Re: Dr Julu - Breakspeare Hospital - Sophie Agnew

[Guest guest]

Glad I am doing TST..................

Mandi x

Any comments??

[Guest guest]

Dear ,

Dr Goyal recommended Dr Julu's test to my son as well.Unfortunately I haven't

done it yet! I am sure my son will be in much worst condition in terms of

oxgygen level as he has constant hyperventilation.

We've been doing TST since April I think.There was a time in September, after

the second package of excersises his breathing was better even My GP made a

comment on it,then he increased his hyperventilation again.

Thank you for sharing as I have now an idea what Dr Julu is focusing on.

Wishing you best

nevin

>

> We visited yesterday to do EEG synchronised with Autonomic brainstem checks

and other bodily functions

>

> The instant observation was regarding skin measurements of oxygen and carbon

dioxide emissions

>

> Sophie's carbon dioxide emissions were fine, but her oxygen emissions were 10%

of a typical child. Dr Juku said this is the case EVERY DAY with ASD children.

>

> What it means is the oxygen is drastically reduced in the tiniest blood

capillieries hence the deepest brain tissues. He believes this is becasue of

bodily infection causing the liver to pump out massive amounts of

immunoglubulin. The immunoglobulin maolecules are so large that they block the

small blood capilleries hence oxygen cannot get though well.

>

> He checked using an oxygen mask, and oxygen levels reverted to normal. Hence

lungs and heart are fine, but capilleries are blocked nearly

>

> Any comments??

>

> Thanks

>

>

>

[Guest guest]

hi peter

maybe you should consider even the TST scotson £500 initial first 3 day

treatment assesment £80.00 or approach diane at ABR as you have the dvd

abrdanmark@...: they do extensive work on the body, all the best Isobel x

> >

> > We visited yesterday to do EEG synchronised with Autonomic brainstem checks

and other bodily functions

> >

> > The instant observation was regarding skin measurements of oxygen and carbon

dioxide emissions

> >

> > Sophie's carbon dioxide emissions were fine, but her oxygen emissions were

10% of a typical child. Dr Juku said this is the case EVERY DAY with ASD

children.

> >

> > What it means is the oxygen is drastically reduced in the tiniest blood

capillieries hence the deepest brain tissues. He believes this is becasue of

bodily infection causing the liver to pump out massive amounts of

immunoglubulin. The immunoglobulin maolecules are so large that they block the

small blood capilleries hence oxygen cannot get though well.

> >

> > He checked using an oxygen mask, and oxygen levels reverted to normal.

Hence lungs and heart are fine, but capilleries are blocked nearly

> >

> > Any comments??

> >

> > Thanks

> >

> >

> >

>

[Guest guest]

Dear This is in line with TST thinking... However whilst enough oxygen is in lungs and heart, there is insufficient to go to brain due to low density of capilllaries in much of the rest of the body.. especially within the diaphragm.

My thinking.... have a look at TST.. there are many with mega gains on oxygen levels with doing the TST exercises... and if insufficient oxygen is getting to the core parts of Sophie's brain responsible for speech, then perhaps this is delaying her speech?

Good to have a little more information on reasoning behind speech delay perhaps?Tracey

 

hi peter

maybe you should consider even the TST scotson £500 initial first 3 day treatment assesment £80.00 or approach diane at ABR as you have the dvd abrdanmark@...: they do extensive work on the body, all the best Isobel x

> >

> > We visited yesterday to do EEG synchronised with Autonomic brainstem checks and other bodily functions

> >

> > The instant observation was regarding skin measurements of oxygen and carbon dioxide emissions

> >

> > Sophie's carbon dioxide emissions were fine, but her oxygen emissions were 10% of a typical child. Dr Juku said this is the case EVERY DAY with ASD children.

> >

> > What it means is the oxygen is drastically reduced in the tiniest blood capillieries hence the deepest brain tissues. He believes this is becasue of bodily infection causing the liver to pump out massive amounts of immunoglubulin. The immunoglobulin maolecules are so large that they block the small blood capilleries hence oxygen cannot get though well.

> >

> > He checked using an oxygen mask, and oxygen levels reverted to normal. Hence lungs and heart are fine, but capilleries are blocked nearly

> >

> > Any comments??

