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Hi ,

I think I saw somewhere that you do a radio show with Dr. . I was

wondering when you'd respond to this thread and am glad to hear your

perspective. I know you aren't really saying that Dr. is 100%

responsible for the amazing improvements in your child. Obviously you've done a

ton for your child and should be proud. Ours was considered recovered at the age

of five. No biomed at all. We went to the clinic after that actually just to

address some balance issues. We had just heard about it's recent opening or else

we may have gone sooner.

It was precisely because of his focus on the immune system and the rave reviews

that we waited several months to get an appointment to see Dr. despite

an urgent medical need our son experienced after starting the protocol. All of

the rave reviews are a bit hard to hear when our child is suffering needlessly

and we were treated so badly. It's kind of cruel, actually. I'm sure no one

who's raving about Dr. means it that way. They can only speak from their

own perspective. Who knows - if we'd actually gotten to speak to the man, we

might be raving too. What I do know is he forced a fourth round of testing on us

refusing to even speak with us, where many other parents are given a total pass

from the testing altogether. Maybe you can mention our negative experience and

suggest that he call me to explain this customized treatment approach?

He has all of our personal home and cell numbers and we are very easy to reach

if he picks up the phone. He does not answer the phone at the clinics. Hard for

us to break through the iron curtain :-)

>

> I was interviewed recently by a reporter regarding the question, " Is Autism

Treatable and Recoverable? "

>  

> I wanted to share with you all what I said (could have said more had time

permitted):

>  

> " I know not all autism is the same, and some of you have adult children who

are still very affected by autism.  I don't know why some of our kids recover

and some do not, but I have learned to stick with one

methodology/therapy/intervention for atleast 6 months before making a decision

that it is or is not working for my child.  I also believe that each child has

unique symptoms that must be addressed individually.  However, I do want

to discuss my story so that it can offer hope to parents who are still fighting.

>  

> My son is almost 9 years old and regressed into autism at age 18 months. He

lived in a silent world, that even we could not enter for several years.  He was

in constant pain, and we have photos of him with a distended stomach, dark

circles under his eyes, frequent rashes and sleepless nights. He was nonverbal,

tantrumming and incontinent.  We were all prisoners in our own home, including

him. He could not tolerate the stimuli in the outside world- bright lights, loud

noises, crowded places.  We took turns going to church, and our friends never

knew we married because only one parent usually attended any social event.

>  

> In 2007, we began biomedical intervention after spending three years under the

care of a neurologist and pediatric psychologist who prescribed medications to

control my son's behaviors.  At first, it was not pleasant.  Our son's behavior

became worse and we thought it was the biggest mistake we ever made to stop his

medication. He became aggressive and unfocused and stopped eating.  Then, after

three months he started to say single words.  He had moments of clarity and

focus.  At six months, he began speaking in sentences.  At one year, he stopped

having tantrums and enjoyed going out. In fact, he asked frequently to go to the

store or the zoo. Today, he is able to write in a 12 font and on a straight

line.  He is learning to read, and enjoys math as well.  He is calm and looks

very healthy.  We still have a ways to go, and he may always be considered

'autistic' but most importantly he is not suffering or in pain.  He is becoming

a talented

> sculptor, and also loves to draw animals.  I don't really care if he is

'autistic' the rest of his life as long as he is healthy, happy and free from

pain.  Trying to get a 'normal' child was never part of my goal.  I'm sorry if

this offends some of you, but I believe we are all different and unique and I

have embraced my son's 'autism' as part of who he is.

>  

> Many parents ask me what we have done to see such amazing improvements in my

son. We have been under the care of Dr. Kendal . However, his protocol is

customized to each individual child so I cannot say in a blanket statement that

it was just supplements or diet or other biomedical interventions that he used.

I believe he is differentiated from many other doctors because he treats the

immune system and not just the symptoms, and has a patented technology to look

for neuro-inflammation.

>  

> I want to also add that we went to great lengths to 'clean up our

environment.'  Before starting any special diet, we first moved to 100% organic

and avoided genetically modified food.  We stopped eating anything artificial. I

work full time and I travel for my job, and convenience foods were part of my

shopping list, but I had to force myself to cook from scratch on the weekends

and freeze. Yes, it is painful but the rewards are so worth it!  We also looked

at what products were in our home- BPA plastics, toys made in China, aluminum,

mercury lightbulbs (yes, those energy efficient ones) and cleaning chemicals. 

Gone!

>  

> Many parents tell me that is just too much work and too expensive.  Well, it's

not.  You just have to be resourceful and stay focused. Importantly, don't set

out to heal just your child with autism.  Think about healing your entire

family.  What's the point of making such a big effort if your child is still

exposed to second hand smoke or unhealthy lifestyles of other family members?

Further, is it really fair to give your affected child 'healthy' food and give

his/her neurotypical siblings Twinkies, Cheetos and other junk food? That's

rather punishing, in my opinion.

>  

> In addition to seeing huge cognitive gains in my son, my entire family has

benefited from healing from chronic illness using the " clean up our environment "

philosophy. My youngest son is not taking allergy or asthma medications any

more. My husband is a cancer survivor and has beat the odds of the cancer

returning.  My allergies and asthma are mild, compared to severe symptoms I used

to have.

>  

> I certainly don't have all the answers, but I believe that toxins in our world

are causing many chronic health issues.  When our immune systems are weak, we

tend to accumulate toxins, metals and pathogens.  We can spend much time and

money on methods such as chelation and anti-infectives, but if we don't heal our

immune systems first we will be fighting environmental insults the rest of our

lives.

>  

> Wellness, in my opinion,  is a choice.  To those of you doing all these things

and still not seeing progress, never give up.  You or your child may have a

significant burden that may take years to correct.  What's the worst that can

happen?  You and everyone around you will be healthier. "

>  

>  

>

>

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We are in our 4th month of treatment with Dr. . My 14 year old is

making steady gains after a rough start with Neurotransmitter support

which Dr. changed to Methyl XL. I have found him competent and

willing to listen. He has never called me on the phone, in fact the only

doctor who ever did was my Pediatrician (when he had a question) and my

OBGYN when I was in labor. I am fine with the testing that is done, it

is not invasive or overly stressful and I feel his protocol based on the

needs of my child in particular is on the right track. I feel confident

Dr. is human and may be very busy but I have faith that this

growing pain has nothing what so ever to do with my sons medical care.

