Guest guest Posted May 10, 2004 Report Share Posted May 10, 2004 Welcome Peggy. My advise is to try it and see if it helps in the next few months. Sometimes it takes a while for medications to get into the system enough to know if they will be helpful. I know how you are afraid but we only have so many choices and I feel if you trust your doctor let him lead you and see if it will help. Many thoughts for you to find some relief. My name is Patty and I go by Melt often. I look forward to having you be a part of our family here. We are crazy, sick and often just a bit out of control but we welcome you. Smiles for your day, Melt New Memeber - Intro Since my diagnosis (A long and painful struggle I'm sure you can all relate to) I have been taking Naproxen and Plaquenil daily and Prednisone during flare ups. I am currently having another flare up and the low dose steroids are not as effective as they had been in the past. My doctor is recommending that I begin taking Methotrexate. After reading and researching Methotrexate it appears to have numerous negative potential side effects. I'd be interested in hearing from any of you who are having positive or negative experiences with Methotrexate. I know I need to do something because I can't live with the pain, fatigue, etc. like I have had the last month, but I'm afraid to go on a new medication that seems to have a great deal of downside. Thanks for any help. Peggy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2004 Report Share Posted May 10, 2004 HI PEGGY Welcome to the group. You are wondering about Methotrexate (MTX). I have had only good results with taking it. I have been taking the pill form. My Rheumy told me that it would take around six weeks of taking it before I would probably see any results from it. He was right, around six weeks later I got to where the swelling of joints was going away, and I was geting around better. I was before that taking prednisone. I took prednisone and the methotrexate together for about a year, and was able to taper off the prednisone completely. I have been off prednisone for over a year now and currently have reduced the MTX by about half the dose I was taking. I have been on the reduced MTX dose for around a month and a half now, and so far am doing just fine. Dan Montana New Memeber - Intro Hi to all. My name is Peggy Beliveau and I was diagnosed with Stills Disease in Aug 1997 although I think it goes back as far as 1984 when I had been hospitalized for fevers of unknown origin and many of the Stills symptoms. At that time they said it was Epstein Barr Virus/Chronic Fatigue syndrome. Since my diagnosis (A long and painful struggle I'm sure you can all relate to) I have been taking Naproxen and Plaquenil daily and Prednisone during flare ups. I am currently having another flare up and the low dose steroids are not as effective as they had been in the past. My doctor is recommending that I begin taking Methotrexate. After reading and researching Methotrexate it appears to have numerous negative potential side effects. I'd be interested in hearing from any of you who are having positive or negative experiences with Methotrexate. I know I need to do something because I can't live with the pain, fatigue, etc. like I have had the last month, but I'm afraid to go on a new medication that seems to have a great deal of downside. Thanks for any help. PeggyVisit the Still's Disease Message Boardhttp://disc.server.com/Indices/148599.htmlThe materials and information contained in this message are not intended to replace the services of a trained health professional or to be a substitute for medical advice of physicians and/or other health care professionals. The International Still's Disease Foundation is not engaged in rendering medical or professional medical services. You should consult your physician on specific medical questions, particularly in matters requiring diagnosis or medical attention. The International Still's Disease Foundation makes no representations or warranties with respect to any treatment, action, application, medication or preparation by any person following the information offered or provided within this support form. ion by any person following the information offered or provided within this support form. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2004 Report Share Posted May 11, 2004 Hello Peggy,welcome to Stilligans Island.I have been on Methotextrate for awhile now,i dont really get any majour sideefects from it but some here do get nasty sideffects though and im sure you have heard from some already.It can take quite awhile for it to kickin though so if you do decide to try it.Take care. d.Canada New Memeber - Intro Hi to all. My name is Peggy Beliveau and I was diagnosed with Stills Disease in Aug 1997 although I think it goes back as far as 1984 when I had been hospitalized for fevers of unknown origin and many of the Stills symptoms. At that time they said it was Epstein Barr Virus/Chronic Fatigue syndrome. Since my diagnosis (A long and painful struggle I'm sure you can all relate to) I have been taking Naproxen and Plaquenil daily and Prednisone during flare ups. I