> >

> > Thanks

> >

> >

> >

>

[Guest guest]

Im not sure this is about TST though

It seems to be about blockages in tissue capilliaries and not necessarily about lungs

To: Autism-Biomedical-Europe From: Mum231ASD@...Date: Thu, 20 Jan 2011 05:54:34 -0500Subject: Re: Dr Julu - Breakspeare Hospital - Sophie Agnew

Glad I am doing TST..................

Mandi x

Any comments??

[Guest guest]

TST is not about lungs only ... it is about building capillary networks throughout the body.. Unless the correct pressures and pulses of blood are reaching capillaries, they get weak walls and do not become expansive.

The building can only take place if sufficient blood and pulse and pressure can reach these capillary sites.  I know that you are a scientist by training... would it help if I sent you something off line which deals with the science behind TST.. it is all medically based?

Tracey

 

Im not sure this is about TST though

 

It seems to be  about blockages in tissue capilliaries and not necessarily about lungs 

To: Autism-Biomedical-Europe From: Mum231ASD@...Date: Thu, 20 Jan 2011 05:54:34 -0500

Subject: Re: Dr Julu - Breakspeare Hospital - Sophie Agnew

Glad I am doing TST..................

 

Mandi x

 

Any comments??

[Guest guest]

Yes please send more info if you have it

I cannot understand capilliaries being created where none were there before

Dr Julu thinks the capilliaries and lungs are fine, simply blocked due to viral infections in the body producing big blocking molecules

To: Autism-Biomedical-Europe From: thelifechangers@...Date: Thu, 20 Jan 2011 12:29:03 +0000Subject: Re: Dr Julu - Breakspeare Hospital - Sophie Agnew

TST is not about lungs only ... it is about building capillary networks throughout the body.. Unless the correct pressures and pulses of blood are reaching capillaries, they get weak walls and do not become expansive.

The building can only take place if sufficient blood and pulse and pressure can reach these capillary sites. I know that you are a scientist by training... would it help if I sent you something off line which deals with the science behind TST.. it is all medically based?

Tracey

Im not sure this is about TST though It seems to be about blockages in tissue capilliaries and not necessarily about lungs

To: Autism-Biomedical-Europe From: Mum231ASD@...Date: Thu, 20 Jan 2011 05:54:34 -0500Subject: Re: Dr Julu - Breakspeare Hospital - Sophie Agnew

Glad I am doing TST..................

Mandi x

Any comments??

[Guest guest]

Dear ,

If you don't mind, I would like to ask you this question.

What benefit DrJulu's assessment brought to your child's treatment? Did DrJulu

make any comments to improve the condition.

I was trying to persude my GP to refer my son for this assessment but she wanted

to know the answers which I raised above.So, I am still trying..I don't know if

she has a satifactory answer from Dr Goyal..

Nevin

>

>

>

>

>

>

> Im not sure this is about TST though

>

> It seems to be about blockages in tissue capilliaries and not necessarily

about lungs

>

>

>

> To: Autism-Biomedical-Europe

> From: Mum231ASD@...

> Date: Thu, 20 Jan 2011 05:54:34 -0500

> Subject: Re: Dr Julu - Breakspeare Hospital -

Sophie Agnew

>

>

>

>

>

> Glad I am doing TST..................

>

> Mandi x

>

>

>

> Any comments??

>

[Guest guest]

Hello Nevin

I very much hope we will receive a report of the tests results and recommendations in the next 1-2 weeks - we only saw Dr Julu for the first time yesterday

I believe Dr Goyal and Dr Julu will combine all their test results from the last 2 months and decide on a strategy for Sophie

I will let you know if I hear any more about this

Best wishes

> To: Autism-Biomedical-Europe > Date: Thu, 20 Jan 2011 14:07:38 +0000> Subject: Re: Dr Julu - Breakspeare Hospital - Sophie Agnew> > > Dear ,> If you don't mind, I would like to ask you this question.> > What benefit DrJulu's assessment brought to your child's treatment? Did DrJulu make any comments to improve the condition.> I was trying to persude my GP to refer my son for this assessment but she wanted to know the answers which I raised above.So, I am still trying..I don't know if she has a satifactory answer from Dr Goyal..> Nevin> > > > > > > > > > > > > > > > > Im not sure this is about TST though> > > > It seems to be about blockages in tissue capilliaries and not necessarily about lungs> > > > > > > > To: Autism-Biomedical-Europe > > > Date: Thu, 20 Jan 2011 05:54:34 -0500> > Subject: Re: Dr Julu - Breakspeare Hospital - Sophie Agnew> > > > > > > > > > > > Glad I am doing TST..................> > > > Mandi x> > > > > > > > Any comments??> >> > > > > ------------------------------------> > DISCLAIMER> No information contained in this post is to be construed as medical advice. If you need medical advice, please seek it from a suitably qualified practitioner.>