Trina

wrote:

>

>

> Hi ,

>

> I think I saw somewhere that you do a radio show with Dr. . I

> was wondering when you'd respond to this thread and am glad to hear

> your perspective. I know you aren't really saying that Dr. is

> 100% responsible for the amazing improvements in your child. Obviously

> you've done a ton for your child and should be proud. Ours was

> considered recovered at the age of five. No biomed at all. We went to

> the clinic after that actually just to address some balance issues. We

> had just heard about it's recent opening or else we may have gone sooner.

>

> It was precisely because of his focus on the immune system and the

> rave reviews that we waited several months to get an appointment to

> see Dr. despite an urgent medical need our son experienced

> after starting the protocol. All of the rave reviews are a bit hard to

> hear when our child is suffering needlessly and we were treated so

> badly. It's kind of cruel, actually. I'm sure no one who's raving

> about Dr. means it that way. They can only speak from their

> own perspective. Who knows - if we'd actually gotten to speak to the

> man, we might be raving too. What I do know is he forced a fourth

> round of testing on us refusing to even speak with us, where many

> other parents are given a total pass from the testing altogether.

> Maybe you can mention our negative experience and suggest that he call

> me to explain this customized treatment approach?

>

> He has all of our personal home and cell numbers and we are very easy

> to reach if he picks up the phone. He does not answer the phone at the

> clinics. Hard for us to break through the iron curtain :-)

>

>

>

>

> >

> > I was interviewed recently by a reporter regarding the question, " Is

> Autism Treatable and Recoverable? "

> >

> > I wanted to share with you all what I said (could have said more had

> time permitted):

> >

> > " I know not all autism is the same, and some of you have adult

> children who are still very affected by autism. I don't know why some

> of our kids recover and some do not, but I have learned to stick

> with one methodology/therapy/intervention for atleast 6 months before

> making a decision that it is or is not working for my child. I also

> believe that each child has unique symptoms that must be addressed

> individually. However, I do want to discuss my story so that it can

> offer hope to parents who are still fighting.

> >

> > My son is almost 9 years old and regressed into autism at age 18

> months. He lived in a silent world, that even we could not enter for

> several years. He was in constant pain, and we have photos of him

> with a distended stomach, dark circles under his eyes, frequent rashes

> and sleepless nights. He was nonverbal, tantrumming and incontinent.

> We were all prisoners in our own home, including him. He could not

> tolerate the stimuli in the outside world- bright lights, loud noises,

> crowded places. We took turns going to church, and our friends never

> knew we married because only one parent usually attended any social event.

> >

> > In 2007, we began biomedical intervention after spending three years

> under the care of a neurologist and pediatric psychologist who

> prescribed medications to control my son's behaviors. At first, it

> was not pleasant. Our son's behavior became worse and we thought it

> was the biggest mistake we ever made to stop his medication. He became

> aggressive and unfocused and stopped eating. Then, after three months

> he started to say single words. He had moments of clarity and focus.

> At six months, he began speaking in sentences. At one year, he

> stopped having tantrums and enjoyed going out. In fact, he asked

> frequently to go to the store or the zoo. Today, he is able to write

> in a 12 font and on a straight line. He is learning to read, and

> enjoys math as well. He is calm and looks very healthy. We still

> have a ways to go, and he may always be considered 'autistic' but most

> importantly he is not suffering or in pain. He is becoming a talented

> > sculptor, and also loves to draw animals. I don't really care if he

> is 'autistic' the rest of his life as long as he is healthy, happy and

> free from pain. Trying to get a 'normal' child was never part of my

> goal. I'm sorry if this offends some of you, but I believe we are all

> different and unique and I have embraced my son's 'autism' as part of

> who he is.

> >

> > Many parents ask me what we have done to see such amazing

> improvements in my son. We have been under the care of Dr. Kendal

> . However, his protocol is customized to each individual child

> so I cannot say in a blanket statement that it was just supplements or

> diet or other biomedical interventions that he used. I believe he is

> differentiated from many other doctors because he treats the immune

> system and not just the symptoms, and has a patented technology to

> look for neuro-inflammation.

> >

> > I want to also add that we went to great lengths to 'clean up our

> environment.' Before starting any special diet, we first moved to

> 100% organic and avoided genetically modified food. We stopped eating

> anything artificial. I work full time and I travel for my job, and

> convenience foods were part of my shopping list, but I had to force

> myself to cook from scratch on the weekends and freeze. Yes, it is

> painful but the rewards are so worth it! We also looked at what

> products were in our home- BPA plastics, toys made in China, aluminum,

> mercury lightbulbs (yes, those energy efficient ones) and cleaning

> chemicals. Gone!

> >

> > Many parents tell me that is just too much work and too expensive.

> Well, it's not. You just have to be resourceful and stay focused.

> Importantly, don't set out to heal just your child with autism. Think

> about healing your entire family. What's the point of making such a

> big effort if your child is still exposed to second hand smoke or

> unhealthy lifestyles of other family members? Further, is it really

> fair to give your affected child 'healthy' food and give his/her

> neurotypical siblings Twinkies, Cheetos and other junk food? That's

> rather punishing, in my opinion.

> >

> > In addition to seeing huge cognitive gains in my son, my entire

> family has benefited from healing from chronic illness using the

> " clean up our environment " philosophy. My youngest son is not taking

> allergy or asthma medications any more. My husband is a cancer

> survivor and has beat the odds of the cancer returning. My allergies

> and asthma are mild, compared to severe symptoms I used to have.

> >

> > I certainly don't have all the answers, but I believe that toxins in

> our world are causing many chronic health issues. When our immune

> systems are weak, we tend to accumulate toxins, metals and pathogens.

> We can spend much time and money on methods such as chelation and

> anti-infectives, but if we don't heal our immune systems first we will

> be fighting environmental insults the rest of our lives.

> >

> > Wellness, in my opinion, is a choice. To those of you doing all

> these things and still not seeing progress, never give up. You or

> your child may have a significant burden that may take years to

> correct. What's the worst that can happen? You and everyone around

> you will be healthier. "

> >

> >

> >

> >

>

>

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Well said !We, too, have seen great improvements with many of the things you describe.  If our son is always considered " autistic, "   we can live with that.  For us it is the pain and suffering he goes through with repeat infections.  We have cleaned up his diet, but now we are finally focusing on his environment at home.  It is slow going, but we have NEVER used the energy efficient light bulbs, and we have reduced aluminum cans by 99.9%.  I know there are many other things we need to do.

