as you. There is an email just yesterday from the woman who is keeping track of who and where everyone is located. If I have not deleted it, I will send it on to you or you can look in yesterdays messages. Hang in and trust yourself and what you know. That was always hardest for me in the face of arguments. Keep writing and getting support for yourself here. Donna R Do you want to read more about Lewy Body? You can also read the Thistle, the LBD Newsletter. Just click on: http://www.lbda.org Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2004 Report Share Posted November 17, 2004 Donna: Hang in and trust yourself and what you know. That was always hardest for me in the face of arguments. ********************* When you have questions about anything, ask people on this list! It is easier to trust yourself and your decisions when other people who have been through the same things support what you are doing and the people who are giving you an argument really don't know as much as they think they do about dementia! carol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2004 Report Share Posted November 17, 2004 Walt wrote: I just do not know what to do about my sister she is my biggest problem not my mom. ********************* As the cliche goes: you can lead a horse to water but you cannot make it drink! You cannot DO ANYTHING about your sister so you just have to try not to let the fact that she is swimming in that river (De Nile) get to you! Just my one cent's worth. . . carol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2004 Report Share Posted November 17, 2004 hi walt, on the home page for this group is alot of links for reference materials taht are worth printing out, including medicines that are not recommened for lbd patinets as they cuase adverse reactions. anyway maybe if you print out some of this info your non understanding may begin to understand, i hope, but if not, dont fret as she may never understand. my dads sister is in denail and says i am crazy that my daddy doenst have this he is just acting out for attnention etc my hubby and i went thru a very hard time as i am disabled myself and my husband takes care of both of us and dads family just convinced themselves that we movced down here to steal from my dad. i gave up trying to convince her, despite sending paperwork underlining dad's symptoms she is still in denial, but i know that donnie and i are doing what is right for my dad and doing the best we can, at this time we are able as a team to keep dad at home, where he feels most comfortable. but the time may come when we may have to put him in a nh or something but we will decide that when the time comes, please be sure that all of your mothers paperwork is in order, for legal things as this disease progressed you wont be able to take care fo them .so the soooner the better, hugs, sharon m a smile a day keeps the meanies away!!! laughter is a breath of fresh air! Quote Link to comment Share on other sites More sharing options...
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