[Guest guest]

imo the infections present in autism have preference for capillary

lining (including brain capillaries) and surrounding tissue, making them

constricted, inflammed, impermeable to oxygen etc

Natasa

>

> We visited yesterday to do EEG synchronised with Autonomic brainstem

checks and other bodily functions

>

> The instant observation was regarding skin measurements of oxygen and

carbon dioxide emissions

>

> Sophie's carbon dioxide emissions were fine, but her oxygen emissions

were 10% of a typical child. Dr Juku said this is the case EVERY DAY

with ASD children.

>

> What it means is the oxygen is drastically reduced in the tiniest

blood capillieries hence the deepest brain tissues. He believes this is

becasue of bodily infection causing the liver to pump out massive

amounts of immunoglubulin. The immunoglobulin maolecules are so large

that they block the small blood capilleries hence oxygen cannot get

though well.

>

> He checked using an oxygen mask, and oxygen levels reverted to normal.

Hence lungs and heart are fine, but capilleries are blocked nearly

>

> Any comments??

>

> Thanks

>

>

>

[Guest guest]

If the reason that the cappilaries were restriced is still there you

might not be able to 'renew' cappilaries/their networks - or better said

you can but they will revert back after a while. Not saying it is not

worth trying, but that might end up being a pointless task it the

underlying pathology is not addressed simultanously (or before).

Natasa

>

> >

> >

> > Im not sure this is about TST though

> >

> > It seems to be about blockages in tissue capilliaries and not

necessarily

> > about lungs

> >

> > ------------------------------

> > To: Autism-Biomedical-Europe

> > From: Mum231ASD@...

> > Date: Thu, 20 Jan 2011 05:54:34 -0500

> > Subject: Re: Dr Julu - Breakspeare

Hospital -

> > Sophie Agnew

> >

> >

> >

> >

> > Glad I am doing TST..................

> >

> > Mandi x

> >

> > In a message dated 20/01/2011 10:51:36 GMT Standard Time,

> > peter_2_@... writes:

> >

> > Any comments??

> >

> >

> >

> >

> >

>

[Guest guest]

, does Sophie deteriate when she has a virus or infection?  My son does and this theory would fit his circumstances.  We saw a huge difference in him when he did daily HBOT for a week at the advance centre and he has definitely improved since TST but returns to his previous distressed state following even a trivial cold.  At these times we notice his speech is much less clear and even his walking is not a stable.

Thank you for posting this information and please keep us informed.We go to Breakspear in a couple of weeks with our NT daughter and are probably going to make an appt for Charlie whilst we are there.

BW Alison R

 

We visited yesterday to do EEG synchronised with Autonomic brainstem checks and other bodily functions

The instant observation was regarding skin measurements of oxygen and carbon dioxide emissions

Sophie's carbon dioxide emissions were fine, but her oxygen emissions were 10% of a typical child. Dr Juku said this is the case EVERY DAY with ASD children.

What it means is the oxygen is drastically reduced in the tiniest blood capillieries hence the deepest brain tissues. He believes this is becasue of bodily infection causing the liver to pump out massive amounts of immunoglubulin. The immunoglobulin maolecules are so large that they block the small blood capilleries hence oxygen cannot get though well.

He checked using an oxygen mask, and oxygen levels reverted to normal. Hence lungs and heart are fine, but capilleries are blocked nearly

Any comments??

Thanks

[Guest guest]

Could well be right - what do we do therefore to reduce these infections - anti-virals after chelating ?