One thing I would also suggest is that to ourselves and our children tested for iodine levels.  The only place you can get it on a daily basis in the American diet is in salt, but a person would have to use 17 tsp. of iodized salt to get enough in a day.  They used to fortify foods with it, but then they took the iodine out and replaced it with bromides (bad stuff).

Why is this important?  Sufficient iodine is needed by almost every system in the body.  it is vital for thyroid function and detoxification.  It is suggested that it protects against many forms of cancer and from cancer returning.  It is an important nutrient that is often over looked.

I had many breast issues beginning at age 25.  I had my first biopsy at 27.  I had fibrocystic breast diesease and very often had to have cysts aspirated.  I had by fourth biopsy four years ago, and it came back precancerous.  I did some research and I had a great holistic doctor who did the test for me, and I was very low in iodine.  Since beginning iodine supplementation I no longer have fibrocystic breasts, an I have had the best mammograms of my life.  I'm now in my fifties.  On my last checkup, I had run out of my supplement and was so busy I hadn't had any to take for over three months.  I went in for my mammogram, and sure enough, suspicious places were back.  It turns out they were only cysts, but my radiologist asked me what I had been doing differrently.  I told her I had run out of my iodine.  She said to get back on it quickly.  I go back for a six month checkup this month.  If I'm back to normal, it has to be the iodine.

This doctor also agrees with me about the use of aluminum containing antiperspirants and really anything that prevents you from sweating.  We need to detox!  The only thing we use out of a can is beans, but I plan to even begin doing those from scratch.  We DO NOT ever wrap any food in aluminum foil.

It is all about lowering your child's toxic load --and all of us, too.Your son and mine are about the same age.  My son regressed immediately after his fifteen month shots.  Our stories are very similar.  My son is very talkative now, creative, imaginative, funny.  His autism is what makes him so unique, but I want to figure out his immune system, and advocate for an appropriate education.  he learns in a different manner and he should be taught the way he can learn.  These are my two big issues.  We are STILL trying to figure out the stimming, which he started doing again a few years ago.  I think it is the toxic building he goes to school in.

God bless you for telling your story.Haven

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Haven and you might find that SonRise will take your high functioning

amazing boys all the way!!! I am happy to come to your homes to play with your

boys or have you here to visit our sonrise room. I have no gain or motive other

than witnessing my child's transformation and I simply have to at least spread

the word.

The stimming is the way to reach the boys. I know it sounds crazy, but I

witnessed this in my home. The stimming is the way into their world so we can

show them the way out.

Too much really to type, but basically all the good intentions of intervening

are part of what contributes to the " autistic thinking. " I mean my belief is

that once diagnosed the children are under a microscope and analyzed. They

miss typical development because of their immune/nervous system poisoning, but

also because of our approach. Your boys are doing great and have much improved

brain function. They can learn this and I believe will LOVE THIS approach!

However I'd absolutely do this for a child who isn't as far into recovery. I'd

use it for a preverbal child who stims all day too!

Ocean vegetables and celtic sea salt good ideas to add to the diet. We like

arame, wakame, dulse, nori, and kombu. Tyler's thyroid normalyzed within 3

months of serving ocean vegetables and celtic salt (as well as eliminating all

processed, bad oils, sugar, chemicals etc....) The DAN doctor we had at the

time said " you cannot improve Thyroid with diet. " I replied " watch me. "

Good for you Ladies for your positive attitude. Mothers are magnificant! I

love being part of this group of moms.

>

> Well said !

>

> We, too, have seen great improvements with many of the things you describe.

> If our son is always considered " autistic, " we can live with that. For us

> it is the pain and suffering he goes through with repeat infections. We

> have cleaned up his diet, but now we are finally focusing on his environment

> at home. It is slow going, but we have NEVER used the energy efficient

> light bulbs, and we have reduced aluminum cans by 99.9%. I know there are

> many other things we need to do.

>

> One thing I would also suggest is that to ourselves and our children tested

> for iodine levels. The only place you can get it on a daily basis in the

> American diet is in salt, but a person would have to use 17 tsp. of iodized

> salt to get enough in a day. They used to fortify foods with it, but then

> they took the iodine out and replaced it with bromides (bad stuff).

>

> Why is this important? Sufficient iodine is needed by almost every system

> in the body. it is vital for thyroid function and detoxification. It is

> suggested that it protects against many forms of cancer and from cancer

> returning. It is an important nutrient that is often over looked.

>

> I had many breast issues beginning at age 25. I had my first biopsy at 27.

> I had fibrocystic breast diesease and very often had to have cysts

> aspirated. I had by fourth biopsy four years ago, and it came back

> precancerous. I did some research and I had a great holistic doctor who did

> the test for me, and I was very low in iodine. Since beginning iodine

> supplementation I no longer have fibrocystic breasts, an I have had the best

> mammograms of my life. I'm now in my fifties. On my last checkup, I had

> run out of my supplement and was so busy I hadn't had any to take for over

> three months. I went in for my mammogram, and sure enough, suspicious

> places were back. It turns out they were only cysts, but my radiologist

> asked me what I had been doing differrently. I told her I had run out of my

> iodine. She said to get back on it quickly. I go back for a six month

> checkup this month. If I'm back to normal, it has to be the iodine.

>

> This doctor also agrees with me about the use of aluminum containing

> antiperspirants and really anything that prevents you from sweating. We

> need to detox! The only thing we use out of a can is beans, but I plan to

> even begin doing those from scratch. We DO NOT ever wrap any food in

> aluminum foil.

>

> It is all about lowering your child's toxic load --and all of us, too.

>

> Your son and mine are about the same age. My son regressed immediately

> after his fifteen month shots. Our stories are very similar. My son is

> very talkative now, creative, imaginative, funny. His autism is what makes

> him so unique, but I want to figure out his immune system, and advocate for

> an appropriate education. he learns in a different manner and he should be

> taught the way he can learn. These are my two big issues. We are STILL

> trying to figure out the stimming, which he started doing again a few years

> ago. I think it is the toxic building he goes to school in.

>

> God bless you for telling your story.

