Re: - 5-7 years

[Guest guest]

,

5 years probably fit my mom's course of LBD. Mom

apparently noticed the slow down, and I remember her

complaining about " things not clicking very well

today " in Summer 2000. Mom died 9 days ago.

One of the things that got us to go for a new

evaluation/ diagnosis of LBD in Feb 2005 at Mayo

Clinic, was that Mom's decline seemed to be many times

faster than other PD friends that we have known.

I learned later that mom had gone to the local doctor

in the Summer of 2000 because she was not feeling

well. He gave her a prescription for " nerve pills "

that she decided not to take, because they slowed her

down more.

I personally took mom back to the same doctor in late

May of 2001, but no diagnosis was made, but he gave us

a referral to a neurologist for July 2001.

When my mom was diagnosed with " PD " Parkinson's back

in July of 2001, I tried reading everything I could

about it. As I recall, one source said that with PD,

up to 90 percent of ( the average person's) dopamine

production has been lost before the symptoms become

pronouced enough to seek medical attention.

Dann

--- Sandie and Pearce

wrote:

---------------------------------

Hi -

I was always told and was under the perception that

the 5-7

year timeline was upon diagnosis. My dad fit it

perfectly.

Of course he had had symptoms before diagnosis, hence

the need to be tested.

I do believe that upon diagnosis our loved ones are

far enough

advanced that it would be a bit easier to put into a

'stage' so

to speak as opposed to only seeing a sign or symptom

from

time to time before there is a real need for

caregiving.

Hope this make sense, I am still up, have to work

tomorrow

and I am tired...zzzzzzz

Good night-

Sandie

-- Causes of LBD

While I was constructing a message to you all about my

Dad for the list

of

possible common denominators of LBD, I couldn't help

but think

something

was missing (for me anyway).

Forgive me for this .. but my Dad is still alive and I

can't help but

wonder

how much longer we may have with him. Could we add a

question to the

survey

that looks at the length of the disease? In

otherwords, for those who

have

lost their LO's could you tell us the time period from

diagnosis to the

end?

Also, I would surely appreciate knowing what, if

anything, struck you

at or

near the end that would be helpful to those of us

still in the midst of

this.

I live in Missouri and my Dad is in Michigan. I want

to be with him

every

minute but can't. But, I sure want a chance to say

goodbye and would

like

to be with him at the end. If I knew of any warning

signs I could jump

in

the car and be there in 12 hours....

Thanks for understanding.