> To: Autism-Biomedical-Europe > Date: Thu, 20 Jan 2011 17:39:11 +0000> Subject: Re: Dr Julu - Breakspeare Hospital - Sophie Agnew> > imo the infections present in autism have preference for capillary> lining (including brain capillaries) and surrounding tissue, making them> constricted, inflammed, impermeable to oxygen etc> > Natasa> > > > > >> > We visited yesterday to do EEG synchronised with Autonomic brainstem> checks and other bodily functions> >> > The instant observation was regarding skin measurements of oxygen and> carbon dioxide emissions> >> > Sophie's carbon dioxide emissions were fine, but her oxygen emissions> were 10% of a typical child. Dr Juku said this is the case EVERY DAY> with ASD children.> >> > What it means is the oxygen is drastically reduced in the tiniest> blood capillieries hence the deepest brain tissues. He believes this is> becasue of bodily infection causing the liver to pump out massive> amounts of immunoglubulin. The immunoglobulin maolecules are so large> that they block the small blood capilleries hence oxygen cannot get> though well.> >> > He checked using an oxygen mask, and oxygen levels reverted to normal.> Hence lungs and heart are fine, but capilleries are blocked nearly> >> > Any comments??> >> > Thanks> >> > > >> > > > > ------------------------------------> > DISCLAIMER> No information contained in this post is to be construed as medical advice. If you need medical advice, please seek it from a suitably qualified practitioner.>

[Guest guest]

dear

I have had another thought about this: although Lungs again.... what about HBOT

with Mathew Ally in coventry you could email and ask his advice he is realy

helpful! www.pure-oxygen.co.uk and mathew@... he is great person

and anita likes him as much as I do.. as she told me so..you may rem. what he

said at the conference in coventry all the best Isobel x

>

>

> Im not sure this is about TST though

>

> It seems to be about blockages in tissue capilliaries and not necessarily

about lungs

>

>

>

> To: Autism-Biomedical-Europe

> From: Mum231ASD@...

> Date: Thu, 20 Jan 2011 05:54:34 -0500

> Subject: Re: Dr Julu - Breakspeare Hospital -

Sophie Agnew

>

>

>

>

>

>

>

> Glad I am doing TST..................

>

> Mandi x

>

>

>

> Any comments??

>

[Guest guest]

hello peter as i said before you may want to consider anti virals and do the

viral titer panel test with dr goyal, to look at measles. herpes,and

cytomegalavirus, Isobelx

> > >

> > > We visited yesterday to do EEG synchronised with Autonomic brainstem

> > checks and other bodily functions

> > >

> > > The instant observation was regarding skin measurements of oxygen and

> > carbon dioxide emissions

> > >

> > > Sophie's carbon dioxide emissions were fine, but her oxygen emissions

> > were 10% of a typical child. Dr Juku said this is the case EVERY DAY

> > with ASD children.

> > >

> > > What it means is the oxygen is drastically reduced in the tiniest

> > blood capillieries hence the deepest brain tissues. He believes this is

> > becasue of bodily infection causing the liver to pump out massive

> > amounts of immunoglubulin. The immunoglobulin maolecules are so large

> > that they block the small blood capilleries hence oxygen cannot get

> > though well.

> > >

> > > He checked using an oxygen mask, and oxygen levels reverted to normal.

> > Hence lungs and heart are fine, but capilleries are blocked nearly

> > >

> > > Any comments??

> > >

> > > Thanks

> > >

> > >

> > >

> >

> >

> >

> >

> > ------------------------------------

> >

> > DISCLAIMER

> > No information contained in this post is to be construed as medical advice.

If you need medical advice, please seek it from a suitably qualified

practitioner.

> >

[Guest guest]

It is exactly the same with our daughter, every time she gets a cold or an infection, she gets into a state and it is her behaviour that is the main worry, she even starts harming herself.May I ask, what does HBOT stand for?Best regardsHelenTo: Autism-Biomedical-Europe Sent: Thu, 20 January, 2011 17:48:08Subject: Re: Dr Julu - Breakspeare Hospital - Sophie Agnew

, does Sophie deteriate when she has a virus or infection? My son does and this theory would fit his circumstances. We saw a huge difference in him when he did daily HBOT for a week at the advance centre and he has definitely improved since TST but returns to his previous distressed state following even a trivial cold. At these times we notice his speech is much less clear and even his walking is not a stable.

Thank you for posting this information and please keep us informed.We go to Breakspear in a couple of weeks with our NT daughter and are probably going to make an appt for Charlie whilst we are there.