>

> Haven

>

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Trina,

I'm glad things are going so smoothly for you and your son, that the testing has

been appropriately applied, no problem for your son at all and that Dr.

is willing to listen to you. I hope that is always the case. When you are able

to see the doctor, I guess you wouldn't need a phone call. I don't expect one

either, although Mirielle was saying how the issue needed to be addressed with

the doctor. I completely agree! Kind of difficult when you haven't had an

opportunity to speak with him. So I suggested if people are concerned about the

need for him to correct some kind of misunderstanding, it's easier for him to

reach me. Since apparently works with him and posted in defense of him, I

saw that as an opportunity where she might suggest it to him. You know, one

parent looking out for another. Or even her giving him the chance to defend

himself, if that is her primary concern. Definitely no expectation there,

although warranted under the circumstances and Dr. Morton often picked up the

phone himself with no request on my part. Just different styles.

I merely posted our experience for the potential benefit of the group as a

fellow parent. I didn't realize by doing so I would stir up a " defend Dr.

campaign " from those who have received better treatment and don't

believe they have been taken advantage of or mistreated. I kind of thought

that's what this list was about. Not so much about defending a doctor's

reputation who clearly has more business than he can handle. My objective was

not a smear campaign. In fact, I waited two weeks before even posting after

seeing continued discussion about him. Little did I realize the firestorm that

would ensue! Other support lists appreciate this kind of sharing of experiences.

I'm sorry I have apparently upset so many list members who feel the need to

defend him despite totally different circumstances.

Anyway, I am going to try to track him down again today see what, if any,

response we can get from him while my child continues to be cut off from their

medical care.

Best regards,

> > >

> > > I was interviewed recently by a reporter regarding the question, " Is

> > Autism Treatable and Recoverable? "

> > >

> > > I wanted to share with you all what I said (could have said more had

> > time permitted):

> > >

> > > " I know not all autism is the same, and some of you have adult

> > children who are still very affected by autism. I don't know why some

> > of our kids recover and some do not, but I have learned to stick

> > with one methodology/therapy/intervention for atleast 6 months before

> > making a decision that it is or is not working for my child. I also

> > believe that each child has unique symptoms that must be addressed

> > individually. However, I do want to discuss my story so that it can

> > offer hope to parents who are still fighting.

> > >

> > > My son is almost 9 years old and regressed into autism at age 18

> > months. He lived in a silent world, that even we could not enter for

> > several years. He was in constant pain, and we have photos of him

> > with a distended stomach, dark circles under his eyes, frequent rashes

> > and sleepless nights. He was nonverbal, tantrumming and incontinent.

> > We were all prisoners in our own home, including him. He could not

> > tolerate the stimuli in the outside world- bright lights, loud noises,

> > crowded places. We took turns going to church, and our friends never

> > knew we married because only one parent usually attended any social event.

> > >

> > > In 2007, we began biomedical intervention after spending three years

> > under the care of a neurologist and pediatric psychologist who

> > prescribed medications to control my son's behaviors. At first, it

> > was not pleasant. Our son's behavior became worse and we thought it

> > was the biggest mistake we ever made to stop his medication. He became

> > aggressive and unfocused and stopped eating. Then, after three months

> > he started to say single words. He had moments of clarity and focus.

> > At six months, he began speaking in sentences. At one year, he

> > stopped having tantrums and enjoyed going out. In fact, he asked

> > frequently to go to the store or the zoo. Today, he is able to write

> > in a 12 font and on a straight line. He is learning to read, and

> > enjoys math as well. He is calm and looks very healthy. We still

> > have a ways to go, and he may always be considered 'autistic' but most

> > importantly he is not suffering or in pain. He is becoming a talented

> > > sculptor, and also loves to draw animals. I don't really care if he

> > is 'autistic' the rest of his life as long as he is healthy, happy and

> > free from pain. Trying to get a 'normal' child was never part of my

> > goal. I'm sorry if this offends some of you, but I believe we are all

> > different and unique and I have embraced my son's 'autism' as part of

> > who he is.

> > >

> > > Many parents ask me what we have done to see such amazing

> > improvements in my son. We have been under the care of Dr. Kendal

> > . However, his protocol is customized to each individual child

> > so I cannot say in a blanket statement that it was just supplements or

> > diet or other biomedical interventions that he used. I believe he is

> > differentiated from many other doctors because he treats the immune

> > system and not just the symptoms, and has a patented technology to

> > look for neuro-inflammation.

> > >

> > > I want to also add that we went to great lengths to 'clean up our

> > environment.' Before starting any special diet, we first moved to

> > 100% organic and avoided genetically modified food. We stopped eating

> > anything artificial. I work full time and I travel for my job, and

> > convenience foods were part of my shopping list, but I had to force

> > myself to cook from scratch on the weekends and freeze. Yes, it is

> > painful but the rewards are so worth it! We also looked at what

> > products were in our home- BPA plastics, toys made in China, aluminum,

> > mercury lightbulbs (yes, those energy efficient ones) and cleaning

> > chemicals. Gone!

> > >

> > > Many parents tell me that is just too much work and too expensive.

> > Well, it's not. You just have to be resourceful and stay focused.

> > Importantly, don't set out to heal just your child with autism. Think

> > about healing your entire family. What's the point of making such a

> > big effort if your child is still exposed to second hand smoke or

> > unhealthy lifestyles of other family members? Further, is it really

> > fair to give your affected child 'healthy' food and give his/her

> > neurotypical siblings Twinkies, Cheetos and other junk food? That's

> > rather punishing, in my opinion.

> > >

> > > In addition to seeing huge cognitive gains in my son, my entire

> > family has benefited from healing from chronic illness using the

> > " clean up our environment " philosophy. My youngest son is not taking

> > allergy or asthma medications any more. My husband is a cancer

> > survivor and has beat the odds of the cancer returning. My allergies

> > and asthma are mild, compared to severe symptoms I used to have.

> > >

> > > I certainly don't have all the answers, but I believe that toxins in

> > our world are causing many chronic health issues. When our immune

> > systems are weak, we tend to accumulate toxins, metals and pathogens.

> > We can spend much time and money on methods such as chelation and

> > anti-infectives, but if we don't heal our immune systems first we will

> > be fighting environmental insults the rest of our lives.

