Re: to Heidi N - Lyme question

[Guest guest]

Many doctors say that one will not test positive for lyme until they kill it for a month or two or three first. This is due to the way lyme affects the antibodies in the body. I imagine every protocol has its differences, and unfortunately, there are different lyme strains and then depending upon the other infections, toxins, etc. he has, it also effects things. What I normally hear is worsening and improvement cycles. Its really difficult to answer this question because it also varies on the choice of treatment. I will list some names and you can google their knowledge and pick what you think you want to go with. When you narrow it down to a specific treatment, you will know more on what to expect. I do hear a lot of improvements in autism symptoms that quickly come, but some medical problems also arise when using antibiotics long-term. Thus, its important to know all about the treatment you choose. Dr. Usman, Dr. Klinghardt, Care Clinics in Autism, Dr. Lee Cowden, Dr. Bransfield, Dr. Ray , Dr. Burrascano, Dr. Amy Derkson, Dr. Gordon, www.lymeinducedautism.com I would not recommend Minocycline. I feel it works, but it has permanent side effects of grey teeth and bones and black thyroid. There are too many other alternatives to risk such side effects.

Heidi N

I am having my son tested for lyme disease and the test hasn't come back yet. He is 14 and autistic and has for the last month been really off and banging on all of his joints. If he tests positive should I not use antibiotics and how soon with the biomed treatment do you see results?Thanks DianneGet fantasy football with free live scoring. Sign up for FanHouse Fantasy Football today.

[Guest guest]

His doctor called today and said the test was negative and I said well, I've heard you can test negative but still be positive. He has had achy joints for about 4 weeks and she said she didn't feel if he had symptoms that long that he would test negative. I don't know what to do next. Any advice?

thanks dianneGet fantasy football with free live scoring. Sign up for FanHouse Fantasy Football today.

[Guest guest]

I am having my son tested for lyme disease and the test hasn't come

back yet. He is 14 and autistic and has for the last month been

really off and banging on all of his joints. If he tests positive

should I not use antibiotics and how soon with the biomed treatment

do you see results?

Thanks Dianne

>

> Thanks Heidi N,

> What herbs did they talk about?  I have been considering doing

this, even though my tests and my son's tests indicate no lyme.  I

understand Cat's Claw is effective...?  Have you had success with the

herbal treatments?

> Yes, we got rid of all cordless phones and wireless internet and

don't allow cell phones on in the house.  Dr. Mercola has lots of

info on his website about this too.

> Thanks for your help!

>

>

>

> Re: 3. Q & A about HHV6/lyme, autism and

chronic fatigue

>

>

>

>

>

>

>

> ________________________________

> Get fantasy football with free live scoring. Sign up for FanHouse

Fantasy Football today.

> After much research on lyme, I have learned that antibiotics are

not the best way to go.  At the Lyme Induced Autism Conference, most

stated they felt the herbs worked better than the antibiotics.  I

guess it comes down to other infections, toxins, and specific

strain.  I chose not to go the antibiotic route.  As much as I do

hear of miraculous recoveries from antibiotics, I also hear stories

of no improvement, thus antibiotics are not my first choice. 

Klinghardt stated that he felt autism was mostly caused by lyme and

electrosmog.  He said something about having moms hold a voltage

meter (or some kind of reader - I will have to look it up) and the

ones that had children with autism had high voltage from wireless

gadgetry and also electrical fields.  He said lyme and mold somehow

grow in high electrosmog areas.  He said lyme, mold and location was

what he felt was the most likely cause of autism.  He said you can

get one of those hand-held

> readers from Radio Shaack for $40.00.  I haven't gotten around to

it yet, but I did rid my house cordless phones, and keep my cell

phone off at the house now.  I am planning on doing some more

research into this electrosmog stuff to make sure we are not cooking

in our own home.

>  

> Heidi N

>  

>  

> Well, after personally going through 4 years of treatment for lyme

by one of the top lyme doctors (this doctor was consulted by the

author of the Lyme Induced Autism book), I can say that I made

absolutely NO progress, and, in fact, got worse, even though

extensive testing shows I have been free from lyme for over four

years.  I only started feeling better after I started biomedical

treatments with my son and started seeing my son's DAN doctor for

myself.  I also now need to repair the damage caused by four years of

intensive antibiotic treatment, including daily rocephin shots.  I

would really think twice before putting my child on any long-term

antibiotic therapy, which is what is suggested by many doctors

treating chronic lyme.   