BW Alison R

We visited yesterday to do EEG synchronised with Autonomic brainstem checks and other bodily functions

The instant observation was regarding skin measurements of oxygen and carbon dioxide emissions

Sophie's carbon dioxide emissions were fine, but her oxygen emissions were 10% of a typical child. Dr Juku said this is the case EVERY DAY with ASD children.

What it means is the oxygen is drastically reduced in the tiniest blood capillieries hence the deepest brain tissues. He believes this is becasue of bodily infection causing the liver to pump out massive amounts of immunoglubulin. The immunoglobulin maolecules are so large that they block the small blood capilleries hence oxygen cannot get though well.

He checked using an oxygen mask, and oxygen levels reverted to normal. Hence lungs and heart are fine, but capilleries are blocked nearly

Any comments??

Thanks

[Guest guest]

Tatijana's seizure rate always increased with viruses.. and her behaviour always got worse when she was over it.. I think for us it was the noticeable change in oxygen reaching her brain if her body was having to fight a virus or for that matter deal with any food to which she was sensitive.

Tatijana has not had any marked change after using HyperBaric Oxygen Tank, (HBOT) however we have only ever done four dives in a week... so it may not have been enough to make a big difference for her.

Best wishese

 

It is exactly the same with our daughter, every time she gets a cold or an infection, she gets into a state and it is her behaviour that is the main worry, she even starts harming herself.

May I ask, what does HBOT stand for?

Best regardsHelen

To: Autism-Biomedical-Europe Sent: Thu, 20 January, 2011 17:48:08

Subject: Re: Dr Julu - Breakspeare Hospital - Sophie Agnew

 

, does Sophie deteriate when she has a virus or infection?  My son does and this theory would fit his circumstances.  We saw a huge difference in him when he did daily HBOT for a week at the advance centre and he has definitely improved since TST but returns to his previous distressed state following even a trivial cold.  At these times we notice his speech is much less clear and even his walking is not a stable.

Thank you for posting this information and please keep us informed.We go to Breakspear in a couple of weeks with our NT daughter and are probably going to make an appt for Charlie whilst we are there.

BW Alison R

 

We visited yesterday to do EEG synchronised with Autonomic brainstem checks and other bodily functions

The instant observation was regarding skin measurements of oxygen and carbon dioxide emissions

Sophie's carbon dioxide emissions were fine, but her oxygen emissions were 10% of a typical child. Dr Juku said this is the case EVERY DAY with ASD children.

What it means is the oxygen is drastically reduced in the tiniest blood capillieries hence the deepest brain tissues. He believes this is becasue of bodily infection causing the liver to pump out massive amounts of immunoglubulin. The immunoglobulin maolecules are so large that they block the small blood capilleries hence oxygen cannot get though well.

He checked using an oxygen mask, and oxygen levels reverted to normal. Hence lungs and heart are fine, but capilleries are blocked nearly

Any comments??

Thanks

[Guest guest]

hi helen HBOT is a form of an oxygen room that your child and you use oxygen

masks and gets a high dose for one hour or so.. many people saw fatastic results

on their children.. why dont you google it or ask mathew he is very friendly and

their are places all over the country that do it...my child doesnt get

infections anylonger i put it down to vitamin d3 and grape fruit seed extact

that we dose occasionally and his immune system has built up! my son is 8.Isobel

>

>

> >We visited yesterday to do EEG synchronised with Autonomic brainstem checks

and

> >other bodily functions

> >

> >The instant observation was regarding skin measurements of oxygen and carbon

> >dioxide emissions

> >

> >Sophie's carbon dioxide emissions were fine, but her oxygen emissions were

10%

> >of a typical child. Dr Juku said this is the case EVERY DAY with ASD

children.

> >

> >What it means is the oxygen is drastically reduced in the tiniest blood

> >capillieries hence the deepest brain tissues. He believes this is becasue of

> >bodily infection causing the liver to pump out massive amounts of

> >immunoglubulin. The immunoglobulin maolecules are so large that they block

the

> >small blood capilleries hence oxygen cannot get though well.

> >

> >He checked using an oxygen mask, and oxygen levels reverted to normal. Hence

> >lungs and heart are fine, but capilleries are blocked nearly

> >

> >Any comments??