> > >

> > > Wellness, in my opinion, is a choice. To those of you doing all

> > these things and still not seeing progress, never give up. You or

> > your child may have a significant burden that may take years to

> > correct. What's the worst that can happen? You and everyone around

> > you will be healthier. "

> > >

> > >

> > >

> > >

> >

> >

>

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,

Please do not be too defensive with what you had posted.

Yes, it may have stirred the conversation up based on everyone's experience with

Dr. but it sure leaned towards analyzing what triggered to where you had

posted of not being a happy camper with him and it sure did not happen to the

others who have posted.

When I had posted it was asking questions of the possibilities that wondered off

where I assumed was there a lack of communication due to what happen to you?

Change of doctor's? Testing? Treatments?

As there were lots of questions while reading your post, like did you sound

demanding for Dr. to be as Dr. Morton? Got on the wrong foot with the

center.

But you have posted to others with your response on where, what or why, etc.?

was interviewed and shared her story about every contact list she is on,

based on her son's progress. Even though she has close ties with Dr. , I

did not notice her intention was aimed due to your post. It was the timing of it

all.

Hey, if you lit this fire, it sure kept everyone posting and the group list was

actually making some connection as well. Better than no one posting as we all

learn together of so much that is thrown our way. This is what the group list is

all about with the pros and cons or life would be boring.

Hope you get things resolved with Dr. 's center though.

I know Dr. has a pretty hectic schedule and Dr. has been filling

the appointments which everyone is also pleased with him.

Wishing you well on this mission so please do not feel like anyone is targeting

anything your way for such courage of sharing your side of the story, not that I

speak for anyone, just want you to know you are admire for also posting what you

did. Proud of anyone posting on what they do as it better than not having any

information at all.

Your post is nothing compared to other monstrous issues of what I am aware of.

But, us families must stick together the best possible way.

What can I say, hang in there and let's hope for the best you get back on track

on your mission with the proper support once again.

Irma

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As a parent considering using Dr. for my sons, I appreciate ALL feedback about him and his office. Thank you everyone, esp. , who has responded! Sent from my iPhone

,

Please do not be too defensive with what you had posted.

Yes, it may have stirred the conversation up based on everyone's experience with Dr. but it sure leaned towards analyzing what triggered to where you had posted of not being a happy camper with him and it sure did not happen to the others who have posted.

When I had posted it was asking questions of the possibilities that wondered off where I assumed was there a lack of communication due to what happen to you? Change of doctor's? Testing? Treatments?

As there were lots of questions while reading your post, like did you sound demanding for Dr. to be as Dr. Morton? Got on the wrong foot with the center.

But you have posted to others with your response on where, what or why, etc.?

was interviewed and shared her story about every contact list she is on, based on her son's progress. Even though she has close ties with Dr. , I did not notice her intention was aimed due to your post. It was the timing of it all.

Hey, if you lit this fire, it sure kept everyone posting and the group list was actually making some connection as well. Better than no one posting as we all learn together of so much that is thrown our way. This is what the group list is all about with the pros and cons or life would be boring.

Hope you get things resolved with Dr. 's center though.

I know Dr. has a pretty hectic schedule and Dr. has been filling the appointments which everyone is also pleased with him.

Wishing you well on this mission so please do not feel like anyone is targeting anything your way for such courage of sharing your side of the story, not that I speak for anyone, just want you to know you are admire for also posting what you did. Proud of anyone posting on what they do as it better than not having any information at all.

Your post is nothing compared to other monstrous issues of what I am aware of. But, us families must stick together the best possible way.

What can I say, hang in there and let's hope for the best you get back on track on your mission with the proper support once again.

Irma

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Thanks !I would be interested in knowing how to improve the thyroid with diet.  I just learned they are discontinuing Armour thyroid.  No doubt probably due to some payoffs here and there, and ow they want to force all of us who are hypothyroid to go on synthetics.  I am trying to do it with L-tyrosine and iodine and a couple of other things.  I refuse to take synthetic hormone.  I'd rather do the whole thing naturally.  I wasn't on a very high dose anyway --only 60 mg a day, but I don't want to go back to the way I felt went my thyroid started going downhill.  This is just another sign of our toxic times.  Just about every middle-aged woman I know in our area has thyroid problems.

We already use the celtic sea salt, and I add kelp to our soups.  It's a great idea!  Regarding the son-rise program, where are you located?Haven

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They are not discontinueing Armour. Armour changed their formula and people are

having trouble with it. There are other manufacturers of dessicated thyroid. RCL

labs makes Westhroid and Naturethroid. They are currently running behind on

their production due to increased demand from former Armour patients who do not

respond to the new Armour formula ( my son is one - his TSH rose from 1.5 to 4.0

in one month!!)We are using a compounded dessicated thyroid in the meantime -

available at any pharmacy that does compounding. You may have to go thru an

adjustment period to find the best dose on the new product.

>

> Thanks !

>

> I would be interested in knowing how to improve the thyroid with diet. I

> just learned they are discontinuing Armour thyroid. No doubt probably due

> to some payoffs here and there, and ow they want to force all of us who are

> hypothyroid to go on synthetics. I am trying to do it with L-tyrosine and

> iodine and a couple of other things. I refuse to take synthetic hormone.

> I'd rather do the whole thing naturally. I wasn't on a very high dose

> anyway --only 60 mg a day, but I don't want to go back to the way I felt

> went my thyroid started going downhill. This is just another sign of our

> toxic times. Just about every middle-aged woman I know in our area has

> thyroid problems.

>

> We already use the celtic sea salt, and I add kelp to our soups. It's a

> great idea!

>

> Regarding the son-rise program, where are you located?

>

> Haven

>

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:So how do I get this?  Do I call my doctor and tell him I want a compounded formula?  Will insurance cover it?My pharmacist said mine was being discontinued and I would have to call my doctor and get put on synthroid!

Thanks,Haven

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Hi Haven, I live in Kingwood near Bush airport. Good using celtic, we crave it

now. You can just slowly start adding ocean vegetables to your regular meals.

Just soak in water and they rehydrate. Then rinse and add as you would any

vegetable. You might try adding to an omelet, or a meatball. I used to add a

tiny amt and then gradually got my family used to more. I love this meal:

saute ghee/onions

add steamed quinoa (i steam like rice)

add matchstick carrots

add soaked/rinsed arame

Top with celtic salt. Eventually I got my kids used to it topped with raw yolk.

Now I probably use ocean vegetables 2x a week.

