Re: My long horrible day...

September 17, 2004

Coyote, I, right along with you, hate this damned disease and the hell it

puts us all through.

Sending you strength.

Courage

My long horrible day...

>Today my Mom was going to meet a friend for coffee, so I decided to

>take Model and go visit my Dad. When I got there I thought I saw him

>in his usual spot in front of the window at the end of the hall, but

>as I got closer I thought " OH, thats not him " . I had to get right up

>in his face to know it was him!!!!!! He looked 100 years old, was

>white as a ghost, and did not recognize me...he got up and walked

>right past me. Then he went back and sat, but when I tried to talk

>to him it was like he was in a coma with his eyes open. I ran (with

>my dog) to get a nurse and was like " whats wrong with my dad??? "

>They said he hadnt been feeling well today. He told them his stomach

>hurt. He hadnt been walking at all (unusual for him)...but he

>wouldnt lay down. I must have looked really freaked out because they

>told me his doctor was coming to see him tomorrow, then they

>said " we'll call him again " and asked if he had to go to the

>hospital would I take him? I agreed, an ambulance would freak him

>out. Next thing I knew I had his health card and was off to the

>hospital. Tests, tests, bloodtests, xrays, pee tests...what a

>nightmare. He had a fever. I was freaking out because I couldnt get

>ahold of my husband (busy signal..internet), my daughter needed to

>be picked up from cheerleading practice, my Mom still wasnt home,

>and I had this poor dog waiting in a warm car (windows down a bit).

>My Dad was very nasty, yelling at nurses to get away from him, and

>when I had to take him for a chest xray he yelled at me that I didnt

>know what the hell I was talking about....ugh....first time he's

>ever done that (at least since being sick!). He was totally irate,

>and I can always be the one to calm him down..and I couldnt.... He

>just did not want to be touched or helped or anything. And he kept

>trying to rip out the intravenous thing (which is why he yelled at

>me, cuz I told him it would hurt if he pulled on it.) He finally did

>yank it out but I had ahold of his arm so the needle part didnt come

>out, just the tube to the bag.

>Finally I got through to my husband who told me my daughter was

>waiting for me in front of the highschool (thank god its a small

>town..I just walked out the front door and yelled " hey Moira! " and

>she came from across the street.) Got Moira to walk the dog around

>the hospital a couple of times...finally my Mom came.....

>

>Anyway..something strange showed up on his chest xray, but the dr

>didnt know if its anything to worry about, or if he moved during the

>xray. He tested borderline as a urinary infection, so I took him

>back to the NH (doctor didnt feel that the hospital was a safe

>environment for him) with some kind of med (antibiotic) plus a cream

>for this rash that is all down his neck, chest and back. it was

>pitch black out by the time we left. 10 pm....I had been there since

>2:30 or 3 pm.

>

>I still have no idea what to make of all this. I am so exhausted.

>Just feel like bawling my eyes out. This is the worst I have ever

>seen my Dad.

>

>Coyote

>

>Welcome to LBDcaregivers.

>

September 22, 2004

Hi Coyote,

I'm so sorry to hear of your dad's sudden change in

behavior. It must have been very shocking for you.

This disease is so unpredictable with all of it's

disguises. We can't tell from day to day what we will

face with our LO's. I hope there is nothing serious in

the Chest X-Ray. You and your family are in my

thoughts and prayers.

Take Care.................Jan

--- coyote_myst wrote:

> Today my Mom was going to meet a friend for coffee,

> so I decided to

> take Model and go visit my Dad. When I got there I

> thought I saw him

> in his usual spot in front of the window at the end

> of the hall, but

> as I got closer I thought " OH, thats not him " . I had

> to get right up

> in his face to know it was him!!!!!! He looked 100

> years old, was

> white as a ghost, and did not recognize me...he got

> up and walked

> right past me. Then he went back and sat, but when I

> tried to talk

> to him it was like he was in a coma with his eyes

> open. I ran (with

> my dog) to get a nurse and was like " whats wrong

> with my dad??? "

> They said he hadnt been feeling well today. He told

> them his stomach

> hurt. He hadnt been walking at all (unusual for

> him)...but he

> wouldnt lay down. I must have looked really freaked

> out because they

> told me his doctor was coming to see him tomorrow,

> then they

> said " we'll call him again " and asked if he had to

> go to the

> hospital would I take him? I agreed, an ambulance

> would freak him

> out. Next thing I knew I had his health card and was

> off to the

> hospital. Tests, tests, bloodtests, xrays, pee

> tests...what a

> nightmare. He had a fever. I was freaking out

> because I couldnt get

> ahold of my husband (busy signal..internet), my

> daughter needed to

> be picked up from cheerleading practice, my Mom

> still wasnt home,

> and I had this poor dog waiting in a warm car

> (windows down a bit).

> My Dad was very nasty, yelling at nurses to get away

> from him, and

> when I had to take him for a chest xray he yelled at

> me that I didnt

> know what the hell I was talking

> about....ugh....first time he's

> ever done that (at least since being sick!). He was

> totally irate,

> and I can always be the one to calm him down..and I

> couldnt.... He

> just did not want to be touched or helped or

> anything. And he kept

> trying to rip out the intravenous thing (which is

> why he yelled at

> me, cuz I told him it would hurt if he pulled on

> it.) He finally did

> yank it out but I had ahold of his arm so the needle

> part didnt come

> out, just the tube to the bag.

