Re: Feedback needed re:Thoughtful House

December 27, 2007

For what you have described below about what you want, and don't want, then I

think Dr. Krigsman at Thoughtful House is the GI doctor for you.

My son had been " scoped " through traditional medical centers and they said

" nothing " was medically wrong and no treatment warranted... But still he had

diarrhea up to 10-12 times daily - FOR YEARS.

So - one of our miracles - was being accepted as a patient rather quickly -

and being scoped by Krigsman and then treated for the very real medical

conditions he diagnosed.

August 2008 will mark our 2 year anniversary as Dr. Krigsman's patients - and

in two years - we went from again 10-12 episodes of chronic diarrhea a day - for

8 years -- to one or two bowel movements a day.

It has just been tremendous the progress we've seen medically in that area.

Which - helped him in other areas as well -- focus and behavior and stimming

especially.

Yes - for us as parents to be treated as real people and not paranoid

psychopaths insisting something is wrong with our son just for the fun of it -

has been priceless. For my son to be treated as a real person, with a real

medical condition, and real medical intervention, has been truly priceless as

well.

It was worth the financial sacrifice. 10 times over...

M. Guppy

Houston, TX

Stacey wrote:

I've read a bit about Thoughtful House and I am seeking more specific

information on what others experiences have been. I live in California

but I come to Austin a few times out of the year and unfortunately

there are really no GI doc's that I've come across that know how to

treat autistic children with digestive issues or bowel disease.My son

was scoped last month and they found what they think is

colitis,although even the pathology report is not conclusive since

some things line up with colitis and others do not.As we all know our

kids do not " present " text book and very few doc's are educated as to

what to look for and what to do when they find it. So,I am not

specifically looking for a DAN doc but I am searching for a well

educated and experienced GI who does what he does because he cares so

if that person is or is not a DAN doc that does not matter to me. I

need someone who will listen and not patronize me..nor do I want to

listen to his/her bullsh*t " hypothesis " or perform unneccessary

tests.I just want a doc who is real and genuine and knows what I'm

talking about when I describe my son's symptoms instead of looking

like a deer in headlights.

any feedback is appreciated and feel free to contact me offlist as well

stacey

M. Guppy

Don't tell God how big your storm is - tell the storm how big your God is!

Texas Autism Advocacy: www.TexasAutismAdvocacy.org

" There are some aspects of a person's life that we have no right to

compromise. We cannot negotiate the size of an institution. No one should live

in one. We cannot debate who should get an inclusive education. Everyone

should. We cannot determine who does and who does not get the right to make

their own choices and forge their own futures. All must. "

December 28, 2007

Thanks for sharing . I've read some presentations by krigsman

and found alot of what he was talking about could have been describing

my son. This started as " constipation " and quickly I realized this was

something more serious.Loss of weight,appetite,and aggression due to

pain.Since the scoping I've learned how difficult it is for these

doc's to pin point just what is going on when they haven't been

exposed to " atypical " cases of bowel disease in autistic children. Is

there a waitlist? I expect there would be.What are their fee's like?

Do they scope at Thoughtful House or a local hospital?

stacey

> I've read a bit about Thoughtful House and I am seeking

more specific

> information on what others experiences have been. I live in California

> but I come to Austin a few times out of the year and unfortunately

> there are really no GI doc's that I've come across that know how to

> treat autistic children with digestive issues or bowel disease.My son

> was scoped last month and they found what they think is

> colitis,although even the pathology report is not conclusive since

> some things line up with colitis and others do not.As we all know our

> kids do not " present " text book and very few doc's are educated as to

> what to look for and what to do when they find it. So,I am not

> specifically looking for a DAN doc but I am searching for a well

> educated and experienced GI who does what he does because he cares so

> if that person is or is not a DAN doc that does not matter to me. I

> need someone who will listen and not patronize me..nor do I want to

> listen to his/her bullsh*t " hypothesis " or perform unneccessary

> tests.I just want a doc who is real and genuine and knows what I'm

> talking about when I describe my son's symptoms instead of looking

> like a deer in headlights.

>

> any feedback is appreciated and feel free to contact me offlist as well

>

> stacey

>

> M. Guppy

> Don't tell God how big your storm is - tell the storm how big your

God is! Texas Autism Advocacy: www.TexasAutismAdvocacy.org

>

> " There are some aspects of a person's life that we have no right

to compromise. We cannot negotiate the size of an institution. No

one should live in one. We cannot debate who should get an inclusive

education. Everyone should. We cannot determine who does and who

does not get the right to make their own choices and forge their own

futures. All must. "

>

December 28, 2007