am currently having another flare up and the low dose steroids are not as effective as they had been in the past. My doctor is recommending that I begin taking Methotrexate. After reading and researching Methotrexate it appears to have numerous negative potential side effects. I'd be interested in hearing from any of you who are having positive or negative experiences with Methotrexate. I know I need to do something because I can't live with the pain, fatigue, etc. like I have had the last month, but I'm afraid to go on a new medication that seems to have a great deal of downside. Thanks for any help. PeggyVisit the Still's Disease Message Boardhttp://disc.server.com/Indices/148599.htmlThe materials and information contained in this message are not intended to replace the services of a trained health professional or to be a substitute for medical advice of physicians and/or other health care professionals. The International Still's Disease Foundation is not engaged in rendering medical or professional medical services. You should consult your physician on specific medical questions, particularly in matters requiring diagnosis or medical attention. The International Still's Disease Foundation makes no representations or warranties with respect to any treatment, action, application, medication or preparation by any person following the information offered or provided within this support form. ion by any person following the information offered or provided within this support form. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2004 Report Share Posted May 12, 2004 Hi Peggy - welcome to a wonderful group. My name is and have had Still's for over two years. My systemic symptoms could not be controlled with prednisone only. After 2 months of high prednisone doses, and continued swelling, significant pain, etc. I went on a hefty dose of MTX - 25MG/Wk I believe. I was able to lower it to 18mg within a month or two and hold it there for a good while. After a year and a half of MTX treatments I am pleased to tell you that in one week I will not be taking any MTX anymore, and I have been off prednisone for 6 months. My rheumy thinks I am heading for remission, but not positive yet. I did have some side effects from MTX, but they were not significant...hair thinning, fatigue, some " brain fog " , but I would do it again. Still's is an aggressive disease, sometimes requiring aggressive drugs. If I flare again, I will attack the disease with strong meds again - it's the best fight - that I'm aware of. Stay in touch...Love, The Duchess of Dixie, Chris > >> > Hello Peggy,welcome to Stilligans Island.I have been on Methotextrate >for awhile now,i dont really get any majour sideefects from it but some >here do get nasty sideffects though and im sure you have heard from some >already.It can take quite awhile for it to kickin though so if you do >decide to try it.Take care. d.Canada > New Memeber - Intro > > > Hi to all. My name is Peggy Beliveau and I was diagnosed with Stills >Disease in Aug 1997 although I think it goes back as far as 1984 when I had >been hospitalized for fevers of unknown origin and many of the Stills >symptoms. At that time they said it was Epstein Barr Virus/Chronic Fatigue >syndrome. > > Since my diagnosis (A long and painful struggle I'm sure you can all >relate to) I have been taking Naproxen and Plaquenil daily and Prednisone >during flare ups. I am currently having another flare up and the low dose >steroids are not as effective as they had been in the past. My doctor is >recommending that I begin taking Methotrexate. > > After reading and researching Methotrexate it appears to have numerous >negative potential side effects. I'd be interested in hearing from any of >you who are having positive or negative experiences with Methotrexate. I >know I need to do something because I can't live with the pain, fatigue, >etc. like I have had the last month, but I'm afraid to go on a new >medication that seems to have a great deal of downside. > > Thanks for any help. > > Peggy > > > Visit the Still's Disease Message Board > http://disc.server.com/Indices/148599.html > > The materials and information contained in this message are not >intended to replace the services of a trained health professional or to be >a substitute for medical advice of physicians and/or other health care >professionals. The International Still's Disease Foundation is not engaged >in rendering medical or professional medical services. You should consult >your physician on specific medical questions, particularly in matters >requiring diagnosis or medical attention. The International Still's Disease >Foundation makes no representations or warranties with respect to any >treatment, action, application, medication or preparation by any person >following the information offered or provided within this support form. > > ion by any person following the information offered or provided within >this support form. > > > > > >---------------------------------------------------------------------------- > Quote Link to comment Share on other sites More sharing options...
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