Dulse nice just throwing it in some coconut oil for a few seconds on med heat.

Or raw as part of a trail mix.

Try to get rid of fluoride sources....sounds like you already have....just in

case.

Let me know about SonRise...done wonders for my people (including bring peace to

me)

>

> Thanks !

>

> I would be interested in knowing how to improve the thyroid with diet. I

> just learned they are discontinuing Armour thyroid. No doubt probably due

> to some payoffs here and there, and ow they want to force all of us who are

> hypothyroid to go on synthetics. I am trying to do it with L-tyrosine and

> iodine and a couple of other things. I refuse to take synthetic hormone.

> I'd rather do the whole thing naturally. I wasn't on a very high dose

> anyway --only 60 mg a day, but I don't want to go back to the way I felt

> went my thyroid started going downhill. This is just another sign of our

> toxic times. Just about every middle-aged woman I know in our area has

> thyroid problems.

>

> We already use the celtic sea salt, and I add kelp to our soups. It's a

> great idea!

>

> Regarding the son-rise program, where are you located?

>

> Haven

>

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are the " ocean vegetables " from the ocean? (I know I'm going to feel like an idiot when you answer). Is the arame and quinoa ocean vegetables.  I thought quinoa was a grain.  If so , does sit have gluten?

We just started coconut Kefir yesterday, and wow!  I already see a lot less stimming!  Can this be possible?  My son loves the stuff!Haven

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Yes ocean vegetables from the sea, so source important Whole Foods good. Not a

dumb question, we all grew up on twinkies....I used to sob in my kitchen trying

to pronounce all this shit.

Body Ecology uses " seed like " grains and we soak them to make them digestable.

Yes gluten free. Quinoa a great source of protein.

Young coconut kefir yes is very powerful and cleansing. Mineral rich and

alkalyzing. Adds much needed good flora. This will upregulate Th1 immune

response (our kids need so desperately). Once we change the landscape of the

gut, the kids will want the good foods. The sick gut just begs for processed

foods, even the gfcf ones. Over two years of daily work like this my son was

kind of like a dimmer...he just slowly turned on again. remarkable

As for stimming reducing, we too noticed that our child didn't do this as much

step by step over the months and years as we cleaned up his body. However I

look forward to sharing SonRise with you too Haven, as the kids are doing the

best they can. The stims are their way to help themselves. When we stop

them...new ones just arise. When we stop judgeing them and realize they are

doing the best they can, we can see the stims as useful to them. It's a way

to connect with them and start to bridge the social gap. Rather than always

trying to change them and get them to be " normal. " We join them right where

they are.

Of course we all want " normal. " This isn't bad to want this, but we must meet

the kids where they are to show them the way out. Trying to get them " out "

won't work either. We have to truly go where they are, form a relationship and

then when they are OPEN to us we can show them the way. Otherwise you are

just " teaching " skills, but never getting to the relationship. Imagine someone

coming over to you and stopping you from what you are doing. Though we do this

with good intentions and we love our kids, we are not loving them and certainly

not forming a relationsip doing this. Then we wonder why they aren't socially

typical. geez we as their own parents have never even modeled this for

them....not since the diagnosis anyway.

Haven good for you to be open to keep learning. It inspires me to keep going

too. Some serve yck everyday. I personally felt important to rotate for the

reactive gut. I found that even the healing foods may cause reactions with the

reactive gut. So I just did my best to rotate it all. No where near

perfect.....just did my best to not get into habits.

Eventually anything my kids craved I took away. It's all feeding the sick gut.

Once immune function restored and gut flora restored then we can serve fruit

again....now this can be the prebiotic!

Love

>

> are the " ocean vegetables " from the ocean? (I know I'm going to feel like an

> idiot when you answer). Is the arame and quinoa ocean vegetables. I thought

> quinoa was a grain. If so , does sit have gluten?

>

> We just started coconut Kefir yesterday, and wow! I already see a lot less

> stimming! Can this be possible? My son loves the stuff!

>

> Haven

>

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I do the hand flapping with my son sometimes - it's kind of relaxing. :) Of

course, I have Ehlers Danlos floppy hand problems, so my flapping always turns

into one-handed clapping! =) LOL!

:)

Bonnie J.

> When we stop judgeing them and realize they are doing the best they can, we

can see the stims as useful to them. It's a way to connect with them and

start to bridge the social gap. Rather than always trying to change them and

get them to be " normal. " We join them right where they are.

>

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Dear :This is why we are going to Thoughtful House.  I am anxious to work with the nutritionist there and to develop a good rotational diet for Ethan.  My husband wants to eventually see Dr. Arthur Krigsman.  He was recommended to us when Ethan was three, but he was only in New York at that time, and we just couldn't afford to go.

My husband thinks my son needs to have a colonoscopy and endoscopy to get at the root of his problems.  I am terrified about this.  My son had to go to the operating room for extensive dental work (his baby teeth were demineralizing).  He had a horrible time coming out of the anesthesia.

My son has had tummy trouble since birth.  That is the one thing I have to confess was there at the beginning.  Perhaps it should have been a sign to us not to vaccinate.  That and he had to be hospitalized at one week due to hyperbilirubin anemia.  Once he got past that, he was normal except for the chronic colic.  We had a hard time finding a formula to supplement breastfeeding with.  EVERYTHING overnight.  The stomach problems just got much worse.  Putting him GF/CF helped a great deal.

My son loves potatoes!  I have often thought we should take him off potatoes.  But there are so few vegetables he will eat.  I am having such a hard time with our school, and I was so low today.  He STILL has made no progress in reading comp.  I fear he's out of time, and now he will struggle all his school years.

I am anxious to visit HALO.  I can't wait!  How far in advance do I need to call them and ask to come?Thanks,Haven

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Call HALO today and talk to Trish about coming to visit. I will be there today and next week on Monday, Tuesday and possibly Friday for RPM sessions and volunteering.

As for anesthesia what kind of issues did your son have coming out of this procedure? My son also had a difficult time he was very very agitated and thrashing so much it took two of us to hold him down for hours. After that, the next time he was given Demerol twice before being fully awake and that helped greatly.

