Re: new weird stuff....vent a rooodie

[Guest guest]

Hey Liz. You're going through the wars at the moment, that's for sure.

Are you able to rope in family to help? I have 3 children under 10, so

know how hard it is keeping it all together for the family. Mine have

become very self sufficient! The older ones shower the little one and

they can put themselves to bed when I just can't face the stairs.

Fortunately I'm not so bad at the moment, following a dreadful 15

months, so don't forget there's always light at the end of the tunnel,

however dark it feels at the moment. I will say a prayer for you. God

answers my prayers by giving me wonderful family and friends. Hope this

is the case for you too. This group has helped as well. I hope the

tests show up what's wrong so you be treated straight away.

With love

C 2 (UK)

> I have had this dragon since 1972....3 episodes lasting 10 months or

> so was clearly stills(high high fevers etc)...Ok in my 40's(now 48) I

> started with new symptoms never before a part of my

> thing....raynauds..mouth ulcers  positive ANA and a bladder from

> he..double tooth pick....when I get the mouth ulcers thats when I get

> the bladder pain ..infections...and now brand new once again..is

> extremely dry mouth and eyes...scalp sores(big ones)..and cuts on my

> eyelids...today I had them take half my blood...they are going over

> lupus and sjogrens(spelling???)..syndrome..my liver hurts like my

> bladder and I am just one connective tissue disordered fool...my kids

> are 4 and 8...if you believe in God..pray for me.. I am praying for

> all of us ..hugs and thanks for letting me vent  Love Liz.

>

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> Foundation is not engaged in rendering medical or professional medical

> services. You should consult your physician on specific medical

> questions, particularly in matters requiring diagnosis or medical

> attention. The International Still's Disease Foundation makes no

> representations or warranties with respect to any treatment, action,

> application, medication or preparation by any person following the

> information offered or provided within this support form. 

>

> ion by any person following the information offered or provided

> within this support form. 

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[Guest guest]

Thanks Caroline!! They have done alot of testing on me and so far as of 6 months ago..the only positive was ANA 1/40...and nothin else...but I am soo dry and the bladder really bad...liver biopsy says it is inflammed..soo they did alot of the tests again..see if something is developing..I do get fatigued badly...the Godsend may or maynot be that They let me take ritalin when I am tired cause I was diagnosed with attention defecit by 3 doctors. Anyway..I just recently had the scalp..mouth sores bad bladder pain regardless of anything(low carbs help)..also have had a positive infection there(bladder) even on antibiotics..exhaustion..I was the same last spring..the fall I feel better???? Cannot figure this out..I am having alot of thyroid tests done..too.....my meds are .Macrobid Feldene Lexipro..serax(sleep) sometimes Meletonin...Vitamins..sometimes ritalin when I need to be normal..and am not..(especially tired after 3p)..Thanks..so much for your info.. I will Keep you posted of the results..,,Love and hugs Liz

[Guest guest]

Hi Liz,

You sure are getting a big dose of the "miseries" at the moment. I think I shall add you to my "amazing women" list that have ailments beyond my comprehension. You and Caroline and Marilyn really are vying for bad days although our Caroline is pretty chipper at the moment. I sure hope you can find something to help you and I hope your family takes special care of you. My thoughts and prayers are with you for better days ahead.

Mi. Carmen

[Guest guest]

My prayers are with you Liz!

new weird stuff....vent a rooodie

I have had this dragon since 1972....3 episodes lasting 10 months or so was clearly stills(high high fevers etc)...Ok in my 40's(now 48) I started with new symptoms never before a part of my thing....raynauds..mouth ulcers positive ANA and a bladder from he..double tooth pick....when I get the mouth ulcers thats when I get the bladder pain ..infections...and now brand new once again..is extremely dry mouth and eyes...scalp sores(big ones)..and cuts on my eyelids...today I had them take half my blood...they are going over lupus and sjogrens(spelling???)..syndrome..my liver hurts like my bladder and I am just one connective tissue disordered fool...my kids are 4 and 8...if you believe in God..pray for me.. I am praying for all of us ..hugs and thanks for letting me vent Love Liz. Visit the Still's Disease Message Boardhttp://disc.server.com/Indices/148599.htmlThe materials and information contained in this message are not intended to replace the services of a trained health professional or to be a substitute for medical advice of physicians and/or other health care professionals. The International Still's Disease Foundation is not engaged in rendering medical or professional medical services. You should consult your physician on specific medical questions, particularly in matters requiring diagnosis or medical attention. The International Still's Disease Foundation makes no representations or warranties with respect to any treatment, action, application, medication or preparation by any person following the information offered or provided within this support form. ion by any person following the information offered or provided within this support form.