Everyone's Welcomes and a bit of questions....

[Guest guest]

Good evening fellow Stilligan's:

I finally got a chance to read through everyone's emails from yesterday and so far today's....

Thank you for the heartfelt welcome I have gotten from each of you yesterday. It makes me feel good to know I am not alone in this but yet I still feel that way. I suppose in time it will get better for me.

Yes- I am from Southern land- specifically St. 's County. Pretty fast growing place with a bit of rural life still left before the concrete jungle swallows it whole. I have the proud NAS Pax River nearby and I listen to the test pilots fly daily as well as the helicopters too. Kind of poetically mixed in there with the rest of the world. My present day hubby works for a company doing RND work for the Navy.

It is also nice to know that this is not a "young or old " Persons disease like my grandma likes to call it, now that I broke down and told her about me having Still's. She's constantly saying that I am a 33yr old with old people's problems, and that I should have taken better care of myself. WOW! I did not ask for this and certainly did not do it to myself. There is no one thing to blame or person to point a finger at for causing this.

Now, on to my questions for everyone or anyone who can answer them:

What exactly does this Plaquenil do for my immune system, other than reorder it? Is there anything special I need to know about it? Because I did read the information sheet that came with my script, but it seem pretty generic in it's explanation of side effects etc..... And how long will I have to be on it?

How do you explain Still's Disease to those who don't know about it? I have already tried to explain it and lost my brain and nerves. In trying... I printed off the "Layman's" format of the brochure,but god only knows who is going to have questions. My hubby said it is pretty straight forward. in all that it said. And he said it's nothing he has not already seen me have less the rash.

Well, I am back to my evening running a fever and time for me to take my next dose of meds.......and go curl up and cope.....

Hugs and Snuggles to all...

Tracilyn

[Guest guest]

Traci Lynn your right you didnt ask for this and you did nothing wrong,and yes its a common misconception that Arthritis is an old persons disease and we found out the hard way its not.Ohh yeah by the way Bob gives out brochers for free,great gifts for relatives so you dont have to explain lol.Just send your snail mail to oldgoat@... ask for brochers and tell him how many they really are good i hand them out to doctors too.All i know about the planquil witch you most liky aready know its a anti-malaria drug,im assuming its used because of the Stills fever,it is a commonly prescribed med for Stills and im sure some the members who use it will respond.You take care. d.Canada

Everyone's Welcomes and a bit of questions....

Good evening fellow Stilligan's:

I finally got a chance to read through everyone's emails from yesterday and so far today's....

Thank you for the heartfelt welcome I have gotten from each of you yesterday. It makes me feel good to know I am not alone in this but yet I still feel that way. I suppose in time it will get better for me.

Yes- I am from Southern land- specifically St. 's County. Pretty fast growing place with a bit of rural life still left before the concrete jungle swallows it whole. I have the proud NAS Pax River nearby and I listen to the test pilots fly daily as well as the helicopters too. Kind of poetically mixed in there with the rest of the world. My present day hubby works for a company doing RND work for the Navy.

It is also nice to know that this is not a "young or old " Persons disease like my grandma likes to call it, now that I broke down and told her about me having Still's. She's constantly saying that I am a 33yr old with old people's problems, and that I should have taken better care of myself. WOW! I did not ask for this and certainly did not do it to myself. There is no one thing to blame or person to point a finger at for causing this.

Now, on to my questions for everyone or anyone who can answer them:

What exactly does this Plaquenil do for my immune system, other than reorder it? Is there anything special I need to know about it? Because I did read the information sheet that came with my script, but it seem pretty generic in it's explanation of side effects etc..... And how long will I have to be on it?

How do you explain Still's Disease to those who don't know about it? I have already tried to explain it and lost my brain and nerves. In trying... I printed off the "Layman's" format of the brochure,but god only knows who is going to have questions. My hubby said it is pretty straight forward. in all that it said. And he said it's nothing he has not already seen me have less the rash.

Well, I am back to my evening running a fever and time for me to take my next dose of meds.......and go curl up and cope.....

Hugs and Snuggles to all...

Tracilyn

Visit the Still's Disease Message Boardhttp://disc.server.com/Indices/148599.htmlThe materials and information contained in this message are not intended to replace the services of a trained health professional or to be a substitute for medical advice of physicians and/or other health care professionals. The International Still's Disease Foundation is not engaged in rendering medical or professional medical services. You should consult your physician on specific medical questions, particularly in matters requiring diagnosis or medical attention. The International Still's Disease Foundation makes no representations or warranties with respect to any treatment, action, application, medication or preparation by any person following the information offered or provided within this support form. ion by any person following the information offered or provided within this support form.

[Guest guest]

Traci Lynn your right you didnt ask for this and you did nothing wrong,and yes its a common misconception that Arthritis is an old persons disease and we found out the hard way its not.Ohh yeah by the way Bob gives out brochers for free,great gifts for relatives so you dont have to explain lol.Just send your snail mail to oldgoat@... ask for brochers and tell him how many they really are good i hand them out to doctors too.All i know about the planquil witch you most liky aready know its a anti-malaria drug,im assuming its used because of the Stills fever,it is a commonly prescribed med for Stills and im sure some the members who use it will respond.You take care. d.Canada

Everyone's Welcomes and a bit of questions....

Good evening fellow Stilligan's:

I finally got a chance to read through everyone's emails from yesterday and so far today's....

Thank you for the heartfelt welcome I have gotten from each of you yesterday. It makes me feel good to know I am not alone in this but yet I still feel that way. I suppose in time it will get better for me.

Yes- I am from Southern land- specifically St. 's County. Pretty fast growing place with a bit of rural life still left before the concrete jungle swallows it whole. I have the proud NAS Pax River nearby and I listen to the test pilots fly daily as well as the helicopters too. Kind of poetically mixed in there with the rest of the world. My present day hubby works for a company doing RND work for the Navy.

It is also nice to know that this is not a "young or old " Persons disease like my grandma likes to call it, now that I broke down and told her about me having Still's. She's constantly saying that I am a 33yr old with old people's problems, and that I should have taken better care of myself. WOW! I did not ask for this and certainly did not do it to myself. There is no one thing to blame or person to point a finger at for causing this.

Now, on to my questions for everyone or anyone who can answer them:

What exactly does this Plaquenil do for my immune system, other than reorder it? Is there anything special I need to know about it? Because I did read the information sheet that came with my script, but it seem pretty generic in it's explanation of side effects etc..... And how long will I have to be on it?

How do you explain Still's Disease to those who don't know about it? I have already tried to explain it and lost my brain and nerves. In trying... I printed off the "Layman's" format of the brochure,but god only knows who is going to have questions. My hubby said it is pretty straight forward. in all that it said. And he said it's nothing he has not already seen me have less the rash.

Well, I am back to my evening running a fever and time for me to take my next dose of meds.......and go curl up and cope.....

Hugs and Snuggles to all...

Tracilyn

Visit the Still's Disease Message Boardhttp://disc.server.com/Indices/148599.htmlThe materials and information contained in this message are not intended to replace the services of a trained health professional or to be a substitute for medical advice of physicians and/or other health care professionals. The International Still's Disease Foundation is not engaged in rendering medical or professional medical services. You should consult your physician on specific medical questions, particularly in matters requiring diagnosis or medical attention. The International Still's Disease Foundation makes no representations or warranties with respect to any treatment, action, application, medication or preparation by any person following the information offered or provided within this support form. ion by any person following the information offered or provided within this support form.