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Re: Ronnie

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Arletha

This disease is different to all who have it. If your husband is still

walking and able to spend money, I don't think he is going down hill, just

unsure

of himself. That seems to be one of the side effects of LBD.

To me it is like having a 2 yr old that you have to keep reassuring them that

everything will be all right. I often say I have a 2yr old that happens to

be 83 years of age. I have to keep reassuring her we aren't putting her in a

nh either. She thinks she can take care of herself and I let her try

sometimes. So you see, you aren't alone in this. If you want to vent, scream

or

cry....go ahead. I'm here as are many others that have and are going thru what

you

are going thru now.

I will put you in my prayers

Jacqui

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Arletha,

I would say that he knows that he is losing ground and he wants to do what

he can to be strong for you. He probably feels that if he goes to a nursing

home he would not be such a burden for you. Not sure about the money issue.

Maybe he isnt sure that he has given the right amount or gotten the right

amount of change. I know my mother was great with numbers and when she got

ill her ability to add or subtract was lost.

M

>

>Reply-To: LBDcaregivers

>To: LBDcaregivers

>Subject: Ronnie

>Date: Sat, 02 Oct 2004 01:43:01 -0000

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>

> I have a question Ronnie my husband has DLBD. First found in 1999.

> When it started I was not sure what would happen,it scared me.

> With all the ups and downs. Now it is new He has always wanted me

>to know he could take care of his money and his self?

>Now he doesn't want to carry any money, if I give him money he

>spends just what he needs then he gives it back and feels he needs

>to tell me what he spent it for? Talks of goiing to a nh? How it is

>paid and how do they help me? Just a week ago I was trying to

>reasure him I was not putting him in a nh.He walks around like he is

>unsure of him self?ask me to do things if it is okay?

>Are we going down hill? Can some one talk to me?

> Thank you for listening. Arletha

>

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Hospice will evaluate the situation and determine if it falls within

their guidelines. Don't hesitate. It's the one regret I have

surrounding my father's death; that I didn't recognize the comfort he

needed and would have received from hospice.

>

>

> Question? when is it time for Hospice?

> I spoke to a lady today about how ronnie was doing?

> She says by what i told her Ronnie needs hospice now?

> So does anyone have anything . I,m not sure. Arletha

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Arletha,

Definitely call hospice. They can tell you if it is time. They are so

helpful and wonderful. They saved us in caring for Dad....and made

him more comfortable. Of all the agencies and people we dealt with,

hospice was the best. They were there for everything. They treat the

patient and the family.

Lynn

> >

> >

> > Question? when is it time for Hospice?

> > I spoke to a lady today about how ronnie was doing?

> > She says by what i told her Ronnie needs hospice now?

> > So does anyone have anything . I,m not sure. Arletha

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  • 2 weeks later...

Arletha,

You do not have to know. You can call Hospice and they will do an

evaluation and you can then decide if it is what you want to do. They

will be so supportive and will come even more as times goes on.

Donna R

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