> >

> >Thanks

> >

> >

> >

> >

>

[Guest guest]

,I would really like to know more about what Dr Julu recommends - we have been pressed several times to do this by Breakspear so far I wasn't convinced. Did Sophie wear the hat with the electrodes or did she have some mild sedation. I spoke to his assistant about this. I also wonder how do-able any breathing exercises he recommends might be sometimes Breakspear don't seem very sensitive to how difficult some of their proposals are. Our chiropracter was a bit sceptical as to whether this test would provide anything more than just a snapshot in a constantly changing picture. Its pretty expensive once you add all the bits up so I'd really like to have your view on whether you think its been worthwhile after you have had the consult with Dr Julu if you don't mind sharing.

thanks - catherineTo: ABE <autism-biomedical-europe >Sent: Thu, 20 January, 2011 16:07:24Subject: RE: Re: Dr Julu - Breakspeare Hospital - Sophie Agnew

Hello Nevin

I very much hope we will receive a report of the tests results and recommendations in the next 1-2 weeks - we only saw Dr Julu for the first time yesterday

I believe Dr Goyal and Dr Julu will combine all their test results from the last 2 months and decide on a strategy for Sophie

I will let you know if I hear any more about this

Best wishes

> To: Autism-Biomedical-Europe > Date: Thu, 20 Jan 2011 14:07:38 +0000> Subject: Re: Dr Julu - Breakspeare Hospital - Sophie Agnew> > > Dear ,> If you don't mind, I would like to ask you this question.> > What benefit DrJulu's assessment brought to your child's treatment? Did DrJulu make any comments to improve the condition.> I was trying to persude my GP to refer my son for this assessment but she wanted to know the answers which I raised above.So, I am still trying..I don't know if she has a satifactory answer from Dr Goyal..> Nevin> > > > > > > > > > > > > > > > > Im not sure this is about TST though> > > > It seems to be about blockages in tissue capilliaries and not necessarily about lungs> > > > > > > > To: Autism-Biomedical-Europe > > > Date: Thu, 20 Jan 2011 05:54:34 -0500> > Subject: Re: Dr Julu - Breakspeare Hospital - Sophie Agnew> > > > > > > > > > > > Glad I am doing

TST..................> > > > Mandi x> > > > > > > > Any comments??> >> > > > > ------------------------------------> > DISCLAIMER> No information contained in this post is to be construed as medical advice. If you need medical advice, please seek it from a suitably qualified practitioner.>

[Guest guest]

Hello

Will let you know what Drs Julu and Goyal recommend once I know

Sophie didnt have any sedation - she just lay down on me as I sat on a patient table, and my wife was facing her. It was all fairly easy to do, but thats becasue Sophie is very calm and doesnt have any behvioural issues. She actually started laughing as time went on cos she was amazed how much attention she was getting - yes there were about 25 wires on head and a lot more all over body but she didnt mind- just enjoyed a bit of a lie down !

I dont see why it would be a snapshot and not a steady state of being - skin oxygen emission is something he sees every day at 10% of norm - doesnt make sense to say it s a snapshot

Thanks

To: Autism-Biomedical-Europe From: catherine_castiglione@...Date: Thu, 20 Jan 2011 14:36:17 -0800Subject: Re: Re: Dr Julu - Breakspeare Hospital - Sophie Agnew

,

I would really like to know more about what Dr Julu recommends - we have been pressed several times to do this by Breakspear so far I wasn't convinced. Did Sophie wear the hat with the electrodes or did she have some mild sedation. I spoke to his assistant about this. I also wonder how do-able any breathing exercises he recommends might be sometimes Breakspear don't seem very sensitive to how difficult some of their proposals are. Our chiropracter was a bit sceptical as to whether this test would provide anything more than just a snapshot in a constantly changing picture. Its pretty expensive once you add all the bits up so I'd really like to have your view on whether you think its been worthwhile after you have had the consult with Dr Julu if you don't mind sharing. thanks - catherine

To: ABE <autism-biomedical-europe >Sent: Thu, 20 January, 2011 16:07:24Subject: RE: Re: Dr Julu - Breakspeare Hospital - Sophie Agnew