> Lyme doctors make you think lyme is the " smoking gun. "   After four

years of research on lyme and three years of extensive research on

autism and biomedical treatments, I believe lyme is merely a

secondary infection, due to the problems present in autism: 

compromised immune system, genetic mutations in the methylation

pathway, heavy metals, etc. and do NOT believe lyme is the cause of

autism.  In other words, even if the lyme is the precipitating

factor, I don't believe it would induce autism without other factors

(common to autism) being present.  My suggestion is, yes, read all

the info you can about lyme, but fit it in to the puzzle with all of

the other pieces the biomed community has learned about autism..

>

[Guest guest]

http://www.liafoundation.org

>

> His doctor called today and said the test was negative and I said

well, I've

> heard you can test negative but still be positive. He has had

achy joints

> for about 4 weeks and she said she didn't feel if he had symptoms

that long

> that he would test negative. I don't know what to do next. Any

advice?

> thanks dianne

>

>

>

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>

[Guest guest]

EFA"s being off and to many omega 6's can also do this and or foods you don't tollerate, fibro pain, growing pains, low potassium and other nutrients as well

Recovering from Autism is a marathonNOT a sprint, but FULLY possible!Read more about it on my BLOGs athttp://www.myspace.com/christelkinghttp://foggyrock.com/MyPage/recoveringwishes

Re: Re: to Heidi N - Lyme question

His doctor called today and said the test was negative and I said well, I've heard you can test negative but still be positive. He has had achy joints for about 4 weeks and she said she didn't feel if he had symptoms that long that he would test negative. I don't know what to do next. Any advice?

thanks dianne

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Checked by AVG - http://www.avg.com Version: 8.0.138 / Virus Database: 270.5.0/1556 - Release Date: 7/16/2008 4:56 PM

[Guest guest]

Many don't ever have achy joints. Her assumption does match mainstream medicals assumption, but know that mainstream medical is not helping people get well. The famous, successful doctors say a few test positive right off the bat, most will not until they kill the lyme for one to three months, then stop the lyme-killer for a few days to 6 weeks, and test again. Lyme lives inside of thick or semi-solid body fluids/parts; it doesn't stay much in the blood, and the tests that work are the ones that detect antibodies due to this. But since lyme eliminates the body's ability to make natural killer antibodies, you have to kill the lyme first to bring back this ability.

Heidi N

His doctor called today and said the test was negative and I said well, I've heard you can test negative but still be positive. He has had achy joints for about 4 weeks and she said she didn't feel if he had symptoms that long that he would test negative. I don't know what to do next. Any advice?thanks dianneGet fantasy football with free live scoring. Sign up for FanHouse Fantasy Football today.

[Guest guest]

vitamin d deficiency is a clue for lymes...vit c also fits that bill.  the hard part about lymes with our kids is the making of the antibodies...don't trust the doctors on this one...go with your gut and keep an open mind.  i had "achy joints" at the onset of my pregnancy....let's see...i got to have an ultrasound of my gallbladder...then it was off to the orthopedic for "bakers cyst" at which point we did know i was pregnant....i had a rash, i had a sore in my mouth (right next to my worst filling...hummmm), elevated eosinophils, c-reactive protien in the blood...blood and protien in the urine....all the tell tale signs of lyme....but they did the shitty test.  when my kid was 8 months for some reason, they did a western blot...and positive IgM to band 23....but nope no lymes....well i'm CDC positive.

my child doesn't have elevated blood eosinophils...just eosinophilic  esaughagitis/entercolitis....no elevated c-reactive protien....but his igenex test is + by LLMD.  

it's nasty....but lymes/yeast and coinfections really important to address.

lisa

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[Guest guest]

yes, he drinks a lot of water every day. Today he is really banging all of his joints. Do you think it could be a really nasty virus that could do this to him?

thanks DianneGet fantasy football with free live scoring. Sign up for FanHouse Fantasy Football today.

[Guest guest]

did it rain today?

Recovering from Autism is a marathonNOT a sprint, but FULLY possible!Read more about it on my BLOGs athttp://www.myspace.com/christelkinghttp://foggyrock.com/MyPage/recoveringwishes

Re: Re: to Heidi N - Lyme question

yes, he drinks a lot of water every day. Today he is really banging all of his joints. Do you think it could be a really nasty virus that could do this to him?

thanks Dianne

Get fantasy football with free live scoring. Sign up for FanHouse Fantasy Football today.

Internal Virus Database is out of date.

Checked by AVG - http://www.avg.com Version: 8.0.138 / Virus Database: 270.5.0/1556 - Release Date: 7/16/2008 4:56 PM

[Guest guest]

yes, it did rain all day and he was definitely worse. Is there a connection?Get fantasy football with free live scoring. Sign up for FanHouse Fantasy Football today.