Guest guest Posted October 4, 2004 Report Share Posted October 4, 2004 jan a writes: he needs lots of encouragement, firmness, and " you need to try " before anything in done now. That includes shower, dressing, " potty " both on and off.,sitting down on chair at table and couch, etc...He sleeps most of the day in front of the TV. Confusion stresses him out--he does not like me talking to friends on the phone or inside the house over coffee for very long periods of time. He wants to go home-now, " help me " , we are home usually when he says that hi jan a, i totally understand what you mean about firmness and encouragement, it is very difficult, when dad first got sick with lbd he was extremely paranoid, he was convincedthat the govt was out to get him and that the cia was living across teh street. and if i went anywhere and i was home exactly the minute i said, that they kidnapped me to get to him. it was very difficult, fortunately that part of the disease has vanished for now, thank good ness. dad has severe spacial distortion, he cannt determine if there is 6 inches between him and the bed or 6 ft. we have to remind him to wait until he feels the bed before he plops down, and that is what he does plops he doesnt sit any more. he just falls into bed, donnie helps hi m shower as he wasnt cleaning himself and i was afraid of him getting infrection etc. another thing dad has problems with is time perception like hurricane ivan hit us 2 weeks ago, and the insurance adjuster was here a week ago sunday and dad feels like it has been 2 months and wants everything fixed now. that is diffucult for him to understad that only 2 weeks have gone by. oh if you want more info on exelon call thier caregiver hotline 1-877-memory4, they send me news letters and such every 5 weeks givig helpful info. i send off for all inforamtion and i got their card in the sample pack of exelon that dad got. i also sawa a card in a magazine about arricpet and sent off for info too. i figure the more educated i am the more i can help or tolerate dad and his lbd symptoms. take care and good luck hugs sharon m a smile a day keeps the meanies away!!! laughter is a breath of fresh air! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2004 Report Share Posted October 4, 2004 Hi Sharon, I do appreciate your information on exelon and the stages--I bet my hubby has perception problems--should have, but haven't, thought of that until I read your note. He is fearful when sitting anywhere--I always seem to be saying, " SIdestep until you are in front of the chair (dining places), turn around and feel the couch, bed (whatever seating thing is coming)with the back of your legs, put your hands behind you and feel for both sides of the chair,( whatever again), bend your knees slowly, and all the while I am standing beside or in front of him. Monotonous, but seems necessary. He stands facing the couch, holding on to the back of the chair, or some such thing until or unless the above routine is done--each time! Occasionally he does it by himself. Plopping is the way he sits frequently! Thanks for the input--I like your sign off phrase re: smiles. More hugs back to you, Jan A. Re: Hi Jan A./sharon m jan a writes: he needs lots of encouragement, firmness, and " you need to try " before anything in done now. That includes shower, dressing, " potty " both on and off.,sitting down on chair at table and couch, etc...He sleeps most of the day in front of the TV. Confusion stresses him out--he does not like me talking to friends on the phone or inside the house over coffee for very long periods of time. He wants to go home-now, " help me " , we are home usually when he says that hi jan a, i totally understand what you mean about firmness and encouragement, it is very difficult, when dad first got sick with lbd he was extremely paranoid, he was convincedthat the govt was out to get him and that the cia was living across teh street. and if i went anywhere and i was home exactly the minute i said, that they kidnapped me to get to him. it was very difficult, fortunately that part of the disease has vanished for now, thank good ness. dad has severe spacial distortion, he cannt determine if there is 6 inches between him and the bed or 6 ft. we have to remind him to wait until he feels the bed before he plops down, and that is what he does plops he doesnt sit any more. he just falls into bed, donnie helps hi m shower as he wasnt cleaning himself and i was afraid of him getting infrection etc. another thing dad has problems with is time perception like hurricane ivan hit us 2 weeks ago, and the insurance adjuster was here a week ago sunday and dad feels like it has been 2 months and wants everything fixed now. that is diffucult for him to understad that only 2 weeks have gone by. oh if you want more info on exelon call thier caregiver hotline 1-877-memory4, they send me news letters and such every 5 weeks givig helpful info. i send off for all inforamtion and i got their card in the sample pack of exelon that dad got. i also sawa a card in a magazine about arricpet and sent off for info too. i figure the more educated i am the more i can help or tolerate dad and his lbd symptoms. take care and good luck hugs sharon m a smile a day keeps the meanies away!!! laughter is a breath of fresh air! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2004 Report Share Posted October 4, 2004 jan a, glad you like my quotes, sometimes just seeing those reminds each of us to stop and take a breath and let go, and yet sometimes i know people including myself get tired of seeing it, until the one day you needed it and it helps, i forgot to tel lyou dad literraly has a one track mind now he cant talk and walk, or eat and talk and every instruction has to be given one step at a time, it is so sad to see a man who piloted helicopters for years cannot walk adn talk without falling very crazy and sad, take care and good luck sharon m a smile a day keeps the meanies away!!! laughter is a breath of fresh air! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2004 Report Share Posted October 4, 2004 Hi again Sharon, The whole darn thing is crazy and sad! My hubby was a Chem.. Engineer and was the one who managed the finances and all the important decisions--now he has trouble talking to his daughter and sons on the telephone--or anyone else. Hands me the phone saying to the person, " my wife,mother, daugher (whoever I may be at the time to him) can handle it " . Sure am learning finances and things faster than I wanted to. Oh well--I am not alone with this,! Jan A Re: Hi Jan A./sharon m jan a, glad you like my quotes, sometimes just seeing those reminds each of us to stop and take a breath and let go, and yet sometimes i know people including myself get tired of seeing it, until the one day you needed it and it helps, i forgot to tel lyou dad literraly has a one track mind now he cant talk and walk, or eat and talk and every instruction has to be given one step at a time, it is so sad to see a man who piloted helicopters for years cannot walk adn talk without falling very crazy and sad, take care and good luck sharon m a smile a day keeps the meanies away!!! laughter is a breath of fresh air! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2004 Report Share Posted October 5, 2004 jan a, i assume you have power of atty and everything already in place, if not you need to, and i am sooo sorry to point that out, we moved here to take care of my dad, and i know have power of atty and medical directives etc for my dad as well as a will, it wasnt easy nor cheap but we had to do it, and we finished it up just in time, when dad was finishting changing the deed to the house from him and his mom to me and him he was on a bad day and had not the lawy er already heard dad explain what he wanted to do, he would not have done it as dad was lbd'ing very gbad that day, we had an elder atty help us, i would highly recommend them, they are expert in the field, or more learned in the field at least. you may consider a revokable trust, which would become irrevocable as your hubby is no longer competent to do his financial and legal business and would protect the assets in some way, i dont know how to do it as youre his wife, it is different with me beig daughter and taking care of dad, also, you may consider whom you trust becuase you should do this for you as wel and have someone to take care of things should you beome unable to, the trust could be set up i think for both of you and have lets say a trusted child or family member or whomever you trust as trustee to take over should both of you be unable to but your money is protected for taking care of the both of you. please dont wait to do this, because as you can see with lbd, it acts so quickly so please protect yourself and your husbands assets. take care of yourself, and i hate to be a pusher of something as important as this but you have toprotect your finances . good luck, sharon m a smile a day keeps the meanies away!!! laughter is a breath of fresh air! Quote Link to comment Share on other sites More sharing options...
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