Hello Nevin I very much hope we will receive a report of the tests results and recommendations in the next 1-2 weeks - we only saw Dr Julu for the first time yesterday I believe Dr Goyal and Dr Julu will combine all their test results from the last 2 months and decide on a strategy for Sophie I will let you know if I hear any more about this Best wishes > To: Autism-Biomedical-Europe > Date: Thu, 20 Jan 2011 14:07:38 +0000> Subject: Re: Dr Julu - Breakspeare Hospital - Sophie Agnew> > > Dear ,> If you don't mind, I would like to ask you this question.> > What benefit DrJulu's assessment brought to your child's treatment? Did DrJulu make any comments to improve the condition.> I was trying to persude my GP to refer my son for this assessment but she wanted to know the answers which I raised above.So, I am still trying..I don't know if she has a satifactory answer from Dr Goyal..> Nevin> > > > > > > > > > > > > > > > > Im not sure this is about TST though> > > > It seems to be about blockages in tissue capilliaries and not necessarily about lungs> > > > > > > > To: Autism-Biomedical-Europe > > > Date: Thu, 20 Jan 2011 05:54:34 -0500> > Subject: Re: Dr Julu - Breakspeare Hospital - Sophie Agnew> > > > > > > > > > > > Glad I am doing TST..................> > > > Mandi x> > > > > > > > Any comments??> >> > > > > ------------------------------------> > DISCLAIMER> No information contained in this post is to be construed as medical advice. If you need medical advice, please seek it from a suitably qualified practitioner.>

[Guest guest]

Hello

We will have this done beginning of Feb too and not sure what to expect. Our daughter is hyperactive anyway so she might do it under mild sedation. We are doing it as we are trying to rule out petite mal but God knows what will discover

Will let you know how it goes

Helen

To: Autism-Biomedical-Europe Sent: Thu, 20 January, 2011 22:36:17Subject: Re: Re: Dr Julu - Breakspeare Hospital - Sophie Agnew

,

I would really like to know more about what Dr Julu recommends - we have been pressed several times to do this by Breakspear so far I wasn't convinced. Did Sophie wear the hat with the electrodes or did she have some mild sedation. I spoke to his assistant about this. I also wonder how do-able any breathing exercises he recommends might be sometimes Breakspear don't seem very sensitive to how difficult some of their proposals are. Our chiropracter was a bit sceptical as to whether this test would provide anything more than just a snapshot in a constantly changing picture. Its pretty expensive once you add all the bits up so I'd really like to have your view on whether you think its been worthwhile after you have had the consult with Dr Julu if you don't mind sharing. thanks - catherine

To: ABE <autism-biomedical-europe >Sent: Thu, 20 January, 2011 16:07:24Subject: RE: Re: Dr Julu - Breakspeare Hospital - Sophie Agnew

Hello Nevin I very much hope we will receive a report of the tests results and recommendations in the next 1-2 weeks - we only saw Dr Julu for the first time yesterday I believe Dr Goyal and Dr Julu will combine all their test results from the last 2 months and decide on a strategy for Sophie I will let you know if I hear any more about this Best wishes > To: Autism-Biomedical-Europe > Date: Thu, 20 Jan 2011 14:07:38 +0000> Subject: Re: Dr Julu - Breakspeare Hospital - Sophie Agnew> > > Dear ,> If you don't mind, I would like to ask you this question.> > What benefit DrJulu's assessment brought to your child's treatment? Did DrJulu make any comments to improve the condition.> I was trying to persude my GP to

refer my son for this assessment but she wanted to know the answers which I raised above.So, I am still trying..I don't know if she has a satifactory answer from Dr Goyal..> Nevin> > > > > > > > > > > > > > > > > Im not sure this is about TST though> > > > It seems to be

about blockages in tissue capilliaries and not necessarily about lungs> > > > > > > > To: Autism-Biomedical-Europe > > > Date: Thu, 20 Jan 2011 05:54:34 -0500> > Subject: Re: Dr Julu - Breakspeare Hospital - Sophie Agnew> > > > > > > > > > > > Glad I am doing TST..................> > > > Mandi x> > > > > > > > Any comments??> >> > > > > ------------------------------------> > DISCLAIMER> No information contained in this post is to be construed as medical advice. If you need medical advice, please seek it from a suitably qualified practitioner.> Yahoo!

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