> Finally I got through to my husband who told me my

> daughter was

> waiting for me in front of the highschool (thank god

> its a small

> town..I just walked out the front door and yelled

> " hey Moira! " and

> she came from across the street.) Got Moira to walk

> the dog around

> the hospital a couple of times...finally my Mom

> came.....

>

> Anyway..something strange showed up on his chest

> xray, but the dr

> didnt know if its anything to worry about, or if he

> moved during the

> xray. He tested borderline as a urinary infection,

> so I took him

> back to the NH (doctor didnt feel that the hospital

> was a safe

> environment for him) with some kind of med

> (antibiotic) plus a cream

> for this rash that is all down his neck, chest and

> back. it was

> pitch black out by the time we left. 10 pm....I had

> been there since

> 2:30 or 3 pm.

>

> I still have no idea what to make of all this. I am

> so exhausted.

> Just feel like bawling my eyes out. This is the

> worst I have ever

> seen my Dad.

>

> Coyote

>

__________________________________________________

September 22, 2004

Coyote,

Your day with you Dad must have just been awful. I know it is very

disconcerting when the horrible mood changes happen. I have noticed whenever my

dad

has the slightest thing that is different than usual, it gets him upset and he

gets all weird. The fever your dad had was probably enough to cause him to get

" out of whack " .

Hopefully, he will rebound when he feels better.

Keeping you in my thoughts and sending you big hugs,

Piper

September 22, 2004

I am so sorry that you had such a bad day, it seems to affect us

caregivers in such a negative way, doesn't it, when our loved ones

are having such problems. It's good that you were able to post your

feelings. Step back and take a deep breath, maybe a short break if

at all possible, and maybe things will look better.

Praying for you and your Dad...

M

> Today my Mom was going to meet a friend for coffee, so I decided to

> take Model and go visit my Dad. When I got there I thought I saw

him

> in his usual spot in front of the window at the end of the hall,

but

> as I got closer I thought " OH, thats not him " . I had to get right

up

> in his face to know it was him!!!!!! He looked 100 years old, was

> white as a ghost, and did not recognize me...he got up and walked

> right past me. Then he went back and sat, but when I tried to talk

> to him it was like he was in a coma with his eyes open. I ran (with

> my dog) to get a nurse and was like " whats wrong with my dad??? "

> They said he hadnt been feeling well today. He told them his

stomach

> hurt. He hadnt been walking at all (unusual for him)...but he

> wouldnt lay down. I must have looked really freaked out because

they

> told me his doctor was coming to see him tomorrow, then they

> said " we'll call him again " and asked if he had to go to the

> hospital would I take him? I agreed, an ambulance would freak him

> out. Next thing I knew I had his health card and was off to the

> hospital. Tests, tests, bloodtests, xrays, pee tests...what a

> nightmare. He had a fever. I was freaking out because I couldnt get

> ahold of my husband (busy signal..internet), my daughter needed to

> be picked up from cheerleading practice, my Mom still wasnt home,

> and I had this poor dog waiting in a warm car (windows down a bit).

> My Dad was very nasty, yelling at nurses to get away from him, and

> when I had to take him for a chest xray he yelled at me that I

didnt

> know what the hell I was talking about....ugh....first time he's

> ever done that (at least since being sick!). He was totally irate,

> and I can always be the one to calm him down..and I couldnt.... He

> just did not want to be touched or helped or anything. And he kept

> trying to rip out the intravenous thing (which is why he yelled at

> me, cuz I told him it would hurt if he pulled on it.) He finally

did

> yank it out but I had ahold of his arm so the needle part didnt

come

> out, just the tube to the bag.

> Finally I got through to my husband who told me my daughter was

> waiting for me in front of the highschool (thank god its a small

> town..I just walked out the front door and yelled " hey Moira! " and

> she came from across the street.) Got Moira to walk the dog around

> the hospital a couple of times...finally my Mom came.....

>

> Anyway..something strange showed up on his chest xray, but the dr

> didnt know if its anything to worry about, or if he moved during

the

> xray. He tested borderline as a urinary infection, so I took him

> back to the NH (doctor didnt feel that the hospital was a safe

> environment for him) with some kind of med (antibiotic) plus a

cream

> for this rash that is all down his neck, chest and back. it was

> pitch black out by the time we left. 10 pm....I had been there

since

> 2:30 or 3 pm.

>

> I still have no idea what to make of all this. I am so exhausted.

> Just feel like bawling my eyes out. This is the worst I have ever

> seen my Dad.

>

> Coyote

September 22, 2004

Coyote,

I am sorry you had that experience. This is disease is just so amazingly

horrible. If you want to cry then I say wail away. It would be a relief for

you.

I hope that this is a one time incident and is due to the UI.

I will be saying some extra prayers.

M

>

>Reply-To: LBDcaregivers

>To: LBDcaregivers

>Subject: My long horrible day...

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