I know many patients at T-house do the endoscopy I would be curious as to what is being found and how it is being treated. This is quite an ordeal to put your child through. Acceptable of course if something is determined to be wrong and a treatment can be recommended. My child had severe diarrhea and colic as a baby and toddler then it seemed to change to severe constipation. I remember his diaper rash to cause open wounds that would bleed. Now after a force feeding program and supplementation to correct the pain while digesting food we keep constipation in check with OxyPowder.

There is also another doctor in town Dr. Zweiner pediatric Gastroentranologist at Dell Children's center I believe. I went to see him 10 years ago and he wasn't anxious to do a endoscopy then but perhaps he's seen enough of our kids now that he may have a different opinion and not just a lack of one as to why their digestive systems are so wrecked. Perhaps someone on this list can enlighten you further on this doctor?

Trina

Re: Re: Is Autism treatable and recoverable?

Dear :This is why we are going to Thoughtful House. I am anxious to work with the nutritionist there and to develop a good rotational diet for Ethan. My husband wants to eventually see Dr. Arthur Krigsman. He was recommended to us when Ethan was three, but he was only in New York at that time, and we just couldn't afford to go.My husband thinks my son needs to have a colonoscopy and endoscopy to get at the root of his problems. I am terrified about this. My son had to go to the operating room for extensive dental work (his baby teeth were demineralizing). He had a horrible time coming out of the anesthesia.My son has had tummy trouble since birth. That is the one thing I have to confess was there at the beginning. Perhaps it should have been a sign to us not to vaccinate. That and he had to be hospitalized at one week due to hyperbilirubin anemia. Once he got past that, he was normal except for the chronic colic. We had a hard time finding a formula to supplement breastfeeding with. EVERYTHING overnight. The stomach problems just got much worse. Putting him GF/CF helped a great deal.My son loves potatoes! I have often thought we should take him off potatoes. But there are so few vegetables he will eat. I am having such a hard time with our school, and I was so low today. He STILL has made no progress in reading comp. I fear he's out of time, and now he will struggle all his school years.I am anxious to visit HALO. I can't wait! How far in advance do I need to call them and ask to come?Thanks,Haven

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We did not have a good experience with Dr. Zweiner, in fact it was quite horrible. Feel free to email me with specifics but I can tell you 3 years ago he had no idea about our kids issues. He emotionally damaged my son by the things he said to him.

We are now patients at TH and did the endoscope/colonoscopy and pill cam. All were well warranted after 5 years of complete incontinence. The endoscope and colonoscopy found very little, the pill cam found major damage to the small intestine. Dr. K's treatment for my son has helped immensely. He went from being completely incontinent (2-3 accidents per day) to now minimal 'flare-ups' occasionally, the rest of the time he has full bowel control. Please email me if you want to know more about that as well.

Kecia

 

There is also another doctor in town Dr. Zweiner pediatric Gastroentranologist at Dell Children's center I believe. I went to see him 10 years ago and he wasn't anxious to do a endoscopy then but perhaps he's seen enough of our kids now that he may have a different opinion and not just a lack of one as to why their digestive systems are so wrecked. Perhaps someone on this list can enlighten you further on this doctor?

Trina

----- Original Message -----.

-- http://www.naacentraltexas.org

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Failed by main stream medicine we are left with so few choices which is really a shame. I wonder if it would be worthwhile to show your pill cam results to this doctor and tell him how your sons improved. I wasn't crazy about the guy but it sure would be wonderful if someone at Dell Children's would take up our cause and have it covered under insurance. There are so many out there who could never afford T-house in a million years. My heart goes out to all of them when I think how much my son has improved by using different approaches.

What are you doing these days after your results to help with incontinence? Ours cleared up with chelation but we still battle constipation and treat that daily with Oxypowder. But I wonder if there is more I could do. Thanks so much Kecia for the insight, so glad to hear your son is doing well.

Trina

Re: Re: Is Autism treatable and recoverable?

We did not have a good experience with Dr. Zweiner, in fact it was quite horrible. Feel free to email me with specifics but I can tell you 3 years ago he had no idea about our kids issues. He emotionally damaged my son by the things he said to him.

We are now patients at TH and did the endoscope/colonoscopy and pill cam. All were well warranted after 5 years of complete incontinence. The endoscope and colonoscopy found very little, the pill cam found major damage to the small intestine. Dr. K's treatment for my son has helped immensely. He went from being completely incontinent (2-3 accidents per day) to now minimal 'flare-ups' occasionally, the rest of the time he has full bowel control. Please email me if you want to know more about that as well.

Kecia

On Fri, Oct 23, 2009 at 3:54 AM, trina sherman <csherman7austin (DOT) rr.com> wrote:

There is also another doctor in town Dr. Zweiner pediatric Gastroentranologist at Dell Children's center I believe. I went to see him 10 years ago and he wasn't anxious to do a endoscopy then but perhaps he's seen enough of our kids now that he may have a different opinion and not just a lack of one as to why their digestive systems are so wrecked. Perhaps someone on this list can enlighten you further on this doctor?

Trina

----- Original Message -----.

-- http://www.naacentraltexas.org

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Trina:What is the difference between OxyPowder and MiraLax?  We don't have to use the MiraLax often anymore, but sometimes we do.  We usually can keep him moving with extra vitamin C and extra buffered magnesium oxide.  We tried the other forms of magnesium, but they didn't work.

Has anyone out there had experience with Calm PRT?Thanks,Haven

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We used Miralax for about a year but it stopped being effective over time and I didn't want to use a RX forever. Oxypowder contains Ozonated Magnesium Oxides 2746mg, Natural citric acid 100mg, Organic Geranium-132 22mg. You can see more at www.oxypowder.com or call 1-. I have given this to my parents and my NT kids occasionally too. It is not nearly as (pardon the expression) explosive as Miralax and I've only recommended it to one person it didn't work for. I'm kind of a cheerleader for this stuff I make sure Peoples has it in stock since I send so many friends over there. Let me know if it works for you if you try it.

Trina

Re: Re: Is Autism treatable and recoverable?

Trina:What is the difference between OxyPowder and MiraLax? We don't have to use the MiraLax often anymore, but sometimes we do. We usually can keep him moving with extra vitamin C and extra buffered magnesium oxide. We tried the other forms of magnesium, but they didn't work.Has anyone out there had experience with Calm PRT?Thanks,Haven

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The main cause of constipation appears to be the nerves in the GI tract that stimulate the GI tract movement are paralyzed by bacteria. Long-term anti-bacterials are usually given. Some work better than others. Go to the autism biomed forums to learn about that. The other thing that slows digestion are worms. They secrete things that purposely slow down digestion. I am wondering if the T-House doctors are finding worms with the pill cam. Many on the autism biomed forums report seeing them come out with proper treatment. Most worm treatments are not working.

Love and prayers,

Heidi N

"What are you doing these days after your results to help with incontinence? Ours cleared up with chelation but we still battle constipation and treat that daily with Oxypowder. But I wonder if there is more I could do. Thanks so much Kecia for the insight, so glad to hear your son is doing well."Trina

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We had the same experience with Dr. Zwienner 10 years ago. I assure you, he has been aware of our kids issues for many years and has chosen to ignore them. To me that is malpractice and putting our children at risk. There is probably a number of people who have seen him and then taken their child to Thoughful house, and discovered there child is very ill. Might that not be a reason for a lawsuit against Dr. Zwienner. I criticized him to another doctor and he called me and said he would see Tristan again, he did write a recommendation for digestive enzymes when I showed him information about Houston's, and he did agree the GFCF diet would be good. I gave him a paper of Dr. Wakefield, and he seemed interested. Then when Tristan had severe constipation I called to make an appointment and they told me another doctor was seeing patients with autism. I can't remember her name, we went to her once. She said she could not/would not scope, but she prescribed for the constipation protocol. She then told us we should take him to the Thoughtful House which was opening the following January. We looked into it but did not have the high out of pocket cost of the treatment. It would be fair if parents got together who have proof of their child's serious intestional disorder, and sued Dr.Zwienner.

C.

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When you go to T-house and you file with your insurance do they pay for

the pill cam? I wonder if you could go to another big city and get it

covered by insurance with another Gastro guy. What is the protocol for

constipation/diarrhea? Is it just Miralax (oxypowder) and digestive

enzymes and a gluten free casein free diet? If so why would you go to

T-house unless you just wanted to see if your child's gut was abnormal.

If there is no treatment other than that forgive my ignorance....what's

the point?

I don't know if you can sue a doctor for not treating your child perhaps

he isn't doing anything because even if the facts are known the

treatment is not available and he can't prescribe anything.

I think until Doctors start getting an incentive to use herbal

medications they will never get on board. Perhaps the testing is how the

doctors at T-house are making a living? Not that it's bad to make a

living and I am sure the tests are great for understanding the issue at

hand but not taking insurance is keeping lots of kids who cannot afford

the out of pocket in a bad spot. Still that doesn't explain why

Zweiner wouldn't do a pill cam he'd make money for his time and for

the test also. I wonder if what he finds in all these kids with Autism

is so similar and a paper trail leads to vaccines as the cause for the

gut issues? What if he doesn't want to know or doesn't want to tell and

that is why he is refusing to see any of us. Hmmmm

You know lots of things make me go hmmmmmmm these days. Keep up the fight.

Carlson wrote:

>

>

> We had the same experience with Dr. Zwienner 10 years ago. I assure

> you, he has been aware of our kids issues for many years and has

> chosen to ignore them. To me that is malpractice and putting our

> children at risk. There is probably a number of people who have seen

> him and then taken their child to Thoughful house, and discovered

> there child is very ill. Might that not be a reason for a lawsuit

> against Dr. Zwienner. I criticized him to another doctor and he

> called me and said he would see Tristan again, he did write

> a recommendation for digestive enzymes when I showed him

> information about Houston's, and he did agree the GFCF diet would be

> good. I gave him a paper of Dr. Wakefield, and he seemed interested.

> Then when Tristan had severe constipation I called to make an

> appointment and they told me another doctor was seeing patients with

> autism. I can't remember her name, we went to her once. She said she

> could not/would not scope, but she prescribed for the constipation

> protocol. She then told us we should take him to the Thoughtful House

> which was opening the following January. We looked into it but did

> not have the high out of pocket cost of the treatment. It would be

> fair if parents got together who have proof of their child's serious

> intestional disorder, and sued Dr.Zwienner.

>

> C.

>

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As far as I know, only Dr. Krigsman at Thoughtful House and Dr. Tim Buie in

Massachusetts (?) do pill cams. When my son had his done at Thoughtful House,

we paid out of pocket and 80% was reimbursed by our health insurance. I don't

know if that is common or not - our health insurance seems to pay for a lot of

things others don't.

The treatment for autistic enterocolitis is most definitely not just a GF/CF

diet and Miralax. There are several levels of treatment, and they vary

depending on the kid. For my son, we started with Entocort and Pentasa (two

drugs to decrease intestinal inflammation). We were supposed to move on to

Prednisone but my son's gut healed before that became necessary.

If you're truly interested in all the various treatments for gut inflammation

Thoughtful House prescribes, they have their own Yahoo group where they are

discussed frequently.

As a side note, I had a friend back in Washington attempt to get her son's

" generic " pediatic GI doctor at the Seattle children's hospital agree to do a

pill cam on her son (so it would be covered by insurance), and he would not. It

was not a procedure he was comfortable with doing, even after Dr. Krigsman came

and did a presentation to his staff (and other doctors in the Seattle area)

about it.

-

> >

> >

> > We had the same experience with Dr. Zwienner 10 years ago. I assure

> > you, he has been aware of our kids issues for many years and has

> > chosen to ignore them. To me that is malpractice and putting our

> > children at risk. There is probably a number of people who have seen

> > him and then taken their child to Thoughful house, and discovered

> > there child is very ill. Might that not be a reason for a lawsuit

> > against Dr. Zwienner. I criticized him to another doctor and he

> > called me and said he would see Tristan again, he did write

> > a recommendation for digestive enzymes when I showed him

> > information about Houston's, and he did agree the GFCF diet would be

> > good. I gave him a paper of Dr. Wakefield, and he seemed interested.

> > Then when Tristan had severe constipation I called to make an

> > appointment and they told me another doctor was seeing patients with

> > autism. I can't remember her name, we went to her once. She said she

> > could not/would not scope, but she prescribed for the constipation

> > protocol. She then told us we should take him to the Thoughtful House

> > which was opening the following January. We looked into it but did

> > not have the high out of pocket cost of the treatment. It would be

> > fair if parents got together who have proof of their child's serious

> > intestional disorder, and sued Dr.Zwienner.

> >

> > C.

> >

>

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